tony@thearcca.org
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August 24, 2015  
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Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Tony Anderson, Executive Director, The Arc California

Monday August 24, 2015
We'll be participating in the organizing meeting for the September 3 rally, We're Here to Speak for Justice." The event is receiving incredible support and participation in anticipated at around 900 people. Advocates are coming in the busloads from the South, Central, Coastline, the North and every other part of California. The event will start at the Crest Theater at 10:00 a.m. - Noon, followed by a march to the Capitol at 12:00 p.m. Advocates will gather on the Southside for lunch and many will be meeting with their legislative representatives in the capitol. "The developmental services community has endured a decade of rate cuts and freezes. We are a community that is falling apart. We need help now! Please join us as we get inspired by heroes who started the fight for the Lanterman Act and by Legislative champions & advocates like you continuing the fight to
#KeepthePromise and #Speak4Justice. For more information, visit our website at www.supportedliving.com or contact Mark Melanson at mmelanson@toolworks.org. or (415) 733-0990 ext 602.
 
The Lanterman Coalition lobbyists will be meeting with legislators on items related to the special session, asking for an across the board 10% increase, and discussing the urgent nature of our request for immediate relief.
 
The Senate Special Session Appropriation committee chaired by Senator Richardo Lara will be meeting at 10 a.m. in the John L. Burton Hearing Room (4203) and will hear a series of bills related to tobacco policy - see Bill File section below...
 
Tuesday August 25, 2015
There will be a joint hearing of the legislative Audit committees chaired by Assemblymember Mike Gipson from 9:30 am to 11 am in room 444. The committee will review a variety of audit requests including: Department of Social Services - Community Care Licensing Program (Senator Galgiani), and Foster Youth - Psychotropic Medication (Senator McGuire).
 
The Public Health and Developmental Services Special Session committee chaired by Assemblymember Rob Bonta at 1:30 p.m. in the State Capitol, Room 4202 and will hear a series of bills related to tobacco policy - see Bill File section below...
 
Wednesday August 26, 2015
We'll be participating with other Disability Organizations focused on SB 450 and other policy issues related to access and the ADA.
 
The Lanterman Coalition lobbyists will be meeting with legislators on items related to the special session, asking for an across the board 10% increase, and discussing the urgent nature of our request for immediate relief.
 
We'll be participating in an organizing meeting to provide a conference for Direct Support Professionals for early December 2015. We are working with national experts to focus on the professional ethics and frontline supervision practices.

Thursday August 27, 2015
The USC University Center for Excellence in Developmental Disabilities is hosting a webinar, "CaPROMISE Webinar: A study on increasing self-sufficiency of students with disabilities on SSI, and their families" at 10:00am PST. "In this webinar, Fred R. McFarlane, PhD, Professor Emeritus and Co-Director of the Interwork Institute at San Diego State University, and Joe Xavier, Director of the California Department of Rehabilitation, will discuss: (1) What is CaPROMISE? (2) What is the goal of the study? (3) What interventions are being tested? (4) Who are involved in this study?
 
The California Department of Rehabilitation (DOR) will be holding a public forum from 1:30 p.m. - 3:00 p.m. to share information regarding efforts to align programs with the Workforce Innovation and Opportunity Act (WIOA) including new services for students with disabilities. "The new services for high school students age 16 through 21 being developed, as recommended by stakeholders including parents, advisory bodies and DOR managers and staff, are: early work experiences through local educational agencies, summer vocational training programs and self-advocacy training. Visit DOR's WIOA web page for a summary of the new services." To participate, call in at 800-779-9065, participant Passcode: 6893354.
 
The stakeholder group working on the statewide implementation of the Self-Determination program will be meeting today at the department of Developmental Services. You can view the updated Medicaid Waiver application and comments.
 
Friday August 28, 2015 - Saturday August 29, 2015
We'll be meeting with corporate partners Hogan Insurance, local advocates in Ventura County, and participating in The Arc Ventura fund raiser, the 2nd Annual Fred Robinson Classic Car Show.

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Greg deGiere, 
Public Policy Director
THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION:  Public Policy Reports 
 
This week we are including a guess action alert by Elain Linn, California Children's Hospital Association, on a topic very import to us in our policy work, the transition of the California Children Services (CCS) program. We have had a support position for Assemblymember Rob Bonta's AB 187, a bill to extend the existing CCS carve-out from Medi-Cal managed care and to allow more time to create a whole-child health system alternative that will protect access to care for these vulnerable children.
 
Is California's program that provides specialized care for medically fragile children on the chopping block? The CA Department of Health Care Services (DHCS) has proposed a "redesign" of CA Children's Services (CCS), which would require children to get specialty care through Medi-Cal managed care instead of CCS. Since 1927 CCS has provided diagnosis, treatment, and medical case management for children and adolescents with special health care needs who are enrolled in Medi-Cal or have catastrophic medical costs.
 
Why is CCS important? CCS was formed for children with complex, rare and potentially life-threatening conditions that require treatment from a limited pool of highly trained specialists. It is in place to ensure children receive treatment that is appropriate for their health care needs, without any financial conflicts of interest.
 
What's the impact on people with I/DD? The proposal is particularly problematic considering experiences with the expansion of mandatory managed care.
  • The statewide provider network would be weakened, threatening the entire regionalized pediatric system of care that serves all children in California, not just those eligible for CCS.
  • Any change to the CCS program raises the prospect that families will need to overcome additional administrative hurdles in order to maintain access to clinically necessary specialty care. Without a compelling justification for making changes to the program, it is unfair to impose such a burden on families - a burden that will impose hardships on CCS families and may negatively affect health outcomes.
  • Access to specialty care could be limited to the HMO's network of care, which may or may not include all of the pediatric specialists who have extensive experience in handling the complex medical conditions covered by CCS.
  • CCS' separation of medical decision-making and financial risk ensures that case management and authorization decisions are made solely on the basis of the child's needs. Traditional managed care requires prior authorizations and imposes tight utilization management controls. This could create barriers to access for high frequency users of medical care, like CCS children.
Who cares?
  • 35+ disability, patient/client/consumer, health care, and health care provider organizations signed onto a joint letter supporting legislation (AB 187, Bonta) extending the CCS carve out and opposing the DHCS proposal.
  • Children's Regional Integrated Services System (CRISS) calls the redesign proposal "potentially catastrophic."
Why now?
  • Surveys conducted by the DHCS demonstrate that CCS families are overwhelmingly satisfied with the service they receive, with ratings typically higher than for HMOs and managed care plans. A recent state audit faulted the DHCS for not verifying health plans' information and said the Department could not ensure that the health plans had adequate numbers of providers to serve Medi-Cal beneficiaries.
Call to Action.
  • Support AB 187 (Bonta), which would extend the CCS carve out.
  • Has CCS helped someone you know? Contact CCS4families@gmail.com to share your story.
  • Follow @CCS4families on Twitter.
  • Share information and news! Post, tweet, and email recent news reports that highlight the impact a radical change in the CCS program would have on real families of children with complex medical conditions and/or I/DD.
    • Post on Facebook, tweet, and email to your networks the following posts, attaching with the articles below:
      • Is CA program that provides specialized care for medically fragile children on the chopping block? #SaveCCS #CCS4families
      • Please share with your friends and groups. Kids could lose access to care if CCS is dismantled. #SaveCCS #CCS4families
      • Is CA Children's Services on the chopping block? People who care about kids with complex medical issues need to know about this #SaveCCS #CCS4families
Greg deGiere
Public Policy Director
The Arc & United Cerebral Palsy California Collaboration
1225 Eighth Street, Suite 350, Sacramento, CA 95814 (916)  
552-6619 ext. 4  Greg@TheArcCA.org
 
SIGN UP FOR OUR CALIFORNIA ACTION ALERTS
 
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The Arc Action Alert: Help Increase Accountability for Students with Disabilities
 
Congress plans to take up the reauthorization of the Elementary and Secondary Education Act (ESEA) when it reconvenes in the fall.   Right now the most important thing that must be added to the legislation is greater accountability - holding schools accountable for how well their students do.  High school graduation rates and performance on assessments are the main ways to know how students are doing. 
 
Unfortunately, a school's overall student population can meet state-set accountability goals while its subgroups of students with disabilities do not.   In other words, students with disabilities' performance can be masked by school averages.  And if the problem remains hidden, then nothing is done to address it.
 
 
What to say:
  • I am a member of The Arc (if you're not but would to be: join).
  • I am calling about the ESEA reauthorization.
    • Please make sure that the bill includes greater accountability for student achievement, especially subgroups of students.
  • Accountability can be improved by adding  provisions to:
    • ensure that states require intervention in schools where any student subgroup is not meeting state-determined goals;
    • set a reasonable timeline of 3 years to take steps to help districts if interventions are not effective; and
    • ensure the participation of 95% of all enrolled students in the state accountability system.
  • Thank you!
 Also, sign up for: The Arc US Capitol Insider
SIGN UP FOR OUR NATIONAL ACTION ALERTS
  
Click on The Arc UCP California Collaborative Bill File.

Monday August 24, 2015 

SEN - APPROPRIATIONS LARA, Chair 10 a.m. - John L. Burton Hearing Room (4203)

*      AB 854    (Weber D)   Educational services: pupils in foster care.  Position:  Watch, Subject:  Special Education.

*      AB 1025    (Thurmond D)   Pupil health: multitiered and integrated interventions pilot program.Subject:  Special Education.

*      SBX2 5    (Leno D)   Electronic cigarettes.Position:  Watch+, Subject:  Special Session.

*      SBX2 6    (Monning D)   Smoking in the workplace.Position:  Watch+, Subject:  Special Session.

*      SBX2 7    (Hernandez D)   Tobacco products: minimum legal age.  Position:  Watch+, Subject:  Special Session.

*      SBX2 8    (Liu D)   Tobacco use programs.Position:  Watch+, Subject:  Special Session.

*      SBX2 10    (Beall D)   Cigarette and tobacco product licensing: fees and funding.Position:  Watch+, Subject:  Special Session.

Tuesday August 25, 2015 
ASM - PUBLIC HEALTH AND DEVELOPMENTAL SERVICES BONTA, Chair 1:30 p.m. - State Capitol, Room 4202

*      ABX2 6    (Cooper D)   Electronic cigarettes.Position:  Watch+, Subject:  Prevention/FASD, Special Session.

*      ABX2 7    (Stone, Mark D)   Smoking in the workplace.Position:  Watch+, Subject:  Special Session.

*      ABX2 8    (Wood D)   Tobacco products: minimum legal age.Position:  Watch+, subject:  Special Session.

*      ABX2 9    (Thurmond D)   Tobacco use programs.Position:  Watch+, Subject:  Special Session.

*      ABX2 10    (Bloom D)   Local taxes: authorization: cigarettes and tobacco products.Position:  Watch+, Subject:  Special Session.

*      ABX2 11    (Nazarian D)   Cigarette and tobacco product licensing: fees and funding.Position:  Watch+, Subject:  Special Session.

Wednesday August 26, 2015 
ASM - APPROPRIATIONS GOMEZ, Chair 9 a.m. - State Capitol, Room 4202

*      SB 251    (Roth D)   Disability access: civil rights: income tax credit.Position:  Watch, Subject:  Housing.

*      SB 324    (Pavley D)   Income taxation: savings plans: Qualified ABLE Program.Position:  Support, Subject:  Work.

 
Thursday August 27, 2015

ASM - APPROPRIATIONS SUSPENSE GOMEZ, Chair Upon Adjournment of Session - State Capitol, Room 4202

*      SB 3    (Leno D)   Minimum wage: adjustment.Position:  Oppose, Subject:  General Systemic.

*      SB 11    (Beall D)   Peace officer training: mental health.Position:  Support, Subject:  Criminal Justice & Civil Rights.

*      SB 19    (Wolk D)   Physician Orders for Life Sustaining Treatment form: statewide registry.Position:  Support, Subject:  Health & Medical.

*      SB 29    (Beall D)   Peace officer training: mental health. position: Support, Subject:  Criminal Justice & Civil Rights.

*      SB 33    (Hernandez D)   Medi-Cal: estate recovery.Position:  Support, Subject:  Health & Medical.

*      SB 43    (Hernandez D)   Health care coverage: essential health benefits.Position: Watch+, Subject:  Health & Medical.

*      SB 406    (Jackson D)   Employment: leave.Position: Support, subject: Children & Family Services, Work.

*      SB 441    (Leno D)   San Francisco redevelopment: housing.Subject:  Housing.

*      SB 490    (Beall D)   Regional centers: audits.Position: Support, subject:  General Systemic.

*      SB 613    (Allen D)   State Department of Public Health: dementia guidelines: workgroup. Position:  Watch, Subject:  Health & Medical.

*      SB 644    (Hancock D)   Limited Examination and Appointment Program: persons with developmental disabilities.Position:  Support, Subject:  Work.

SEN - APPROPRIATIONS SUSPENSE LARA, Chair Upon adjournment of Floor Session - John L. Burton Hearing Room (4203)

*      AB 2    (Alejo D)   Community revitalization authority.Position:  Support, Subject:  Housing.

*      AB 35    (Chiu D)   Income taxes: credits: low-income housing: allocation increase.Position:  Support, Subject:  Housing.

*      AB 74    (Calderon D)   Care facilities: regulatory visits.Position:  Support. Subject:  Criminal Justice & Civil Rights, Residential Services.

*      AB 90    (Chau D)   Federal Housing Trust Fund.Subject:  Housing,

*      AB 187    (Bonta D)   Medi-Cal: managed care: California Children's Services program.Position:  Support.

*      AB 348    (Brown D)   Long-term health care facilities: complaints: investigations.Position:  Support, Subject:  Health & Medical, Residential Services.

*      AB 366    (Bonta D)   Medi-Cal: annual access monitoring report.Position:  Support, Subject:  Health & Medical.

*      AB 449    (Irwin D)   Income taxation: savings plans: Qualified ABLE Program.Position:  Support, Subject:  Work.

*      AB 564    (Eggman D)   Regional centers: parental fees.Position:  Watch, Subject:  General Systemic.

*      AB 601    (Eggman D)   Residential care facilities for the elderly: licensing and regulation.Position:  Support, Subject:  Criminal Justice & Civil Rights, Residential Services.

*      AB 662    (Bonilla D)   Public accommodation: disabled adults: changing facilities.Position:  Support, Subject:  Olmstead Related.

*      AB 664    (Dodd D)   Medi-Cal: universal assessment tool report.Position:  Watch, Subject:  Health & Medical.

*      AB 703    (Bloom D)   Juveniles: attorney qualifications.Position:  Support - With Amendments. Subject:  Criminal Justice & Civil Rights.

*      AB 861    (Maienschein R)   Mental health: community-based services.Position:  Watch, Subject:  Health & Medical.

*      AB 870    (Cooley D)   Homelessness: rapid rehousing.Position:  Support, Subject:  Housing.

*      AB 1056    (Atkins D)   Second Chance Program.Position:  Support if amended, Subject:  Housing.

*      AB 1261    (Burke D)   Community-based adult services: adult day health care centers.Position:  Watch, Subject:  Health & Medical.

*      AB 1369    (Frazier D)   Special education: dyslexia.Position:  Watch, Subject:  Special Education.

*      ACR 38    (Brown D)   California Task Force on Family Caregiving.Position:  Support, Subject:  Children & Family Services.
 



Tim Hornbecker, Director of Advocacy and Community Organizing
PROJECT STATUS REPORT
     
Project Updates by Tim Hornbecker...
 
Advocacy and Community Organizing Report
In order to have power, you need to have numbers. That's why we are reaching out of the disability community to other organizations who have similar issues; transportation, employment, housing, seniors and budget cuts!
 
One of those organizations, Genesis, the local Gamaliel affiliate in Oakland, provided a 1 hour Leadership Training last week for eight (8) self advocates from The Arc of Alameda County. They learned how to introduce themselves, how to talk passionately about what is important to them (their issues), to emphasize nothing about me without me, and to remind legislators that they are voters! The self advocates took turns standing, speaking loudly, and following a written outline or picture cards to remind them of their message. Legislators hopefully listen to all of us, but especially to self advocates and their family members telling their stories. Remember that The Arc California can arrange similar trainings in your area. 

But what better way to practice than for a few of the self advocates to speak to the Genesis Issue Task Force in Oakland on this Tuesday evening, in order to get their 8 member organizations to join the March & Rally in Sacramento. Other Gamaliel affiliates have also been invited to attend: Capitol Region Organizing Project with our own Joe Meadours as a board member, and the North Bay Organizing Project from Sonoma County who were successful in helping us get the Taser Torture investigation at Sonoma Developmental Center!
 
We hope that you likewise are planning to attend the Speak for Justice Rally and March on Sept. 3rd, Thursday. Presentations start at the Crest Theater in Sacramento, 10 AM, followed by a 12 noon March to the Capitol! Please note the correction to the time that the actual March starts: 12 Noon (not 1PM) from the Crest Theater (1013 K Street, Sacramento, CA 95814).
 
See you there!
Thanks,
Thanks for your advocacy,

Tim Hornbecker, Director of Community Organizing and Advocacy tim@thearcca.org
 

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Teresa Anderson, Prevention Coordinator
PREVENTION ACTIVITIES
 
Check out this article below after I read it I thought it was important that young researchers and clinicians are learning about FASD and the impact alcohol has on the fetus. We still continue to hear about doctors and other trusted medical professionals who tell their patients it's okay to drink alcohol during pregnancy despite the overwhelming evidence to the contrary. It's great to see up and coming scientists learning and advancing the understanding of drinking alcohol during pregnancy.
 
Salisbury Post August 20, 2015
Noyce Scholar Brinsley Stewart of Boonville plans to be a math teacher after she graduates from Catawba College in May 2016, but her internship experience this summer at the University of North Carolina Chapel Hill Nutrition Research Institute in Kannapolis gave her some keen insights into just how important math and applied statistics can be in the world of research. Stewart, a rising senior, interned under the tutelage of Dr. Philip May, a 1969 Catawba alumnus. May is a research professor for UNC at the Nutrition Research Institute, where he continues his National Institute of Health-funded research on Fetal Alcohol Spectrum Disorders. May has conducted and overseen research on the prevalence and characteristics of Fetal Alcohol Spectrum Disorders in three communities in the U.S. and five communities in South Africa. His UNC team is now working on a growth and development study in Kannapolis and Cabarrus County.
 
May, along with members of his team - Julie Hasken, Julie Stegall and Heather Mastro - helped Stewart analyze some of the data that had been gathered in South Africa to get answers to two hypotheses she developed while studying and working with the research team: Do mothers who binge drink more than three or five drinks at a time have worse outcomes for their children than mothers who don't? Do mothers in lower socio-economic conditions with deficient nutritional status suffer poorer growth and development outcomes in their children? What Stewart found was enough to help her create two research posters that she coauthored with Hasken and May. She hopes to present them both at scientific conferences during the upcoming academic year. She also learned "just how long it takes to do research," an insight she called, "most surprising." "What we tried to do is show her how standard public health research methods and biostatistics can be applied in local communities to answer important questions of international significance," May explained. "That's what we do and that's what I've done all of my career."...

Teresa Anderson, MPH
The Arc California
Prevention Coordinator
teresa@thearcca.org
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UPCOMING EVENTS
 
October 3 - 5, 2015
The Arc's 2015 National Convention, Indianapolis, Indiana

October 7-8, 2015
Therap's Southern California Conference in Anaheim California, Red Lion Hotel Anaheim, 1850 South Harbor Boulevard, Anaheim, CA 92802. "Come spend a day or two with the Therap West Team and see what 20,000+ Californians are doing when they log into Therap each month. Mingle with current Therap Users and the Training and Implementation Team. Therap has been supporting agencies in California since 2006! Breakout Sessions will include: Introductions for New or Potential Users, Policy and Procedural Considerations for Implementing an Electronic System, Person Centered Planning, Daily Data Collection and Communication, Behavior Support Tracking, SIR Tracking, eBilling and other Billing tracking and claims, Health Tracking, Medication Administration, Employment Tracking and Milestones, Outcome focused documentation, managing access for Audits, and Circle of Support members, and much more. Contact kevin.dierks@therapservices.net to see if you are eligible for a discount! http://www.therapservices.net/conferences/regional-conference-in-anaheim-california/
 
October 8-9, 2015
Supported Life Conference 2015, Supported Life Institute and SCDD - Sacramento Office present the 29th Annual Conference Crowne Plaza Hotel, 5321 Date Ave. Sacramento, CA 95841 (916) 338-5800. "Ready or Not ~ Change is Coming" this conference will include over 400 people with developmental disabilities (diagnoses such as autism, cerebral palsy, Down syndrome, epilepsy, intellectual or cognitive disability, and other severe disabilities), their family members, and the professionals who support people to be fully engaged citizens, participating in all aspects of their communities. Please contact: Andy Faletti, Project Coordinator, afaletti@supportedlife.org, (916) 567-1974, Click here for more information, www.supportedlife.org.
 
November 18-20, 2015
The NADD 32nd Annual Conference & Exhibit Show, "Equality, Recovery, Access: Integrating Treatment & Services for Persons with IDD/MI" will be in San Francisco, California this year. The 32nd Annual NADD Conference Co-Chairpersons will be Peggie Webb, MA, San Diego Regional Center, San Diego, CA and Michael Kennedy, MFT, Behavioral Health Services, Sonoma, CA. The featured keynote speakers include: Dave Hingsburger, Vita Community Services, Toronto, Ontario, Canada, "ID and Identity: Claiming and Owning Difference" and Brian King, MD, MBA, Center on Human Development and Disability, University of Washington, Seattle, Washington "Equality/Recovery/Access: The Future Is Now".


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RECENTLY RELEASED REPORTS, STUDIES, ETC.

Mortality of People with Intellectual and Developmental Disabilities from Select US State Disability Service Systems and Medical Claims Data

Emily Lauer and Philip McCallion, Journal of Applied Research in Intellectual Disabilities

Volume 28, Issue 5, pages 394-405, September 2015

Background
Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into underlying health concerns and the need for and effectiveness of public health efforts.
 
Methods
Data from both US state intellectual and developmental disabilities service system administrative data sets and de-identified state Medicaid claims were used to calculate average age at death and crude mortality rates.
 
Results
Average age at death for people in state intellectual and developmental disabilities systems was 50.4-58.7 years and 61.2-63.0 years in Medicaid data, with a crude adult mortality rate of 15.2 per thousand.
 
Conclusions
Age at death remains lower and mortality rates higher for people with intellectual and developmental disabilities. Improved case finding (e.g. medical claims) could provide more complete mortality patterns for the population with intellectual and developmental disabilities to inform the range of access and receipt of supportive and health-related interventions and preventive care.
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NEWS ARTICLES
Los Angeles Times August 23, 2015
By George Skelton
 
SACRAMENTO - Can't win by the current rules? Change them. The opposing team is too tough? Bench its troublesome players. Politics, after all, is the art of the possible. Nineteenth century German Chancellor Otto von Bismarck said that. He also said, to paraphrase, that laws are like sausages. If you're squeamish, don't watch either being made. They're making lots of sausage now in the California Legislature as it rushes to adjourn for the year. Rules are being stretched. Hurdles lowered. And why not? All's fair in love and war and legislative games-playing. A prime example is the fight over the "right to die" bill. The measure, modeled after an Oregon 'death with dignity' law, would permit Californians with fewer than six months to live to end their suffering by taking lethal drugs prescribed by a physician. There'd be protections against abuse. Two doctors would have to confirm that a patient was terminal and mentally competent. The patient would need to make two oral requests to a physician at least 15 days apart, with witnesses. The doctor and patient would have to meet once alone. The medication would have to be self-administered. To protect hospitals and physicians from acting against their beliefs, none would be required to participate.
 
The bill passed the Senate in June on essentially a party-line vote - Democrats for, Republicans against. But it stalled in the Assembly Health Committee. There, a handful of Southern California Democrats, mostly Latinos under pressure from the Roman Catholic Church, withheld support. So backers shelved the measure, presumably until next year. But last week, backed by legislative leaders, sponsors smartly seized an opening created inadvertently by Gov. Jerry Brown. The governor, impatient with the Legislature's inability to create a new revenue stream for fiscally ailing public healthcare, had called a special legislative session. He wanted to focus the lawmakers' attention on healthcare financing. And in a special session, legislating can be expedited. But more important for "right to die" sponsors, committee lineups are shuffled. The sponsors inserted their proposal into the special session after checking with legislative parliamentarians to make sure the move was legal.
 
So now the Health Committee for the special session excludes five Democrats who had not supported the bill in the regular session. And it looks like clear sailing to the Assembly floor. "Heavy-handed," "running roughshod" and "clearly abusive," charged Californians Against Assisted Suicide, a coalition of Catholic, disability and oncologist groups. Some disability activists fear the bill could be used by family members and insurance companies to get rid of burdensome and costly patients. Brown hasn't taken a position on the measure. But, through a spokeswoman, he criticized the legislative corner-cutting. "This important issue merits careful consideration," said Deputy Press Secretary Deborah Hoffman. "The process already well underway with the two-year bill ... is more appropriate than the special session."...
 
The Desert Sun August 22, 2015
By Jeff Stone
Since returning from summer recess in mid-August it has been Taxnado season here in Sacramento with proposals from Democrats to raise taxes on hard-working California families spinning faster than a Category 4 twister crossing the Great Plains. Newspaper editorials and many of my constituents have asked how this state Legislature, flush with $10 billion in unanticipated revenue from taxpayers, is still looking to increase taxes. Among the recent storm clouds of Taxnado season is a proposed $1 billion tax increase placed firmly on the backs of working Californians who already pay for health insurance for themselves and their families. This extra billion dollars and more, Sacramento Democrats say, will improve the care of our state's most vulnerable, the poor and the developmentally disabled, who have been pushed to the side in California for far too long. The cause is noble. The solution is wrong.
 
The fact is clear - California already has the money to help those who need our help, and we don't need a tax increase to support the most vulnerable in our society. During the last budget, Republicans were kept out of the room when decisions were made on how to spend roughly $10 billion of unanticipated revenues. I joined with my Republican colleagues to urge the Democrats and the governor to spend the money on helping low-income and disabled Californians get better access to doctors through an increase of Medi-Cal reimbursement rates. I joined with my colleagues to provide increases to programs aimed at helping the developmentally disabled. Sadly, the Democrats and the governor chose to spend the extra money on a $600 million pay raise for public employees. They also spent hundreds of millions of dollars on a fund to "train" members of the California Teachers Association. These aren't necessarily bad things, but it shows that Democrats in Sacramento put the interests of public employee unions ahead of real people in need of government assistance.

Now that the budget has been adopted, the Sacramento Democrat majority and the governor are coming back to the Legislature to ask for tax increases to pay for programs that should have been paid for with existing revenues ... My bill, Senate Bill 2X 11, would redirect monies from the closure of state developmental centers to pay for community services for the developmentally disabled. Senate Bill 2X 4, authored by Sen. Jim Nielsen, R-Gerber, and myself, would require any new General Fund revenues available over 2015 budget levels be dedicated to increase reimbursement rates for developmental disability services, up to 10 percent, to ensure access. I am prepared to work with colleagues on both sides of the aisle to fund these much needed programs with existing revenues. Jeff Stone represents California's 28th Senate District. Email him via http://stone.cssrc.us/.

Levine proposes flat tax on managed care organizations to protect federal Medi-Cal funding

Marin Independent Journal August 19, 2015

By Richard Halstead,

Assemblyman Marc Levine this week introduced a bill that would impose a flat tax on all managed care organizations in the state as a substitute for an existing tax on a segment of the industry that has been deemed improper by the federal government. In addition to replacing $1.1 billion generated by the existing tax, the new levy would generate an additional $800 million in revenue to restore previous cuts to Medi-Cal reimbursement rates, reinstate In-Home Supportive Services hours and increase developmental services funding. "In July of last year, the Obama administration notified California that our current managed care organization tax is not in compliance with federal rules and this places $1.1 billion in federal funding in jeopardy," Levine said. The federal government decided that the existing tax is not broad-based enough since it applies only to managed care organizations that participate in Medi-Cal. The tax revenue is used as matching funds to qualify for an equal amount of federal Medi-Cal funding. To avoid losing the federal revenue, a fix must be in place before the current tax expires on June 30, 2016.

That's crucial, Levine says, since, "There are more than 9 million Californians who receive their health care through Medi-Cal, including 5.2 million California children." Under Levine's proposal, California's 45 managed care organizations would be taxed at a flat rate of $7.88 per insured person. Levine's tax would also raise $380 million a year for developmental services funding, $226 million to pay for a 7 percent increase in In-Home Supportive Services hours, and $170 million for restoration of Medi-Cal provider reimbursement rate cuts made in 2011. "The community system for people with intellectual and developmental disabilities is currently collapsing due to historic divestment away from supporting some of our most vulnerable citizens," said Tony Anderson, executive director of The Arc California, an advocacy group for people with disabilities, in a statement. Anderson said that during the four years following the onset of the Great Recession state funding of services to people with disabilities was cut by $1 billion. He said the cuts resulted in about 20,000 service providers - nonprofits providing board and care, day programs or assistance to people providing home care - shutting down. A total of 435 homes for the developmentally disabled have closed since the beginning of fiscal year 2011-12, resulting in a loss of almost 2,300 beds. Anderson said because of the reduction in services many adults with disabilities can no longer move out of their parents' homes and live independently. "We've got almost 100,000 people living with aging caregivers," Anderson said. ...


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FUNDING OPPORTUNITIES

The following grant opportunity postings were made on the Grants.gov Find Opportunities service: 
 
HHS - Department of Health and Human Services National Institutes of Health Brain Somatic Mosaicism and its Role in Psychiatric Disorders (U01) Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=253630
 
HHS - Department of Health and Human Services National Institutes of Health Exploratory Multi-site Palliative Care Research in Diverse Populations Utilizing the Palliative Care Research Cooperative (PCRC) Group (R21) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=278618
 
HHS - Department of Health and Human Services National Institutes of Health NIDA Translational Avant-Garde Award for Development of Medication to Treat Substance Use Disorders (UG3/UH3) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=278619
 
HHS - Department of Health and Human Services National Institutes of Health Chemistry, Toxicology, and Addiction Research on Waterpipe Tobacco (R01) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=278621
 
CPSC - Consumer Product Safety Commission Pool Safely Grant Program Modification 3
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Immunization and Vaccines for Children Program Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=278551


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
Jobs Page Links: Click Here 
 
Executive Director
The Executive Director has overall strategic and operational responsibilities for The Arc of Spokane's staff, programs, and execution of its mission. The position is responsible for an annual budget of $6-8M, and provides leadership for a 19 member Board of Directors as well as 250 employees including seven Program Directors. The Executive Director is a creative and driving force for further enhancing the growth and development of the agency, including fundraising and membership growth. He/she is an energetic advocacy role model, networking with other professional organizations, and representing The Arc of Spokane with government, private agencies, and the community. As the liaison between the Board of Directors and the organization, the Executive Director provides regular operational reviews, legislative updates, and other guidance to the Board. Application packet and job description are available for download from the Executive Director Recruitment link on www.arc-spokane.org. Please submit completed application packet to The Arc of Spokane, 320 E. 2nd Ave, Spokane, WA 99202 or email to edrecruit@arc-spokane.orgApplication deadline is 8/21/2015.
 
Executive Director
The Executive Director has overall strategic and operational responsibilities for The Arc of Spokane's staff, programs, and execution of its mission. The position is responsible for an annual budget of $6-8M, and provides leadership for a 19 member Board of Directors as well as 250 employees including seven Program Directors. The Executive Director is a creative and driving force for further enhancing the growth and development of the agency, including fundraising and membership growth. He/she is an energetic advocacy role model, networking with other professional organizations, and representing The Arc of Spokane with government, private agencies, and the community. As the liaison between the Board of Directors and the organization, the Executive Director provides regular operational reviews, legislative updates, and other guidance to the Board. Application packet and job description are available for download from the Executive Director Recruitment link on www.arc-spokane.org. Please submit completed application packet to The Arc of Spokane, 320 E. 2nd Ave, Spokane, WA 99202 or email to edrecruit@arc-spokane.orgApplication deadline is 8/21/2015.
 
The Arc Baltimore is seeking an experienced and committed leader and manager to head its Employment and Day Services division. The Assistant Executive Director (AED) for Employment and Day Services is a senior level position that reports directly to the Executive Director. The AED is responsible for planning and oversight of all operations in the Employment and Day Services division, the agency's largest division with a budget of more than $27 million and providing services to more than a thousand individuals with intellectual and developmental disabilities (including autism) with about 350 staff. The Arc Baltimore is committed to maximizing employment outcomes for all people we support and continues on a path to align its supports and programs so that more and more individuals can enjoy competitive, integrated employment. The Assistant E.D. will share that commitment and bring new energy and leadership to The Arc Baltimore's strategic efforts to best align its supports to enable each individual's desired employment outcome. Candidates for this position shall have a Master's degree in a relevant field and a minimum of ten years' experience providing supports to individuals with intellectual and developmental disabilities (or a closely related human service endeavor) at least half of which has included management and supervisory experience. To learn more about this position (and to apply if desired), visit The Arc Baltimore's website at www.thearcbaltimore.org and click on the 'Join Our Staff' tab.

Senior Associate Executive Director for Chapter Relations

The position will: * Develop best practice recommendations for Chapters to provide assistance in strengthening programming/operations, identify performance metrics with Chapter leadership, analyze results, and assist with strategies for assistance * Initiate and coordinate collaborative efforts that will allow Chapters to provide support for each other, assisting Chapters in developing and implementing collaborative ventures and partnerships * Assist the Executive Director with strategies to support Chapters with financial and/or programmatic difficulty. When interventional strategies are identified, this role shall be the lead in coordinating the State Office response strategy, including necessary on-site Chapter leadership and coordinating the response assistance capacity of other Chapters. This senior level position will assure timely, objective, quantitative identification and resolution steps regarding Chapters that are financially troubled. The position requires experience and knowledge in the intellectual and developmental disability field and previous leadership in a NYSARC Chapter or equivalent leadership experience. Strong ability to communicate across all levels of the NYSARC organization and Chapters will be necessary, including collaboration with Chapter volunteer and professional leadership, direct line management staff, individuals served, board members and families. This position requires a strong commitment to performance improvement, achieving fiscal strength and programmatic excellence

Fiscal and Policy Analyst, Legislative Analyst's Office

The Legislative Analyst's Office (LAO) provides nonpartisan fiscal and policy analysis to the California Legislature and has done so since 1941. The LAO (1) assists the Legislature in all aspects of the budget process, through its analytical and oversight activities; (2) responds to legislative requests for information and analysis of the state's budget and programs; and (3) conducts independent studies and produces self-generated reports on topics of importance to the state. Additional information about the LAO can be found on our Web Site at http://www.lao.ca.gov

Program Manager, California Council of Community Mental Health Agencies
Provides a variety of program management, administrative and clerical support to the Association. Duties include researching/compiling information; coordinating calls, meetings and committees for the Association; maintains electronic files and data; generates and formats meeting and committee reports, and other documents using full range of software skills including spreadsheets, word processing, desk top publishing, presentation software, database management; assumes responsibilities for special projects; attends board meetings and committees for administrative support; researches and analyzes data to develop reports for management decision-making. In addition, this position is responsible for the conference planning and logistics for the production of the triennial membership meetings. This position requires considerable use of tact, diplomacy, discretion and judgment as the Program Manager includes routine correspondence with the members, state officials, legislative epresentatives, vendors, consultants, and stakeholders.

Elwyn, one of the nation's oldest private non-profit organizations serving people with intellectual, developmental and behavioral challenges, seeks a Regional Director for Northern California. The Regional Director will have responsibility for the day-to-day operations and long-term planning for 14 of Elwyn California's Residential Care Facilities for people with developmental disabilities. Elwyn seeks a customer-focused and externally facing leader with a minimum of 3-5 years in management, preferably in health or social services. S/he should also possess expertise in clinical service delivery to individuals with disabilities as well as experience growing an organization and opening new group homes. For referrals and/or to submit a resume, please contact elwyndirector@divsearch.com. All expressions of interest are confidential.
 
Elwyn, one of the nation's oldest private non-profit organizations serving people with intellectual, developmental and behavioral challenges, seeks a Director of Major Gifts for Northern California. The Director of Major Gifts will assist in determining the fundraising priorities and strategies for Elwyn California based on knowledge of the philanthropic climate in the region. Elwyn seeks a successful major gift fundraiser with a minimum of 5-7 years of experience. S/he should possess the ability to articulate the case for support for individual donors and prospects; formulate and recommend major prospect strategies and timelines based on the needs and goals of the organization; and identify, cultivate and solicit individual and organizational prospects. For referrals and/or to submit a resume, please contact elwyndev@divsearch.com. All expressions of interest are confidential.


The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.

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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494