tony@thearcca.org
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February 1, 2016  
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Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Tony Anderson, Executive Director, The Arc California
Over the weekend we attended the California Chronic Care Coalition's inaugural "Stars of Advocacy Fund Raising Gala" in appreciation of people who've made significant contributions in the lives of people with chronic conditions through outreach and education. Special congratulations to Amy Wall, from the Department of Developmental Services, for her important contributions, Herb Schultz (former President Obama CMS official), Senator Darrell Steinberg, Senator Richard Pan and many others.

Monday February 1, 2016
On the first Monday in February the President submits budget to Congress.
 
We'll be meeting with our development consultant from aoStrategies to follow up on proposals to increase our advocacy capacity.
 
Tuesday February 2, 2016 - Ground Hog Day
FASD NorCal will be hosting an event today, "FASD: Your Most Difficult Clients at Any Age" from 8:30 am to 4:30 pm at the San Jose Masonic Center, 2500 Masonic Drive, San Jose, CA 95125. The event will feature renowned expert Kathryn Page, Ph.D. co-founded the FASD Diagnostic Clinic at Santa Clara Valley Medical Center. "Have alphabet soup of diagnoses: ADHD, Depression, Bipolar, PTSD, RAD, SUDS, ODD, Borderline, OCD, ASD and have a history of: Unemployment, chaotic/abusive relationships, unstable housing, petty crime, substance use problems, school failure? YOU MAY HAVE TRIED: CBT, DBT, Motivational Interviewing, client-centered reflective talk therapy, trauma-informed therapy, cultural competence ...and no one's getting any traction. Frustrated, client drops out or gets discharged, continues downward spiral. What are we missing? Could it be that this client prenatally exposed to alcohol? Attend a NO-FEE all-day training focusing on our most difficult clients and family members. Come learn about Fetal Alcohol Spectrum Disorders, FASD, (affecting roughly 5% of the population) - learn how to recognize and successfully support people with FASD." Please read this document with specific learning objectives earning a 6 unit CE credit available. No FEE or nominal $30 cost for psychologists. PSYCHOLOGISTS ONLY 3 SimpleStepstoYourCert.pdf ( 304KB pdf), Course Description Final.pdf ( 179KB pdf), Directions & Map .pdf ( 164KB pdf).
 
Wednesday February 3, 2016
 
We'll be meeting with Chris Littlefield, of AcknowledgementWorks, about their "Art of Acknowledgment & Engagement (TedTalk)" programs which is starting to be used is various parts of the country in developmental services.
 
The Conference Planning committee co-chaired by Betsy Katz and Pat Napoliello, will be meeting to review the latest developments for the upcoming conference march 6-8, 2016 in Sacramento. "We are so excited to announce our confirmed lineup of featured keynote speakers to compliment the 50+ content experts. Dr. Laura Brackin is back by popular demand returning this year to update on the CMS new rules and talk more about the intersection with person-center planning. Emily Travis is nationally renowned speaker from the National Organization of Fetal Alcohol Syndrome who has a powerful message and story to tell. The Los Angeles News Group editorial team will receive thanks and recognition for their coverage of the community system collapse - you'll want to be here to personally thank them. The California Health and Human Services Agency Secretary Diana Dooley will be our our Monday lunch keynote to provide an update on the Secretary's work on the future of developmental centers and the community system for people with developmental disabilities. Commissioner Aaron Bishop, Administration on Intellectual and Developmental Disabilities (AIDD) will be joined by the California Developmental Disabilities Act partners to talk about a variety of administration priorities and how the partners are advancing these efforts."
 
Thursday February 4, 2016
 
We'll be participating in an update call with our national public policy team to discuss, ABLE Updates, WIOA, HCBS, Education, and a variety of related Appropriations issues. Members are welcome to join the meeting, call (916) 552-6619 to get the call-in number.
 
We'll be joining the Lanterman Coalition team of advocates meeting with Senator Steven Glazer and others throughout the day.

Friday February 5, 2016
The California Collaboration for Long Term Supports and Services hosted by Jack Hailey of GACI will be meeting in Sacramento.
 
We'll be working our new website with The Arc of the United States to improve the user experience and advocacy outcomes for our constituents.
 
The National Conference of Executives of The Arc will be meeting to prep for the upcoming summer leadership institute which will be held at the Renaissance Palm Springs Hotel (888 E. Tahquitz Canyon Way, Palm Springs, CA 92262) from July 18th-July 20th, 2016.
THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION:  Public Policy Reports 

State
 
As we promised last week, the Lanterman Coalition has created an update report and talking points related to the 10 Campaign. In summary it says the 10% across the board proposal is that best proposal to stop the current system wide collapse of community developmental services. If lawmakers compromised away from an across the board resolution the best targeted approach would be to target funding to the workforce and all workforce related expenses. The increase should be flexible, simple and require accountability reporting. Since all parts of the community system are collapsing at once, an across the board relief would be the best first step to rebuilding the community system and remains our recommendation.
 
 
SIGN UP FOR OUR CALIFORNIA ACTION ALERTS
 
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The Arc@School Coming Soon

In 2016, The Arc will be launching a new program initiative to establish a National Center on Special Education Advocacy called The Arc@School. The initiative will build the capacity of chapters to provide individual advocacy support, with paid or volunteer non-attorney advocates, to help students with I/DD and their families successfully navigate the special education system.     
 
We plan to find what's working best at chapters and then spread the success. If you think your chapter is already doing a great job in this area and you think you can provide examples of "best" or "promising" practices, please let us know by email to berns@thearc.org. We look forward to hearing from you.
 
Also, sign up for: The Arc US Capitol Insider
Greg deGiere, Director of Public Policy The Arc and United Cerebral Palsy California Collaboration
Bill File: The Arc and United Cerebral Palsy California Collaborative
 
Our bill to help convict criminals who prey on people with developmental disabilities passed the Assembly 72-0 last week.
 
Assembly Bill 1272, introduced for us by Assemblywoman Shannon Grove, now goes to the Senate for its consideration. Due to the legislative calendar, the first hearing could be months away.

 
 
 AB 1272 Grove
SECTION1. Section1048.1ofthePenalCodeisamendedto read:
1048.1. (a) In scheduling a trial date at an arraignment in superior court involving any of the following offenses,reasonable efforts shall be made to avoid setting that trial,when that case is assigned to a particular prosecuting attorney, on the same day that another case is set for trial involving the same prosecuting attorney:
(1) Murder, as defined in subdivision (a) of Section 187.
(2) An alleged sexual assault offense, as described in subdivisions (a) and (b) of Section 11165.1.
(3) An alleged child abuse offense, as described in Section 11165.6.
(4) A case being handled in the Career Criminal Prosecution Program pursuant to Chapter 2.2 (commencing with Section 999b).

SIGN UP FOR OUR NATIONAL ACTION ALERTS
  

Tim Hornbecker, Director of Advocacy and Community Organizing
PROJECT STATUS REPORT

Community Organizing and Advocacy Report
 
Letter to the Governor
Dear Governor Jerry Brown,
Here is what your current budget for developmental disabilities provides. At a Town Hall Meeting last week in the East Bay, over 120 parents, siblings and their family members with disabilities shared their anger and frustration. They were given a 2 day notice that their paratransit company would be changed from MV to A-Paratransit. Yes, two days!! The new company was awarded the new bid, in part on the basis that they were the lowest bid, one of the state requirements for contracts. Well here is what your low bid within your current budget buys!
One mother has three children with disabilities. "Your transportation system is a mess. They didn't pick up my 2 daughters and was told that drivers had no room on the bus for them. It was 12 PM by the time the drivers came to pick them up. I have a right to be angry. They are my daughters! My children have been crying when they can't get picked up to go to their program. They have been over 2 hours late getting home!"
Other parents literally called the police when they couldn't get through to the transportation company. Their adult children had been on the bus since 2:30 PM without their medication or food. They needed to get their meds to them! The bus finally showed up 3 houses down the block at 8 PM! (5 hours on the bus, can you believe it!) The parents asked the Regional Center Representative and the bus company, "How long can you sit on the bus and not pee?" Another bus dropped off a young woman in her wheelchair in the middle of the road on a very busy street in front the family's home. The parents were irate! They are now driving their daughter themselves, even though they don't have an accessible vehicle. They don't know how long their backs will last when transferring her in and out of their car.
Self-advocates spoke for themselves. "I have a pet and I have to get home to feed him on time." Others exclaimed that they couldn't help "wetting and pooping in their pants." Or "I need to eat and take my diabetes medicine in the morning, but the bus now comes at 6:30 AM instead of 8 AM; I just can't get ready in time."
"My brother in law has special needs. He is special. He has a soul just like all of us. How can you treat him like this?" If this is all the money that the State has to spend on the transportation and support services of our most vulnerable, we should be ashamed! Pass the 10% budget increase NOW!
Come on California. Really? We're better than this!
Tim Hornbecker, Director
Advocacy and Community Organizing tim@thearcca.org


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Teresa Anderson, Prevention Coordinator
PREVENTION ACTIVITIES

Below are the comments from The Arc and UCP California Collaboration related to the warning labels on alcohol related to Fetal Alcohol Spectrum Disorders. We have been working on this issue for several years and we're coming upon possible resolution of issues identified by experts and families on the CA FASD Task Force. While the comment period has passed, letters to the director could still be helpful. We have a follow-up meeting this Wednesday.

January 25, 2016  
Monet Vela Office of Environmental Health Hazard Assessment
P. O. Box 4010
Sacramento, California 95812-4010  
SUBJECT: Alcohol Warning Signs  
 
Dear Ms. Vela:
 
The Arc and United Cerebral Palsy California Collaboration, a coalition of people with intellectual and all developmental disabilities and their families, friends and service providers, submits the following comments on the proposed new Article 6 of Title 27 of the California Code of Regulations.
 
Fetal alcohol spectrum disorder (FASD), a birth defect, is at epidemic levels. It is one of the two leading causes of developmental disabilities in the United States, close to or exceeding autism spectrum disorders. At least one percent of people in the United States may have FASD, and some evidence suggests that is could be as many as five percent. Among women in California in 2006-07 who reported that they were trying to get pregnant -- and who could not know whether they were pregnant yet -- 50 percent also reporting drinking in the last month. We defy anyone to tell us this does not constitutes a public health emergency.

While your office's current regulations require each alcohol retailer to prominently post warning signs, compliance is spotty at best. A walk through even a few stores, bars, and restaurants reveals warning signs that are inconspicuous, incomplete, obstructed, on moving doors, printed in type that is hard to read even in good light, or most often, missing entirely. Contrast this with Oregon, where compliance with their similar law is much more widespread.  
  
While the proposed new Article 6 represents some progress toward warning women of the grave risks of FASD, it falls far short of the recommendations we have made repeatedly since February 9, 2012, and we believe it does not adequately address this health emergency.
 
Our specific suggestions follow.
 
Responsibility
While the proposed new regulations appropriately relieve alcoholic beverage distributors of responsibility for placing or maintaining the warning signs, putting responsibility on retailers where it belongs, they do not meet the Health and Safety Code Section 25249.11 requirement that OEEHA minimize the burden on retailers and they do not go far enough to assure that retailers know and are accountable for complying with the warning requirement.
The regulations should require distributors to annually notify retailers of the warning requirements and to offer retailers, at no cost, signs that the retailers can use to meet the requirements. This would be the single most important step toward widespread voluntary compliance. Without it, we see little good that any other regulatory changes will do in the real world.
 
Furthermore, the alcoholic beverage warnings should not be subject to the provisions of the proposed Section 25600.2 that allow agreements to shift responsibility from retailers to distributers. Almost every alcohol retailer has many distributors. Allowing them to shift responsibility to some or all of their distributors would put an enormous burden on concerned citizens who want to complain about noncompliance. Even in cases where concerned citizens can somehow find out which distributors are responsible for which violations, it's very unlikely that these usually large, usually distant distributors would be as responsive to complaints as the owners and managers of local retail businesses.
 
Methods of Transmission
The current warning signs, when there are any posted at all, often are virtually invisible -- a cynic might think deliberately so. The regulations should require that the signs be: (a) displayed so that they are clearly visible under all lighting conditions normally encountered during business hours, (b) unobstructed, (c) at eye level for persons in the range from adult women of average height standing to adult women of average height in wheelchairs, and (d) stationery.
 
Content
Finally, we continue to believe that the language of the warning signs needs to be much more noticeable and much clearer.      
  
The signs should begin with the words "ALCOHOL WARNING," not simply "WARNING." Most people most of the time will stop reading at the heading, and they should at least be aware that there is something about alcohol that requires a warning. Further, to stand out a bit more from the noise of advertising and notices of all kinds that everyone is subject to, those words should be in bright red. The words "birth defects" should come before "cancer risk" on the signs. By putting "cancer risk" first, the proposed language would assure that many people will stop reading right there because they think everything caucus cancer.

Instead, we suggest:
 
"Drinking alcohol while pregnant can cause birth defects. This includes any amount of alcohol, in any form, at any time during pregnancy. Alcohol also increases cancer risks.
"For more information go to ...."
 
Thank for your consideration of these urgent requests to help end this epidemic.  
 
Sincerely,  
 
Greg deGiere Public Policy Director
The Arc and United Cerebral Palsy California Collaboration
1225 Eighth Street, Suite 350, Sacramento, California 95814 916-552-6619 x4 (office), 916-223-7319 (mobile), 916-441-3494 (fax) Greg@TheArcCA.org
 

Teresa Anderson, MPH
The Arc California
Prevention Coordinator
teresa@thearcca.org

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UPCOMING EVENTS
 
February 18 &19, 2016
It's a New Day... It's a New Life Conference: Preparing for Dramatic Changes in the Developmental Disabilities System Including Self-Determination Program and New Federal Mandates for Inclusion at the DoubleTree by Hilton Hotel - Los Angeles Westside  (near LAX Airport), 6161 West Centinela Ave, Culver City, CA 90230. "This statewide conference is designed for self-advocates, family members, service providers, Regional Center staff, and other professionals -  across ALL developmental disabilities. The developmental disabilities systems at the state and national levels are experiencing a huge paradigm shift - a shift away from institutions and segregated settings and a move towards individuals living, working, and socializing in the general community." Speakers include: Ari Ne'eman - Founder and President, Autistic Self Advocacy Network, Washington, DC, leading self-advocate, Sally Burton-Hoyle - Professor, Eastern Michigan University and expert on person-centered planning, Jim Knight - Department of Developmental Services (DDS), Dohn Hoyle - Former Executive Director, The Arc of Michigan and expert on self-determination and supported decision making.
 
February 26 - 27, 2016
Cal TASH 33rd Annual Conference and Meeting: Join us in Sacramento for the 33rd Cal TASH annual conference February 26 - 27, 2016. This two-day conference includes breakout sessions both days, a Town Hall meeting with CA legislators Friday morning, two keynote presentations, and the ever-popular Cal-TASH Bash Friday evening complete with food, music, and good conversation. More registration details: http://events.r20.constantcontact.com/register/event?oeidk=a07ebvy61onbf82ad5c&llr=zmnwonoab
 
March 3-4, 2016
The 15th annual interdisciplinary conference celebrates MAXIMIZING POTENTIAL FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES, offering a unique update for primary care and subspecialty health care professionals and others who care for children, youth, and adults with developmental disabilities and complex health care needs. The 2016 conference continues to cover topics across the lifespan on a broad range of developmental disabilities including autism spectrum disorders, Down syndrome, and co-morbidities of dementia and aging with developmental disabilities. Experts will discuss how systems of care will be transformed for the 21st century for children and adults with developmental disabilities. Perspectives of various California departmental spokespersons will provide insight on planning for improved services to help maximize the potential of people with disabilities. Of special interest will be discussions of developmental disabilities plus deafness, resources and treatment modalities, and the development of communication with its implications for autism spectrum disorders and other disabilities.
 
March 6, 7, 8, 2016
Save the Date: 9th Annual Developmental Disabilities Public Policy Conference, Holiday Inn Capitol Plaza, Sacramento, California. Did you miss last year's conference? Don't worry, you can attend it virtually on our website, 2015 Public Policy Conference.
 
March 19, 2016
Friends of Children with Special Needs (FCSN) presents Special Needs Talent Showcase, sponsored by Golden State Warriors (our NBA Champions). "Come spread your invisible wings and reach for the stars. You can join Special Needs Talent Showcase as an individual or as a group. All types of performances are welcomed - musical acts, dancing, comedy, magic acts, martial arts, acrobatics, etc. Participation medals will be awarded to every contestant. Trophies and prizes will be awarded to all finalists at the Final Competition. All individuals with developmental disabilities are encouraged to try out and have the chance to enjoy an extraordinary experience! Preliminary Auditions: Judges: Executive Directors from 2 of the Regional Centers, Javier Zaldivar, and Jim Burton, prominent musician and band director, David Ladd Anderson, Disability Awareness Day entertainment coordinator and board member of Music Therapy Association, Jody Wilfong. Final Competition: March 19, 7pm-9:30pm at Santa Clara Convention Center. Entry Forms: Download attached flyer& entry form or www.fcsn1996.org. Contact: Kelly at SNTalentShowcase@gmail.com or 510-739-6900 ext 3318. Ten finalists will advance from the Preliminary Auditions to compete in the Final Competition. Honorable Mentions will be selected to perform at the event. The top 3 finalists will win a promotional video, winner's trophy and $500 cash, other finalists will receive $100 and trophy of recognition. Tickets ($20 per ticket) to see the Final Competition.

April 11 - 13, 2016 
The Disability Policy Seminar 2016 will be held from April 11-13, 2016 at the Renaissance Washington, DC Downtown Hotel. Who Should Attend? Self-advocates; Parents and family members of individuals with disabilities; Board members, staff, trainees, and volunteers for disability organizations; State and local public policy committee members; Public policy staff; or Constituents. During this crucial election season we need you in Washington, D.C. to help us build bipartisan support on Capitol Hill for high-priority disability issues. When you attend the Disability Policy Seminar, we'll arm you with all of the information you need to help educate our Members of Congress and their staff on the priorities of the I/DD community. Then, you can return to your hometowns with the ability to spread the word, educate new advocates and reach out to the candidates to help put the needs of people with I/DD front and center on the campaign trail this year.


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RECENTLY RELEASED REPORTS, STUDIES, ETC.
Charlene Harrington and Taewoon Kang
Intellectual and Developmental Disabilities 2016 54:1, 1-18
 
... Discussion
Overall, the study findings show persistent disparities in access to services and expenditures for people with IDD. Surprisingly, only 76% of people with IDD received any paid services from the state regional center program in 2013, which was lower than the 79% in 2005. As shown in 2005, logistic regressions showed that client needs predicted 6.1% of the variance in access to services and 7.5% of the variance in 2013. The nonallowable factors predicted more than two times as much variation in access to services as client need predicted in both time periods, showing disparities in service use. After needs were taken into account, younger clients (3-21) had significantly lower odds of receiving services than those age 62 and older and lower expenditures than people age 62 and older in both time periods. Some children may be receiving services through the school system while others may be cared for by their parents and families. Nevertheless, age disparities in access to services warrant more study to understand these differences and whether children and the aged are being given adequate services and sufficient funds to provide for their needs.
 
The lower access to services by all minority groups is striking, after controlling for need, age, and Medicaid status. Asians and Pacific Islanders, African Americans, Hispanics, and other races had significantly lower odds (9% to 29% lower) of receiving any services than did white populations. This pattern was similar to the findings in 2005. For those people in minority groups who received services, their expenditures were significantly lower than those of white populations, controlling for need and other factors in both time periods. When a dummy variable for residential care services (out-of-home living) was included in the model, minorities continued to have lower expenditures.
 
These findings on racial/ethnic disparities are consistent with the findings from other studies of IDD, mental health, and long-term care (Alegria et al., 2012; Bui and Takeuchi, 1992; Cauce et al., 2002; McCallion et al., 1997; Pruchno & McMullen, 2004; Scott & Havercamp, 2014). Disparities in access to services by minorities may reflect institutional racism (e.g., housing, neighborhood, and educational quality, and other resources differences) and cultural discrimination (Williams, 2012; Williams & Mohammad, 2013). The individual or family's familiarity and comfort with navigating the service system, understanding rights to services, the availability of services, and knowledge of how to access services may be factors. People from minority groups may be less able or willing to question and challenge professional judgments and to ask for arbitration of disagreements regarding service allocations. Language other than English may also be an important barrier to services. A lack of match between client and provider race/ethnicity could be another factor.
 
Clients living in some regional center areas had higher odds of receiving services and expenditures compared to other centers, after controlling for differences in client need and predisposing/enabling factors. Regional center staff assessment and case management procedures or cultural competence, along with regional center staff and provider discrimination, could be other factors. Clearly there is a need for comprehensive efforts to remove barriers of language, geography, and cultural familiarity, as well as provider stereotyping and discrimination (IOM et al., 2002). Without a strong state and regional center effort to activate and empower clients and families to reduce disparities, changes are not likely to occur. Some models have been developed to address disparities, such the strategies developed by Chen, Mullins, Novak, and Thomas (2015).
 
Some variation may be related to differences in regional center budget allocations, administrative decision-making practices, and management policies, as well as differences in staff expertise, commitment, and experience. Regional center funding allocations do not take into account client need and disparities in access (California Department of Developmental Services, 2015b). Making adjustments to funding allocations based on client need and to address disparities may improve the equity in access across regional centers.

The overall funding levels for reginal centers may account for some of the lack of services to some clients and the patterns of inequity in access shown in this study. In 2013, California ranked 42th among states in its per capita spending on HCBS services for people with IDD services (Braddock et al., 2013b; Ticha et al., 2013). Although there are no formal written waiting lists for the IDD waiver in California, there have been informal reports of waits for appropriate services and problems with the allocation of waiver services (Ng, Harrington, Musumeci, and Reaves, 2015). Thus, limited funds and availability of HCBS are probably important contributors to disparities in access to services and expenditures. Ensuring adequate IDD funding for HCBS to eliminate disparities could have potential savings and benefits, such as reducing hospitalization and other medical care costs (Cook, Liu, Lessios, Loder, & McGuire, 2015) ...
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NEWS ARTICLES
Arc of San Diego clients express concerns to senator Marty Block
Individuals with developmental disabilities, their family members, and staff from the Arc of San Diego packed senator Marty Block's office on January 22. "Finally, a legislator opened the door to us," said Raquel Vasquez, an outreach coordinator for the nonprofit that provides services for people with disabilities.  According to Vasquez, California's disability community has not had a funding increase since 1999. Because last year's budget failed to produce a promised 2.6 percent increase, the community has taken to holding demonstrations outside lawmakers' offices and crowd-funding to purchase billboards to raise awareness of their plight. Steve, who receives Arc services, was extremely nervous in the foyer while signing into the guest book. "I never spoke in front of a senator before," he said. But once inside Block's office, Steve's talking points were clear: "Most of the people who used to work with me, they want to make more money, so they have to leave, and they leave all these clients without no job coach, and we don't like it. It's, like, 'You're not going out today, you're not going out tomorrow....' We lost five job coaches last year."

Block, who represents District 39, told the group: "We think it's important to increase the minimum wage for workers who are barely making it, but we've been told by several providers [of disability services] that if we increase minimum wage it will hurt them because they can't afford to pay any more than they're paying. So, we're looking at some way to tie an increase in minimum wage to an increase in funding for various providers in the [Department of Developmental Services] community. 

"We haven't gotten any consensus yet; that's one of the things we're looking at. We are aware of the problem because most Democrats in Sacramento support increasing minimum wage, but there are these unintended consequences." Some programs that provide services to the disabled have already shut down. Clients could lose job training, supported-living programs, job coaches, and other services.

A client named Sandy told Block that through the Chula Vista Arc she has learned to cook and to speak up for herself. She also learned to paint and presented Block with one of her paintings. There is money in governor Jerry Brown's 2016-2017 budget, but many in the disabled community believe they are being used as pawns. Brown is seeking a new health-plan tax, and in order to ensure Democratic and Republican support he has tied a disability increase to the passage of the tax. Joe Tontodonato, director of Community Living Services, told Block, "There's about 300 employees that fall under my department. When minimum wage went up on January 1, most of them were getting paid less than ten dollars [an hour], and these are folks providing essential care, folks administering powerful medications to our clients....  We lose good staff to McDonald's, to Starbucks.  "We feel, to a certain extent, we've been strung along. Now there's a surplus [in the California budget], but our increase is bootstrapped to a health-plan tax. We really need support. There is a sense of urgency here."

Block responded: " I understand the problem; the harder part is figuring out the solution. Governor Brown talked yesterday in the state of the states speech about putting a lot of money into a rainy-day fund; saving for a rainy day is what my grandmother told me to do, but it's raining, and certainly in your industry."

The clients are concerned about their future. Joe, an El Cajon client, said, "My interest for them is to fix the bill, to make it successful so we can live independent.... I was in an institution in l953-'59, when governor Pat Brown was in  office. Afterward, Arc placed me in a regular job for 25 years." Karen, another client, said she was worried about losing rights the Lanterman Act provides. This act, passed in 1969, says people with disabilities have a right to services and "to live like people without disabilities. If you take them away from us, what I heard just a couple years ago... People were saying we might end up back in institutions, but we don't want to go back to institutions; we like going into the community and going forth."

The Bakersfield Californian Jan 26, 2016
By Darla Benson
... But we implore the governor and legislators to consider California's individuals with intellectual and developmental disabilities as a high priority as they do their "political dance" in Sacramento; as they forge a final state budget in the months ahead. California's 290,500 individuals with intellectual and developmental disabilities rely on state-funded programs for survival and to develop skills that may help them live as independently as possible. The long-established state Lanterman Developmental Services Act guarantees these people and their families necessary services and support. California provides services to individuals with intellectual and developmental disabilities in two ways:
* The vast majority resides with their families or in community facilities, and receives state-funded services from "vendors," such as the New Advances for People with Disabilities, or NAPD, and Bakersfield's BARC. These vendors are coordinated by 21 non-profit regional centers, including the Kern Regional Center.
* A small number of individuals reside in three state-operated developmental centers, including one in Porterville, and one state-operated community facility. Proposals are underway to close these facilities, transferring residents and revenues to local programs.
 
I'm not about to bog this discussion down with confusing state revenue projections, tax reform schemes and political maneuvering. Rather, a recent report by the Association of Regional Center Agencies summarizes the situation best: The system for helping California's people with intellectual and developmental disabilities is "on the brink of collapse." Funding for state programs took a big hit during the 2009 Great Recession. And going back a decade more, the state's reimbursement rate to vendors has failed to keep pace with increasing costs and the expanding need for services. As a result, the number of vendors available to provide services to California's individuals with intellectual and developmental disabilities has drastically declined. In 2010, there were more than 39,000 vendors; today there are less than 29,000. Without an infusion of state funding, there will be even fewer vendors tomorrow. Authors of the report, "On the Brink of Collapse," noted that California spends the least in the nation on people with developmental disabilities, but has some of the highest caseload ratios in the country. Among the recent losses reported were 435 beds due to program shutdowns and 1,300 day programs and work option cuts...
 
But as we move forward to balance the need to prudently reserve state tax dollars to hedge against a future rainy day with the desire to spend on existing and new programs, we must realize that for individuals with intellectual and developmental disabilities - people who constantly struggle just to maintain a fraction of the quality of life most of us take for granted -- every day is a "rainy day." Darla Benson is the executive director of New Advances for People with Disabilities in Bakersfield. For more information, go to www.napd-bak.org
 
Daily Journal January 27, 2016
While California's budget is balanced with a $3.6 billion surplus, agencies that provide services to individuals with developmental disabilities say Gov. Jerry Brown's proposed spending plan for fiscal year 2016-17 puts their agencies at risk of collapse.

The state is the eighth-largest economy in the world but spends less than any other state in the nation to support individuals with developmental disabilities, said new Community Gatepath Chief Executive Officer Bryan Neider. Since 2008, the state's Department of Developmental Services has suffered more than $1 billion in cuts. "Californians should be outraged, once again, individuals with developmental disabilities and their families are being shortchanged by Brown's budget," Neider said. Redwood City-based Gatepath provides direct support services to more than 14,000 individuals with special needs and disabilities. "Our population is one that doesn't get a lot of attention. It's not a large constituent group. We are trying to raise awareness so people can understand the assault on caregivers, families and the individuals we care about. The support has withered away," Neider said.
 
The money set aside to support the population has "slowly been bleeding out" and it's been a two-decade long process, he said. If California does not implement an across-the-board 10 percent restoration of funding in 2016, an estimated 302,000 children, youth and adults with developmental disabilities will lose many more of the crucial services that support their needs and prepare them to actively participate in their schools, communities, workplaces and at home, he said. Gatepath does have a strong donor base, he said, but some services are at risk of being cut next year. The agency is losing money, he said. "The state has to step up. We are one agency in one county but this is a bigger problem," Neider said. Even Republican leadership in Sacramento agrees. State Sen. Jim Nielsen, R-Gerber, said after Brown released his budget that "programs that provide care to the most vulnerable Californians like Developmental Disability Services have not been adequately funded." He has introduced Senate Bill 818 to provide permanent funding in the state budget. It provides a 10 percent rate increase for certain developmental service providers and regional center operating budgets. Brown's proposed budget released Jan. 7 does earmark $80 million for one year to fund a couple of very specific, minimally utilized programs, Neider said.

"But it does nothing to address the needs of more than 90 percent of Californians with developmental disabilities who receive support and services that are not included in the governor's proposal," Neider said. The state's system of care is set up to support individuals with disabilities, like those with autism, cerebral palsy and Down syndrome, throughout the span of their entire lives, according to Jenni Moran, executive director of Desert Haven Enterprises, a nonprofit organization that serves people with developmental disabilities in northern Los Angeles County. "They don't need just one year of care, as the governor suggests in his proposed budget; they require a lifetime of care," she wrote in a statement. With the reduction from the state, donors are being asked to give more. "There are no other levers to pull if funders don't come through," Neider said. bill@smdailyjournal.com, (650) 344-5200 ext. 102.


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FUNDING OPPORTUNITIES

 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention State-Based Perinatal Quality Collaborative Grant http://www.grants.gov/web/grants/view-pportunity.html?oppId=281211
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Advancing Alcohol Screening and Brief Intervention and CHOICES in AI/AN Populations through Training and Technical Assistance Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=281215
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Advancing Alcohol Screening and Brief Intervention and CHOICES in AI/AN Populations through Training and Technical Assistance Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=281215
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Working with Publicly Funded Health Centers to Reduce Teen Pregnancy among Youth from Vulnerable Populations Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=281169
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Working with Publicly Funded Health Centers to Reduce Teen Pregnancy among Youth from Vulnerable Populations Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=281169
 
HHS - Department of Health and Human Services Administration for Children and Families Administration or Children and Families - ANA Environmental Regulatory Enhancement Modification 3 http://www.grants.gov/web/grants/view-opportunity.html?oppId=251413
 
HHS - Department of Health and Human Services Substance Abuse and Mental Health Services Admin Targeted Capacity Expansion-Peer-to-Peer (Short Title: TCE-PTP) Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=280471
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Building Capacity of the Public Health System to Improve Population Health through National, Nonprofit Organizations financed in part by 2016 Prevention and Public Health Fund Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=281149


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
Jobs Page Links: Click Here
TASH's Executive Director serves as the public presence and chief strategy officer for this exciting, progressive, and values-based organization. TASH is seeking a candidate who can find solutions where others see dead ends; believes in the capacity and human rights of people for whom TASH advocates; and who finds this leadership opportunity in a social justice advocacy organization personally and professional motivating. The Executive Director works with and coordinates TASH's priority activities with the Board of Directors, Chapters, and TASH Committees. The Executive Director is responsible for translating the association's mission into action through collaboration with both internal and external constituencies, advocacy, and education. Ability to travel is an essential part of the Executive Director's duties, as is the ability to communicate powerfully about the organization's mission. The Executive Director is responsible for all organizational functions, including supervising & evaluating staff, and reports directly to the Executive Board. This is a full-time, at-will position. 
 
The Deputy Executive Director position is responsible for assisting the Executive Director in all aspects of the operational management and advocacy efforts of the County Behavioral Health Directors Association of California (CBHDA). The position reports to the CBHDA Executive Director, and supervises assigned analysts and support staff.
 
The Director will be responsible for managing the start-up and ongoing operation of The Arc's new Center for Special Education Advocacy (TheArc@School). The focus of this new Center will be to advance the practice of lay advocacy in special education, thereby helping students with intellectual and developmental disabilities to realize the promise of a free, appropriate public education in the least restrictive environment as guaranteed by Federal and State law. The goal of the Center is to improve the educational experience for special education students while in school, increasing rates of graduation with high school diplomas and improving post-secondary outcomes, including employment, college or continuing education and community living.
 
This position will provide executive leadership, oversight, and direction for Community Based Services, a major segment of the Department of Human Services' Direct Treatment and Care program, to ensure quality person-centered care, treatment and training are provided to individuals supported.
 
The Manager of Advocacy and Government Affairs will foster and cultivate relationships with rare disease patients and patient organizations as well as federal and state government officials. This role is designed to empower and engage patient advocates to achieve legislative victories on behalf of the rare disease community. The Manager will be responsible for assisting with legislative activities (advocacy and lobbying), writing and disseminating action alerts, and managing monthly legislative calls and newsletters. This position will perform relevant administrative tasks when needed and may need to support other projects, depending on the Foundation's requirements.
 
The Association of Regional Center Agencies (ARCA) has an opening for a Fiscal Analyst. The position requires a minimum of 5 years experience working as a senior accountant, fiscal analyst, controller, or in a related field. Experience coordinating information technology (IT) projects and IT support. Experience in developmental services or the non-profit sector preferred. This position will remain open until it is filled. Interested candidates are encouraged to send their resume and salary history to Sally Williams at swilliams@arcanet.org. The Fiscal Analyst performs general budgeting and accounting functions for the ARCA office; coordinates training and support to the Chief Financial Officers of the member regional centers; provides analyses of various data and information; analyzes budget documents, regulations, and legislation for fiscal and administrative impact to regional centers; and prepares fiscal reports for use by the agency, ARCA Board of Directors, and the Department of Developmental Services.
 
The Program Manager for the Community Mental Health Agencies Provides a variety of program management, administrative and clerical support to the Association. Duties include researching/compiling information; coordinating calls, meetings and committees for the Association; maintains electronic files and data; generates and formats meeting and committee reports, and other documents using full range of software skills including spreadsheets, word processing, desk top publishing, presentation software, data base management; assumes responsibilities for special projects; attends board meetings and committees for administrative support; researches and analyzes data to develop reports for management decision-making. In addition, this position
 
The American Civil Liberties Union of California (ACLU-CA) seeks an outgoing, results-driven, and experienced advocate who is passionate about advancing many of the most important - and sometimes controversial - struggles for civil rights and liberties in our state.
 
The Director of Public Policy strategically guides the California Child Care Resource and referral Network (The Network) and its member agencies in budget and legislative analysis and in public policy education and advocacy efforts. This position requires the employee to be present in Sacramento approximately 80% of the time.
 

The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.

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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494