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December 15, 2014 
-LAST MMM for 2014-
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Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Tony Anderson, Executive Director, The Arc California

Monday December 15, 2014

The Capitol Region Organizing Project (CROP) will meeting in a strategic planning session to plan for social change campaigns and organizing capacity for 2015. Joe Meadours, Board Member from The Arc California, will be participating in the session.


Tuesday December 16, 2014

We'll be meeting with policymakers in the capital community (from the legislature and from the administration) to discuss the Lanterman Coalition 10 Campaign and other issues impacting people with intellectual and developmental disabilities.


Together with Education Equity, Inc., one of our partners in Education Policy, we'll be meeting with representatives from Specialisterne to discuss employment of people with Autism and other developmental disabilities.  


Wednesday December 17, 2014

We have set aside the day for working on arrangements with our public policy speakers for our upcoming 8th Annual Developmental Disabilities Public Policy Conference. This will the conference will be at the Holiday Inn Capitol Plaza from March 8, 9, and 10, 2015.


Thursday December 18, 2014

We'll be meeting with policymakers from the legislature in the capitol building to discuss the Lanterman Coalition 10 Campaign and other issues impacting people with intellectual and developmental disabilities.


We'll be meeting with organizations interested in becoming a Community Partner with The Arc California. The Community Partners program was recently approved by The Arc CA Board of Directors as one of the ways to increase collaborations, strengthen our advocacy capacity, and stabilize our association infrastructure. Learn more about becoming a Chapter of The Arc and/or Partnering and Supporting The Arc California.  


Friday December 19, 2014

The CCLTSS will be meeting in Sacramento from 9 am to 10:30 am at the California Foundation for Independent Living Centers (CFILC).  Followed by a meeting of the communications workgroup focused on educating policymakers and the general public of the Long Term Supports and Services needs for seniors and people with disabilities.

Public Policy Reports 

The Arc and UCP in California (Greg deGiere, Public Policy Director)


Looking Back and Looking Ahead

It's been a tough year in some ways for people with intellectual and all developmental disabilities in California, despite the progress we saw this year. Ironically, in some ways it feels tougher than the awful years of 2009 and 2010 when our Lanterman Act supports and services system suffered terrible cuts that we're still feeling acutely.


In those earlier years, we felt encouraged - sometimes downright elated - that our community mobilized massively and prevented the complete gutting of the system two governors had sought. This year, we actually succeeded in restoring some of the earlier cuts and laying the foundation for further progress. But for a lot of us, this year felt worse because we didn't come close to the reinvestment in our system that we wanted - and so our fragile system continued to crumble.


For 2015, we've raised our expectations. In 2014, we slowly and painfully put together a genuine working coalition of I/DD groups that was able to win some of the budget battles. And this summer and fall, we built on that coalition and rolled out a truly ambitious campaign for 2015 aimed at winning the 10% emergency funding increase needed to stabilize the system.


It's going to be a heck of a fight in 2015, and we need as much community mobilization as we saw in 2009 and 2010. That means we need all hands on deck. And that means you.


If you haven't started doing your part yet, please start now, don't wait till January. Go to And took at the pages on Self-Advocacy (if you are a person with I/DD), Family Advocacy (if you are a family member), and IDD Systems Advocacy (if you are part of a service provider group). In each case, look at "10 for 10: Ten Things You Can Do" and see if you and do the first two or three things on the list this month.


Finally, if you aren't on our Action E-List, our community's most powerful tool for mobilizing grassroots advocacy quickly, please sign up now. Scroll down a couple of inches under my signature below (and the picture of me that looks worse than the one on my driver's license) and sign up now.


As always, thank you for your advocacy.


# # #

Greg deGiere

Public Policy Director

Greg deGierePublic Policy Director

The Arc and United Cerebral Palsy California Collaboration

1225 Eighth Street, Suite 350

Sacramento, CA 95814

916-552-6619916-552-6619 x16 (office)

916-441-3494 (fax) 





Housing - National Housing Trust Fund to be Funded

Last week, the Federal Housing Finance Agency (FHFA) directed Fannie Mae and Freddie Mac to begin allocating funds to the National Housing Trust Fund (NHTF). Congress created the NHTF in 2008 to fund affordable housing for people with the lowest incomes, a group that includes many people with disabilities. However, until now the NHTF has remained unfunded. The Housing and Economic Recovery Act of 2008 authorized FHFA to temporarily suspend allocations from Fannie Mae and Freddie Mac to the NHTF, which FHFA did on November 13, 2008. Last week, FHFA ended the suspension, meaning that Fannie Mae and Freddie Mac will now begin setting aside and directing funds to the NHTF. The NHTF will be administered by the Department of Housing and Urban Development (HUD), which issued a statement noting that HUD will "soon issue regulations" to implement the NHTF. The Arc strongly supports funding the NHTF to help meet the urgent needs of people with disabilities for affordable, accessible community housing.

Also, sign up for: The Arc US Capitol Insider




Tim Hornbecker, Director of Advocacy and Community Organizing


Project Updates by Tim Hornbecker...


Just when you think you'll never win that battle because you've been fighting for so long and against powerful competing interests something seems to happen all of a sudden and you score a major victory. Well last week Voices Of Integration: Communities Empowering the Disabled, known in their community as VOICED, took a minute to celebrate one of those victory moments.


As I've reported in past reports, VOICED has been fighting to make the local bus stop accessible for people with disabilities and safer for all community riders. The bus stops in Bakersfield were not marked as no parking zones which means sometimes if a car in parked in the place where the bus picks you up, you have to enter the bus in the middle of the street (if you can even get around the parked car). VOICED has been training itself with the help of Gamaliel California (under contract with The Arc California) to help them become a powerful well organized community organization. They have been engaged in putting pressure on city officials to paint those curbs red and stop endangering the community. One of the Gamaliel members (a pastor from out of town) offered to get gallons and gallons of red paint donated to the city and to bless the paint for the cause in a public ceremony.


This small group of disability rights advocates are still working to get all the bus stops barrier free. There "are still 32 bus stops to be dealt with, but they are all in neighborhoods as opposed to a busy streets" and they have other ways of addressing the neighborhood stops - stay tuned for that victory next.


Check out this video we just posted on the Lanterman Coalition You Tube Channel: and the PowerPoint of the VOICED presentation.


Thank you

Tim Hornbecker, Director of Advocacy and Community Organizing,

The Arc CA

Teresa Anderson, Prevention Coordinator


The Arc of California has a long history of advocating for policies that promote health across the lifespan. Our Prevention advocacy efforts include everything from prenatal exposures to alcohol and other drugs, exposure to a multitude of environmental toxins and the effects of the social determinants of health and birth outcomes to chronic conditions management and preventing secondary illness as people with disabilities age. 2014 was a very active year for the Arc of California's prevention work as we has the opportunity to engaged in many issues including but not limited to:


The California Children's Services Redesign

The CCS program provides diagnostic and treatment services, medical case management, and physical and occupational therapy services to children under age 21 with CCS-eligible medical conditions. Examples of CCS-eligible conditions include, but are not limited to, chronic medical conditions such as cystic fibrosis, hemophilia, cerebral palsy, heart disease, cancer, traumatic injuries, and infectious diseases producing major sequelae. CCS also provides medical therapy services that are delivered at public schools. The CCS program is administered as a partnership between county health departments and the California Department of Health Care Services (DHCS).


The CCS System is undergoing a redesign process under the direction of DHCS, UCLA Center for Health Policy Research, Stanford's Center for Policy, Outcomes and Prevention and Harbage Consulting. The Redesign Stakeholder Advisory Board has been selected and the stakeholder meetings began Dec. 2, 2014. The meetings are expected to continue through June 2015 and end with a set of recommendations for redesign. For more information about the CCS Redesign visit:


Unintentional Injury

The Arc of CA has a two-fold focus on unintentional injury 1) awareness and prevention of unintentional injury in childhood that has the potential to result in a life-ling disability and 2) reducing the risk and incidence of people with ID/DD experiencing an unintentional injury.


For more information about Unintentional Injury please visit:


Fetal Alcohol Spectrum Disorders

FASD affects all areas of life. It demands an enormous financial and social commitment from our state, communities, and families. FASD is the most known and completely preventable cause of intellectual disability and increases the risk for many other birth, behavioral, and mental disabilities.


For more information about FASD visit:


Access to Dental Care

Oral health is essential to overall health yet access to timely and appropriate dental care continues to be a challenge for people with ID/DD and a great concern for advocates. Research conducted by John Morgan and colleagues at Tufts University School of Dental Medicine found Individuals with IDD had a higher prevalence and greater severity of periodontal disease than the general population, in addition to consistently greater levels of untreated caries.


For more information about Dental Care visit:


Chronic Condition Management and Disparities in Health Care for People with Intellectual and Developmental Disabilities

People with ID/DD are at greater risk for experiencing one or more chronic conditions compared to the general population. Health Advocacy is an essential component to preventing and managing chronic conditions.

Teresa Anderson, MPH

The Arc California

Prevention Coordinator




March 8-10, 2015

Save the Date: The 8th Annual Developmental Disabilities Public Policy Conference by The Arc and United Cerebral Palsy in California at the Holiday Inn - Sacramento Capitol Plaza, 300 J St, Sacramento, CA 95814 (NEW SITE), Phone:(916) 446-0100. Every year we host a public policy conference featuring legislators, lobbyist, advocates, policymakers, and other speakers who deal with issues impacting people with intellectual and developmental disabilities and their families. Attendees include family members, self-advocates, direct support professionals, attorneys, and executive/ professional staff from community agencies and regional centers. Topics Covered: National Public Policy, State Budget Overview, Advocacy, Healthcare, New and Proposed Legislation, IHSS, Mental Health, LTSS and Olmstead Related Issues, Work, Education, Trusts, Conservatorship, Crime and Abuse of People with Disabilities, and more. Visit our webpage to see last years' program (all documents and PowerPoints are on this site) and eventually the 2015 conference: click here.


April 13-15, 2015

Save the Date: The 2015 Disability Policy Seminar will be at a new location, the Renaissance Washington DC Downtown Hotel, 999 9th Street NW, Washington, DC 20001. The annual Disability Policy Seminar brings together advocates for people with intellectual and developmental disabilities with public policy experts and the staff of a variety of hosting organizations who serve people with I/DD to go in-depth on pressing policy issues and other topics of importance to the I/DD movement during two full-day sessions in Washington, D.C. The Seminar culminates with a third day spent on Capitol Hill where attendees have the opportunity to meet with their elected officials. Each year approximately 700 people take advantage of this chance to learn, discuss, network and advocate for change. Hosted by: The Arc, United Cerebral Palsy (UCP), Association of University Centers on Disabilities (AUCD), American Association on Intellectual and Developmental Disabilities (AAIDD), National Association of Councils on Developmental Disabilities (NACDD), and Self-Advocates Becoming Empowered (SABE). Disability Policy Seminar


June 1-4, 2015

The AAIDD Annual Meeting will be held in Louisville, KY, provides researchers, clinicians, practitioners, educators, policymakers, local, state and federal agencies, and advocates with cutting edge research, effective practices, and valuable information on important policy initiatives. Conference Hotel: The Galt House of Louisville.


October 3 - 5, 2015

The Arc's 2015 National Convention, Indianapolis, Indiana




Department of Health and Human Services, Office of Inspector General, December 2014

By Daniel R. Levinson Inspector General



We found that slightly more than half of providers could not offer appointments to enrollees. Notably, 35 percent could not be found at the location listed by the plan, and another 8 percent were at the location but said that they were not participating in the plan. An additional 8 percent were not accepting new patients. Among the providers who offered appointments, the median wait time was 2 weeks. However, over a quarter had wait times of more than 1 month, and 10 percent had wait times longer than 2 months. Finally, primary care providers were less likely to offer an appointment than specialists; however, specialists tended to have longer wait times.



Together, these findings-along with those from our companion report-call for the Centers for Medicare & Medicaid Services (CMS) to work with States to improve the oversight of managed care plans. We recommend that CMS work with States to (1) assess the number of providers offering appointments and improve the accuracy of plan information, (2) ensure that plans' networks are adequate and meet the needs of their Medicaid managed care enrollees, and (3) ensure that plans are complying with existing State standards and assess whether additional standards are needed. CMS concurred with all three of our recommendations."




Parents of the developmentally disabled express concern over lack of services

The Bakersfield Californian Thursday, Dec 11 2014

BY RUTH BROWN The Bakersfield Californian


More than 50 people attended a meeting Thursday with a panel of officials with the California Department of Developmental Services and the State Council on Developmental Disabilities to share how recent budget cuts have hurt the needs of developmentally disabled county residents. At the four-hour meeting held at the Exceptional Family Center on North Sillect Avenue, the impact of the cuts on the H.E.A.R.T.S. Connection Family Resource Center was a repeated topic. Five of the county's six H.E.A.R.T.S. locations closed when the nonprofit lost a grant for $352,000 in 2014. The grant used to come from Kern Regional Center. H.E.A.R.T.S., an acronym for Help, Encourage, Advocate, Resources, Training and Support, closed its offices in Delano, Ridgecrest, California City, Tehachapi and Kernville.


Several residents expressed concern about their inability to transport their children or family members to the the sole remaining office in Bakersfield. "Kern Regional Center's board is hearing us, but they are not listening to us," said Beverly Foster, board president of H.E.A.R.T.S Connection and the mother of three children with special needs. "The parents say they need (services to teach) vocational skills and independent living skills to clients." Foster suggested starting a parent advisory committee to represent individuals with different disabilities. The committee would make recommendations to KRC's board. Members of the KRC board were not part of Thursday's panel. The Exceptional Family Center took an 80 percent budget cut in 2014. The center no longer offers family and client education or computer services education. It only assists individuals with direct client services such as individual placement plans appropriate for each person, said Grace Huerta, president of the Exceptional Family Center. Other parents spoke about the lack of IPP workers who speak Spanish and dearth of documents written in Spanish. Several families spoke using a translator, saying they had "a right to be informed." Some felt the Hispanic families were seen as "too low" and that KRC's board was not listening to their complaints. Others complained of a lack of communication, struggles with referrals and a lack of respite, or short-term, care in Kern County.


DDS, which funds KRC, was created under the Lanterman Developmental Disabilities Services Act for ensuring that persons with developmental disabilities receive the services and supports they need to lead more independent, productive and normal lives. Regional centers are funded through the DDS, and were created to provide case management. Joseph Bowling, executive director for Area 8 of the State Council on Developmental Disabilities, thanked the families for sharing their stories. "My observation is the board at KRC seems to be dysfunctional," Bowling said. "They run meetings a lot of times illegally. "Bowling noted the board sometimes does not follow proper public meeting policy and has blank agendas. "Regional centers should not be in the business of denying services," he said. "I don't have any faith in the board of directors." The panel agreed to take information provided by the families to DDS to evaluate what can be done in Kern County.


Special Ed, Disability Programs Unscathed In Budget Deal


A spending plan making its way through Congress is a win for people with disabilities, advocates say, more for what it doesn't do than what it does. Most federal programs supporting people with disabilities will maintain level funding under the $1.1 trillion budget deal, with a few areas seeing modest gains. The plan was approved by the U.S. House of Representatives late Thursday, as the federal government's existing budget was set to expire at midnight. Lawmakers also passed a temporary measure to give the U.S. Senate time to vote on the legislation that would fund most federal activities through Sept. 30, 2015. Following years of belt-tightening in Washington, advocates say that just maintaining steady funding for disability programs offers some relief.


"Most of the programs that we track that support people with disabilities got level funding which we continue to say in this environment is a victory," said Jennifer Dexter, assistant vice president of government relations at Easter Seals. Under the deal, funding available to states under the Individuals with Disabilities Education Act will rise $25 million and vocational rehabilitation will increase $33 million. Other programs expected to see an increase include housing assistance, support for postsecondary programs for those with intellectual disabilities as well as autism and developmental disabilities efforts at the Centers for Disease Control and Prevention.


However, most of the gains are too modest - generally less than 1 percent - to keep pace with inflation, warns Annie Acosta, director of fiscal and family support policy at The Arc.  "Everyone is relieved when their programs don't get cut but this isn't just one year; it's been longer term," she said. "Even when you have level funding, you're losing money every year if you're not keeping pace with inflation." For example, Acosta said Congress is set to increase spending on the Section 811 program - which funds housing for adults with disabilities - by $9 million, but due to rising housing costs, that change will not translate into dollars for additional units beyond ones already covered by the program. Meanwhile, advocates are already gearing up for 2016 when budget cuts could play a role again, said Dexter at Easter Seals. "2016 could be a tough year," she said. "The reality is we're not anywhere close to what the need is. This continued austerity is going to be a struggle for people with disabilities." 


Updated: December 15, 2014


HHS - Department of Health and Human ServicesCenters for Disease Control and Prevention Centers for Disease Control and Prevention Evaluating Structural, Economic, Environmental, or Policy Primary Prevention Strategies for Intimate Partner Violence and Sexual Violence Grant


HHS - Department of Health and Human ServicesNational Institutes of HealthNIMH Administrative Supplement Program Providing Research Experiences for Physicians and Medical Students from Diverse BackgroundsGrant


HHS - Department of Health and Human ServicesHealth Resources and Services AdministrationGeriatrics Workforce Enhancement ProgramGrant


HHS - Department of Health and Human ServicesNational Institutes of Health

Limited Competition: Addressing Health Disparities in Maternal and Child Health through Community-Based Participatory Research (R03)Grant


ED - Department of EducationOSERS: OSEP: Training and Information for Parents of Children with Disabilities: Parent Training and Information Centers CFDA Number 84.328M Grant


DOL - Department of LaborEmployment and Training AdministrationAmerican Apprenticeship InitiativeGrant


NEA - National Endowment for the ArtsNEA Performing Arts Discovery Program Solicitation, FY 2015Grant


HHS - Department of Health and Human ServicesHealth Resources and Services AdministrationNurse Anesthetist Traineeship Program (NAT)Grant


HHS - Department of Health and Human ServicesNational Institutes of HealthNCI Transition Career Development Award to Promote Diversity (K22) Grant


HHS - Department of Health and Human ServicesNational Institutes of HealthAsthma Empowerment Collaborations to Reduce Childhood Asthma Disparities (U01) Grant


HHS - Department of Health and Human ServicesCenters for Disease Control and PreventionEpi-Centers for the Prevention of Healthcare-Associated Infections, Antimicrobial Resistance and Adverse Events - A Multicenter Program Expansion (U54) Grant


HHS - Department of Health and Human ServicesNational Institutes of HealthCreating Asthma Empowerment Collaborations to Reduce Childhood Asthma Disparities (U34) Grant


HHS - Department of Health and Human ServicesHealth Resources and Services AdministrationPredoctoral Training in General, Pediatric and Public Health Dentistry and Dental HygieneGrant


The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.


Jobs Page Links: Click Here 


Chief Executive Officer (CEO)

Mental Health America of California (MHAC) CEO in partnership with the MHAC Board and the Executive Director of Policy and Advocacy, is responsible for assuring MHAC's relevance to the community, accomplishment of MHAC's mission and vision, and accountability to MHAC's diverse constituents. The Board delegates responsibility for management and day-to-day operations to the CEO, and s/he has the authority to carry out these responsibilities, in accordance with the direction and policies established by the Board. Salary commensurate with experience plus health, dental, vision, retirement and paid parking. Submission Deadline: January 5, 2015


Law Student Intern

The Arc of the United States is seeking law student interns to work at our Washington, DC office for Summer 2015. Applications for academic internships for the Spring 2015 semester are also welcome. The Arc is the nation's leading advocate for people with intellectual and developmental disabilities (I/DD) and their families and the premier provider of the supports and services these individuals need. The Arc has a long history of protecting the civil rights of the I/DD and broader disability community through advocacy, legislation, policy, and litigation on matters such as civil rights, community integration, housing, health care, long term supports and services, education, and employment... All qualified law student applicants are encouraged to apply, including minorities, women, veterans, and individuals with disabilities. Please submit a cover letter, resume, writing sample, and a list of three references to Shira Wakschlag, Staff Attorney and Special Assistant to the CEO, Applications will be considered on a rolling basis. Applicants are encouraged to seek funding from their law schools for these positions.


State Director

Residential provider for individuals with intellectual and developmental disabilities is in search of a State Director to manage the overall operations of our mid-size company. Fantastic opportunity for a qualified individual that meets QIDP requirements, has a minimum of a Bachelors degree in Human Services, and has management experience in the field of developmental disabilities. This position requires on-call duties. Must be able to pass a criminal background check, OIG, and have a good driving record. Benefits include medical, dental, life, vision and paid time off. Submit resume and salary history for consideration via email to: Pinnacle Community Services, EOE, 3355 West Cheyenne Ave., Suite #103, North Las Vegas, NV 89032.


Director of Policy and Intergovernmental Affairs

The Director of Policy and Intergovernmental Affairs is a member of the agency's senior management team and an organization-wide leader of First 5 LA. The Director is responsible for executing the policy and intergovernmental affairs objectives associated with First 5 LA's strategic goals. The Director leads a staff team and contractors to inform and influence public policy at the county, state and federal level to support the agency's intended outcomes. The Director is responsible for proactively building and maintaining strong relationships with elected officials, administrators and opinion leaders at all levels of government -city, county, state and national.


Executive Director

The ideal candidate will have demonstrated executive leadership within a progressive community mental/behavioral health organization with dynamics similar to CalMHSA and/or executive experience in an organization that has national or state-wide recognition for innovation in its behavioral/mental health programs. The candidate must have demonstrated ability to develop and execute a fund development plan and a history of managing an organization with an annual budget in excess of $30 million. This executive will have a record of accomplishments that demonstrates a broad view of healthcare and the strategic opportunities that exist state-wide from a public health prospective. Most importantly, this new ED will have a strong connection with CalMHSA's mission, values, and shared agenda.

The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814


Advocates for people with intellectual and all other developmental disabilities and their families since 1950.


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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494