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Note: The Arc is not an acronym; always refer to us as The Arc, not The
ARC and never ARC. The Arc should be considered as a title or a phrase.
Tony Anderson, Executive Director, The Arc California
Monday April 25, 2016
Democrat Assembly leaders will be announcing "a major affordable
housing plan" today at 11:45 am in room 317 of the capitol.
Development Committee of the National Conference of Executives of The
Arc chaired will be meeting to begin the process of selecting new
leadership. Currently the NCE is working on two upcoming events, Summer Leadership Institute (in Palm Springs this July) and Pre-Convention (leadership training prior to the national convention).
be joining with advocates focused on California Children Services (CCS)
program. To learn more about what's happening with CCS and the "Whole
Child Model" of care visit the CCS Advisory Group page.
Assembly Budget Sub-Committee #1 on Health and Human Services chaired
by Assembly member Tony Thurmond, will be meeting at 1:30 p.m. in the
State Capitol, Room 127. The committee will discuss budget issues
impacting the Emergency Medical Services Authority, Office of Statewide
Health Planning and Development, and Department of Managed Health Care.
be participating with the IHSS advocacy group to help raise awareness
and support from legislators to prevent imminent harm to consumers and
providers (see the state alert section for details).
Tuesday April 26, 2016 - Wednesday April 27, 2016
be lobbying a variety of our bills in policy committees as well as the
working to help raise awareness and support from legislators to prevent
imminent harm to consumers and providers in the IHSS program (see the
state alert section for details).
Thursday April 28, 2016
We'll be participating in the editorial board of the Frontline Initiative
publication to advance the profession of Direct Support Professionals
for people with intellectual and developmental disabilities.
Senate Budget and Fiscal Review Subcommittee #3 on Health and Human
Services chaired by Senator Holy Mitchell will be meeting at 9:30 a.m.
or upon adjournment of Session in the John L. Burton Hearing Room
(4203). The committee will discuss budget items impacting the Department
of Aging, Department of Community Services and Development, Department
of Social Services (In-Home Supportive Services, SSI/SSP, CCI, and
Community Care Licensing).
Arc of the United States public policy staff will be providing policy
updates for advocates. Topics in ABLE Act updates, WIOA, HCBS,
Education, and federal appropriations, and more. This is a member only
resource, members are encouraged to call our state office for the call
Arc Executive Committee, chaired by President Richard Fitzmaurice, will
be meeting by conference call from 5 - 6pm to receive policy updates
and work through details for the upcoming meeting in Riverside,
California June 17 and 18, 2016.
be Chico California with our local chapter, The Arc Butte County
Executive Director Michael McGinnis. The Arc Butte County will recognize
Senator Kevin de Leon for his leadership and commitment to people with
Friday April 29, 2016
The California Collaboration for Long Term Services and Supports will be meeting from 9 am to 10:30 am.
The Department of Developmental Services Home and Community-Based Services Advisory Group
will be meeting today from 10:00 am to 3:00 pm at the Department of
Rehabilitation, 721 Capitol Mall, Sacramento, CA 95814, Conference Room
242. A call-in line and meeting materials will be made available closer
to the meeting date. All visitors are required to sign in at the guard
station; please indicate whether you will attend in-person or via
THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION: Public Policy Reports
following is an explanation sent to the Brown administration (and key
legislators) detailing the problems associated with the state's
inability to prepare the In-Home Support Services program to fully
implement the new rules under the Fair Labor and Standards Act related
to overtime. We will follow this explanation with coordinated action
alert this week joining several other advocacy groups statewide who
represent members impacted by this problem (special thank you to Deborah
Doctor, DRC for coordinating this action alert effort and to CAPA, UDW,
SEIU, and CWDA for their leadership in this area).
Coalition continues to have serious concerns over the roll out of the
FLSA provisions because of the now imminent harm to consumers and
providers. Our top two priorities are to extend the grace period to September 1st and to address problems with the exemptions policies.
1) Late and Incomplete All County Letters/Instructions make it extremely difficult for counties to implement FLSA.
Without adequate instructions, counties and PAs cannot plan for
adequate staffing. For example, we don't know if we'll need more
clerical support, or more social workers. Also, until last week counties
were left with the impression that CMIPS would auto-generate notices on
violations that counties would mail. As you know, violations start May 1stand yet the final ACL with instructions on violations procedures has not been released.
CDSS issued two draft All County Letters this month for stakeholder review:
draft ACL on violations was shared on 4/5 with a one-week turn around
for comments and the draft provided very little new information to
counties. The latest draft ACL on violations (issued on April 5)
requires "counseling" for providers. That's a big difference between
hiring a social worker or hiring clerical staff. CWDA had its regular
monthly meeting the very next day with DSS staff where we discussed our
need for more specific direction on implementing the violations policy.
For example, it wasn't explicit about who will mail the notices to
consumers and providers, what would be programmed in CMIPS and what
would be manual county staff work, or whether will be paid aid pending
an appeal. The ACL also contained inconsistencies from what DSS
previously discussed with counties that also had to be corrected. Other
substantial flaws with the draft ACL on violations:
five day period for counties to review the violations report to
determine if the violation meets the criteria for an exception and
rescind the violation before issuance is too short; Rescinding requires
not only a review of the case by a worker, but also a supervisory review
The violations policy doesn't appear to allow counties to reverse/rescind violations based on simple timesheet errors.
Counties/PAs have spent time working through CMIPS reports to see what
type of violations are being made by providers. We are advised the
majority of violations are due to timesheets errors that cause the
individual to exceed their hours. For instance: providers who do not
understand how to pull hours forward from weekdays listed in previous
pay periods and therefore exceed their weekly hours; providers who
calculate daily hours using a calculator are still using decimals on the
timesheet and then exceed their hours when the decimals are read as
minutes; numbers placed in incorrect columns on the timesheet; CMIPS
incorrectly reading a number on the timesheet (happens often). These
timesheets errors will all result in violations. The ACL says we will
have 5-days to review violations to see if the violation "met exception
criteria". Clearly these errors do not meet OT exception criteria so the
provider will be paid OT and receive a violation. We can anticipate
many providers asking for their checks to be reissued or asking for
overpayments to be collected in order to avoid violations.
violation notices have not been provided for review and comment.
Because these notices could result in suspension or termination, we need
to review these forms to identify and resolve any liabilities that
could attach to counties or PAs.
The draft ACL says a dispute form would also be sent on the 2nd violation,
and that seemed inconsistent with what we had previously heard. We
heard the provider cannot dispute with the State until the 3rd and 4th violation, and that is what we are training
The 36-page draft ACL on CMIPS procedures was issued on 4/18 with comments due by April 25th.
The short time frame doesn't provide sufficient time for CDSS to review
comments and make necessary changes before issuing an ACL for policies
and procedures that take effect on May 1st.This draft ACL has
lengthy instructions on the CMIPS changes that we can only assume have
been in process of being programmed for many months now, yet this is the
first we've seen these instructions.
we cannot operate from draft ACLs (given the many errors and
inconsistencies). But it's absolutely critical to have clear and timely
instructions so that counties can plan for appropriate staffing. While
some information is shared at our respective CAPA and CWDA meetings, as
you know, not all counties attend those meetings. Some information has
been provided from CDSS staff via email responses, not through formal
ACLs or Program Manager Letters. Counties are reluctant to act on
verbal reports or informal emails, and need formal written instructions.
workload continues to be a concern for counties and Public Authorities,
it is clear that the greater concern is the potential for IHSS
consumers and providers to be harmed. We remain concerned at this point
is how to deploy staff to do work without clear instructions from the
state. Having clear and timely instructions to counties is our most
pressing need at the moment. This underscores the need to extend the grace period to September 1st.
2) Exemptions Policy is Late and Falls Short of Meeting Critical Client Needs: There are a host of issues with the Exemptions, both in terms of the population eligible, and in terms of implementation.
Eligible Population Concerns:
Exemption 2: The latest Exemption 2 policy was just recently issued (ACL 16-22 on April 1st)
without stakeholder review (although we were able to preview the
general framework beforehand). The policy misses critical populations -
those that are not living together but have a provider who is critical
to providing that care (for example: the daughter who is caring for her
elderly parents but lives in her own home). And while we appreciate the
exemption for rural living areas and language needs, the ACL contains
this unfortunate statement, "Simply because a recipient is unable to
hire a provider who speaks his/her same language does not necessarily
mean that the recipient is unable to direct his/her own care." These
are extremely personal care needs - the policy assumes that after some
"initial interpretation" a provider who doesn't speak the same language
can fulfill these needs. It also assumes that "initial interpretation"
is available, but doesn't say from whom.
ACL 16-22 also includes some clarification on the Exemption 1 group.
Here, we are deeply disappointed in the direction that DSS has opted to
take to exclude (from Exemption 1) providers who completed all
enrollment requirements except that his/her CORI results were not
received. These are providers who were coming into the IHSS program
under the PRIOR rules and had expectations they could care for their
children under the pre-FLSA rules. It is completely of out their control
that the DOJ results were delayed. This is simply unfair to those
providers. And not all of these parents will qualify for Exemption 2.
Exemption 1 Problems:
Counties discovered that not all of the potentially eligible Exemption 1
group (parents, grandparents, etc. of two or more children) were
properly noticed by DSS, which CWDA discussed with DSS at the April 6th meeting.
This is because CMIPS only identifies the Parent of Minor Child and/or
Parent of Adult Child; there are no indicators in CMIPS II to pull
Grandparent; legal Guardian; Step-Parent; Conservator. So, CWDA worked
with HP to identify a broader universe of potential eligible and but it
will take time for counties to notice and reach out. In the meantime,
DSS gave those parents only to April 1st to apply - far too short of a timeline. DSS staff say they will continue to accept requests after April 1st but
for how long? In the meantime, counties have no way of knowing who has
received the exemption already - DSS isn't supplying the lists of those
they've exempted until (hopefully) by the end of this week, and the
indicator in CMIPS won't be ready until the end of this month. DSS also
mentioned in passing the possibility of an exemption for people who
didn't meet the Jan 31 (Exemption 1) criteria, but gives no further
The biggest concern here is that DSS refused to notice the potential
population eligible for Exemption 2, which leaves this responsibility to
the counties and leaves the eligible consumers and providers with no
chance to get this exemption before violations start. It will take
several weeks to reach out to providers and consumers and review cases
for the exemption, which also has to be reviewed and approved by the
State. In the meantime, violations will start to toll. The Exemption 2
requirements are also very cumbersome on all, and permit these
exemptions only "in extraordinary circumstances" in which "all possible
options for finding another provider...have been explored and exhausted
by both the recipients and the county." The ACL contains this statement,
"As part of the ongoing assessment reassessment processes, IHSS Social
Workers become very familiar with their caseloads and their assigned
IHSS recipients' needs, and shall consider the complexity of each
recipients needs to further assist with the hiring of additional IHSS
providers." While we would love to have social workers familiar with
their entire caseload, this is simply impossible given the actual
caseload size, so it will simply take time to evaluate every case based
on the DSS criteria in the ACL.
should also note that Waiver of Personal Care Services (WPCS) clients
are also eligible for the Exemptions - but this is administered by DHCS
which has YET to provide specific information on how to apply for an
exemption. DHCS only sent an informing notice on January 25th.
Many of the WPCS clients are also in receipt of IHSS services, but some
are not, and they currently do not seem to have any way to apply for an
exemption from DHCS. Those providers who provide WPCS and IHSS, with
hours over 283 a month, will start receiving violation notices on May 1
because they have no exemption and no way to get one. And, who will
remove those violations from the CMIPS record?
The bottom-line is
that violations are hitting providers in days, yet those providers
haven't had appropriate time or opportunity to avail themselves of the
exemptions. Those providers will be receiving a violation, and have to
take multiple steps to try to rectify that violation with the county.
This will all certainly generate even more calls to counties and Public
Authorities, and counties will be working through both violations calls
and exemptions - an overwhelming workload hitting all at once. While
we believe the violations can be eventually rescinded after exemptions
are approved, this will cause needless hardship on providers and
consumers in the meantime.
Older Americans Act Reauthorization Enacted, Expanding Eligibility for Family Support Program
Older Americans Act Reauthorization Act of 2016 was signed into law by
President Obama on April 19. Among its many provisions, Public Law 114-144 includes a fix to the National Family Caregiver Support Program (NFCSP) The
NFCSP, which received $150 million in FY 2016, provides information to
caregivers about available services, assistance in accessing services,
individual counseling, support groups, caregiver training, respite care,
and supplemental services. The new law extends eligibility to older
relative caregivers (age 55 and over) of adults with disabilities (age
19 to 59).
Support - New Funding Opportunity Announcements for Lifespan Respite
from the Administration for Community Living for New States
Administration for Community Living (ACL) has announced funds for new
grants for Lifespan Respite systems. The grants will include a federal
funding level of up to $200,000 per award for a 36 month project period
and will fund up to three cooperative agreements. Grant funds are for
planning, establishing, and expanding/enhancing Lifespan Respite Care
systems in the states, including new and planned emergency respite
services, training and recruiting respite workers and volunteers, and
assisting caregivers with gaining access to needed services. While the
eligible applicants are state governments, all applicants must
demonstrate the support and active involvement of a range of government
and non-government, private, non-profit and other organizations with a
stake in serving populations eligible to receive services under the
Lifespan Respite Care Act. Only one application per State will be
funded. Once funded, grantees will be expected to collaborate with
multiple state and local agencies representing all ages, populations and
disability/ disease groups in planning and carrying out the
requirements of the project. The announcement can be found here.
Greg deGiere, Director of Public Policy The Arc and United Cerebral Palsy California Collaboration
Bill File: The Arc and United Cerebral Palsy California Collaborative
bill to protect people from abuse and sex crimes passed its first
committee test last week. Assembly Bill 2606 passed the Assembly Public
Safety Committee 4-2. Four was the bare majority it needed. The close
vote shows it will face tough fights in the coming weeks as we try to
put it on the Governor Brown's desk for possible signature.
bill requires law enforcement agencies to give state licensing agencies
copies of reports of sex crimes, elder and "dependent adult" abuse, and
mandated reporting failing to report abuse. "Dependent adult" is the
legal term for adults with disabilities and adult in-patients.
bills goal is to have the licensing agencies investigate these reports
so that, even if police and prosecutors Are unable for convict the
perpetrators, the licensing agencies can protect the public by
suspending or revoking their licenses. Assemblywoman Shannon Grove is
introduced and is carrying the bill for us.
Monday April 25, 2016
SEN - APPROPRIATIONS - LARA, Chair 10 a.m. - John L. Burton Hearing Room (4203)
SB 1002 (Monning D)
End of Life Option Act: telephone number. Position: Arc Oppose,
UCP No Posaition, Subject: Health & Medical.
The Arc & United Cerebral Palsy California Collaboration
1225 Eighth Street, Suite 350, Sacramento, CA 95814
Tim Hornbecker, Director of Advocacy and Community Organizing
Advocacy and Community Organizing Report
Let's Get Out the Vote!
made it a point in Washington, D.C. to attend a workshop entitled "What
You Need to Know About Accessing the Right to Vote." I was attending
the Disability Policy Seminar with The Arc US as one of the sponsors.
The presenters were Michelle Bishop, a Disability Advocacy Specialist
for Voting Rights, and Nancy Ward, Co-Director, National Technical
Assistance Center for Voting and Cognitive Access. They emphasized that
being able to exercise the right to vote is critical to being able to
change public policy for persons with disabilities. They answered
questions about what to do if you encounter an inaccessible poll or if
you are denied the right to vote in a federal, state or local election.
some states, for example, you can't vote if you have a guardian.
California used to be one of these states, but now you are allowed to
vote even if a guardianship. Bring someone with you, you are allowed to
can vote even if you can't read or write. You can sign or put a check
mark on the voter registration form. If you're registered to vote, you
have a right to vote. Poll workers can't decide if you are competent.
You need a driver's license, a state ID or a birth certificate with a
places must be accessible, with ramps, elevators or whatever needed for
you to participate. Power cords should be taped down to avoid tripping.
Many locations have touch screens for you to use, remembering that you
can bring someone with you for assistance. Of course you can vote with
an absentee ballot, but you do have a right to do either.
order to encourage your voting rights in this important election year,
the Arc is joining with the efforts of Ms. Wheelchair America 2016, a
volunteer and self-advocate for The Arc, Dr. Alette Coble-Temple. You
are invited to a GET OUT THE VOTE! Event and Fundraiser at the Ed
Roberts Campus (3075 Adeline St., Berkeley), June 6th, Monday, 4pm -
Donations will be welcomed. Come learn about the issues and how to make your vote count!
Tim Hornbecker, Director of Community Organizing and Advocacy
Last week we shared the post from
the Centers for Medicaid and Medicare Services about their findings
that the Zika virus has been confirmed to be linked to microcephaly and
this week we came across the following article, "Worry about Zika, but
worry more about fetal alcohol disorder". Check out this opinion article
it make a really good point:
Milwaukee Wisconsin Journal Sentinel April 22, 2016
By Bonnie Miller Rubin, Opinion
For the last two months, it's been
all Zika, all the time. Some 358 cases of the mosquito-borne disease
have been reported in the United States - all travel-related, but
ratcheting up anxiety for anyone who is pregnant. Global health
officials are racing to understand more about the outbreak, which has
been declared a public health emergency. President Barack Obama has
asked Congress for $1.8 billion to combat the virus, linked to
microcephaly, in which babies are born with small heads and brain
damage, while scientists are fast-tracking a vaccine.
Meanwhile, there's another far more
pervasive neurological disorder that also harms the brain of the
developing fetus and has devastating effects but doesn't generate the
same headlines: Fetal Alcohol Spectrum Disorder. FASD affects 5% of
newborns - or 40,000 births annually - more than spina bifida, Down
syndrome and muscular dystrophy combined, according to the National
Organization of Fetal Alcohol Syndrome. That's not to say that Zika
shouldn't be addressed, but it is to say that this other global threat
deserves the same kind of urgency. That is especially true in Wisconsin,
where alcohol is woven into the culture. It's a well-known fact - some
might say a point of pride - that Wisconsin ranks among the
heaviest-drinking states in the nation. However, less well-known is that
women of childbearing age here have the highest prevalence of binge
drinking in the U.S. About 8% of new moms acknowledged drinking during
their last trimester, according to the 2014 Wisconsin Epidemiological
Profile on Alcohol and other Drug Use, which has called this issue one
of the state's "top five health priorities."
But unlike with Zika, being exposed
prenatally to alcohol is still open to endless debate, despite years of
research documenting collateral damage. "Of all the substances of abuse
(including cocaine, heroin and marijuana), alcohol produces by far the
most serious neurobehavioral effects in the fetus," reported the
Institute of Medicine a decade ago. Recently, those warnings only have
grown louder. In October, the American Academy of Pediatrics stated
unequivocally: "No amount of alcohol intake should be considered safe."
In February, the CDC went even further, advising women to abstain from
all drinking if having unprotected sex. Since half of all U.S.
pregnancies are unintended and many women are unaware they are pregnant
in the first four to six weeks - when the baby's brain and central
nervous system are most vulnerable to neurotoxins - why take the risk?
Yet the positions of the AAP and CDC
sparked an unprecedented backlash, with words such as "patronizing,"
"misogynistic" and accusations that women were being treated like
"baby-making vessels" ricocheting around the web. The same population on
board with avoiding sushi or changing a litter box still clings to the
fiction that a glass or two of Malbec most evenings is somehow different
than a pint of Thunderbird.
"We see it all the time...there are
even doctors who continue to tell patients that a glass of wine is OK,"
said Lindsey Peterson, an FASD outreach specialist at the University of
The 2016 Reinventing Quality conference, Assuring Quality Lives for
Everyone: Moving from the Why to the How, will be held July 31-August 2,
2016 at the Renaissance Baltimore Harbourplace Hotel, in Baltimore,
Maryland. The 2016 Reinventing Quality Conference is jointly hosted by
the National Association of State Directors of Developmental
Disabilities Services (NASDDDS), Research and Training Center on
Community Living at the University of Minnesota, Human Services Research
Institute (HSRI), University of Delaware National Leadership
Consortium, American Network of Community Options and Resources (ANCOR),
TASH, and American Association on Intellectual and Developmental
June 7-8, 2016
Registration Open for AAIDD Annual Meeting.
The AAIDD Annual Meeting is two full days of educational sessions,
exhibits, poster presentations, and networking events. There are also
optional half-day pre and post conference sessions. Our Annual Meeting
provides researchers, clinicians, practitioners, educators,
policymakers, local, state and federal agencies, and advocates with
cutting edge research, effective practices, and valuable information on
important policy initiatives.
July 18-20, 2016
Summer Leadership Institute for the National Conference of Executives of The Arc annually hosts the Summer Leadership Institute (SLI),
at different sites around the country. NCE strives to provide our
attendees with educational materials that will help our members develop
and hone their professional skills so that we can all work better and
smarter towards our shared purpose - realization of The Arc's Core
Values. This years' SLI will be in California at the Renaissance Palm Springs Hotel, Palm Springs.
October 21 and 22, 2016
for the Educational Advancement of Travel Instruction will be hosting.
"Takin' It to the Streets: Skills to Further Enhance Your Practice of
Travel Instruction ". ACVREP Credits Available, at RTC of Southern
Nevada, 600 S. Grand Central Parkway, Suite 350, Las Vegas, NV 89106
(Space is limited to 100 attendees!). A few of the ketnote sessions
include: "The American with Disabilities Act - 25+ Years of Providing
Freedom". Anthony A. Anderson, JD; "Boots on the Ground: 13,140 days as a
career Travel Instructor and Certified Orientation and Mobility
Specialist or Why my Hair Turned White at 30".Lydia Barden Peterson, MS;
"Influencing Drivers and Reducing Street Crossing Risk: What Research
Tell Us". Conference Registration: Early Bird (by 7/31) - $125, Advanced
(8/1-10/14) - $150, On-Site (after 10/14) - $175. To register by mail
or email, please use PDF form. Available here >>>. Online registration form and payment option using PayPal here >>>.
Dates/deadlines and cancellation policy appear on the PDF form. HOTEL
ACCOMMODATIONS: The Orleans, 4500 West Tropicana Avenue, Las Vegas NV
89103, www.orleanscasino.com/groups or 800-675-3267, Group Name: CEATI Reservation ID: A6RTC10, Questions? Email firstname.lastname@example.org.
October 27-29, 2016
2016 National Convention & International Forum "Shaping the Future" will be in Orlando, FL this year and will be a joint disability event with The Arc of the United States and Inclusion International.
"Join the global conversation as people from all over the world share
best practices, struggles, successes, and hopes for the future. Our
collective work is toward a common goal-to protect and promote the human
and civil rights for individuals with intellectual and developmental
disabilities in the U.S. and abroad. Attendees can expect to make
enduring personal and professional connections while learning how to
shape the future for the better.
Dean Conklin, Learning Rights Law Center, Antionette Dozier, Western
Center on Law & Poverty, Michael Herald, Western Center on Law &
Poverty, Jim Preis, Mental Health Advocacy Services, Inc., Nancy Shea,
Mental Health Advocacy Services, Inc., and Mona Tawatao, Western Center
on Law & Poverty
The major conclusions of this report are:
LEAs are not complying with their legal obligations to identify
children in need of school-based services, teach and provide necessary
school-based mental health services and supports in integrated settings,
and to provide intensive behavioral support services that meet each
child's individualized, unique needs.
children in need of school-based mental health services are not getting
services or getting too few services, resulting in school discipline or
the enactment of AB 114, there have been fewer students receiving
mental health services in their Individual Education Program (IEP) and
fewer types of mental health services available for students with
emotional or behavioral problems.
many children who have severe mental health conditions are learning and
receiving services in segregated settings, instead of in classrooms
with their peers.
This report recommends:
LEAs take immediate action to comply with the law by (1) identifying
children in need of services, particularly before taking disciplinary
actions or engaging law enforcement, and (2) providing robust behavioral
support services, like Wraparound and Intensive Home Based Services
(IHBS), to meet children's needs during general class time.
state funding for parent-peer-advocacy programs to support parents and
families seeking services through the IEP process.
each LEA develop and publish an annual "Mental Health Plan," in
consultation with stakeholders, which describes in detail the full array
of mental health services available in school, including specific
behavioral support and evidenced-based services, commitments and plans
for coordinating community-based and school-based mental health
services, and training parents and school personnel to engage in
individualized treatment plans, and the process and procedures for
obtaining such services.
legislature should require the CDE to report annually on the outcomes
for students receiving mental health services, develop a mechanism for
tracking and reporting expenditures related to mental health services,
and monitor the provision of services.
and Debby Kays recognize they face hurdles to develop a housing
community that offers an extended family atmosphere for people with
disabilities. There's the barrier of costly land in Collier County.
There's making the concept appealing to enough families. There's
potential objections from neighbors. The Kays, who operate the local
nonprofit advocacy group, Adonis Autism, nonetheless are steadfast in
their focus. They want to develop what they call "cohousing," where
families live side by side in a community they run with a shared mission
of caring for loved ones with autism or other disabilities. The concept
is for safe, affordable and financially sustainable long-term housing.
The planned name is Osprey Village, and the Kays are searching for
families to join them. "What we need to do is support these families,"
Terry Kays said.
couple knows firsthand the predicament of families with a child or
adult child with a disability. Debby Kays has a son, Walter, 23, who has
autism. He is living with them at home again in North Naples after an
unsuccessful try at a local group home. He works off and on at a
McDonald's restaurant. "There is the assumption that people with autism
can't do things, and that's not true," she said. "We want to help them
find their self motivation." The idea of Osprey Village is similar to
senior communities with supportive services, Terry Kays said. "Cohousing
is self-organized and a self-financed group of families that come
together to develop a supportive community," he said. "It is family
driven." Osprey Village doesn't have to restricted to families with a
special needs family member, Debby Kays said. There could be "typical
families" who are looking for a supportive environment. It also could
work for multigenerational families, she said. One in 68 children in
Collier County is diagnosed with autism spectrum disorder, which is a
similar number compared to other communities and comes from the U.S.
Centers for Disease Control and Prevention, said Tara Tallaksen, an
autism navigator for Golisano Children's Hospital of Southwest Florida.
She is based in Collier at Golisano's outpatient clinic in North Naples.
she works with the children with autism, parents talk about their
concerns when their children become adults. The Agency for Persons with
Disabilities has group homes for people who qualify - but in many cases
the adult children remain at home, she said. "It's a crisis," Tallaksen
said. "It's everywhere. It's not just Collier." Adonis Autism, which
organizes educational workshops and offers networking for families,
began plans for the housing community in 2013. There are about 130
family-run housing communities around the country similar to the Osprey
Village concept but none in Southwest Florida or the region, Terry Kays
said. "One broke ground in Gainesville," he said.
communities can be designed in many different ways but an overriding
principle is that families decide the structure. "It does seem like a
pie in the sky idea but it does work," Kays said. "It has been done
hundreds of times." He envisions the cost for each family at roughly
$200,000 to $250,000 but much of that depends on the cost of land. A
minimum of seven acres is needed but 10 acres is more ideal. A key
layout feature is a cluster of single family homes, town homes or a
combination with a pedestrian corridor for safety. The Kays have
enlisted a local architect firm run by Brandt and Michaela Henning,
called Hlevel. "We are interested in cohousing alternatives," Brandt
Henning said. "Cohousing truly is residents that design it." Henning put
some concepts on paper for Osprey Village with town houses and a
community center for families to consider the possibilities. ...
month, Gov. Jerry Brown signed into law a bill that includes about $300
million in funding to provide health care services for the
developmentally disabled. The state must now decide where exactly to
spend this money - and officials should ensure that some of it goes to
providing much-needed dental care for developmentally disabled children.
The bill in question, a collection of tax incentives, was originally
put together to "avoid the impending loss of $1 billion in federal
funding" for a rapidly growing Medi-Cal caseload, according to Assembly
Speaker Toni Atkins, D-San Diego. While this action did, indeed, help
all Californians by allocating $1.3 billion dollars for health care, the
state must now decide where to allocate this money. One crucial yet
often overlooked area is the large number of disadvantaged children who
still need to obtain access to dental services. This problem was never
supposed to exist in the first place. The creation of Covered California
under the Affordable Care Act has provided many of the most financially
burdened Californians the opportunity to sign up for dental insurance.
The majority sign up for Denti-Cal, which is Medi-Cal for dental
treatment. Yet for a variety of reasons, this new coverage option
doesn't always lead to patients receiving the care they need. This is
especially true for kids with development disabilities such as autism or
cerebral palsy, for example. Why?
answer is simple: There aren't enough dentists participating in this
program. In order to actually receive health care, there must be a
professional willing to provide that health care to these patients. But
fewer and fewer dentists are willing to participate in state-run
programs such as Denti-Cal. Finding a participating dentist is
increasingly problematic. There are a number of factors contributing to
this problem, but perhaps the main reason why so many dentists do not
accept these patients is that the Denti-Cal program offers only
reimbursement rates that hover around 30 percent of the national
average. This despite the far greater overhead, regulatory and tax costs
for California's dentists when compared to most other states. It should
not be surprising that dentists, who are primarily small-business
owners, have a difficult time trying to develop business models that
will allow them to provide care for the least fortunate and still keep
the doors open. In fact, The California Healthcare Foundation's Center
for Health Reporting confirm that only about 25 percent of all dentists
accept Denti-Cal patients, and only a small percentage of this 25
percent are pediatric dentists. The same study concludes that 97 percent
of dentists cite the main reason for declining to participate as the
extremely low reimbursement rates. ...
Findings led by USC University Professor challenge assumptions that increased longevity is a sign of good health
USC News April 15, 2016
By Emily Gersema and Beth Newcomb
are living longer but in poorer health, according to a new study. The
USC-led report examined life expectancy trends and disability rates over
a 40-year span from 1970 to 2010. The analysis of U.S. vital statistics
found that the average total life span increased for men and women in
those 40 years, but so did the proportion of time spent living with a
disability. The study found increased longevity is not necessarily
indicative of good health. Most age groups live longer with a disability
or other health problem. "We could be increasing the length of
poor-quality life more than good-quality life," said lead author Eileen
Crimmins, USC University Professor and AARP Professor of Gerontology at
the USC Davis School of Gerontology. "There are a number of indications
that the baby boomer generation that is now reaching old age is not
seeing improvements in health similar to the older groups that went
before them." Only for people aged 65 and older was there a "compression
of morbidity" - a reduction in the proportion of years spent with
disability. The findings have implications for policymaking, such as
proposals to raise the retirement age for Social Security and Medicare
eligibility. "Clearly, there is a need to maintain health and reduce
disability at younger ages to have meaningful compression of morbidity
across the age range," Crimmins said. "The trends for the last 40 years
do not support projections and policies that are based on assumptions of
a reduced length of disabled life."
findings: The average life span for men increased by 9.2 years to 76.2
years, the researchers found. The number of years they live with a
disability increased by 4.7 years while the number of years spent
disability-free increased by 4.5 years. For women, the average life span
increased by 6.4 years to 81 years. The number of years that women
spend with a disability increased by 3.6 years, exceeding the increase
in women's disability-free life (2.7 years). "The smaller increase in
healthy life than in total life for women was surprising and another
indication that American women have not done as well as American men in
terms of improving health in recent decades," Crimmins said. ...
The California State Council on Developmental Disabilities Announces:
HHS - Department of Health and Human Services Administration for Children and Families Administration for Children and Families - OCS
Community Services Block Grant (CSBG) Training and Technical Assistance
(T/TA) Organizational Standards Center of Excellence (COE)Granthttp://www.grants.gov/web/grants/view-opportunity.html?oppId=283230
Arc of California posts job announcements in the Career Ladder section
every week because we would like to contribute to steering quality
candidates to professional positions that support people with
disabilities and we are trying to communicate to Direct Support
Professionals that there is a real "career ladder" in their chosen
Assistant Executive Director for Employment and Day Services (AED) is a
senior level position that reports directly to the Executive Director.
The AED is responsible for planning and oversight of all operations in
the Employment and Day Services division, the agency's largest division.
The AED seeks to fulfill The Arc Baltimore's commitment to maximizing
employment outcomes for all people supported by leading and managing The
Arc Baltimore's strategic efforts to best align its supports to enable
each individual's desired employment outcome. The position is also
responsible for ensuring access to innovative, meaningful and integrated
(i.e. community-based) activities for those who choose not to work
(e.g. are retired).
Arc of Mercer County Pennsylvania is located in western Pennsylvania 60
miles north of Pittsburgh and 70 miles east of Cleveland, Ohio. The
Arc/MCAR serves Individuals with Intellectual and autism related
disabilities residing in Mercer County with Day, Residential, Community
Employment and Habilitation Aid programs. The Arc/MCAR Is seeking a CEO
who will have overall strategic and operational responsibility for
staff, programs, expansion, development and execution of its mission. An
integral function of the position Is advocacy at the local, state and
federal levels to improve the lives of those whom we serve.
Living Options, Inc., located in West Sacramento, is seeking applicants
for the position of Executive Director. This is a rewarding leadership
opportunity to work with a stable organization and partner with a
supportive board as the organization looks to continue their success
beyond the retirement of their founding CEO. Creative Living Options,
Inc.'s mission is to provide persons with developmental disabilities the
opportunity to create an individual and personalized lifestyle, with
the supports necessary for each person to fully participate in community
life, as he or she desires. The organization has a budget of
approximately $3.5M, a staff of 120 and serves customers living
throughout Sacramento, Placer and Yolo counties. The Executive Director
will report to the Board of Directors.Priority
review of applications will begin Friday, April 29, 2016 and will
continue until the position is filled. To ensure full consideration,
please email a resume and cover letter to email@example.com.
California Primary Care Association is looking for a Government affairs
professional responsible for leading efforts related to key public
policy issues impacting community health centers.
The Executive Director (The Arc Capital Area - Central Texas) will
report to the board of directors, provide vision and leadership for the
organization, and manage day-to-day operations. Ideal candidates will
bring to the position a variety of attributes, knowledge, and skills,
including: Proven record of success with government funding, as well as
fundraising through individual and corporate sponsorships and from
special events. Excellent communication skills as both an effective,
articulate speaker and an artful, active listener. Respectful and
collaborative approach to connect with clients and their families,
donors and partners, and key stakeholders. Dynamic, team-focused leader
with proven experience taking an organization to new levels of services
excellence and demonstrated initiative to generate and try new ideas.
Administrative operations fluency, well-versed in financial management,
board relations, and resource management. Energetic self-starter ready
to build on our strengths and the value of our mission. Demonstrated
experience leading an organization through significant growth or
transition. Commitment to the importance of the mission and services of
The Arc of the Capital Area and sensitivity to the challenges facing
people with disabilities.
The Arc California 1225 8th Street, Suite 350 Sacramento, CA 95814 916.552.6619
Advocates for people with intellectual and all other developmental disabilities and their families since 1950.