Please help support the Monday Morning Memo. Send your annual $25 check to 1225 8th Street, Suite 350, Sacramento, CA 95814 or signup online for "The Arc California Membership"
Note: The Arc is not an acronym; always refer to us as The Arc, not The
ARC and never ARC. The Arc should be considered as a title or a phrase.
|Tony Anderson, Executive Director, The Arc California|
Monday December 15, 2014
Capitol Region Organizing Project (CROP) will meeting in a strategic
planning session to plan for social change campaigns and organizing
capacity for 2015. Joe Meadours, Board Member from The Arc California,
will be participating in the session.
Tuesday December 16, 2014
We'll be meeting with policymakers in the capital community (from the legislature and from the administration) to discuss the Lanterman Coalition 10 Campaign and other issues impacting people with intellectual and developmental disabilities.
with Education Equity, Inc., one of our partners in Education Policy,
we'll be meeting with representatives from Specialisterne to discuss
employment of people with Autism and other developmental disabilities.
Wednesday December 17, 2014
We have set aside the day for working on arrangements with our public policy speakers for our upcoming 8th Annual Developmental Disabilities Public Policy Conference. This will the conference will be at the Holiday Inn Capitol Plaza from March 8, 9, and 10, 2015.
Thursday December 18, 2014
We'll be meeting with policymakers from the legislature in the capitol building to discuss the Lanterman Coalition 10 Campaign and other issues impacting people with intellectual and developmental disabilities.
be meeting with organizations interested in becoming a Community
Partner with The Arc California. The Community Partners program was
recently approved by The Arc CA Board of Directors as one of the ways to
increase collaborations, strengthen our advocacy capacity, and
stabilize our association infrastructure. Learn more about becoming a Chapter of The Arc and/or Partnering and Supporting The Arc California.
Friday December 19, 2014
will be meeting in Sacramento from 9 am to 10:30 am at the California
Foundation for Independent Living Centers (CFILC). Followed by a
meeting of the communications workgroup focused on educating
policymakers and the general public of the Long Term Supports and
Services needs for seniors and people with disabilities.
THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION
Public Policy Reports
The Arc and UCP in California (Greg deGiere, Public Policy Director)
Looking Back and Looking Ahead
been a tough year in some ways for people with intellectual and all
developmental disabilities in California, despite the progress we saw
this year. Ironically, in some ways it feels tougher than the awful
years of 2009 and 2010 when our Lanterman Act supports and services
system suffered terrible cuts that we're still feeling acutely.
those earlier years, we felt encouraged - sometimes downright elated -
that our community mobilized massively and prevented the complete
gutting of the system two governors had sought. This year, we actually
succeeded in restoring some of the earlier cuts and laying the
foundation for further progress. But for a lot of us, this year felt
worse because we didn't come close to the reinvestment in our system
that we wanted - and so our fragile system continued to crumble.
2015, we've raised our expectations. In 2014, we slowly and painfully
put together a genuine working coalition of I/DD groups that was able to
win some of the budget battles. And this summer and fall, we built on
that coalition and rolled out a truly ambitious campaign for 2015 aimed
at winning the 10% emergency funding increase needed to stabilize the
going to be a heck of a fight in 2015, and we need as much community
mobilization as we saw in 2009 and 2010. That means we need all hands on
deck. And that means you.
If you haven't started doing your part yet, please start now, don't wait till January. Go to www.lantermancoalition.org/action.html.
And took at the pages on Self-Advocacy (if you are a person with I/DD),
Family Advocacy (if you are a family member), and IDD Systems Advocacy
(if you are part of a service provider group). In each case, look at "10 for 10: Ten Things You Can Do" and see if you and do the first two or three things on the list this month.
if you aren't on our Action E-List, our community's most powerful tool
for mobilizing grassroots advocacy quickly, please sign up now. Scroll
down a couple of inches under my signature below (and the picture of me
that looks worse than the one on my driver's license) and sign up now.
As always, thank you for your advocacy.
# # #
Public Policy Director
|Greg deGierePublic Policy Director|
The Arc and United Cerebral Palsy California Collaboration
1225 Eighth Street, Suite 350
Sacramento, CA 95814
916-552-6619916-552-6619 x16 (office)
THE ARC OF THE UNITED STATES UPDATES
Housing - National Housing Trust Fund to be Funded
Last week, the Federal Housing Finance Agency (FHFA) directed Fannie Mae and Freddie Mac to begin allocating funds to the National Housing Trust Fund
(NHTF). Congress created the NHTF in 2008 to fund affordable housing
for people with the lowest incomes, a group that includes many people
with disabilities. However, until now the NHTF has remained unfunded.
The Housing and Economic Recovery Act of 2008 authorized FHFA to
temporarily suspend allocations from Fannie Mae and Freddie Mac to the
NHTF, which FHFA did on November 13, 2008. Last week, FHFA ended the
suspension, meaning that Fannie Mae and Freddie Mac will now begin
setting aside and directing funds to the NHTF. The NHTF will be
administered by the Department of Housing and Urban Development (HUD),
which issued a statement
noting that HUD will "soon issue regulations" to implement the NHTF.
The Arc strongly supports funding the NHTF to help meet the urgent needs
of people with disabilities for affordable, accessible community
Also, sign up for: The Arc US Capitol Insider
|Tim Hornbecker, Director of Advocacy and Community Organizing|
Project Updates by Tim Hornbecker...
when you think you'll never win that battle because you've been
fighting for so long and against powerful competing interests something
seems to happen all of a sudden and you score a major victory. Well last
week Voices Of Integration: Communities Empowering the Disabled, known in their community as VOICED, took a minute to celebrate one of those victory moments.
I've reported in past reports, VOICED has been fighting to make the
local bus stop accessible for people with disabilities and safer for all
community riders. The bus stops in Bakersfield were not marked as no
parking zones which means sometimes if a car in parked in the place
where the bus picks you up, you have to enter the bus in the middle of
the street (if you can even get around the parked car). VOICED has been
training itself with the help of Gamaliel California (under contract
with The Arc California) to help them become a powerful well organized
community organization. They have been engaged in putting pressure on
city officials to paint those curbs red and stop endangering the
community. One of the Gamaliel members (a pastor from out of town)
offered to get gallons and gallons of red paint donated to the city and
to bless the paint for the cause in a public ceremony.
small group of disability rights advocates are still working to get all
the bus stops barrier free. There "are still 32 bus stops to be dealt
with, but they are all in neighborhoods as opposed to a busy streets"
and they have other ways of addressing the neighborhood stops - stay
tuned for that victory next.
Check out this video we just posted on the Lanterman Coalition You Tube Channel: http://youtu.be/p9paTy694oA and the PowerPoint of the VOICED presentation.
Tim Hornbecker, Director of Advocacy and Community Organizing,
The Arc CA firstname.lastname@example.org
|Teresa Anderson, Prevention Coordinator|
Arc of California has a long history of advocating for policies that
promote health across the lifespan. Our Prevention advocacy efforts
include everything from prenatal exposures to alcohol and other drugs,
exposure to a multitude of environmental toxins and the effects of the
social determinants of health and birth outcomes to chronic conditions
management and preventing secondary illness as people with disabilities
age. 2014 was a very active year for the Arc of California's prevention
work as we has the opportunity to engaged in many issues including but
not limited to:
The California Children's Services Redesign
CCS program provides diagnostic and treatment services, medical case
management, and physical and occupational therapy services to children
under age 21 with CCS-eligible medical conditions. Examples of
CCS-eligible conditions include, but are not limited to, chronic medical
conditions such as cystic fibrosis, hemophilia, cerebral palsy, heart
disease, cancer, traumatic injuries, and infectious diseases producing
major sequelae. CCS also provides medical therapy services that are
delivered at public schools. The CCS program is administered as a
partnership between county health departments and the California
Department of Health Care Services (DHCS).
CCS System is undergoing a redesign process under the direction of
DHCS, UCLA Center for Health Policy Research, Stanford's Center for
Policy, Outcomes and Prevention and Harbage Consulting. The Redesign
Stakeholder Advisory Board has been selected and the stakeholder
meetings began Dec. 2, 2014. The meetings are expected to continue
through June 2015 and end with a set of recommendations for redesign.
For more information about the CCS Redesign visit:
Arc of CA has a two-fold focus on unintentional injury 1) awareness and
prevention of unintentional injury in childhood that has the potential
to result in a life-ling disability and 2) reducing the risk and
incidence of people with ID/DD experiencing an unintentional injury.
For more information about Unintentional Injury please visit:
Fetal Alcohol Spectrum Disorders
affects all areas of life. It demands an enormous financial and social
commitment from our state, communities, and families. FASD is the most
known and completely preventable cause of intellectual disability and
increases the risk for many other birth, behavioral, and mental
For more information about FASD visit:
Access to Dental Care
health is essential to overall health yet access to timely and
appropriate dental care continues to be a challenge for people with
ID/DD and a great concern for advocates. Research conducted by John
Morgan and colleagues at Tufts University School of Dental Medicine
found Individuals with IDD had a higher prevalence and greater severity
of periodontal disease than the general population, in addition to
consistently greater levels of untreated caries.
For more information about Dental Care visit:
Chronic Condition Management and Disparities in Health Care for People with Intellectual and Developmental Disabilities
with ID/DD are at greater risk for experiencing one or more chronic
conditions compared to the general population. Health Advocacy is an
essential component to preventing and managing chronic conditions.
Teresa Anderson, MPH
The Arc California
March 8-10, 2015
Save the Date: The 8th
Annual Developmental Disabilities Public Policy Conference by The Arc
and United Cerebral Palsy in California at the Holiday Inn - Sacramento
Capitol Plaza, 300 J St, Sacramento, CA 95814 (NEW SITE), Phone:(916) 446-0100.
Every year we host a public policy conference featuring legislators,
lobbyist, advocates, policymakers, and other speakers who deal with
issues impacting people with intellectual and developmental disabilities
and their families. Attendees include family members, self-advocates,
direct support professionals, attorneys, and executive/ professional
staff from community agencies and regional centers. Topics Covered:
National Public Policy, State Budget Overview, Advocacy, Healthcare, New
and Proposed Legislation, IHSS, Mental Health, LTSS and Olmstead
Related Issues, Work, Education, Trusts, Conservatorship, Crime and
Abuse of People with Disabilities, and more. Visit our webpage to see
last years' program (all documents and PowerPoints are on this site) and
eventually the 2015 conference: click here.
April 13-15, 2015
Save the Date:
The 2015 Disability Policy Seminar will be at a new location, the
Renaissance Washington DC Downtown Hotel, 999 9th Street NW, Washington,
DC 20001. The annual Disability Policy Seminar brings together
advocates for people with intellectual and developmental disabilities
with public policy experts and the staff of a variety of hosting
organizations who serve people with I/DD to go in-depth on pressing
policy issues and other topics of importance to the I/DD movement during
two full-day sessions in Washington, D.C. The Seminar culminates with a
third day spent on Capitol Hill where attendees have the opportunity to
meet with their elected officials. Each year approximately 700 people
take advantage of this chance to learn, discuss, network and advocate
for change. Hosted by: The Arc, United Cerebral Palsy (UCP), Association
of University Centers on Disabilities (AUCD), American Association on
Intellectual and Developmental Disabilities (AAIDD), National
Association of Councils on Developmental Disabilities (NACDD), and
Self-Advocates Becoming Empowered (SABE). Disability Policy Seminar
June 1-4, 2015
The AAIDD Annual Meeting
will be held in Louisville, KY, provides researchers, clinicians,
practitioners, educators, policymakers, local, state and federal
agencies, and advocates with cutting edge research, effective practices,
and valuable information on important policy initiatives. Conference Hotel: The Galt House of Louisville.
October 3 - 5, 2015
The Arc's 2015 National Convention, Indianapolis, Indiana
RECENTLY RELEASED REPORTS, STUDIES, ETC.
ACCESS TO CARE: PROVIDER AVAILABILITY IN MEDICAID MANAGED CARE
Department of Health and Human Services, Office of Inspector General, December 2014
By Daniel R. Levinson Inspector General
"WHAT WE FOUND
found that slightly more than half of providers could not offer
appointments to enrollees. Notably, 35 percent could not be found at the
location listed by the plan, and another 8 percent were at the location
but said that they were not participating in the plan. An additional 8
percent were not accepting new patients. Among the providers who offered
appointments, the median wait time was 2 weeks. However, over a quarter
had wait times of more than 1 month, and 10 percent had wait times
longer than 2 months. Finally, primary care providers were less likely
to offer an appointment than specialists; however, specialists tended to
have longer wait times.
WHAT WE RECOMMEND
these findings-along with those from our companion report-call for the
Centers for Medicare & Medicaid Services (CMS) to work with States
to improve the oversight of managed care plans. We recommend that CMS
work with States to (1) assess the number of providers offering
appointments and improve the accuracy of plan information, (2) ensure
that plans' networks are adequate and meet the needs of their Medicaid
managed care enrollees, and (3) ensure that plans are complying with
existing State standards and assess whether additional standards are
needed. CMS concurred with all three of our recommendations."
Parents of the developmentally disabled express concern over lack of services
The Bakersfield Californian Thursday, Dec 11 2014
BY RUTH BROWN The Bakersfield Californian email@example.com
than 50 people attended a meeting Thursday with a panel of officials
with the California Department of Developmental Services and the State
Council on Developmental Disabilities to share how recent budget cuts
have hurt the needs of developmentally disabled county residents. At the
four-hour meeting held at the Exceptional Family Center on North
Sillect Avenue, the impact of the cuts on the H.E.A.R.T.S. Connection
Family Resource Center was a repeated topic. Five of the county's six
H.E.A.R.T.S. locations closed when the nonprofit lost a grant for
$352,000 in 2014. The grant used to come from Kern Regional Center.
H.E.A.R.T.S., an acronym for Help, Encourage, Advocate, Resources,
Training and Support, closed its offices in Delano, Ridgecrest,
California City, Tehachapi and Kernville.
residents expressed concern about their inability to transport their
children or family members to the the sole remaining office in
Bakersfield. "Kern Regional Center's board is hearing us, but they are
not listening to us," said Beverly Foster, board president of
H.E.A.R.T.S Connection and the mother of three children with special
needs. "The parents say they need (services to teach) vocational skills
and independent living skills to clients." Foster suggested starting a
parent advisory committee to represent individuals with different
disabilities. The committee would make recommendations to KRC's board.
Members of the KRC board were not part of Thursday's panel. The
Exceptional Family Center took an 80 percent budget cut in 2014. The
center no longer offers family and client education or computer services
education. It only assists individuals with direct client services such
as individual placement plans appropriate for each person, said Grace
Huerta, president of the Exceptional Family Center. Other parents spoke
about the lack of IPP workers who speak Spanish and dearth of documents
written in Spanish. Several families spoke using a translator, saying
they had "a right to be informed." Some felt the Hispanic families were
seen as "too low" and that KRC's board was not listening to their
complaints. Others complained of a lack of communication, struggles
with referrals and a lack of respite, or short-term, care in Kern
which funds KRC, was created under the Lanterman Developmental
Disabilities Services Act for ensuring that persons with developmental
disabilities receive the services and supports they need to lead more
independent, productive and normal lives. Regional centers are funded
through the DDS, and were created to provide case management. Joseph
Bowling, executive director for Area 8 of the State Council on
Developmental Disabilities, thanked the families for sharing their
stories. "My observation is the board at KRC seems to be dysfunctional,"
Bowling said. "They run meetings a lot of times illegally. "Bowling
noted the board sometimes does not follow proper public meeting policy
and has blank agendas. "Regional centers should not be in the business
of denying services," he said. "I don't have any faith in the board of
directors." The panel agreed to take information provided by the
families to DDS to evaluate what can be done in Kern County.
Special Ed, Disability Programs Unscathed In Budget Deal
Disability Scoop December 12, 2014
spending plan making its way through Congress is a win for people with
disabilities, advocates say, more for what it doesn't do than what it
does. Most federal programs supporting people with disabilities will
maintain level funding under the $1.1 trillion budget deal, with a few
areas seeing modest gains. The plan was approved by the U.S. House of
Representatives late Thursday, as the federal government's existing
budget was set to expire at midnight. Lawmakers also passed a temporary
measure to give the U.S. Senate time to vote on the legislation that
would fund most federal activities through Sept. 30, 2015. Following
years of belt-tightening in Washington, advocates say that just
maintaining steady funding for disability programs offers some relief.
of the programs that we track that support people with disabilities got
level funding which we continue to say in this environment is a
victory," said Jennifer Dexter, assistant vice president of government
relations at Easter Seals. Under the deal, funding available to states
under the Individuals with Disabilities Education Act will rise $25
million and vocational rehabilitation will increase $33 million. Other
programs expected to see an increase include housing assistance, support
for postsecondary programs for those with intellectual disabilities as
well as autism and developmental disabilities efforts at the Centers for
Disease Control and Prevention.
most of the gains are too modest - generally less than 1 percent - to
keep pace with inflation, warns Annie Acosta, director of fiscal and
family support policy at The Arc. "Everyone is relieved when their
programs don't get cut but this isn't just one year; it's been longer
term," she said. "Even when you have level funding, you're losing money
every year if you're not keeping pace with inflation." For example,
Acosta said Congress is set to increase spending on the Section 811
program - which funds housing for adults with disabilities - by $9
million, but due to rising housing costs, that change will not translate
into dollars for additional units beyond ones already covered by the
program. Meanwhile, advocates are already gearing up for 2016 when
budget cuts could play a role again, said Dexter at Easter Seals. "2016
could be a tough year," she said. "The reality is we're not anywhere
close to what the need is. This continued austerity is going to be a
struggle for people with disabilities."
Arc of California posts job announcements in the Career Ladder section
every week because we would like to contribute to steering quality
candidates to professional positions that support people with
disabilities and we are trying to communicate to Direct Support
Professionals that there is a real "career ladder" in their chosen
Jobs Page Links: Click Here
Chief Executive Officer (CEO)
Health America of California (MHAC) CEO in partnership with the MHAC
Board and the Executive Director of Policy and Advocacy, is responsible
for assuring MHAC's relevance to the community, accomplishment of MHAC's
mission and vision, and accountability to MHAC's diverse constituents.
The Board delegates responsibility for management and day-to-day
operations to the CEO, and s/he has the authority to carry out these
responsibilities, in accordance with the direction and policies
established by the Board. Salary commensurate with experience plus
health, dental, vision, retirement and paid parking. Submission
Deadline: January 5, 2015
Law Student Intern
Arc of the United States is seeking law student interns to work at our
Washington, DC office for Summer 2015. Applications for academic
internships for the Spring 2015 semester are also welcome. The Arc is
the nation's leading advocate for people with intellectual and
developmental disabilities (I/DD) and their families and the premier
provider of the supports and services these individuals need. The Arc
has a long history of protecting the civil rights of the I/DD and
broader disability community through advocacy, legislation, policy, and
litigation on matters such as civil rights, community integration,
housing, health care, long term supports and services, education, and
employment... All qualified law student applicants are encouraged to
apply, including minorities, women, veterans, and individuals with
disabilities. Please submit a cover letter, resume, writing sample, and a
list of three references to Shira Wakschlag, Staff Attorney and Special
Assistant to the CEO, firstname.lastname@example.org. Applications will be considered
on a rolling basis. Applicants are encouraged to seek funding from
their law schools for these positions.
provider for individuals with intellectual and developmental
disabilities is in search of a State Director to manage the overall
operations of our mid-size company. Fantastic opportunity for a
qualified individual that meets QIDP requirements, has a minimum of a
Bachelors degree in Human Services, and has management experience in the
field of developmental disabilities. This position requires on-call
duties. Must be able to pass a criminal background check, OIG, and have a
good driving record. Benefits include medical, dental, life, vision and
paid time off. Submit resume and salary history for consideration via
email to: HR3@diamondbackmgt.com. Pinnacle Community Services, EOE, 3355 West Cheyenne Ave., Suite #103, North Las Vegas, NV 89032.
Director of Policy and Intergovernmental Affairs
Director of Policy and Intergovernmental Affairs is a member of the
agency's senior management team and an organization-wide leader of First
5 LA. The Director is responsible for executing the policy and
intergovernmental affairs objectives associated with First 5 LA's
strategic goals. The Director leads a staff team and contractors to
inform and influence public policy at the county, state and federal
level to support the agency's intended outcomes. The Director is
responsible for proactively building and maintaining strong
relationships with elected officials, administrators and opinion leaders
at all levels of government -city, county, state and national.
ideal candidate will have demonstrated executive leadership within a
progressive community mental/behavioral health organization with
dynamics similar to CalMHSA and/or executive experience in an
organization that has national or state-wide recognition for innovation
in its behavioral/mental health programs. The candidate must have
demonstrated ability to develop and execute a fund development plan and a
history of managing an organization with an annual budget in excess of
$30 million. This executive will have a record of accomplishments that
demonstrates a broad view of healthcare and the strategic opportunities
that exist state-wide from a public health prospective. Most
importantly, this new ED will have a strong connection with CalMHSA's
mission, values, and shared agenda.
| The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814 916.552.6619 Advocates for people with intellectual and all other developmental disabilities and their families since 1950.