tony@thearcca.org
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August 22, 2016  
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Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Tony Anderson, Executive Director, The Arc California
Monday August 22, 2016
Ten days left for the legislature to pass bills out of the legislature and on to the governor (as always some exceptions apply). Legislators have been moving through hundreds of bills and by next Wednesday August 31, 2016 they'll complete work and then take a final recess for the year. Check out the bill file to see the remaining bills we're monitoring, plus this week the state action alert section and the prevention sections both highlight bills we're still working in the final ten days.
 
Tuesday August 23, 2016
The Spectrum Institute will be holding a press conference at 10 am in San Diego, outside of the U.S. Attorney's Office - 880 Front Street, to bring attention to the voting rights violations of people with disabilities still happening in California. Last year Senator Marty Block carried SB 589 (which was signed by Governor Brown) for us to strengthen voting rights specifically for people with disabilities and those who have been conserved. The problem the bill addressed was that people who were conserved were being wrongly presumed unable to vote. The new standard for reinstating voting rights is simply the expression of wanting to vote. This disability community advocates and all voting rights advocates are encouraged to participate in the press conference. There will be musicians and singing as they walk to the state office building. People are encouraged to bring posters if they wish, with slogans like "Restore Voting Rights" or "Voting Rights Now" or "Disability Rights Now" etc. Contact: Thomas F. Coleman, tomcoleman@earthlink.net 818-482-4485 plus the press release for the event is in the News section of this week's MMM.
 
The annual charitable Legislative Softball Game will be at Raley Field in Sacramento at 7:05 pm $15 tickets to benefit a local charity, People Reaching Out. The Democrats will be managed by Speaker Asm. Anthony Rendon and coached by Asm. Jim Frazier and the Republicans will be managed and coached by Asm. Brian Maienschein.
 
Wednesday August 24, 2016
We'll be participating in the organizing committee meeting for the University of Delaware leadership training on developmental disabilities that will be held in California. This national leadership training is typically held in the state of Delaware but has recently begun to implement the weeklong program in other states and our state is the next one. This is a highly revered national training and we looking forward to helping bring it California advocates. For more information about the University of Delaware National Leadership Consortium, contact: Nancy Weiss at nweiss@udel.edu.
 
Thursday August 25, 2016
DDS will hold the third of four public meetings today on Reducing Purchase of Service Disparities. DDS will consult with all stakeholders to discuss statewide uses developmental services purchased by regional centers for people with intellectual and developmental disabilities and their families. The meeting agenda will include a discussion on "identifying cultural barriers and challenges in obtaining regional center services and the areas that need clarification for people to understand the service delivery system, as well as, plans and recommendations to promote equity and reduce disparities in the purchase of services." Today's public hearing will be from 9:00 a.m. to 12:00 Noon (on-site translation will be provided in the following languages: Spanish, Mandarin, and Vietnamese) at Molina Healthcare, Molina Aliso Beach Conference Room, 550 East Hospitality Lane, Suite 100, San Bernardino, CA 924089.
 
The USC University Center for Excellence in Developmental Disabilities, Children's Hospital Los Angeles, will be hosting a webinar, "The Independent Living Centers for People with Disabilities", from 10 to 11 a.m. Pacific Time. "Discussion will include definition of Independent Living Centers and the meaning of independent living for individuals with disabilities. This FREE webinar is designed for family members, people with developmental disabilities, and advocates... Professionals are welcome to attend; however, questions from people with disabilities and family members will be given priority." To learn more click here.
 
Friday August 26, 2016
DDS will hold the forth of four public meetings today on Reducing Purchase of Service Disparities. DDS will consult with all stakeholders to discuss statewide uses developmental services purchased by regional centers for people with intellectual and developmental disabilities and their families. The meeting agenda will include a discussion on "identifying cultural barriers and challenges in obtaining regional center services and the areas that need clarification for people to understand the service delivery system, as well as, plans and recommendations to promote equity and reduce disparities in the purchase of services." Today's public hearing will be from 9:00 a.m. to 12:00 Noon (on-site translation will be provided in the following languages: Spanish, Cantonese, and Korean.) at South Central Los Angeles Regional Center, 2500 S Western Avenue, Los Angeles, CA 90018.
THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION:  Public Policy Reports 
 
State
California is facing a housing affordability crisis on many fronts - but especially for people with intellectual disabilities and other developmental disabilities (I/DD).
 
Adult with I/DD almost universally live with poverty-level incomes. In a state with housing prices as high as California's, is it any wonder that more than half of our homeless population is made up of people with disabilities?
 
Senator Jim Beall - with our support - has been fighting all year for more funds for affordable and accessible housing. Now we're down to the wire - we need a two-third vote of the full Assembly for his Senate Bill 879 by August 31 to put a $3 billion housing bond issue on the ballot. As of now, we're still a few votes short.
 
Please take a minute to call your state Assembly representative NOW to ask him or her to vote for Senator Beall's SB 879 for affordable and accessible housing. With all other affordable-housing efforts dead in the Legislature, this is our last chance this year to make progress!
 
To find your Assembly representative, click here or here. When you get to your Assembly member's page, scroll down to find the numbers of their Capitol and district offices. If you know someone in their district office, call him or her. Otherwise, call their Capitol office.
 
Your call can be short and sweet. Just be sure to give them your address so they know you are the Assembly member's constituent - politicians pay attention to that.
 
These Assembly members have voted "aye" for Senate Beall's SB 879 in committee. Please thank them and ask for them to vote for it again on the Assembly floor:
 
Bloom, Bonilla, Bonta, Burke, Calderon, Chau, Chiu, Daly, Eggman, Eduardo Garcia, Gonzalez, Holden, Lopez, McCarty, Quirk, Santiago, Weber, and Wood.
 
These Assemblers have voted "no" in committee. Please tell them you are disappointed and ask them to change their vote to "aye" on the floor:
 
Beth Gains, Gallagher, Jones, Obernolte, Steinorth, and Wagner.
 
The other members haven't had a chance to vote yet.
 
For all Assembly members, please just tell them how important affordable, accessible housing is for your and the entire disability community - and to please vote "aye" on Senator Beall's SB 879.
 
We don't know when the bill will come up for its final vote. It could be today! Please call NOW!
 
And thank you for your advocacy.
 
Greg
 
P.S Calls are most important now, but if you want to help even more by sending a tweet too, click here.
 
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National
 
Posted on August 19, 2016 by The Arc
 
Washington, DC - Last week, the Department of Justice's (DOJ) Civil Rights Division released a report following an investigation into the past conduct of the Baltimore City Police Department (BPD). DOJ concluded that there is "reasonable cause to believe that BPD engaged in a pattern or practice of conduct that violates the Constitution or federal law" by engaging in unconstitutional stops, searches, and arrests; using enforcement strategies that produce severe and unjustified disparities in the rates of stops, searches, and arrests of African-Americans; using excessive force; and retaliating against people engaging in constitutionally-protected expression. Among these troubling findings, The Arc noted that the treatment of individuals with disabilities by law enforcement was included in the report, which featured a full section on the use of unreasonable force against individuals with disabilities highlighting that "BPD officers repeatedly fail to make reasonable modifications necessary to avoid discrimination in violation of Title II of the Americans with Disabilities Act of 1990 (ADA)."
 
Among other things, the investigation recommended that BPD offer crisis intervention training, previously offered to only new recruits, to veteran officers as well. DOJ noted that such training helps officers "identify whether an individual is in crisis or engaging in behavior related to a disability, to interact effectively with people with disabilities, to de-escalate a crisis, and to connect the individual with local resources to provide treatment or support."
 
"Far too often, people with intellectual and developmental disabilities are in situations with law enforcement that unnecessarily escalate because officers aren't trained in crisis prevention or how to recognize and accommodate various disabilities. This is not only happening in Maryland, it is a serious problem nationwide. We have got to flip the script when it comes to law enforcement training so that police departments understand that recognizing and appropriately accommodating disability in the line of duty is not optional, but is a fundamental aspect of their compliance with civil rights laws, such as the ADA. The recommendations in this report should be adopted across the country, so that we can break the cycle of discrimination that many minorities, including people with disabilities, face, and make our communities safer and more just for all," said Leigh Ann Davis, Director, Criminal Justice Initiatives, The Arc.
 
The report found that BPD officers "have escalated interactions that did not initially involve criminal behavior, resulting in the arrest of, or use of force against, individuals in crisis, or with mental health disabilities or I/DD, or unnecessary hospitalization of the person with mental health disabilities or I/DD." These unnecessary hospitalizations often violate the "integration mandate" of the ADA and the landmark Olmstead decision, which require public entities to administer services, programs, and activities for people with disabilities in the most integrated setting appropriate and prohibits unjustified institutionalization of people with disabilities.
 
"The findings in the report are disturbing. It is particularly painful reading this report on the heels of the 26th Anniversary of the ADA. The Arc Maryland stands ready to assist with necessary training to police officers to appropriately respond to people with I/DD. We urge BPD to implement specialized training and de-escalation techniques as tactics to reform the system and better serve people with disabilities, African Americans, and any other member of the community that interacts with the criminal justice system," said Poetri Deal, Director of Public Policy & Advocacy, The Arc Maryland.
 
Steve Morgan, Executive Director, The Arc Baltimore, said: "The BPD is already working with us to extend the crisis intervention training, previously offered to select officers only, to the entire force. We are working together to address the recommendations, expand their knowledge, and improve community relations."
 
The Arc runs the National Center for Criminal Justice and Disability (NCCJD), the first national effort of its kind to bring together both victim and suspect/offender issues involving people with intellectual and developmental disabilities (or I/DD) under one roof.
 
NCCJD is a national clearinghouse for information and training on the topic of people with I/DD as victims, witnesses and suspects or offenders of crime. The Center provides training and technical assistance, an online resource library, white papers, and more. The Center created Pathways to Justice,® a comprehensive training program facilitated through chapters of The Arc, which assists officers to both identify disability, and know how to respond in ways that keep all parties as safe as possible. Pathways to Justice utilizes a multi-disciplinary response that provides a foundation for a collaborative approach among community partners.
 
Read more about The Arc's take on criminal justice reform and people with I/DD in our recent blog in the Huffington Post.
 
The Arc advocates for and serves people with intellectual and developmental disabilities (I/DD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of more than 650 chapters across the country, including 11 in Maryland, promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.
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SIGN UP FOR OUR NATIONAL ACTION ALERTS
  
Greg deGiere, Director of Public Policy The Arc and United Cerebral Palsy California Collaboration
Bill File: The Arc California  
 
The Arc of CA: Floor Calendar
As of 8/22/2016
ASSEMBLY - Floor Session Today At 1:00 p.m. First Extraordinary Session Upon Call.
SENATE - Floor Session Today At 12:00 p.m. First Extraordinary Session Upon Call.
 
Monday August 22, 2016
ASM - CONCURRENCE IN SENATE AMENDMENTS
#13   AB 1797   (Lackey R)   In-home supportive services: application. Position: Support
#28   AB 2584   (Daly D)   Land use: housing development. Position: Watch
#32   AB 2815   (O'Donnell D)   Pupil attendance: supervisors of attendance. Position: watch
#60   AB 1553   (Irwin D)   Savings plans: qualified ABLE program. Position: Support
#71   AB 1930 (Lackey R) In-home supportive services: family caregivers: advisory committee. Position: Watch
#122   AB 2785 (O'Donnell D) Special education: English learners: manual. Position: Support
#139   AB 1584 (Brown D)   Public social services: SSI/SSP. Position: Support
#164   AB 2212   (Harper R)   Pupils: suspensions and expulsions: bullying: electronic acts: video. Position: Support
#168   AB 2394 (Garcia, Eduardo D) Medi-Cal: nonmedical transportation. Position: Support
#178   AB 2845 (Williams D) School safety: Safe Place to Learn Act. Position: Support if amended
#202   AB 1920 (Chau D)   California Tax Credit Allocation Committee: low-income housing credit: fines. Position: Support
 
Aug 22, 2016
ASM - THIRD READING FILE - SENATE BILLS
#228   SB 1150   (Leno D)   Mortgages and deeds of trust: mortgage servicers: successors in interest. Position: Support Position: Watch
#250   SB 1221   (Hertzberg D)   Firefighters: interaction with persons with mental disabilities. Position: Watch
#251   SB 938   (Jackson D)  Conservatorships: psychotropic medications and secured perimeter facilities. Position: Watch
#259   SB 909   (Beall D)   Property tax postponement: special needs trust claimants. Position: Support
#272   SB 1174   (McGuire D)   Medi-Cal: children: prescribing patterns: psychotropic medications. Position: Watch
#292   SB 586   (Hernandez D)   Children's services. Position: Support
#302   SB 1016   (Monning D)   Sentencing. Position: Support
#306   SB 1072   (Mendoza D)   Schoolbus safety: child safety alert system. Position: Support
#318   SB 1380   (Mitchell D)   Homeless Coordinating and Financing Council. Position: Support
#327   SB 906   (Beall D)   Public postsecondary education: priority enrollment systems. Position: Support
#334   SB 1219   (Hancock D)   Small Business Procurement and Contract Act: employment social enterprises. Position: Watch
#349   SB 450   (Allen D)   Elections: vote by mail voting and mail ballot elections. Position: watch-
#353   SB 879   (Beall D)   Affordable Housing Bond Act of 2018. Position: Support
#362   SB 23   (Mitchell D)   CalWORKs: eligibility. Position: Support
#375   SB 1065   (Monning D)   Dismissal or denial of petitions to compel arbitration: appeals: Elder and Dependent Adult Civil Protection Act. Position: Watch
 
Aug 22, 2016
SEN - SEN SECOND READING FILE - ASSEMBLY BILLS
#18   AB 2371   (Frazier D)   Voluntary contributions: Special Olympics Fund. Position: Support
#21   AB 2031   (Bonta D)   Local government: affordable housing: financing. Position: Support
#39   AB 2873   (Thurmond D)   Certified access specialists. Position: Support
#68   AB 2017   (McCarty D)   College Mental Health Services Program. Position: Support
#72   AB 2728 (Atkins D) Insurance: community development investments. Position: Watch
#79   AB 2821   (Chiu D)   Housing for a Healthy California Program. Position: Support
#81   AB 2501   (Bloom D)   Housing: density bonuses. Position: Support
 
Aug 22, 2016
SEN - SEN THIRD READING FILE - ASM BILLS
#218   AB 2686   (Mullin D)   Elections: all-mailed ballot elections. Position: Watch
#235   AB 67   (Gonzalez D)   Double Pay on the Holiday Act of 2016. Position: Watch
#248   AB 1836   (Maienschein R)   Mental health: referral of conservatees. Position: Watch+
#256   AB 2246   (O'Donnell D)   Pupil suicide prevention policies. Position: Support
#270   AB 1653   (Weber D)   Postsecondary education: campus climate. Position: Support
#275   AB 2079   (Calderon D)   Skilled nursing facilities: staffing. Position: Watch
#290   AB 2809   (Rodriguez D)   Developmental services: regional centers. Position: Support
#293   AB 796   (Nazarian D)   Health care coverage: autism and pervasive developmental disorders. Position: Watch
#310   AB 1567   (Campos D)   Before and after school programs: enrollment: fees: homeless and foster youth: snacks or meals. Position: Watch+
#315   AB 168   (Maienschein R)   Mental health: community-based services. Position: Watch
#322   AB 2231   (Calderon D)   Care facilities: civil penalties. Position: Support
#331   AB 1890   (Dodd D)   Discrimination: equal pay: state contracting. Position: Watch
 
Aug 22, 2016
SEN - SEN UNFINISHED BUSINESS
#150   SB 580   (Liu D)   Surplus residential property: affordable housing: historic buildings. Position: Watch
#155   SB 884   (Beall D)   Special education: mental health services. Position: Support
#166   SB 996   (Hill D)   Property taxation: welfare exemption. Position: Support
#180   SB 1113   (Beall D) Pupil health: mental health. Position: Support
#181   SB 1120   (Wolk D)   Director of General Services: state medical facilities: leases. Position: Watch
 
 
Greg

Thank you for your advocacy.
Greg deGiere
Public Policy Director
The Arc & United Cerebral Palsy California Collaboration
1225 Eighth Street, Suite 350, Sacramento, CA 95814
Community Organizing
 
Advocacy and Community Organizing
Tim Hornbecker, Director of Advocacy and Community Organizing
 
 
How Do You Spell Advocate? BARBARA  
A tremendous advocate for the rights of individuals with disabilities has left us, but her spirit and fervor remain! As Tony sadly announced in last week's Monday Morning Memo, Barbara Maizie passed away. Barbara was the CEO of the Contra Costa Arc.
 
Barbara fought tirelessly against legislators and state department administrators who tried every which way to eliminate or defund the Lanterman Act. The act is the first legislation in any state that promises to provide support services for all individuals with intellectual and developmental disabilities and their families. She was one of the first advocates to raise a red flag to stop categorical reductions (e.g., respite hours, camp) and attempts to literally take the "I" out of the IPP, Individual Program Plan, which is promised in the Lanterman Act. Watch this short video and you'll have a sense of Barbara's commitment to the Lanterman Act for people with developmental disabilities.
 
Seems like yesterday when I first met Barbara in 1991! I was the CEO for The Arc of the Desert in Palm Desert, CA. Executive Directors of Arc chapters from around the state would meet quarterly. She became one of my mentors, especially with her incredible knowledge of the developmental disability system and legislation. Our opinions didn't always agree, but we could always agree to disagree!
 
How could you say 'no' to Barbara? When she asked if I would be willing to be part of "Keep The Lanterman Promise" (KTLP) training team, I said yes. What an incredible curriculum and content that she helped develop. Then family members and executives like me went around the state teaching new and older families about this Act that meant no waiting list to be served, and all services are based on the individual and their families' choices.
 
Barbara will be missed dearly, and Tony will announce more details about a memorial service for her on Sept. 1st. In the meantime, I am scheduled to teach another KTLP class this fall in San Francisco for the Family Resource Center. Barbara, you might be gone physically, but you have left your love, spirit and passion for advocacy with all whose lives you have touched...especially with me when I share your KTLP training!
 
'Requiem et pace', rest in peace.
 
Tim Hornbecker, Director
Advocacy and Community Organizing tim@thearcca.org


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Teresa Anderson, Prevention Coordinator
PREVENTION ACTIVITIES
 
As of today we still have two important bills that need to go through the legislature from our Prevention bill file. The first bill AB 470 by Assemblymember Kansen Chu is a bill to improve swimming pool safety aimed at reduce drowning and near drowning accidents. The second bill, SB 1073 by Senator William Monning, is meant to improve protection against lead related environmental hazards.
 
AB 470 Assemblymember Kansen Chu: Swimming Pool Safety
After Senate amendments AB 470 (Chu) still increases the number of required drowning prevention features for pools and spas at private single-family homes from one to two, and imposes changes to the building permit process, as well as the home buying process, to accomplish this. As we have written previously the bill tried to bring property owners into compliance at the time of sale but now (due to concerns cited by the California Association of Realtors), simply requires the home inspectors to tell buyers if the home is in compliance with the standards in current law. The Arc and UCP California Collaboration and others feel a second method is important as a backup safety requirement as laches, alarms, fencing, etc. can become inoperable and a second concurrent method increases the chances of preventing a tragic accident.
 
According to the staff consultant Sarah Carvill, Senate Committee of Transportation and Housing, Jim Beall, Chair, "Unintentional injuries are the leading cause of death for children between the ages of 1 and 4, and drowning is the most common cause of these accidental deaths. While the rate of drownings among these children has declined slightly over the past two decades, the relative prevalence of drowning as a cause of death has not changed. And for every child in this age cohort who dies from drowning, five or more suffer "near-drowning" injuries, 20% to 50% of which cause permanent brain injury and lifelong disability. In addition to the emotional and financial impact these deaths and injuries have on individual families, the disabilities associated with near-drownings impose major, long-term costs on the state. As of June 2015, 717 individuals were receiving care from the California Department of Developmental Services for permanent disabilities incurred in near-drowning incidents. For very young children, the majority of drowning deaths and near-drownings occur in residential pools."
 
The safety methods include:
  1. An enclosure separating home access points from the pool and meeting specific requirements with respect to height, gaps, latches, and any features that could serve as handholds or footholds
  2. A removable mesh fence meeting specific standards set by the American Society for Testing and Materials (ASTM), and equipped with a self-closing, self-latching gate that can accommodate a lock.
  3. A pool cover meeting specific ASTM standards.
  4. Exit alarms on all doors that provide access from the home to the pool.
  5. Self-closing, self-latching devices, with release mechanisms placed no lower than 54 inches above the floor, on all doors that provide access from the home to the pool.
  6. A pool alarm designed to sound in the event of an unauthorized entrance into the water and independently certified as meeting specific ASTM standards.
  7. Another feature providing as much or more protection than the above devices and independently verified as meeting ASTM or American Society of Mechanical Engineers (ASME) standards.
 
SB 1073 William Monning: Conforming to Lead Renovation, Repair, and Painting Rule.  
 
SB 1073 creates a state standard for removing lead based paint including the certification for the professionals conducting the removal of this toxic substance from homes. Staff Consultant Paige Brokaw writes in the Assembly Floor analysis that, "Lead has been listed under California's Proposition 65 since 1987 as a substance that can cause reproductive damage and birth defects and has been listed as a chemical known to cause cancer since 1992. There is no level of lead that has been proven safe, either for children or for adults. The U.S. Centers for Disease Control and Prevention (CDC) considers any blood lead level more than 5 g/dl (micrograms of lead per deciliter of blood) to be unsafe for children and for pregnant or nursing women. The CDC found that approximately 900,000 U.S. children between one and five years old have abnormally high levels of lead in their blood."
 
Teresa Anderson, MPH

The Arc California
Prevention Coordinator
teresa@thearcca.org
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UPCOMING EVENTS
  
 
September 19-22, 2016
USBLN® 19th Annual National Conference & Biz2Biz Expo "Disability Inclusion: The Future Redefined". The 2016 USBLN® 19th Annual National Conference & Biz2Biz Expo is pleased to present four (4) separate educational tracks: Marketplace, Workplace, Supply Chain, and Professional Development. These tracks will best accommodate the varied professional and educational needs of our attendees. Feel free to mix and match.
 
October 6-7, 2016
The Supported Life Institute and the State Council on Developmental Disabilities Sacramento Office presents "Inclusion Is The New Standard" Empowering All People with Developmental Disabilities to be Fully Included in the Community. This year's 30th annual conference will be held at the Crowne Plaza Hotel, 5321 Date Avenue, Sacramento, CA 95841. Speakers include: Chantal Sicile-Kira, author and parent, has a passion for empowering others which has led her to become an award-winning author of five books & to offer information online via AutismCollege.com. She is an international speaker/trainer/consultant; & a leader in fields of autism; adolescence; transition to adulthood; & autism & the family. Laura Brackin, Ph.D. (sponsored by The Arc California), is a leader in the disability field, including local, state, national nonprofit, university, governmental and association positions. Through keynote & session, she will help Service Agency staff, families, & self-advocates understand how to transition toward inclusion & integrated employment opportunities spurred by new federal CMS Settings Rule. Shawn Casey 'Obrien, grassroots organizer, author, & founder of "Up" - the "Unique People's Voting Project" which registered countless Voters, especially Voters with Disabilities, insists that registering to Vote AND Voting is key to making a difference in the world, for ALL - those with disabilities AND the "Temporarily Able-Bodied" - our "enlightened self-interests are the SAME.
 
October 21 and 22, 2016 
Consortium for the Educational Advancement of Travel Instruction will be hosting. "Takin' It to the Streets: Skills to Further Enhance Your Practice of Travel Instruction ". ACVREP Credits Available, at RTC of Southern Nevada, 600 S. Grand Central Parkway, Suite 350, Las Vegas, NV 89106 (Space is limited to 100 attendees!). A few of the keynote sessions include: "The American with Disabilities Act - 25+ Years of Providing Freedom". Anthony A. Anderson, JD; "Boots on the Ground: 13,140 days as a career Travel Instructor and Certified Orientation and Mobility Specialist or Why my Hair Turned White at 30".Lydia Barden Peterson, MS; "Influencing Drivers and Reducing Street Crossing Risk: What Research Tell Us". Conference Registration: Early Bird (by 7/31) - $125, Advanced (8/1-10/14) - $150, On-Site (after 10/14) - $175. To register by mail or email, please use PDF form. Available here >>>. Online registration form and payment option using PayPal here >>>. Dates/deadlines and cancellation policy appear on the PDF form. HOTEL ACCOMMODATIONS: The Orleans
4500 West Tropicana Avenue, Las Vegas NV 89103
www.orleanscasino.com/groups or 800-675-3267, Group Name: CEATI     Reservation ID: A6RTC10, Questions? Email pfurlong831@gmail.com.
 
October 27-29, 2016
2016 National Convention & International Forum "Shaping the Future" will be in Orlando, FL this year and will be a joint disability event with The Arc of the United States and Inclusion International. "Join the global conversation as people from all over the world share best practices, struggles, successes, and hopes for the future. Our collective work is toward a common goal-to protect and promote the human and civil rights for individuals with intellectual and developmental disabilities in the U.S. and abroad. Attendees can expect to make enduring personal and professional connections while learning how to shape the future for the better.
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RECENTLY RELEASED REPORTS, STUDIES, ETC.
 
This (the following report) is a pretty good synopsis of political marginalization.  We know that elections - both for offices and ballot initiatives have major consequences to the lives of people with developmental disabilities.  Public transportation, housing, healthcare not to mention levels of funding for all manner of health and human services,  All of these things have a direct impact on the lives of people with developmental disabilities.  In fact one could argue that elections are more important to potential voters with developmental disabilities than to the "average" voter.  
 
I'm trying to wrap my head around who - what entities have the mission and capacity to be out in the disability community discussing these and other major issues impacting the lives of people with disabilities - laying out the stakes and consequences of elections and major policies that will be determined by them.  
 
This is different than important efforts to encourage registration and accessibility to polling locations and materials. These activities are necessary but not sufficient activities to increase voter engagement.  
 
What would it look like to make the "political process" accessible and relevant to our communities?  Is it that we would participate in the political debate - the back and forth between competing ideas? What do these conversations and decisions mean to a person relying upon SSI, public transportation, or perhaps someone who's been on a wait list for a rent subsidy for 3 years?   
 
The realities of 501c3 compliance and public funding greatly constrain activities deemed partisan.  But our political system is predicated upon active and public competition between individuals and issues.  How do we support individuals to become engaged in the political discussions and debates and to make decisions that they want to vote for something or against something? 
 
If people feel that their vote is important - that it could matter to their life or the lives of people they care about - they will overcome many logistical obstacles to make that vote.
-Steve Miller, Community Advocate
 
 
White Paper prepared for Presidential Commission on Election Administration
June 22, 2013
Associate Professor Rutgers University
 
Scope of the Problem
Voter turnout and registration
There are at least 35 million voting-age people with disabilities in the United States, representing 1 out of 7 voting-age people, and the number is likely to grow with the aging of the population. People with disabilities have lower voter turnout than people without disabilities. Twelve surveys over the 1992-2004 elections, using varying samples and definitions of disability, found that eligible citizens with disabilities were between 4 and 21 percentage points less likely to vote than were eligible citizens without disabilities. Based on new disability measures starting in 2008, results from the Census Bureau's Voting and Registration Supplement show disability turnout gaps of 7.2% in 2008, 3.1% in 2010, and 5.7% in 2012. The smaller gap in 2010 reflects especially low turnout in midterm elections by younger voters, who are generally less likely to have disabilities. When demographic characteristics (age, gender, race/ethnicity, and marital status) are held constant, the adjusted disability gap is close to 12 points in each year.
 
Broken down by major type of disability, the turnout was lower in 2012 among people with visual, mobility, and cognitive impairments, but people with hearing impairments were as likely as people without disabilities to vote. Turnout was also low among those who reported difficulty going outside alone, or difficulty with daily activities inside the home.   The disability voting gap is due in part to lower voter registration, but is due more to a lower likelihood of voting if registered. In 2012, among people with disabilities, 69.2% reported being registered to vote, only 2.3 percentage points lower than the rate for people without disabilities. Among those who were registered, 82.1% voted, which was 5.4 points lower than the 87.5% of registered citizens without disabilities who voted.
 
Given the number of people with disabilities in the United States, these results imply that there would be 3.0 million more voters with disabilities if they voted at the same rate as otherwise-similar people without disabilities. While increased turnout among people with disabilities would make elections more representative, this would not appear to change the partisan landscape: people with disabilities are no different overall from people without disabilities in their identification with the Republican or Democratic parties, and they have a similar average score on a liberal to conservative scale as other Americans.
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NEWS ARTICLES
 
Press Conference: Tuesday, August 23rd 10am PDT
Location: Outside of the U.S. Attorney's Office - 880 Front Street, San Diego
Participants: David Rector and his supporters; disability rights advocates
 
 
On New Year's Day 2016 a new state law went into effect in California which affirms the right to vote for thousands of seniors and people with disabilities. If they can express their desire to vote, they have the right to vote. The problem? Unless immediate action is taken, thousands of eligible California voters are going to be watching November's election results on television knowing they were prevented from voting because of California officials previously disqualified them from voting - in violation of federal voting rights laws.
 
Take the case of San Diego resident David Rector. David, who is a quadriplegic, acquired a condition known as "locked-in syndrome" after suffering a massive stroke in 2009. He can think, feel, comprehend, remember, see, hear, and express emotions but cannot move his limbs functionally. He was a producer for National Public Radio before his illness. He was able to vote in 2010 with assistance but was stripped of that voting right by a local official in 2011.
 
David is going to court on Tuesday, to request his voting rights to be restored IMMEDIATELY.
 
David Rector's story is not unique. Spectrum Institute filed a complaint in July 2014 with the Department of Justice alleging that California officials had violated federal voting rights laws. The DOJ opened an inquiry in May 2015 which is ongoing. That investigation is statewide and implicates the voting rights of tens of thousands of seniors and people with disabilities.
 
The legislature worked to correct the problem and passed the new state law (SB 589). However, seniors and people with disabilities who have also lost their voting rights as David did are unaware of the new law and government officials are slow to restore their voting rights.
 
This is why on Tuesday, August 23, Spectrum Institute is filing a new class action complaint with the DOJ. They want that agency to press the State of California to speed up the voting rights restoration process. After the complaint is filed, David and his supporters will walk to court where David will say "I want to vote" with the aid of his electronic voice. It is those four magic words that trigger the duty of the State of California to restore his voting rights.
 
Spectrum Institute estimates that 30,000 or more Californians like David have lost their right to vote in previous years and are eligible to ask for that right to be restored under SB 589. But they must be registered to vote by October 24 or they will be watching the election returns rather than helping to shape those results with their own vote. People with disabilities should have the same right to vote as every other American. What happens in California will have ramifications in other states with laws that disqualify many people with disabilities from voting.
 
Thomas F. Coleman is the legal director of Spectrum Institute - a nonprofit organization advocating for equal rights and justice for people with disabilities.
 
EdSource August 18, 2016
By Jane Meredith Adams
 
The federal investigation involved one school district, one private special education subcontractor and one student. But advocates say they are hoping that the probe of the Oakland Unified School District, the Anova Center for Education Contra Costa and the education of 9-year-old Stuart Candell - which included a finding that Oakland Unified violated federal education law - will prompt districts everywhere to think twice before outsourcing the education of students with disabilities to private schools that routinely use harsh behavior control techniques. "We know many of the abuses take place in the private schools," Arlene Mayerson, directing attorney at the Disability Rights Education and Defense Fund, said, referring to the repeated, non-emergency use of physical restraints by some schools to control students with special needs, as well as the practice of secluding students in rooms they cannot leave. "We will be paying close attention to this case to see how to pursue the issue in other districts."
 
In California, private special education schools publicly state one of two things: that they don't physically restrain students at all or that they comply with the state Education Code and restrain students only in emergencies when students are at risk of harming themselves or others. Yet the schools, which operate under publicly funded contracts to serve students that districts say they can't, are not required under federal or state law to report publicly on their use of physical restraint or seclusion, Mayerson said. In findings released this month, investigators with the U.S. Department of Education's Office for Civil Rights determined that Stuart's home district, Oakland Unified, denied him an education by allowing the Anova Center for Education Contra Costa to routinely pin him to the floor in a face-down "prone" restraint that caused him to "scream and cry with physical pain" and miss hours of instruction and speech, language and occupational services.
 
...The agreement calls for Oakland Unified to document that it is creating a monitoring system to effectively ensure that what happened to Stuart will not happen to any Oakland Unified student at any of the more than 30 private special education schools that the district says it has on a referral list. In 2015-16, Oakland Unified spent about $7 million to place 203 students in private special education schools in California, Utah and Colorado, Sasaki said. On Aug. 18, ahead of a Nov. 1 deadline set by the Office for Civil Rights, Oakland Unified held an all-day training for special education administrators and staff who oversee the placement of students in private special education schools. Staff from private special education schools also attended. Led by Diana Browning Wright, co-founder of the training center known as PENT, the training included information about the trauma caused by the use of restraints on students and successful non-restraint strategies for addressing serious problem behavior, the district said.
 
PBS NewsHour August 10, 2016
By John Donvan
 
Matt Resnik has helped changed the face of autism in his hometown. When he was diagnosed as a child, his parents poured their hearts into getting him therapy, even launching an organization, in hopes he would outgrow his challenges and find his place as an independent adult in the world. Instead, they've helped shape the world around him. Special correspondent John Donvan reports.


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FUNDING OPPORTUNITIES

 
 
HHS - Department of Health and Human Services Administration for Children and Families - OCS Assets for Independence Demonstration Program Synopsis 9http://www.grants.gov/web/grants/view-opportunity.html?oppId=275744
 
HHS - Department of Health and Human Services National Institutes of Health Identification of Mechanisms Mediating the Effects of Sleep on Diabetes-Related Metabolism in Humans (R01) Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=287579
 
HHS - Department of Health and Human Services Centers for Disease Control - NCBDDD Enhancing Public Health Surveillance of Autism Spectrum Disorders and Other Developmental Disabilities through the Autism and Developmental Disabilities Monitoring (ADDM) Network Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=287586
 
CNCS - Corporation for National and Community Service2017 AmeriCorps State and National Grants Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=287588
 
HHS - Department of Health and Human Services National Institutes of Health Developmental Mechanisms of Human Structural Birth Defects (P01) Synopsis 2http://www.grants.gov/web/grants/view-opportunity.html?oppId=238376
 
HUD - Department of Housing and Urban DevelopmentFY2016 Continuum of Care Synopsis 5http://www.grants.gov/web/grants/view-opportunity.html?oppId=285539
 
HHS - Department of Health and Human Services National Institutes of Health Developmental Mechanisms of Human Structural Birth Defects (P01)Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=287482
 
HHS - Department of Health and Human Services Health Resources and Services administration Universal Newborn Hearing Screening and Intervention Program Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=287487
 
HHS - Department of Health and Human Services National Institutes of Health Limited Competition: Additional Sequencing for the Alzheimer's Disease Sequencing Project (U01)Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=287494
 
HUD - Department of Housing and Urban Development Notice of Funding Availability (NOFA) for the Fiscal Year (FY) 2016 Continuum of Care Program Competition TECHNICAL CORRECTION Synopsis 2 http://www.grants.gov/web/grants/view-opportunity.html?oppId=287495

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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
Jobs Page Links: Click Here
Any combination of training and experience that would likely provide the required knowledge and abilities is qualifying. A typical way to obtain the required knowledge and abilities would be: Education equivalent to graduation from a four (4) year college or university with a major in Social Work, Business Administration, Public Administration or a closely related field. Five (5) years of professional experience working in public or private agency human services program; including two (2) years in a management capacity. Possession of a Master's Degree in Public or Business Administration, Social Services or a closely related field is highly desirable.
 
To plan, organize, and direct the Butte County Department of Employment and Social Services, and implement a broad range of welfare assistance and benefit programs throughout the County; and to perform related duties as required.
 
Under the direction of the Chief Deputy Director, DOR, the Deputy Director is responsible for oversight and direction of the Vocational Rehabilitation Policy and Resources Division (VRPRD), a division of approximately sixty (60) staff including an Assistant Deputy Director and five (5) Staff Services Managers. VRPRD works closely with vocational rehabilitation public partners in the education system, including kindergarten through twelfth grade and community colleges, and mental health systems, to provide services to individuals with disabilities and to leverage resources. VRPRD must develop innovative approaches to providing services to individuals with disabilities which is provided through other DOR divisions. Some of the new, innovative policies being developed relate to services for children as young as thirteen years old to prepare them for post-secondary education and meaningful careers, and services for adults with developmental and intellectual disabilities in order to increase job opportunities and pay in an integrated setting. The CEA is at level B because the Deputy Director is responsible for extensive managerial and program administration and or substantially participates in the formulation, operation, and/or evaluation of program policies.
 
The State Director, The Arc Wisconsin will build and lead a growing, vibrant and effective movement of people with intellectual and developmental disabilities (I/DD), their parents, siblings and family members, and the professionals and organizations that serve them, to promote and protect the civil rights of people with I/DD and to actively support their inclusion and participation in their communities throughout their lifetimes. The State Director will build a new State Office of The Arc Wisconsin that will advance the vision, goals and strategies set forth in Strategic Framework for the Future of The Arc, 2010-2019. The State Office is charged to influence public policy developments in the executive, legislative and judicial branches of government which affect people with I/DD, promote public awareness about their needs, issues and concerns, and encourage, assist and support local chapters of The Arc.
 
Under the direct supervision of the Director and with delegated authority, the Chief of the Branch will be responsible for the following duties: *Formulates, supervises and implements the substantive work programme of the Branch in the areas of ageing, family, youth and disability as well as social integration and social inclusion. Oversees the management of activities undertaken by the units of the Branch, ensures that programmed activities are carried out in a timely fashion and co-ordinates work in assigned areas both within the Division and Department, and with other organizations of the United Nations System, as well as liaises with other agencies and bodies of the United Nations system as appropriate. *Leads and undertakes research and analysis of issues and trends on ageing, disability, youth and family and provides programmatic and substantive reviews of the drafts prepared by others....
 
Alpha Resource Center of Santa Barbara seeks a Manager of Development and Marketing who can manage strategic communications and lead the acquisition of financial and other resources to sustain the work and fulfil the Mission of Alpha. The Manager of Development and Marketing is responsible for all fundraising initiatives and activities for the organization including fundraising events, planned and annual giving campaigns, individual donor identification and cultivation, grant writing, foundation and corporate development as well as marketing. The position will create and execute tailored communication strategies for multiple audiences; corporate and cash donors, media, foundations, and the general public. This position develops relationships within the community to achieve visibility and participation in reaching Alpha's goals. The position manages the department's budget, participates as a member of the management team, participates in strategic planning, provides leadership to the Development Committee and assists the CEO and Board of Directors to formulate and implement the organization's short- and long-term marketing and development goals. We have a beautiful campus in the foothills of Santa Barbara with a dedicated staff and a competitive benefits package. Interested parties can contact the HR Manager at mjbakove@alphasb.org. Salary $50K to $80K DOE
 
Alpha Resource Center of Santa Barbara is hiring an Assistant Manager for our Adult Services programs. This position will assume responsibility for development, coordination, implementation and maintenance of client-centered curriculum, including development of work and community opportunities. We seek a well-organized individual experienced with working with people with developmental disabilities or delays, who can take responsibility for effective on-going communication with agencies, families, care providers and consumers regarding service plans. This position will establish, coordinate and maintain responsive admission procedures including assessments. Along with the Program Manager they will track and do billing for state funded programming as well as managing and overseeing an internal budget. They will be responsible for coordination of consumer transportation, attendance and departures. Under the direction of the Program Manager, they will coordinate of staff duty schedules during unstructured time and contribute to staff development including training and evaluations. We have a beautiful campus in the foothills of Santa Barbara with a dedicated staff and a competitive benefits package. Interested parties can contact the HR Manager at mjbakove@alphasb.org. Salary $40K to $60K DOE
 
Executive Director
 
The Arc of Illinois is the leading advocacy organization supporting individuals with intellectual and developmental disabilities throughout the State of Illinois. Terri Devine, Arc of Illinois Board Chair, has announced that Tony Paulauski will be retiring after 25+ years as Executive Director. She will be leading the board search committee to find a visionary leader who will continue the good work of the Arc of Illinois. The candidate for this position will be an experienced professional advocate for people with intellectual/developmental disabilities and their families. Additionally, S/he will have a demonstrated ability to cultivate relationships with Arc Chapters, other disability providers, associations, funders and political leaders. Candidates must have senior administrator experience in a disability related organization, hold a Bachelor's Degree (Masters preferred) in a related discipline and have proven background in governmental affairs, finance, development and personnel management. The Executive Director will represent the organization throughout the State of Illinois. The Executive Director reports to a volunteer Board of Directors.
 
Some of the responsibilities include: Ideal candidate will have experience in inpatient setting; written and oral communication skills, knowledge of utilization management & skills in case management, time management, and crisis intervention common to acute psychotic as well as to non-violent crises intervention practice. Candidate must have knowledge of acute psychological disorders; advanced principals of abnormal psychology as specifically applied to adults, geriatrics, and adolescents; familiarity with follow-up resource services; skills in conducting group therapy. Skills in maintaining information as highly confidential. Ability to clearly summarize pertinent clinical information via written correspondence and medical records documentation. Providing quality case management to psychiatric
patients; to serve as a member of the interdisciplinary team supporting the organization s treatment program and philosophy and assure the deliverance of quality treatment to psychiatric patients and their families. Requirements: Education: Master s Degree from an accredited college or university in social work, counseling psychology, mental health or a related field preferred.
 
County of Ventura's Human Services Agency, is currently seeking a Chief Deputy Director. The ideal candidate will possess excellent organizational, budgeting, administrative/ management, supervisory skills and extensive leadership experience in in a large, complex, multi-disciplinary public human service delivery system. The ideal candidate will further be a highly motivated executive with excellent communication and interpersonal skills, and a passion for providing the highest quality of services to the community. The individual will also have a successful track record of establishing and maintaining successful collaborative relationships among a variety of stakeholders in a comprehensive public human service system.
 
The UC Davis Health System, MIND Institute Physician Clinic Director is responsible for patient care and administration in the Massie Clinic; an outpatient health care clinic serving individuals with neurodevelopmental disorders. The Physician Clinic Director will ensure efficient and effective patient care through joint planning and problem solving with the practice manager, CAO, and Executive Director and provide care consistent with medical best practices and the policies and procedures of the organization. This position will utilize professional skills in providing diagnosis, assessments, and treatment to individuals with neurodevelopmental disabilities. Additionally, this position will assist in the development and coordination of systems for clinical care for the Massie Family Clinic, which assures a multi-disciplinary, comprehensive, patient-oriented approach to patient care. The Physician Clinic Director is accountable for the overall quality, appropriateness, efficiency, and effectiveness of health care delivered within the clinic.


The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.

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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494