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May 18, 2015  
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Please help support the Monday Morning Memo. Send your annual $25 check to 1225 8th Street, Suite 350, Sacramento, CA 95814 or signup online for "The Arc California Membership" 


Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Tony Anderson, Executive Director, The Arc California

Monday May 18, 2015

The Lanterman Coalition will be holding a march to the capitol starting at 12 noon at 13th and K heading to the L Street sidewalk of the capitol building, and culminating in attendance in the Assembly Budget Sub-Committee on Health and Human Services.


The Assembly Budget Sub-Committee on Health and Human Services chaired by Assembly member Tony Thurmond will be meeting in room 4202 at 1:30 pm and will hear budget items related to the Departments of Developmental Services and Health Services.


Tuesday May 19, 2015

The Lanterman Coalition will be holding a march to the capitol starting at 9 am at 13th and K heading to the L Street sidewalk of the capitol building, and culminating in attendance in the Assembly Budget Sub-Committee on Health and Human Services.


The Senate Budget Sub-Committee on Health and Human Services chaired by Senator Holly Mitchel will be meeting in room 4203 at 10:30 am and will hear items related to the Department of Developmental Services and others.


The State Executive Directors of The Arc will be meeting to review the status and outcomes of a variety of lawsuits they have brought to fight for people with developmental disabilities across the country.


The Autism Society of Los Angeles (ASLA) FREE Speaker Series will be sponsoring an event, California's New Self-Determination Program: Providing Choice and Control for Regional Center Clients and their Families, hosted by OurSpace from 7 - 9 pm at the Temple Aliyah, 6025 Valley Circle Blvd., Woodland Hills, CA. Presenters include Judy Mark and Connie Lapin, Government Relations Co-Chair, ASLA, with a special introduction by one of the law's co-authors Former Assemblymember and current L.A. City Councilmember Bob Blumenfield (invited). "What is the Self-Determination Program? A new law is about to take effect that provides regional center clients the opportunity to participate in a Self-Determination Program. This voluntary program allows them to choose and manage unique services that help them meet their goals, including those not traditionally funded by regional centers.  At this presentation, you will learn about all aspects of the Self-Determination Program and the opportunities it provides. This presentation is targeted to parents and individuals with disabilities, but ALL ARE WELCOME. No childcare will be provided. To RSVP and for more information,"


The Arc of the United States will be hosting "Housing 101: Exploring the Options" webinar from 11 am - 12 noon (PST). "There are many types of places for where adults with intellectual and developmental disabilities (I/DD ) could live in the community. It's important to determine the level of support needed by the person with I/DD when exploring the housing options available in your community. One size does not fit all, so it's never too early to get started on understanding the different housing options. Join us for The Arc's Center for Future Planning webinar to learn more from Lisa Sloane and Diane Dressler about the housing options available to people with I/DD and what to keep in mind when identifying the best fit for the person with I/DD. Speakers will also discuss how to navigate the challenges of assessing housing services. Register now."


Wednesday May 20, 2015

We'll be participating in the 12th Annual Disability Capitol Action Day on the West Steps of the Capitol. Disability community will be out in full force all day today from 9:00 a.m. to 3:00 p.m. for the "ADA - Today, Tomorrow, Forever!...  We are excited to be celebrating the 25th anniversary of the American with Disabilities Act with you at the 12th annual Disability Capitol Action Day. One of California's largest and most diverse days of cross disability unity and action."


The Office of Special Education and Rehabilitative Services, Office of the Assistant Secretary Sue Swenson has announced regional public meetings to discuss; State Vocational Rehabilitation Services Program, State Supported Employment Services Program, and Limitations on Use of Subminimum Wage. The California OSER public meetingwill be from 1:00 p.m. to 5:00 p.m. PDT in Sacramento, at the California Department of Rehabilitation, 721 Capitol Mall, Room 242, Sacramento, CA 95814.


The State Council on Developmental Disabilities chaired by April Lopez, will be meeting from 10 am to 5 pm at the Double Tree Hotel at 2001 Point West Way in Sacramento. The SCDD meeting will include discussions on a variety of public policy issues impacting people with developmental disabilities and will update the community on progress related to infrastructure changes.


Thursday May 21, 2015

The Senate Budget Sub-Committee on Health and Human Services chaired by Senator Holly Mitchel will be meeting in room 4203 starting at 10:00 am with the intention of completing any unfinished budget items. The Assembly Budget Sub-Committee on Health and Human Services chaired by Assembly member Tony Thurmond will meet in room 4202 and also intends on completing all remaining budget items today.


The State Council on Developmental Disabilities, Sacramento office is hosting a training, "Understanding Special Education Due Process" at the Yolo County Office of Education, 1280 Santa Anita Ct. #120, Woodland, CA 95776 from 9:00-11:30 a.m.


We'll be participating in the Children's Advocates' Roundtable from 12 - 3pm at the California Endowment, 1414 K Street, Suite 500, Sacramento CA 95814. The roundtable will include a discussion with policy experts in the areas of child welfare, juvenile justice, homeless youth, disability rights, education, and child care. They will discuss major policy issues and legislative movement in these areas. We also look forward to discussing the California budget May revise with an expert panel including Scott Graves, Director of Research at the California Budget Project, Christian Griffith, Chief Consultant to the Assembly Budget Committee, and Keely Bosler, Chief Deputy Director for Budgets at the Department of Finance. Please RSVP, space is limited and lunch will be provided. Contact: Melanie Delgado, Staff Attorney and Director of Transition Age Youth Projects, Children's Advocacy Institute (619) 260-4806.


Think College's 2015 will be hosting a webinar "Vocational Rehabilitation Supports for College Students with Intellectual Disabilities" from 12 - 1 pm to address aspects of postsecondary education for college students with intellectual disabilities. Registration is required and space is limited.


The Lanterman Coalition team of lobbyists and advocates will continue participating in meetings with legislators discussing the current condition of community developmental services and the need for an across the board 10% increase.


Friday May 22, 2015

The CCLTSS will be meeting in Sacramento from 9 am to 10:30 am at the California Foundation for Independent Living Centers (CFILC). 


We'll continue meetings with policymakers about the 10 campaign in the morning hours. Also if the budget committees have not completed their work by Thursday today is their last day. Assembly leadership will be participating in activities to support the homeless in the capitol region.
Greg deGiere, 
Public Policy Director



Dear Friends,

Governor Brown's budget revision came out Thursday, and there's not one dime in it to stop the collapse of the community service and support system for people with developmental disabilities.


And as of this morning, we don't know whether the Democratic leadership of the Legislature will stand up to Brown. In private meetings in the Capitol, we continue to hear supportive statements. But in their public statements, the Democratic leaders still haven't said one word about the need to save our developmental services -- public silence, while some of them have plenty of public comments about other parts of the state budget.  It's time for our community to get mad.


We know there's a well of good will in the Legislature toward our community. Sixty-five legislators -- a majority of the state Senate and Assembly -- have signed Senator Jim Beall's letter supporting the Lanterman Coalition's call for an emergency 10% funding increase to save our services. Now we need them to actually fight for us.


So, with sincere thanks for all everyone in our community has done (including the thousands who sent emails and made calls just last week), here's what we're asking everyone to do now. June may be too late. Next week could even be too late.

  1. Call your own state senator and assemblymember. Click here, then enter your ZIP code in "Call Now" box, click "Go," and follow the directions there (except that, if you already have talked to someone in one of the legislator's offices, try that person first). You'll find possible talking points there too.
  2. Post messages on your legislators' Twitter and Facebook pages. They pay attention to them, and they know a lot of their voters see them, too.
  1. Come to Sacramento tomorrow (Tuesday), if you can, for the Senate budget subcommittee hearing on our budget. The schedule is below. Visit your legislators' offices while you are here.
  2. If you can't make it to Sacramento, please try to get to your legislators' district offices near you.

Our community has saved the Lanterman Act with massive mobilizations before. We need to do it again now.

Now more than ever, thank you for your advocacy.


Greg deGiere

Public Policy Director

The Arc & United Cerebral Palsy California Collaboration

1225 Eighth Street, Suite 350, Sacramento, CA 95814

916-552-6619 x4



Walking rally - 9 a.m. - L Street sidewalk (north side of the Capitol) - bring bells!

Senate budget hearing - 10:30 a.m. or upon adjournment of Senate session - Capitol room 4203


Come early. Parking around the Capitol is limited.

# # #

Greg deGiere

Public Policy Director

The Arc and United Cerebral Palsy California Collaboration

1225 Eighth Street, Suite 350

Sacramento, CA 95814

916-552-6619916-552-6619916-552-6619 x16 (office)

916-441-3494 (fax) 





Where Hope Grows, Coming to a Theater Near You on May 15th!

Select Theaters


A story of redemption through hope and love, Where Hope Grows tells the story of Calvin, a former professional baseball player who has failed in the majors and lives in a perpetual quicksand of self-pity. This all begins to change when he meets and befriends a grocery store clerk with Down syndrome, known as "Produce". "Produce" inspires all those around him with a gentle spirit of perseverance, and the movie gives us a wonderful opportunity to share and celebrate the contributions that our family members, friends, co-workers, and others with I/DD bring to their communities.


The Arc is a promotional partner of the film, and we hope that you will watch it and engage your peers in a discussion of what inclusion of people with I/DD really means by using The Arc's discussion guide. To find out where to see the movie or how to bring it to a theater near you, please visit the Theaters page of the movie's site.


Check your local listings and see the film opening weekend! If you miss it in the theater, it will be available digitally and on DVD later this summer.


After viewing Where Hope Grows, we want to hear what you think - email us your thoughts at Get involved in the conversation online by using the hashtag #wherehopegrows.


Also, sign up for: The Arc US Capitol Insider

Click on The Arc UCP California Collaborative Bill File.


Monday May 18, 2015

ASM - REVENUE AND TAXATION SUSPENSE TING, Chair 1:30 p.m. - State Capitol, Room 126
  • AB 35    (Chiu D)   Income taxes: credits: low-income housing: allocation increase. Position:  Support Subject:  Housing.

SEN - APPR. Not in daily file. Anticipated Hearing

  • SB 492    (Liu D)   Coordinated Care Initiative: consumer educational and informational guide. Position:  Watch, Subject:  Health & Medical.
  • SB 675    (Liu D)   Health facilities: family caregivers. Position:  Watch, Subject:  Health & Medical, Residential Services.

SEN - APPROPRIATIONS LARA, Chair 10 a.m. - John L. Burton Hearing Room (4203)

  • SB 19    (Wolk D)   Physician Orders for Life Sustaining Treatment form: statewide registry. Position:  Support, Subject:  Health & Medical.
  • SB 243    (Hernandez D)   Medi-Cal: reimbursement: provider rates. Position:  Watch, Subject:  Health & Medical.
  • SB 377    (Beall D)   Income taxes: insurance taxes: credits: low-income housing: sale of credit. Position:  Watch, Subject:  Housing.
  • SB 441    (Leno D)   San Francisco redevelopment: housing. Position:  Watch, Subject:  Housing.

Wednesday May 20, 2015

ASM - APPROPRIATIONS GOMEZ, Chair 9 a.m. - State Capitol, Room 4202

  • AB 24    (Nazarian D)   Transportation network companies: public safety requirements. Position:  Watch, Subject:  Criminal Justice & Civil Rights.
  • AB 348    (Brown D)   Health facilities: complaints: investigations. Position:  Support, Subject:  Health & Medical, Residential Services.
  • AB 366    (Bonta D)   Medi-Cal: reimbursement: provider rates. Position:  Support, Subject:  Health & Medical.
  • AB 668    (Gomez D)   Property taxation: assessment: affordable housing. Position:  Watch, Subject:  Housing.
  • AB 782    (Dababneh D)   Home Care Services Consumer Protection Act. Position:  Watch, Subject:  General Systemic.
  • AB 854    (Weber D)   Educational services: pupils in foster care. Position:  Watch, Subject:  Special Education.
  • AB 870    (Cooley D)   Homelessness: rapid rehousing. Position:  Watch, Subject:  Housing.
  • AB 1025    (Thurmond D)   Pupil health: multitiered and integrated interventions pilot program. Position:  Watch, Subject:  Special Education.
  • AB 1300    (Ridley-Thomas D)   Mental health: involuntary commitment. Position:  Watch, Subject:  Criminal Justice & Civil Rights, Mental Health.
  • AB 1335    (Atkins D)   Building Homes and Jobs Act. Position:  Support, Subject:  Housing.

Tim Hornbecker, Director of Advocacy and Community Organizing.  "He's taking the week off this week because he found a way to convince his girlfriend Pat Napoliello (from The Arc San Francisco) to marry him.  Congratulations to this wonderful couple."


Project Updates by Tim Hornbecker...


Advocacy and Community Organizing Report


Disability Rights Advocates Ring the Alarm Bell During Capitol March

Following Gov. Brown's #BrokenPromises Budget, Activists Plead With Lawmakers to Act


Sacramento - Carrying bells to ring the sound of alarm, advocates, family members and people with developmental disabilities will march on the State Capitol Monday, desperately seeking funding to save critical programs for people with developmental disabilities.


With just days left for Legislators to act, disability rights advocates will gather to send a loud and strong Message to State Lawmakers:


Our Lives Are In Your Hands

It's Now Up To You

Only You Can #KeepThePromise To People With Developmental Disabilities


What:   People with developmental disabilities, family members, service providers and their   advocates march to State Capitol seeking overdue and desperately needed program funding. Inside the Capitol, Assembly Budget Subcommittee #1 meets to vote on budget for developmental services.


When:  March begins Monday, May 18, Noon - 2pm, Budget Subcommittee begins at 1:30 pm

Where:  Starts on sidewalk at 13th & L Streets, moves down L street to State Capitol Assembly Budget Subcommittee #1 meets in Capitol Rm 126

Who:    People with developmental disabilities (including autism, down syndrome, cerebral palsy), family members, service providers and their advocates.



After decades of neglect, cutbacks and chronic underfunding, programs for Californians with developmental disabilities are on the brink of collapse. Programs are closing, services are diminishing and people with developmental disabilities are being put at risk. The situation is detailed in a recent report by the Association of Regional Center Agencies (ARCA), which shows how funding levels for California programs have fallen to the bottom of the nation. The Lanterman Coalition is asking Gov. Brown and the State Legislature to pass an urgent 10% budget increase to keep service programs afloat. The Coalition also wants lawmakers to reform funding formulas so that they are able to keep pace with California's growing rates of autism and other developmental disabilities.


Passed in 1969, The Lanterman Act is a California law that promises people with developmental disabilities they will receive the resources necessary to live as independently as possible in communities of their choice. But after decades of budget neglect and the recent great recession, California services for people with developmental disabilities are crumbling.


For more info:


Tim Hornbecker, Director of Community Organizing and Advocacy 

Teresa Anderson, Prevention Coordinator


Alcohol use in first 3-4 weeks of pregnancy may lead to permanent brain changes in offspring

Medical News Today May 16, 2015

It is well established that consuming alcohol during pregnancy can cause harm to the fetus. Now, a new study finds that drinking alcohol as early as 3-4 weeks into pregnancy - before many women even realize they are expecting - may alter gene functioning in the brains of offspring, leading to long-term changes in brain structure.


The study, conducted in mice and published in the journal PLOS ONE, also identified changes in gene functioning in other body tissues as a result of alcohol consumption in early pregnancy. The research team, led by Dr. Nina Kaminen-Ahola of the University of Helsinki in Finland, says their findings indicate that alcohol exposure in early pregnancy may cause lifelong changes to gene regulation in embryonic stem cells - the earliest cells to emerge from a developing embryo. Alcohol consumption during pregnancy has been linked to increased risk of a number of health conditions for offspring, including growth restriction, intellectual and learning disabilities, poor memory, poor coordination and speech and language delays. Dr. Kaminen-Ahola and colleagues note, however, that it is unclear exactly how alcohol exposure during pregnancy impacts fetal development to result in these conditions. Past animal studies have suggested that alcohol consumption may influence gene expression in the embryo during early pregnancy by making changes to the epigenome, which regulates gene function. The researchers of this latest study wanted to investigate this further.  


Early alcohol exposure during pregnancy alters epigenome in hippocampus

To reach their findings, the team fed alcohol to a group of pregnant mice during the first 8 days of gestation - the equivalent to 3-4 weeks of gestation in humans - and analyzed its effects on the epigenome of offspring. Specifically, the researchers focused on how early alcohol exposure during pregnancy influenced the epigenome of the hippocampus among offspring - the brain region that plays a crucial role in memory and learning. They found that - compared with the offspring of pregnant mice that were not exposed to alcohol - the offspring that were exposed to alcohol showed altered epigenomes, which led to changes in the function of several genes in the hippocampus. What is more, the researchers identified changes in gene function in two other tissues of offspring exposed to alcohol during early development: bone marrow and the olfactory epithelium of the snout.

Using magnetic resonance imaging (MRI) to assess the brain structure of the mice offspring when they reached adulthood, the team identified alcohol-induced changes - particularly in the hippocampus, olfactory bulbs and cerebral ventricles. ...

Teresa Anderson, MPH

The Arc California

Prevention Coordinator




May 30-31, 2015

NADSP's Annual Meeting & Conference: The First One at The Galt House Hotel, Louisville, KY.Join us for an opportunity to connect with the very best of direct support professional development practices and information. We are excited to partner with AAIDD (American Association on Intellectual and Developmental Disabilities) and hold our first national conference in conjunction with AAIDD. Join us for our first conference in Louisville, Sunday afternoon Al Condeluci will present, "Social Capital and Passion"  How we can continue to make a Difference.Understanding and working toward a more inclusive culture is a key element in human services today. Yet, the majority of our services still struggle to find ways that we can get people in and of the community. This hopeful presentation will introduce much of what we will discuss at this conference and frame ways we can keep passion in our work. This interactive presentation will look at the challenge of inclusion and focus attention on a broader, more culturally relevant and positive approach to building community.


June 1-4, 2015

The AAIDD Annual Meeting will be held in Louisville, KY, provides researchers, clinicians, practitioners, educators, policymakers, local, state and federal agencies, and advocates with cutting edge research, effective practices, and valuable information on important policy initiatives. Conference Hotel: The Galt House of Louisville.


June 19-20, 2015

Board of Directors meeting in Sacramento.


July 20-22, 2015

NCE annually hosts the Summer Leadership Institute (SLI), at different sites around the country. NCE strives to provide our attendees with educational materials that will help our members develop and hone their professional skills so that we can all work better and smarter towards our shared purpose - realization of The Arc's Core Values. This year, the Summer Leadership Institute will be held July 20-22 in Providence, RI.  


Aug. 4-7, 2015

The 20th Annual Conference of QDDPs. "We are excited to announce online registration is now open for the 20th Annual Conference of QDDPs to be held Aug. 4-7, 2015, at the Royal Sonesta New Orleans, LA! Go to and click under the Conference Tab to register! You'll be inspired by two dynamic keynote sessions: "Fully Charging Your Work and Life" by Tom Rath and "My ipad Has My Back " by Marsha Threlkeld. In addition, enjoy over 40 unique breakout sessions focusing on this year's theme "Every Day Wellbeing." It's a great time to network, learn, share and re- energize with colleagues committed to providing supports to individuals with disabilities."


October 3 - 5, 2015

The Arc's 2015 National Convention, Indianapolis, Indiana


October 7-8, 2015

Therap's Southern California Conference in Anaheim California, Red Lion Hotel Anaheim, 1850 South Harbor Boulevard, Anaheim, CA 92802. "

Come spend a day or two with the Therap West Team and see what 20,000+ Californians are doing when they log into Therap each month. Mingle with current Therap Users and the Training and Implementation Team. Therap has been supporting agencies in California since 2006! Breakout Sessions will include: Introductions for New or Potential Users, Policy and Procedural Considerations for Implementing an Electronic System, Person Centered Planning, Daily Data Collection and Communication, Behavior Support Tracking, SIR Tracking, eBilling and other Billing tracking and claims, Health Tracking, Medication Administration, Employment Tracking and Milestones, Outcome focused documentation, managing access for Audits, and Circle of Support members, and much more. Contact to see if you are eligible for a discount! 




BREAKING POINTS: The waiting list at one troubled Social Security office has is now more than 1 million people long

The Washington Post

Check out this overview video on the Social Security Backlog


In an obscure corner of the federal bureaucracy, there is an office that is 990,399 cases behind. That is Washington's backlog of backlogs - a queue of waiting Americans larger than the populations of six different states. It is bigger even than the infamous backups at Veterans Affairs, where 526,000 people are waiting in line, and the patent office, where 606,000 applications are pending. All of these people are waiting on a single office at the Social Security Administration. Social Security is best-known for sending benefits to seniors. But it also pays out disability benefits to people who can't work because of mental or physical ailments. And it runs an enormous decision-making bureaucracy to sort out who is truly disabled enough to get the checks - and who is trying to game the system. Within Social Security, this backlogged office handles appeals of appeals. In most of its cases, the applicants have already been turned down twice by lower-rung officials who didn't think they were disabled enough. If they appeal to this office, they can plead their case in person, before a special kind of Social Security judge. The judge is supposed to read the applicant's medical records and ask questions about medications, limitations and levels of pain. There are 1,445 of these Social Security judges, which means its in-house legal system is larger than the entire regular federal court system - district and appeals courts and the Supreme Court put together.


When they make a ruling, they must decide whether someone is truly unable to hold any job. That is slow work, made slower by a pileup of outdated rules and oddball procedures. The judges' official list of jobs, for instance, is a Depression-era relic last updated in 1991. It still includes "telegram messenger" and "horse-and-wagon driver" - not exactly growth industries. It doesn't mention the Internet at all. These judges fell behind when Gerald Ford was president. And they never caught up. Along the way, their office has become a bureaucratic parable - about what happens when the machinery of government cannot keep up with its good intentions. In this case, the system became, in effect, too big to fix: Reforms were hugely expensive and so logistically complicated that they often stalled, unfinished. What's left now is an office that costs taxpayers billions and still forces applicants to wait more than a year - often, without a paycheck - before delivering an answer about their benefits. The experience of fighting this backlog can feel desperate and futile to people on both sides of the judge's bench. "I had two claimants on my docket this past month. ... They died. They died. Waiting for a hearing," said Carol Pennock, a Social Security judge based in Miami. She worried that the two women might have improved if they'd lived long enough to be awarded disability benefits. In an especially absurd twist, even death didn't remove one of those women from Social Security's backlog. The woman had a child who might receive the woman's disability benefits post-mortem. So Pennock said she had to hold a hearing to decide if a dead person was legally disabled. "I really wonder if what we're doing is effective at all. If it helps at all," Pennock said, after a day of hearing cases and trying to reduce her share of the backlog. "If, based on the amount of evidence we get, my decision is any better than flipping a coin."



Health and social service advocates cry foul over Brown's revised budget

Contra Costa Times May 14, 2015

By Josh Richman


Gov. Jerry Brown's revised budget would boost spending on health and social services by about $1.7 billion over the current year, but it left advocates screaming for more to restore cuts made during the Great Recession. The state's tattered social safety net will be front and center in Brown's negotiations with Democratic lawmakers from now through the June 15 constitutional deadline for enacting next year's budget, wrangling over how to spend about $2 billion in better-than-expected tax revenues that aren't already earmarked for other purposes. "We should remember that any surplus was created in part out of $15 billion in cuts to health and human services -- cuts that continue today and into the future without some reinvestment," said Anthony Wright, executive director of the consumer advocacy coalition Health Access California. ... "More resources to low-income families is certainly welcome, but those dollars are at risk if the family is uninsured and one emergency away from crushing medical debt." California cut its Medi-Cal health insurance program in 2011, dropping California to near the bottom among the 50 states in how much it pays doctors and other providers for treating patients. Those cuts "are now impacting the millions of children and seniors who rely on Medi-Cal for essential health services," California Medical Association President Luther Cobb said in a statement issued Thursday.


... Brown's revised budget is "another broken promise that shows a shocking callousness and disappointing indifference toward Californians with developmental disabilities," said Tony Anderson, president of the Lanterman Coalition, which advocates for the disabled to live and work in their own communities. "Despite mounting data that demonstrates how California's program funding is declining to the bottom of the nation, the governor's budget offers no significant relief." Advocates for the In-Home Supportive Services program -- which pays $9.65 per hour to those who help housebound elderly and disabled people -- also complained that Brown's budget leaves them in the lurch. Tonya York was one of several dozen homecare workers at the state Capitol on Thursday to protest Brown's resistance to restoring a previous 7 percent cut with general-fund money so it can't be reduced in the future if tax revenue comes up short. "We care for the sickest, weakest most vulnerable members of our society. We should not have to drag them to Sacramento every few months to beg for money," said York, 50, who lives in San Jose. "What have we done to him?"


Advocates push California lawmakers to remember funding for social programs in new budget

The Republic May 15, 2015

By Judy Lin, Associated Press


SACRAMENTO, California - As California lawmakers begin drilling into Gov. Jerry Brown's $115 billion budget proposal, Democrats and social welfare advocates say they see many areas that need even more funding to make up for deep cuts during the recession. Democratic leaders in the Legislature say expanding affordable child care is their top priority. And advocates for children, seniors and disabled people have a long list of requests that includes increasing spending on health care for immigrants who are in the country illegally and restoring cash assistance to low-income seniors and people with disabilities.

They also want to raise Medi-Cal payments to doctors, dentists and other providers, and boost funds for people with developmental disabilities....


Social advocates are seeking a more sympathetic ear from the Democrats who control both houses of the Legislature and don't need GOP votes to pass a budget. The Legislature's nonpartisan budget analyst said Friday the state will collect a few billion dollars more than Brown estimates, raising hope for more spending. "We're looking for the Legislature to do more to help address deep poverty and the people who are still being left behind," said Mike Herald, a lobbyist with the Western Center on Law and Poverty. Lawmakers have until midnight on June 15 to enact a balanced budget and send it to the Democratic governor for his signature. The California Budget & Policy Center said a state supplemental grant for seniors and people with disabilities is down $1.4 billion, more than a third less than its pre-recession level in 2007. Meanwhile, participants in the state's welfare to work program have not received an increase in eight years. The maximum grant for a family of three in a high-cost county is $704 a month.


Civil rights icon Dolores Huerta, who has two grandchildren with special needs, joined a coalition of disability rights advocates in urging a 10 percent increase in state funding for people with developmental disabilities. "Disability rights are civil rights," Huerta said in a video recording. Advocates for children stress that kids have been disproportionately hurt. California now has a child poverty rate of 27 percent, the worst in the nation, according to a February report from the Annie E. Casey Foundation. Some groups are already modifying their requests in an effort to make it more appealing to Brown.


With just $4 million, the Legislature could fund a virtual pediatric dental office in 20 underserved communities, said Kathy Dresslar, a lobbyist with The Children's Partnership. The program would use portable imaging equipment and an Internet-based dental records system to help dentists and hygienists see the X-rays and dental charts of three times as many children from low-income families on Medi-Cal, said Dresslar, who was chief of staff to former Senate President Pro Tem Darrell Steinberg. "It's not the kind of long-term permanent drain on the general fund that this governor hates," she said.


Governor is the latest to call for closure of developmental center

Daily Pilot May 16, 2015

By Bradley Zint

Gov. Jerry Brown is now on the list of state officials wanting to close the Fairview Developmental Center. The governor's May revision of the state budget, released Thursday, proposes closing the state facility in Costa Mesa by 2021 and reassigning its residents into smaller facilities at a lesser cost to taxpayers in the long run. Brown's proposal comes a few months after two state bills - SB 639 and AB 1405, each introduced in February - that aim to do the same thing by 2018. Both bills are in committee. As of last month, Fairview housed 280 residents who have developmental disabilities and require 24/7 care. About 1,500 people work at the 111-acre facility, whose population peaked in the 1960s with about 2,700 residents. It opened in 1959. Brown is also proposing to close a developmental center near Sonoma by 2018 and one in Porterville by 2021. Santi Rogers, director of the state Department of Developmental Services, which oversees Fairview, said in an interview Friday that Brown's proposal was not unexpected. Legislation from 2012 capped admissions into the state's developmental centers, with exceptions for crisis situations. A task force in early 2014 also recommended that California move its developmental center residents away from such institution-style facilities into more community-based living arrangements. Developmental center residents have also been receiving individualized plans for their future care, which will be utilized in the event of the centers closing, Rogers said. He stressed that the state's intent, should Fairview and other centers close, is for residents not to lose the level of care they receive now. "The individual plan that they have now will be replicated in another setting," Rogers said. Disability Rights California, a Sacramento-based advocacy group, praised Brown's decision.


#Broken Promise: Gov. Brown's Revised Budget Cuts out People with Developmental Disabilities

Jewish Journal May 14, 2015

by Michelle K. Wolf

Despite that fact that California has reaped billions of dollars in unexpected revenue over the last few months, Governor Brown did not add in an extra penny into the state's system to help some of our most vulnerable people-children, teens and adults with developmental disabilities such as autism, cerebral palsy, intellectual disabilities and severe epilepsy, who receive services through our state's Regional Center system. In his news conference today unveiling the new, revised May figures, Gov. Brown called for $6 billion more for K-12 schools and community colleges over his January budget, with a third of that targeted for students who are low-income, learning English or in foster care. While it's true that state law dictates that much of this extra dollars in taxes must go to public schools (K-12) and community colleges, our state's Regional Center system is in desperate need of more funding, and a relatively small investment can be leveraged into even more funds with federal matching grants...


More News...

Advocates push California lawmakers to remember funding for social programs in new budget

Grove bill would close two state-run developmental centers, transfer funds to nonprofits

Reports of abuse lead to less funding for developmental services institutions 

The Arc San Francisco Launches Anti-Bullying Campaign "It Stops With Us"
Learning center raising awareness about bullying in the LGBT and disability communities




The following grant opportunity postings were made on the Find Opportunities service: 


HHS - Department of Health and Human Services Administration for Community Living Transforming State LTSS Access Functions into a No Wrong Door System for All Populations and All Payers: Statewide Implementation Grant


HHS - Department of Health and Human Services Administration for Children and Families Administration for Children and Families - OCS Community Services Block Grant (CSBG) Training and Technical Assistance (T/TA) Program: Learning Communities Resource Center



HHS - Department of Health and Human Services National Institutes of Health Development of Measures of Fatigability in Older Adults (R21) Grant


HHS - Department of Health and Human Services Administration for Children and Families Administration for Children and Families - OCS Community Services Block Grant (CSBG) State and Eligible Entity Technical Assistance Services Grant


HHS - Department of Health and Human Services Health Resources and Services administration Health Careers Opportunity Program Modification 3


HHS - Department of Health and Human Services National Institutes of Health

Human Studies to Evaluate Promising Medications to Treat Alcohol Use Disorder (R03) Grant


HHS - Department of Health and Human Services Centers for Disease Control and Prevention PPHF 2015: Early Care and Education Statewide Collaboratives to Improve Nutrition, Breastfeeding Support, Physical Activity and Screen Time Practices for Obesity Prevention Young Children - financed solely by 2015 Prevention and Public Health Funds Grant


DOC - Department of Commerce Economic Development Administration The Partnerships for Opportunity and Workforce and Economic Revitalization (POWER) Implementation Grants



HHS - Department of Health and Human Services Administration for Community Living 2015 Lifespan Respite Care Program: Grants to New States Grant


The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.


Jobs Page Links: Click Here 


Executive Director

The California State Council on Developmental Disabilities (the Council) is seeking an exceptional leader to serve as their next Executive Director. The Council was established by state and federal law to ensure that individuals with developmental disabilities and their families participate in the planning, design and receipt of the services and supports they need which promote increased independence, productivity, inclusion and self-determination. The Council is comprised of 31 members appointed by the Governor including individuals with disabilities, their families, federally funded partners and state agencies. In addition to headquarters in Sacramento, the Council has 13 regional offices throughout the state that support individuals with developmental disabilities and their families by providing training, monitoring and public information. The Council works to ensure that appropriate laws, regulations and policies pertaining to the rights of individuals are observed and protected. Please see the details in the hyperlink. The announcement is posted on the SCDD website and may also be accessed on the website listing CEA and Exempt.


The Executive Director 

Provides vision, direction, leadership, and continuity for PTA volunteers and staff toward the achievement of the California State PTA's mission, strategy, and its goals, priorities and objectives. Familiarity with education and/or children's issues and statewide policymaking processes, as well as proven success in management, budgeting and finance, resource development and program development and implementation, is essential to assure the future success and viability of the organization. This position requires a proactive professional with strong communication and presentation skills; a thoughtful, organized approach to planning and decision-making; experience and comfort working with and supporting volunteer leaders; computer knowledge and a college degree with a minimum of 5 years of experience in nonprofit management. The Executive Director is appointed by, reports to, is evaluated annually by, and works in close collaboration with the Board of Directors.


Chief Development Officer 

United Cerebral Palsy (UCP) seeks a seasoned executive to serve as its Chief Development Officer (CDO) in Washington, D.C. Reporting to the President & Chief Executive Officer and serving as a key member of the organization's management team, the CDO provides strategic direction to fundraising, marketing and communications for one of the largest health care and civil rights charities in the nation.


Legislative Specialist 

The California State Independent Living Council seeks to hire a LEGISLATIVE SPECIALIST.  This is a full-time, benefited, exempt position in Sacramento working for the State of California by facilitating the work of the State Independent Living Council. Please think about your network and the people within it who are passionate about disability rights.  We need a strong advocate who will be vigilant against threats to Independent Living in California. By May 15, 2015, interested applicants will need to pass the state SSM 1 exam online, complete a state employment application, and send the application, proof of exam, resume and cover letter to Danielle Hess, Office Manager at the SILC office. I'm attaching the job description and have added the links for the position listing and how to take the exam below. The link to the SSM I exam is: 


Executive Officer 

Under the general direction of the Deputy Director of Independent Living and Community Access Division, the Executive Officer supports the CCEPD to its work of achieving full inclusion of people with disabilities in the workforce in accordance California's Workforce Inclusion Act, Assembly Bill 925 and amended in Assembly Bill 119. The incumbent will be responsible for direction and oversight of the assigned DOR staff to administer the operations of the CCEPD in its development and implementation of identified priorities, and building collaborative relationships with other state and local partners to accomplish these priorities. Duty Statement is available upon request. For more information and to submit application: Department of Rehabilitation Attn: Cresenda Manning, 721 Capitol Mall Sacramento, CA 95814 (916) 558-5815

Legislative Advocate (Housing) 

Western Center on Law and Poverty, a 501 (c)(3) nonprofit, leads the fight to secure housing, healthcare and a strong safety net for low-income people in California. is seeking an experienced legislative advocate to advocate on behalf of Western Center clients before the state legislature and administrative agencies regarding legislation, the state budget, regulations, and policies involving housing. The areas of responsibility include housing policies affecting low-income persons, including landlord-tenant, fair housing, redevelopment, land use, housing programs, tax policies, foreclosures and low-income homeowner issues, homelessness, health and safety and building codes and enforcement, mobile homes, and others.


Executive Director 

The Executive Director is responsible for implementing all policy decisions of the governing Board and for the administration of all programs and services provided CVRC.   S/he is responsible for administering the Regional Center in the spirit and to the letter of the Lanterman Act and for the delivery in strict compliance and of full value under the CVRC contract with the California Department of Developmental Services (DDS). The Executive Director represents the agency to the community, including building strong relationships with key stakeholders and collaborating agencies, notably clients and families, vendors/ contracted service-providers, State and Federal funders, and the other 20 California regional centers and the Association of Regional Centers (ARCA).


The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814


Advocates for people with intellectual and all other developmental disabilities and their families since 1950.


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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494