tony@thearcca.org
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September 15, 2014
Four ways to read: Online, Word, PDF, or eMail
SEPTEMBER IS FASD AWARENESS MONTH 

Please help support the Monday Morning Memo. Send your annual $25 check to 1225 8th Street, Suite 350, Sacramento, CA 95814 or signup online for "The Arc California Membership" 

  

Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.


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Tony Anderson, Executive Director, The Arc California

Monday September 15, 2014

The lawsuit coalition will be meeting in San Diego to receive updates from our counsel on The Arc CA and UCP San Diego v DHCS, and DDS. The lawsuit challenges that the state made cuts in violation of CMS Medicaid rules, and a couple remaining cuts still causes harm (increased closure days, and half-day /full day billing rules). Learn more on our Legal Action web pages.

 

Tuesday September 16, 2014

The LEAD Center will be hosting a webinar at 12 noon (PST), Improving Services for All Job Seekers by Improving Services to Customers with Disabilities, featuring Rebecca Salon, Project Director and Elizabeth Jennings, Assistant Project Director, National Center on Leadership for Employment and Economic Advancement of People with Disabilities (LEAD Center). "During this session, participants will learn about: (1) The new legislative requirements under WIOA that relate to accessibility; (2) How to tap into existing technical assistance to make sure that you are in compliance; (3) ...existing partnerships and resources that you can utilize now."

 

Today is the deadline day to register for the National Advisory Mental Health Council (NAMHC) open policy session (see Thursday September 18, 2014).

 

The Lanterman Coalition will be hosting a subgroup of advocates focused on behavioral support services funded by the Medi-Cal from 1 - 3 pm in Sacramento.

 

Wednesday September 17, 2014

The SCDD Area Board 3 will be providing a presentation, Regional Center Fair Hearings - Improving Your Chance of Successful Outcomes, featuring Katie Hornberger, Director the Office of Clients' Rights Advocacy,Disability Rights California from 9:00 a.m. to 11:00 a.m., 2033 Howe Avenue, Suite 160, Sacramento, CA 95825. "This presentation is free of charge, but RSVPs are required.To RSVP, please call 916-263-3085 or email: Monique.vonschimmelmann@scdd.ca.gov and provide your name, email address, and phone number. Space is limited. If you need any special accommodations, please let us know beforehand."

 

We'll be participating in the stakeholder group for the Department of Developmental Services Self-Determination service development in Sacramento. To learn more about the California Self-Determination efforts and rules visit the SDP Webpage.

 

Thursday September 18, 2014

The National Advisory Mental Health Council (NAMHC) will be holding an open policy session at the Neuroscience Center, 6001 Executive Boulevard, Rockville, Maryland in conference room C/D/E, first floor Conference Center. The meeting is scheduled to begin at 8:30 am and conclude by 12:30 p.m.  "This policy session is an excellent opportunity for the mental health research and advocacy communities to become informed about current programs and priorities of the National Institute of Mental Health (NIMH). The Open Policy Session will be held Our council meeting will also be available for viewing over the internet via the NIH videocast website at http://videocast.nih.gov/default.asp.The discussions planned include a report from NIMH Director, Dr. Thomas Insel as well as a discussion of the next phase of the NIMH Strategic Plan. NIMH also plans to have an extended discussion of several concepts for potential future funding initiatives. Time for public comments is currently scheduled for 12:15 pm, although the time could change. We recommend that you check the website for additional details concerning the agenda, available soon at http://www.nimh.nih.gov/about/advisory-boards-and-groups/namhc/index.shtml

 

The SCDD Area Board 3 will be hosting a workshop, Conservatorship, Public Benefits, & Trust Planning, featuring Michael Pearce,Special Needs Trust Attorney, Law office of Michael Pearce from 9 am to 2;30 pm at More Rehab Enterprises, 399 Placerville Drive, Placerville, CA 95667. The training will be delivered in two parts: Part 1 (9 a.m.-11:30 a.m.) Preparing for Age 18 & Transition to Adulthood,Conservatorships (Understanding Conservatorships, will my child need one, alternatives to Conservatorship) & Public Benefits (obtaining SSI & Medi-Cal benefits at age 18) and Part 2 (12:30 p.m.-2:30 p.m.) Trust Planning for Families with Special Needs, Trust Planning Basics, Special Needs Trusts, Preserving Public Benefits for your child with disabilities. To RSVP, please call 916-263-3085 or email: monique.vonschimmelmann@scdd.ca.gov and provide your name,email address, and phone number. Space is limited.

 

The Interagency Coordinating Committee for Early Start (ICC) Executive Committee will be meeting from 10:00 A.M.-12:00 P.M. and will (1) discuss updating the ICC By-Laws, (2) DDS will give a department update and update on the State Systemic Improvement Plan. Following the executive committee the Committee of the Whole (COTW) will meet from 1:30 P.M.-4:30 P.M. to discuss special populations (the homeless, wards of the court, domestic violence and American Indians) as theyrelate to the birth to three populations. Get the agendas and learn more at: www.dds.ca.gov/earlystart.

 

Friday September 19, 2014

The CCLTSS will be meeting in Sacramento from 9 am to 10:30 am at the California Foundation for Independent Living Centers (CFILC).

 

The General Interagency Coordinating Committee will be meeting from 8:30 A.M. - 1:30 P.M. and will "hear reports from the Chairs of the Executive Committee, the Committee of the Whole and State Agencies. There will be a special presentation by WestEd staff-Orientation to Early Start Personnel Development Activities 2014/15. The ICC will also receive input from the public and parents interested in early intervention."


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THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION  
Public Policy Reports 
 

 

We Can Change Things for the Better This Fall

 

Dear Friends,

 

Every year the Legislature takes actions that decide whether people with developmental disabilities get the supports and services they need. And it's no secret that services have deteriorated because of budget freezes and cuts, among other actions of the Legislature.

 

This fall we're asking you to be part of a coordinated, statewide push to make lawmakers hear from the people who are really effected most - with the goal of making some real progress in 2015.

 

As someone who worked for legislators for years, I can assure you that it can make a big difference when they hear about problems from voters like you in their own districts. When I walk in to talk to a legislator who has heard from people back home, it can be a night-and-day difference from when I try to get the attention of one who has no idea what I'm talking about or how it effects their constituents.

 

(Did I tell you about the time I went to talk to a legislative staffer about developmental services and, after a minute or so, he asked me if I was talking about redevelopment agencies?  I'm not making this up.)

 

The fight over the developmental services budget and some other key issues is going to be as sharp next year as it has been in a long time. We're going to need a few - OK, a lot - more legislators who not only know what we're talking about but feel it personally because they've heard from people like you.

 

So here's what we're asking you to do. It takes more time (and, let's face it, courage) than the make-a-call or send-an-email Action Alerts I usually send you. And because of that, it will have more impact on your legislators. They'll know you're someone who cares enough to show up, speak up, and maybe even talk to your friends about it. People who keep their jobs in elections care about people like you who do that.

 

Here's where to start:

 

You have two legislators, a state senator (it's not Dianne Feinstein) and Assembly representative. If you don't know who they are, they probably don't know who you are, either, and it's time for both of you to find out. Go to www.TheArcCA.org, scroll down a little to the blue and white "Contact Your Legislators" button, put in your ZIP code, click on "Go," then scroll down a little to "My Elected Officials." To get their numbers, click on their names and then on "Contact."

 

The first thing to know about the two legislators listed there is whether they are going to be out of office at the end of this year. One good way to find out is to call them and ask.

 

If your senator's term goes on for two more years, or your senator or assemblymember is running for reelection this November, or your assemblymember is running for the Senate in November, you can ask their staffer who answers the phone a couple of things. How do you (or you and a group of people from the developmental disability community, who you can get together later) make an appointment with the legislator? And do they have any town hall meetings, campaign events, or other public events coming up where you can talk to them?

 

You're more likely to get appointments with the legislators themselves if you can say honestly that you are part of a group, but even an individual can get in to talk to a legislator sometimes. If not, you'll get scheduled with a staffer, and that's OK.

 

When you talk to the legislator or staffer, start by telling them who you are and why you're there (such as, "My daughter has autism and is having trouble getting the services she needs through our regional center, and I'm here to ask for your help").

 

Don't feel like you need to know everything before you go talk to them. They don't, why should you? But you do know how the problem effects you and your loved ones, so tell them that. Speak from the heart. Even if your voice shakes.

 

If you have a specific, individual problem, it may be that the legislator can help solve it with a letter or phone call to the agency involved. That's called constituent work. Legislators like to do it because it's emotionally satisfying to actually solve somebody's problem - and also because they're politicians and they know that they will have earned your gratitude for ever.

 

More likely, though, your problem is the same, big problem people all over the state have. Usually that will be that the Legislature isn't funding the services enough to meet the needs, though it may be any number of other things.

 

You don't need to know what the solution is. Make it their problem, and ask them to work on solving it. Feel free to suggest they work on it with your advocates in the Capitol. That's us, among others.

 

If a legislator is going to be out of office at the end of this year, ask their staff, "who are the candidates running to replace them". Then try to get an appointment or find a campaign event where you can talk to them. If that doesn't work, or it your legislator loses in November, you can start working on the new senator or assemblymember then.

 

At the end of talking to one of them, sum up what you agreed to do and what you think they agreed to do. ("So I'll get your staff the information you asked for, and then you'll contact the department about it, right?" or "So if you're elected, you'll bring this up in the Legislature next year and get back to me then, correct?")

 

Last thing before you go, ask them to pose for a picture with you. They'll love that.

 

Then follow up with a letter to the legislator thanking him or her (everybody likes to be thanked) and again summing up what you think you and they agreed on.

 

If you talked with a staffer with or instead of the legislator, get that person's name and number for future use. You have a relationship with them now, and relationships are everything.

 

Finally, send me an email letting me know who you talked to and how it went. For a professional advocate like me, that information can be pure gold. Include the pictures of you and them -- you might see if on our web site.

 

How's that for a fall project? It's a lot of work, but I know you're interested in helping with the campaign because you've read this far. If you were satisfied with how everything is going for you and your loved ones and others in our community, you would have stopped 20 paragraphs ago.

 

Please make those first calls to your two legislators now.

 

And thank you for your advocacy.

 

Greg

 

PS. And another thing. If you or anybody in your family isn't a registered voter, that's the next step after the two calls. Go to www.RegisterToVote.ca.gov. The legislators' staffs will probably check that about whoever is coming to see them.


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Greg deGiere

Public Policy Director

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Greg deGierePublic Policy Director

The Arc and United Cerebral Palsy California Collaboration

1225 Eighth Street, Suite 350

Sacramento, CA 95814

916-552-6619916-552-6619 x16 (office)

916-441-3494 (fax) 

SIGN UP FOR OUR CALIFORNIA ACTION ALERTS

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THE ARC OF THE UNITED STATES UPDATES

The 2014 Federal Home and Community-Based Services Regulation: What You Need to Know

 

On January 16, 2014 the Centers for Medicare and Medicaid Services (CMS) in the U.S. Department of Health and Human Services issued final rules in the Federal Register that implemented section 1915(i) State Plan home and community-based services; defined and described home and community-based setting across all Medicaid home and community-based services authorities; defined person-centered planning requirements for sections 1915(c) and 1915(i) home and community-based services; and allowed states to combine target populations in one section 1915(c) waiver.

 

In order to receive Medicaid reimbursement from the federal government for providing home and community-based services, states must ensure that the services are delivered in settings that meet the new definition of home and community-based (HCB) setting. The primary focus of this National Policy Matters is the new definition of HCB setting...

 

"CMS' stated intention in promulgating the final rule was to maximize opportunities for people to have access to the benefits of community living, including receiving services in the most integrated setting and to ensure that Medicaid funding and policy support needed strategies for states in their efforts to meet their obligations under the ADA and the Supreme Court decision in Olmstead v. L.C., 527 U.S. 581 (1999)."

 

Also, sign up for: The Arc US Capitol Insider

 

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SIGN UP FOR OUR NATIONAL ACTION ALERTS
  

CA Capitol Dome
BILL FILE
Click on The Arc UCP California Collaborative Bill File for details...
 
Report on Signed and Vetoed Bills from our bill file.

 

 

Support

  • AB 1523        (Atkins D)   Residential care facilities for the elderly: liability insurance.
  • AB 1572        (Eggman D)   Residential care facilities for the elderly: resident and family councils.
  • AB 2053        (Gonzalez D)   Employment discrimination or harassment: education and training: abusive conduct.
  • SCR 120        (De León D)   Year of the Community: developmental disabilities.

Support - With Amendments

  • AB 215          (Buchanan D)   School employees: dismissal or suspension: hearings.

Watch

  • AB 1124        (Muratsuchi D)   Medi-Cal: reimbursement rates.
  • AB 1687        (Conway R)   Persons with Developmental Disabilities Bill of Rights.
  • AB 1847        (Chesbro D)   Mental health disorders: language.
  • ACR 113        (Hagman R)   Epilepsy awareness.
  • SB 1046        (Beall D)   Insurance: mental illness: developmental disabilities: coverage: penalties.  Governor's Message: I am returning SB 1046 without my signature. This bill would give the Insurance Commissioner additional authority to penalize health insurers up to $2,500 per person, per day, for each violation of the Mental Health Parity Act, in addition to any other penalties or remedies allowed by law. The Insurance Commissioner already has broad penalty authority under the Unfair Insurances Practices Act. The scope of this existing authority is currently at issue in the courts. Until this matter is resolved, it would be premature to conclude what changes, if any, should be made to the Commissioner's broad statutory powers. Sincerely, Edmund G. Brown Jr.       
  • SB 1445        (Evans D)   Developmental services: regional centers: individual program plans: telehealth.

Watch+

  • AB 1522        (Gonzalez D)   Employment: paid sick days.
  • AB 2560        (Bonilla D)   Teacher credentialing: applications: child abuse reporting.


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Tim Hornbecker, Director of Advocacy and Community Organizing
PROJECT STATUS REPORT

     

Project Updates by Tim Hornbecker...

 

The Ninth Circuit Court agrees with The Arc and UCP SD and delivers a blow to the state's case, while strengthening our legal claims that California must comply with the Medicaid Act whenever it seeks to change rates of payment. The Court of Appeals also unanimously reversed the District Court ruling that had dismissed our assertion that the remaining cuts caused irreparable harm.  

Listen to arguments our counsel gave...

 

Please read on, contribute to this effort, and pass it on to other providers and families,

 

Unanimous Decision

"The plaintiffs sought preliminary injunctive relief against the continued enforcement of California statutes reducing the state's compensation, partially funded under the Medicaid Act, of home- and community-based services provided to developmentally disabled persons. Those statutes included a "percentage payment reduction," a "uniform holiday schedule," and a "half-day billing rule." The plaintiffs claimed, among other things, that California's implementation of those statutes was inconsistent with the Medicaid Act. The panel held that because the percentage payment reduction, the primary state statute challenged by the plaintiffs, expired while the case was on appeal, that challenge was moot. The panel held that as to the other two statutes, the district court abused its discretion in denying the plaintiffs' motion for a preliminary injunction, because it misconstrued the Medicaid Act and applied deference to a federal agency decision where none was due. The panel also asserted pendent appellate jurisdiction over the dismissal of the plaintiffs' Medicaid Act claims, and reversed.

 

The panel held that California's implementation of the half-day billing rule and uniform holiday schedule was inconsistent with the Medicaid Act because the state failed to study the effect of those reductions, as required by Section 30(A) of the Medicaid Act. The panel held that the district court erred in construing the Centers for Medicare and Medicaid Services' approval of California's "HCBS" waiver renewal application, allowing a variety of non-institutional care options, as a determination that California's payment reductions complied with the Medicaid Act, and in viewing that approval as an agency decision entitled to judicial deference.

 

The panel concluded that clearly erroneous fact finding marred the district court's evaluation of the irreparable harms facing the plaintiffs. The panel concluded that the current record was inadequate to adjudge whether the impact of the half-day billing rule and uniform holiday schedule amounted to irreparable harm. It remanded to allow augmentation of the record and reconsideration of the propriety of injunctive relief in the changed circumstances, applying the correct irreparable harm analysis."

 

Lawsuit Impact So Far

 

Exposed Unlawful Rate Reductions

We believe that our lawsuit and our advocacy was a major influencing factor in the sun setting of the two year 4.25% rate cut and the 1.25% cut which took its place. While the panel held that the percentage reduction claim was moot because the reduction had sunset, it also stated that such cuts were unlikely to recur in the future given the Court's opinion that such cuts would likely be unlawful.   However, there has been no effort yet by the state to remove the other cuts to providers and consumer that have caused significant financial crisis throughout the system, namely the increased forced closure days and half/full day billing formula. These practices were unacceptable and sets precedence for the way future cuts will be made and must be stopped.

 

At the court hearings to date, both DDS and DHCS representatives have argued that the State has no obligation to consider providers' costs in setting or adjusting rates, and that the State is not required to take into consideration factors such as consumers' access to quality care or even to their health, safety or welfare! Further still, they do not have to inform the Center for MediCare and Medicaid Services (CMS) of any changes made, even though Federal Medicaid dollars match the State dollars and require a basic maintenance of effort to provide uniform and statewide services.

Our lawsuit, which we reluctantly filed as a last resort, has succeeded in exposing the State's unlawful policies and practices, and it is requiring the State to try to justify its violation of state and federal laws. The lawsuit has also allowed the long-ignored voices of tens of thousands of consumers, families and community providers to be heard in the courts.

 

We Need Your Help

Advocacy Loud and Clear: Click here to Support the Lawsuit Initiative using PayPal or we'll bill you if you pledge by clicking the Give Now button

This ruling is a major victory, but the fight is not over. We have come too far to stop now! Join us! We need to raise at least another $75,000 to help win our legal battle. We need your assistance and support to achieve a final victory that will ensure that the rights and services of individuals with I/DD will be protected! Please send your Tax Deductible Contributions to The Arc California, designated: Coalition Lawsuit. Advocacy loud and clear.

 

Finally, the state has reached out to discuss settlement terms for the first time. Our lawsuit coalition will be meeting in San Diego today to discuss this and other remedies for our claims. Again please support our efforts and watch the developments closely as we progress through the courts.

 

Thank you.

 


Thank you

Tim Hornbecker, Director of Advocacy and Community Organizing,

The Arc CA tim@thearcca.org (415) 850-8037


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Teresa Anderson, Prevention Coordinator
PREVENTION ACTIVITIES

 

This month is the FASD Awareness Month... 

 

 

This Is Your Child's Brain on Alcohol

Time Magazine September 12, 2014

Mary Jane Rotheram-Borus and Mark Tomlinson

 

Social scientists have calculated that detrimental effects of alcohol cost the U.S. some $223.5 billion a year. We're talking health issues such as liver disease, impaired driving, lost work due to hangovers, and emergency room visits. Alcohol costs substantially more to Americans than the harmful effects of illicit drug use ($151.4 billion) or tobacco ($167.8 billion). But there's a more disturbing cost that you might be surprised to learn about that's not even factored into those staggering numbers: fetal alcohol spectrum disorders, the conditions that can result when a mother drinks during pregnancy. (When all of the disorders are present, in their most severe forms, we call it fetal alcohol syndrome.) According to the U.S. Centers for Disease Control and Prevention, almost all of these children will have mental health problems as adults and 82 percent will not live independently. During adolescence, they also face an increased risk of drug and alcohol addiction. As a result, the lifetime cost of providing services to just one person with fetal alcohol spectrum disorder in 2002 was about $2 million. And 40,000 children are born each year in the U.S. with the disorders.

 

...About one in four pregnant women in South Africa drink alcohol before recognizing she is pregnant and, without intervention, women who drank before realizing they were pregnant drank much more throughout their pregnancy. Even though there has lately been much chatter about how the occasional glass of wine with dinner should be OK, there really is no known "safe" amount of alcohol to drink during pregnancy. There is also no known safe period to drink during pregnancy. Binge drinking is by far the worst thing to do while pregnant-large doses (even if infrequent) are far worse than a small amount of alcohol routinely. Unfortunately, among alcohol drinkers in America, one in four binge drink, typically on weekends. This includes women who knowingly or unknowingly binge drink while pregnant. The variations in how and when people drink may be the reason we have not been able to eliminate the negative consequences of alcohol during pregnancy. While access to drugs is often limited in many parts of the world, alcohol is almost universally available, especially in low-income countries because it can be manufactured locally. Brief, one-time counseling sessions that focus on the vulnerability of a fetus during pregnancy can help mothers understand the risks and reduce their drinking while pregnant. At sessions we offered to expectant mothers in South Africa, the influence of alcohol on a developing brain is starkly demonstrated by cracking an egg in alcohol at room temperature-the egg poaches. A child's brain is fried when alcohol is circulating through its body. However, most women worldwide do not have access to these interventions. Compounding the problem: local healers throughout the world often use alcohol-laced remedies to help their clients relax. Pregnant women are often encouraged to take brews that include alcohol....

 

Teresa Anderson, MPH

The Arc California

Prevention Coordinator

teresa@thearcca.org

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UPCOMING EVENTS
 

September 30 - October 2, 2014

The Arc's National Convention will convene in festive New Orleans, LA for educational sessions, enlightening speakers and social events designed to keep you informed and connected. Registration will open in May, so save the date and check convention.thearc.org this Spring for program details.

 

October 9, 2014 - October 10, 2014

The 28th Annual "Supported Life Conference: Proactive ... Productive ... Progressive" from October 9-10, 2014 at the Lions Gate Hotel's McClellan Conference Center, Sacrament. This year the conference features keynotes such as, Stuart Haskin "Using Your Voice: Communicating For Change: Self-Determination, Independence, Leadership", Laura Nagle, "What Does an Autistic Adult Think About Transition?", Will Sanford, "Employment: If It Was Easy, Everyone Would Do it, and Not Just Talk About It", and Bonnie Mintun, "30 Years of Full Inclusion: Did We Miss Anything?" In addition to these great keynotes the conference will showcase their usual array of high quality breakout sessions.

 

November 7-8, 2014

The Autism Society of Los Angeles and Disability Rights California will be hosting a one day workshop on Self-Determination in California, "Respecting Choice, Creating Innovation, and Fulfilling Dreams" at the DoubleTree Hotel Los Angeles, 6161 West Centinela Avenue, Culver City. The registration cost for families and people with disabilities is$175.00 ($200 after 10/1 - contact your regional center if you need help for funding [Vendor Number - PH0898] or ASLA for scholarship information. The cost for professionals is $300.00 ($400 after 10/1). The registration fee includes two full days of sessions and breakfast, lunch, and snack both days. "Beginning in 2015, the Self-Determination Program will be available to regional center clients and their families so they can have more control and flexibility over the services they need. Participants will have a Person-Centered Plan and an Individual Budget to purchase unique services with providers who do not need to be vendored by regional centers."

 

March 8-10, 2015

Save the Date: The 8th Annual Developmental Disabilities Public Policy Conference by The Arc and United Cerebral Palsy in California at the Holiday Inn - Sacramento Capitol Plaza, 300 J St, Sacramento, CA 95814 (NEW SITE), Phone:(916) 446-0100. Every year we host a public policy conference featuring legislators, lobbyist, advocates, policymakers, and other speakers who deal with issues impacting people with intellectual and developmental disabilities and their families. Attendees include family members, self-advocates, direct support professionals, attorneys, and executive/ professional staff from community agencies and regional centers. Topics Covered: National Public Policy, State Budget Overview, Advocacy, Healthcare, New and Proposed Legislation, IHSS, Mental Health, LTSS and Olmstead Related Issues, Work, Education, Trusts, Conservatorship, Crime and Abuse of People with Disabilities, and more. Visit our webpage to see last years' program (all documents and PowerPoints are on this site) and eventually the 2015 conference: click here.

 

April 13-15, 2015

Save the Date: The 2015 Disability Policy Seminar will be at a new location, the Renaissance Washington DC Downtown Hotel, 999 9th Street NW, Washington, DC 20001. The annual Disability Policy Seminar brings together advocates for people with intellectual and developmental disabilities with public policy experts and the staff of a variety of hosting organizations who serve people with I/DD to go in-depth on pressing policy issues and other topics of importance to the I/DD movement during two full-day sessions in Washington, D.C. The Seminar culminates with a third day spent on Capitol Hill where attendees have the opportunity to meet with their elected officials. Each year approximately 700 people take advantage of this chance to learn, discuss, network and advocate for change. Hosted by: The Arc, United Cerebral Palsy (UCP), Association of University Centers on Disabilities (AUCD), American Association on Intellectual and Developmental Disabilities (AAIDD), National Association of Councils on Developmental Disabilities (NACDD), and Self-Advocates Becoming Empowered (SABE). Disability Policy Seminar



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RECENTLY RELEASED REPORTS, STUDIES, ETC.

 

Intervention in 6-month-olds with autism ameliorates symptoms, alleviates developmental delay: "Infant Start" therapy treats disabling delays before most children are diagnosed with autism.(en Espanol)

 

MIND Institute NEWS | September 8, 2014

 

(SACRAMENTO, Calif.) - Treatment at the earliest age when symptoms of autism spectrum disorder (ASD) appear - sometimes in infants as young as 6 months old - significantly reduces symptoms so that, by age 3, most who received the therapy had neither ASD nor developmental delay, a UC Davis MIND Institute research study has found. The treatment, known as Infant Start, was administered over a six-month period to 6- to 15-month-old infants who exhibited marked autism symptoms, such as decreased eye contact, social interest or engagement, repetitive movement patterns and a lack of intentional communication. It was delivered by the people who were most in tune with and spent the most time with the babies: their parents. "Autism treatment in the first year of life: A pilot study of Infant Start, a parent-implemented intervention for symptomatic infants," is co-authored by UC Davis professors of Psychiatry and Behavioral Sciences Sally J. Rogers and Sally Ozonoff. It is published online today in the Journal of Autism and Developmental Disorders.

 

"Most of the children in the study, six out of seven, caught up in all of their learning skills and their language by the time they were 2 to 3," said Rogers, the study's lead author and the developer of the Infant Start therapy. "Most children with ASD are barely even getting diagnosed by then." "For the children who are achieving typical developmental rates, we are essentially ameliorating their developmental delays," Rogers said. "We have speeded up their developmental rates and profiles, not for every child in our sample, but for six of the seven." Rogers credited the parents in the small, pilot study with making the difference. "It was the parents - not therapists - who did that," she said. "Parents are there every day with their babies. It's the little moments of diapering, feeding, playing on the floor, going for a walk, being on a swing, that are the critical learning moments for babies. Those moments are what parents can capitalize on in a way that nobody else really can."


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NEWS ARTICLES

 

Health Developmental Disorders

Autism Symptoms Disappeared With Behavioral Therapy In Babies

Time September 9, 2014

By Alice Park

 

Parents using ground-breaking new techniques with infants essentially cured their babies of developmental delays. For the first time, researchers report that treating early signs of autism in infants as young as 6 months can essentially help them to avoid developmental delays typical of the disorder. And the intervention doesn't involve pills or invasive surgery but an intensive behavioral therapy provided by the babies' parents, according to the Journal of Autism and Developmental Disorders. Kristin Hinson was one of those parents. She knew what autism looked like. With two of her three children showing developmental delays, she was on the lookout for similar signals when her son Noah was born. And at 6 months, they came. Noah began avoiding eye contact with her and other family members, his muscle tone was low, and he started lagging in the early infant milestones like rolling over and responding to sounds and people. "He was doing everything, but everything was a little sloppy," says Hinson.

 

...The skills are "completely doable," says Hinson, and far less intrusive than having therapists visit the home once a week, which she did for her two older children who were developmentally delayed. "It's brilliant if you can get the hands-on training. Because as parents, we are in their circle all the time, every day of their lives, and what better way to help them than to do it every day at every opportunity." While she'll never know if the program was actually responsible for helping Noah to avoid developmental delays, Hinson is sure of one thing. "If they could have had something like this for my other children, I think they would be completely different children today."

 

State to health insurers: Stop denying speech therapy

Sacramento Bee Healthy Choices Nov. 18, 2013

By Cynthia H. Craft

After dozens of consumer complaints, the California Department of Managed Health Care on Monday ordered three prominent health insurance companies to stop denying speech therapy to patients. Health Net, Blue Shield and Anthem Blue Cross were all slapped with cease-and-desist orders by DMHC attorneys for what they said was unlawful denial of medically necessary therapies. Health Net, with the highest number of complaints at 41, was hit with a $300,000 fine. All three health insurers had language in their policies that allegedly violated state law mandating access to speech therapy...

 

California's top Medi-Cal official stepping down

Sacramento Bee September 12, 2014

By Jon Ortiz

The director of California's Department of Health Care Services will leave his post by year's end, according to a letter to employees issued by Health and Human Services Agency Secretary Diana Dooley. Toby Douglas, 42, was one of Gov. Jerry Brown's first appointees to head the department that handles Medi Cal services for more than 11 million Californians. During his four years at Health Care Services' helm, the state added 3.5 million new to the federally-funded program. The department employs about 3,700 workers and manages $70 billion annually. ...Dooley said Douglas told her that "'it's time for new challenges," and that he wants his next job to "'allow me to continue to work for improvement in the quality of health care.'"...

 

Renewing Health Coverage May Not Be as Automatic as Government Says

New York Times Sunday September 14, 2014

By Robert Pear

WASHINGTON - Millions of consumers will soon receive notices from health insurance companies stating that their coverage is being automatically renewed for 2015, along with the financial assistance they received this year from the federal government. But consumer advocates and insurers say they see a significant potential for confusion because some of the information will be out of date and misleading on costs and other aspects of coverage. Some people who have been receiving monthly subsidy payments this year could get much less if they stay in their current health plans. The Obama administration announced in June that most people with insurance purchased in the federal marketplace would be automatically enrolled in the same or similar plans next year, so they would not need to file applications or go back to HealthCare.gov to continue their coverage.

 

Now, however, the administration is emphasizing that consumers should revisit the marketplace to make sure they are getting the right amount of financial assistance and to compare other health plans. President Obama said in April that eight million people had enrolled in private health plans through federal and state marketplaces created under the Affordable Care Act. The Congressional Budget Office estimates that the total will climb to 13 million in the next open enrollment period, which runs for three months starting on Nov. 15. Federal health officials told insurers this month to send out standard renewal notices written by the government. The notices inform consumers of the new monthly premium for their health plans in 2015 and the most recent amount of any subsidy, or tax credit, paid for a household in 2014. In many cases, insurers will notify consumers that they face higher premiums but will not provide them any information about higher subsidies in 2015, a prospect that distresses insurers and consumer advocates...



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FUNDING OPPORTUNITIES

Updated: September 15, 2014

 

 

HHS - Department of Health and Human Services HHS - Office of the Secretary Assistant Secretary for Preparedness and Response Recovery Best Practices Modification 2 http://www.grants.gov/web/grants/view-opportunity.html?oppId=262191

 

HHS - Department of Health and Human Services National Institutes of Health Advancing Interventions to Improve Medication Adherence (R01) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264108

 

HHS - Department of Health and Human Services National Institutes of Health Advancing Interventions to Improve Medication Adherence (R21) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264128

 

HHS - Department of Health and Human Services National Institutes of Health Global Brain and Nervous System Disorders Research Across the Lifespan (R21) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264148

 

HHS - Department of Health and Human Services National Institutes of Health Global Brain and Nervous System Disorders Research Across the Lifespan (R01) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264151

 

HHS - Department of Health and Human Services Centers for Disease Control and Prevention National State-Based Tobacco Control Programs Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=264152

 

HHS - Department of Health and Human Services Health Resources & Services dministration National Maternal and Child Health Data Resource Center Cooperative agreement Program Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264311

 

HUD - Department of Housing and Urban Development Rural Capacity Building for Community Development and Affordable Housing Grants Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=262613

 

HHS - Department of Health and Human Services Health Resources & Services administration HIV Early Intervention Services Program Existing Geographic Service Areas (EISEGA) Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=264450

 

HHS - Department of Health and Human Services Health Resources & Services Administration Reducing Loss to Follow-up after Failure to Pass Newborn Hearing Screening Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264608

 

HHS - Department of Health and Human Services Health Resources & Services Administration National Technical Resource Center for Newborn Hearing Screening and Intervention Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264609

 

HHS - Department of Health and Human Services National Institutes of Health Tools for Assessment and Improvement of Neurologic Outcomes in Perinatal Medicine (R41) Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=262891

 

HHS - Department of Health and Human Services National Institutes of Health Tools for Assessment and Improvement of Neurologic Outcomes in Perinatal Medicine (R43) Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=262892

 

HHS - Department of Health and Human Services Health Resources & Services Administration Affordable Care Act - Maternal, Infant and Early Childhood Home Visiting Program Grants Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=263754

 

HHS - Department of Health and Human Services National Institutes of Health NLM Grants for Scholarly Works in Biomedicine and Health (G13) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264469

 

HHS - Department of Health and Human Services National Institutes of Health Secondary Analyses of Existing Alcohol Epidemiology Data (R21)

Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264474

 

HHS - Department of Health and Human Services National Institutes of Health Secondary Analyses of Existing Alcohol Epidemiology Data (R03) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264478

 

HHS - Department of Health and Human Services National Institutes of Health Gut-Microbiome-Brain Interactions and Mental Health (R21/R33) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264688

 

HHS - Department of Health and Human Services Health Resources & Services Administration Strengthen Evidence Base for Maternal and Child Health Programs Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264754

 

HHS - Department of Health and Human Services National Institutes of Health Epigenetic Analyses of Aging as a Risk Factor for Multiple Chronic Conditions (U34) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264756

 

HHS - Department of Health and Human Services National Institutes of Health NIAID Career Transition Award (K22) Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=163073

 

HHS - Department of Health and Human Services National Institutes of Health Clinical and Translational Science Award (U54) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264828

 

HHS - Department of Health and Human Services Centers for Disease Control and Prevention Immunization Information Systems (IIS) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=264891



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CAREER LADDER

The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.

 

Jobs Page Links: Click Here 

The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.

 

Wraparound Facilitator for Lynn Center

The Lynn Center's mental health services include a Wraparound approach to provide intensive support for families of young children with severe behavioral and/or emotional problems. Wraparound services are family focused, strength based and especially designed to help parents/caregivers develop individualized plans to solve their immediate problems through a Wraparound team composed of their own friends, family and professionals involved with their child. Lynn Center's Wraparound program is looking for a Wraparound Facilitator to guide team development and oversee the process and tasks of the team in order to develop a comprehensive plan. This position will work closely with program design and Wraparound staff to increase the involvement of parents and caregivers in planning, services design and evaluation while honoring the parent/family/caregiver perspective. Minimum Qualifications: A commitment to children-centered services and a high level of enthusiasm for Contra Costa ARC's mission with a strong interest in Wraparound services to families... To apply: Forward a RESUME and LETTER of INTEREST to Fax: 925-370-2048 or Email: wrapresumes@arcofcc.org Mention "Wrap Facilitator" in subject line.

 

Chief Executive Officer

Community Gatepath has been "Turning Disabilities Into Possibilities" for over 90 years by creating opportunities of greater independence for children, youth and adults with special needs and disabilities. Through education and support services, Gatepath empowers individuals and families to dream big, work hard and challenge themselves to be the best they can be. Although Gatepath has a long history of service, it continually strives to evolve from a First Class organization to a World Class organization. Community Gatepath is a service provider, business partner, network of support and a source of education for family members, care providers, professionals and students reaching over 8,000 annually. Their scope of services and operations are expected to expand rapidly over the next few years as the services and treatment landscape for people living with disabilities is shifting quickly. Gatepath serves families and individuals experiencing a wide range of developmental disabilities including autism spectrum disorders (ASD). ... The operating budget for the year ending in June 2014 is $12.4M. Strategically, Gatepath is implementing initiatives to transform its revenue mix currently at 60% government/40% private to 40%/60% respectively, to mitigate against shifting current and future government funding policies. We are seeking a leader with a experience in and an appetite for implementing rapid growth strategies that include mergers, organic growth, focused programmatic changes and new services; experience in scaling an organization with the ability to build and align essential resources including fundraising support, technology infrastructure, and talent acquisition; and a track record in attracting financial support from individuals, government sources, foundations and businesses. Visit www.gatepath.org. For more information or to apply, email Lisa Grossman or Mark Oppenheim at info@moppenheim.com.

 

Psychiatrist-Outpatient Services

Alameda County Behavioral Health Care Services (ACBHCS) Schreiber Center is currently seeking a part-time, 20 hours per week, with benefits, Psychiatrist. The Schreiber Center psychiatrist provides clinical assessments; prescribes and monitors psychotropic medications; and is expected to perform differential diagnostic evaluations to determine behavioral health eligibility for individuals with developmental disabilities twenty-one years and older.

It is a terrific opportunity to take part in an important and dynamic clinical team with opportunity for ongoing training and development of expertise in responding to the behavioral health needs of individuals diagnosed with developmental disabilities and experience co-occurring mental health symptoms. This position is located in

Hayward, California. Contact Peter Dating, Assistant to the BHCS Medical Director, (510) 567-8110, Submit Resume and Cover Letter: Alameda County HCSA Human Resources Department, Attention: Laura Sanders, 500 Davis Street, Suite 120 San Leandro, CA 94577 Fax (510) 639 - 1290. Bilinguals & Mental Health Consumers are Strongly Encouraged to Apply. EOE. Salary $166,940 - $202,696 annually based on full-time 1.0 FTE equivalent. For more information about our behavioral health care system, please visit: www.acbhcs.org.

 

Senior Program Analyst

The Association of Regional Center Agencies (ARCA) has an opening for a Senior Program Analyst. We are particularly interested in staff with regional center experience, so your knowledge of your colleagues' (and your own) talents, professional skills, and expertise will be an invaluable part of this process. ARCA strives to be a top-notch resource for its members - and their employees. When we fill this position, in part through your assistance, we will be able to further our work and broaden the resources available to you and your colleagues. The Senior Program Analyst will be expected to provide research and analysis of major policy issues related to developmental disabilities to ARCA, its Board of Directors, and the regional centers. This individual will also be required to represent ARCA in meetings with legislators and their staff, the Department of Developmental Services, and other organizations. Applicants will be required to have a minimum of 5 years recent experience working in a California regional center in a managerial or supervisory capacity as well as extensive knowledge of regional center operations and the provision of services to people with developmental disabilities. They must also possess a solid understanding of and experience working within the developmental services system. This position may be full time or half-time or greater. Interested candidates are encouraged to send their resume and salary history to Sally Williams at swilliams@arcanet.org.

 

Executive Director

Reporting to the board of directors, the Executive Director (ED) provides direction and leadership for the organization's mission and vision, represents and speaks for the organization and its work, and works with the leadership team to manage the day to day operations and advance The CP Center's annual and strategic plans. The ED is responsible for all community and governmental programs, personnel, funding, fiscal management, and agency strategic and development planning under the direction of the Board of Directors. Key priorities include expanding partnerships, developing new funding sources, and providing visionary leadership that translates into action. The ideal candidate will work to align the strengths of the organization with the opportunities and possibilities currently available in the areas of program expansion to a broader geographical area and to currently under served disability groups. 

 

Part Time Warm Line Coordinator

WarmLine Family Resource Center provides information, parent-to-parent support, and referral to community resources for families who have young children with special needs, and the community of professionals involved with those children and families.  WarmLine is part of California's Early Start Program for children birth to three who are at risk for or who have developmental disabilities. Duties: · Provide parent-to-parent support, information, and referral to community resources for families of children with special needs birth-5 years old primarily, and the community of professionals providing services. · Maintain confidential information; respect and protect the confidential nature of information, events, and circumstances of children and families. · In collaboration with WarmLine staff, schedule monthly events for families, including support groups, play groups, and parent trainings. · Coordinate site location and reservation, participants, and presenters. · Data entry. · Provide community outreach and participate in community events. · Participate as a WarmLine representative at multi-agency team meetings. · Other duties as assigned.

 

Development Director

Lighthouse is seeking a Director of Development to join our highly collaborative team during this significant and exciting growth period of our school. The Director of Development will work in close collaboration with the Director of Strategic Development, other Executive Team members, Development Associate, and Board of Directors to build meaningful relationships with current and prospective individual and institutional funders. S/he will help create and manage a strategy to significantly increase Lighthouse's capacity to fundraise annual operating and expansion funds. This includes developing and managing a communications strategy that supports Lighthouse's growth. The ideal candidate fully understands the public education landscape. The Director of Development is part of the Executive Team and reports to the Director of Strategic Development.

 

Chief Executive officers

m/Oppenheim Associates is assisting Canine Companions for Independence in the search for its Chief Executive Officer. As part of that process, we are contacting members of the community for suggestions and nominations. The organization seeks an experienced chief executive to lead CCI through its next phase of deliberate growth, upgrade the organization's operating infrastructure to allow for expanded services nationwide, and sustain CCI's high standards for trained service dogs, provided at no cost to people with disabilities. Reporting to the Board of Directors, the CEO will provide the overall leadership, direction, strategy and vision for CCI, its programs, staff, volunteers and outreach to funders and partners. Founded in 1975, Canine Companions for Independence (CCI) enhances the lives of people with disabilities by providing them with highly-trained assistance dogs as well as ongoing support to ensure quality partnerships. The organization is based in Santa Rosa, California, and is the world's largest provider of assistance dogs to people with disabilities other than blindness. For additional information or to apply, please contact Mark Oppenheim or Matthew Holgerson at info@moppenheim.com or visit www.cci.org.



The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.

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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494