tony@thearcca.org
tag line

February 23, 2015  
Four ways to read: Online, Word, PDF, or eMail

Please help support the Monday Morning Memo. Send your annual $25 check to 1225 8th Street, Suite 350, Sacramento, CA 95814 or signup online for "The Arc California Membership" 

  

Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Tony Anderson, Executive Director, The Arc California

Monday February 23, 2015

We'll be participating in the Self-Determination Program (SDP) stakeholders group meeting at the Department of Developmental Services. We'll receive any updates from DDS on the status of the program and review the draft framework for the informational video to be used as a tool to inform communities about SDP.    

 

We'll be meeting with several legislators and committee staff members throughout the day to discuss the Lanterman Coalition 10 Campaign and current needs of our community.

 

We'll be attending the board of directors meeting for The Arc Amador and Calaveras Counties to give an update report on the national and state public policy issues and the advocacy initiatives of The Arc California and The Arc of the United States.

 

Tuesday February 24, 2015

We'll be participating in a walk through at the Holiday Inn in preparation for the upcoming Public Policy Conference March 8, 9, and 10, 2015. This year's line up of speakers has really come together "with so many major policy changes occurring in our community today you won't want to miss this opportunity to learn about and discuss almost of them in one place." Register here...

 

We'll be meeting with several legislators and committee staff members throughout the day to discuss the Lanterman Coalition 10 Campaign and current needs of our community.

 

We'll be meeting with Senator Bill Monning and Lois Wolk to discuss the concerns of The Arc California and United Cerebral Palsy regarding our long-standing opposition to assisted suicide. SB 128 (Monning) is the bill in the legislature that would make assisted suicide legal in California.

 

Wednesday February 25, 2015

We'll be participating in a legislative briefing for the legislature providing an overview of the developmental services system in California. The briefing is organized by the Association of Regional Center Agencies (ARCA) and is sponsored by Assembly Budget Chair Dr. Shirley Weber and Senate Pro Tem Kevin de Leon, and is held every other year at the beginning of the legislative session for the staff and members of the legislature.

 

We'll be meeting with several legislators and committee staff members throughout the day to discuss the Lanterman Coalition 10 Campaign and current needs of our community.

 

Thursday February 26, 2015

The State Council on Developmental Disabilities (SCDD) Sacramento Office is sponsoring aMedi-Cal Managed Care Workshop for Seniors and People with Disabilities who reside in Placer, Nevada, Sutter, Yuba, Colusa, and El Dorado counties. They'll cover mandatory enrollment in managed care, if you are on Medi-Cal, managed care policy, selecting or changing a health plan, finding a doctor, and your health care rights. "Doors open: 9:00 AM Workshop: 10:00 - 11:00 AM Resource Information Until 12:00 PM at Maidu Community Center (Rooms 1&2), 1550 Maidu Drive, Roseville, CA 95661. Individuals with developmental disabilities or seniors in these counties, who are ONLY on Medi-Cal, are especially encouraged to attend. Sign language and Spanish interpreters will be at the event. This is a fragrance-free event. Please no scented products. Light refreshments served. PLEASE RSVP and to request disability accommodation: Monique Von Schimmelmann (916) 263 - 3085 or monique.vonschimmelmann@scdd.ca.gov.

 

We'll be meeting with several legislators and committee staff members throughout the day to discuss the Lanterman Coalition 10 Campaign and current needs of our community. By the end of the day we will have met with 40 policymakers and staff from the legislature and the administration since December 2014.

Friday February 27, 2015 -

Feb. 27 -Last day for bills to be introduced in the legislature.

The CCLTSS will be meeting in Sacramento from 9 am to 10:30 am at the California Foundation for Independent Living Centers (CFILC). 

 

We'll be participating in the East Bay Legislative Coalition (EBLC) Town Hall meeting from 10 am - 12 pm at the State Building Auditorium, 1515 Clay Street in Oakland. This is a very popular annual event in the East Bay and is well attended by state and local policymakers and advocates from the region.


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THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION  
Public Policy Reports 
                     

The Arc and UCP in California (Greg deGiere, Public Policy Director)

 

Last week the Assembly Health and Human Services Budget Committee (Sub#1), chaired by Assembly Member Tony Thurmond, held an informational overview hearing featuring Developmental Services, Health Services, and Foster Care (Social Services). While it was informational only hearing and no public testimony was accepted at this time it was still a good opportunity to explain the current state of our community and the condition of developmental services throughout the state.

 

Check out this edited clip from the hearing featuring our Director Tony Anderson and Santi Rogers, Director of Department of Developmental Services:

http://youtu.be/AkhPSaBxH24?list=PLq2Kw_6Zh08-0i3nQjiqcSX4IMJCYQqEC

 

(from left to Assemblymember Tony Thurmond, Director Rogers in the middle (partial image), and Tony Anderson)
 

 

Talking Points Tony Anderson, The Arc California and United Cerebral Palsy, chair of the Lanterman Coalition

 

Poverty in the DD Community

People with Disabilities

The Employment Development Department (EDD) reports that data of 13% for working age regional center clients who received wages, most of them working part-time and have an average reported earnings of $485 a month. (State Council on Developmental Disabilities (SCDD) Dash Board 2011 data

No California County has a median rental rate under 100% of SSI, with the average rate at 120%, California has the second highest cost of housing (second to Hawaii) in the nation. (2012 Technical Assistance Collaborative, Priced Out)

 

In 2008 Supported Employment Program was cut by 10%, and none of that amount was restored since (ARCA report) and today while it results in the highest wages and most integration it has the lowest participation of all the vocational programs (SCDD Dash Board)  

 

26.5% of working aged adults with developmental disabilities live below the federal poverty line, which is more than double the rate for the general public. (SCDD Employment First Report)

 

Families

Families supporting children with developmental disabilities typically experience reduced earning potential and single mothers with a children with developmental disabilities are highly likely to be living in poverty with an exceptionally high rate asset poverty, meaning no safety net emergency savings and end up being lifelong caregivers into their senior years. (AAIDD Journal IDD)

When you consider studies indicating as high as 75-80% divorce rate, it illustrate the prevalence of single mothers in our community and connection to high poverty rates.

 

80% of California Families supporting children and adults with Autism have annual out of pocket expenses and 22% of these families spend 3% of their annual income on support services. (AAIDD Journal IDD)

 

Workers

The Paraprofessional Healthcare Institute (2011) found that 45% of direct-care workers (e.g., nursing assistants/aides, home health aides, personal care aides) lived below the federal poverty level and as many as 46% lived in households that received public assistance. (AAIDD Journal IDD)

 

In 2014 recent studies indicate that the staff turnover rate is between 45 to 70% annually and most leave within the first 6 months. (AAIDD Journal IDD)

 

Powers and Powers (2010) estimated that a 24-31% increase in annual wages for caregivers would cut turnover rate by one-third. (State of the States)

 

Systemic Gaps

In 2009 we made $35 million in cuts to our Early Start program serving infants and toddlers from 0-3 which sent the system into disarray and thousands of children were made ineligible. Today California is in its third year in a row of having to be closely monitored by the federal government because our outcomes are so low. In fact one of the most important indicators of growth for children is the social emotional development our scores are so bad that even the highest performing regional center is significantly before national average.

From 2007-2008 levels we currently spend 10% less per person in the community when adjusted for inflation. LAO

 

The Alternative Rate Model (ARM) was established in 1991 based on service design serving 6 people - most are limited to four today. (ARCA Report 2015)

Day program services are based on a rate model build of cost statements from three decades ago in the 1990s. (ARCA Report 2015)

 

There are currently 96,375 people with developmental disabilities in CA living at home with an aging caregiver. (State of the States)

 

While California is listed as one of ten states (plus DC) that don't have a waiting lists (California, District of Columbia, Hawaii, Idaho, Iowa, North Dakota, Oregon, Rhode Island, South Dakota, and Vermont), our diminished capacity in some regions has resulted in large waiting lists in some programs. (State of the States) For example The Arc Fresno and Madera counties stopped taking referrals for supporting people with high needs and has a long waiting list and they were the only providing of size providing this support.  

 

Various studies show 30 - 40% of people with IDD have a mental health disorder and in 2008 specialized behavioral health programs were capped at the median rate. Since then hundreds of people have moved from developmental centers into the community and a moratorium was finally set that stopped the trends of 100 people a year being placed in these institutions. This is clearly the service model preferred but the savings from expensive institutional care did not translate to relaxing the cuts in this area. (Various sources plus ARCA report)

 

Opportunities

The California Developmental Centers have decreased the population from 5713 to 1138 over the past 20 years which represents an 80% reduction. Currently 11 states have no developmental centers and many large states have made significant plans for the complete closure (Illinois, Massachusetts, New York to name a few). The LAO recommends closure of Sonoma and Fairview developmental centers. We endorse a careful, safe and respectful transition to community services representing a significant saving to be used to stop the current collapse in the community system which is today serving 280,000 people.

 

Secretary Diana Dooley has been convening a task force looking into the question of how to transition from intuitional care to community based services and is developing a plan for closure which follows the community urging and recommendations from the LAO. Secretary Dooley, alone with Director Santi Rogers, is also convening work groups that are looking into the problem with the current broken rate structures for all of the community services and a variety of other systemic barriers such as health, mental health, etc.

 

The Center for Medicaid and Medicare Services, CMS, has really just begun to engage states in process to transition there current Home and Community Based Services to come into compliance with the new rules for what integrated settings look like. This represents not only the potential for great harm and disruption in our community but also an opportunity to make large system improvements. However, if all you do is close programs and don't invest in the solutions we will just make a terrible situation worse.  

 

Closing Remarks

Today our current system of community support services for people of all ages with intellectual and developmental disabilities and their families is in a state of collapse. This is not hyperbole and hopefully as I have laid out you can see it is not unexpected.  

 

You cannot divest from a system that is charged with long term supports and services for a vulnerable population for as long as we have in California and expect that no one will suffer harm. We are a resilient community, full of inspiring individuals with disabilities to overcome social and physical barriers and threats on a daily basis. The family members and the workers continue to make do and help people with IDD achieve the lives they dream of in California society in spite of the all the challenges. A 10% increase across the board with annual COLAs in this system is long overdue and desperately needed to stop the collapse and stabilize the community for repair.

 

# # #

Greg deGiere

Public Policy Director

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Greg deGierePublic Policy Director

The Arc and United Cerebral Palsy California Collaboration

1225 Eighth Street, Suite 350

Sacramento, CA 95814

916-552-6619916-552-6619 x16 (office)

916-441-3494 (fax) 

SIGN UP FOR OUR CALIFORNIA ACTION ALERTS

 

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Improve Family Support and Supported Decision-Making Efforts in Your State!

 

The Family Support Research and Training Center and the National Resource Center for Supported Decision-Making are currently requesting proposals for efforts to improve state family support and supported decision-making efforts.

 

As a state or local chapter of The Arc, we encourage you to apply to either or both of these great opportunities.

 

Family Support Research and Training Center (FSRTC) Family Support Coalition

 

Summary: The Arc of the United States is working with FSRTC at the University of Illinois at Chicago and is offering grants to chapters to do the following:

  • organize state coalitions bringing together disability and aging organizations to better understand systemic challenges in providing family support to ALL families of people with disabilities in the state
  • share promising practices in family support that currently exist in the state
  • develop and implement an action plan to address challenges in the state's family support systems

Grant Amount: up to $4,000

Due: April 30, 2015

Request for Proposal: http://www.thearc.org/document.doc?id=5043

 

National Resource Center for Supported Decision-Making

 

Summary: The National Resource Center for Supported Decision-Making is awarding grants for state-based projects that identify and advocate for implementation of state laws, policies, and practices that increase the use of Supported Decision-Making by older adults and people with intellectual and developmental disabilities (I/DD) across the life span.

 

Grant Amount: up to $5,000

Due: April 1, 2015

Request for Proposal: http://supporteddecisionmaking.org/sites/default/files/RFP_small_state_grant.pdf



Also, sign up for: The Arc US Capitol Insider

 

SIGN UP FOR OUR NATIONAL ACTION ALERTS
  

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Tim Hornbecker, Director of Advocacy and Community Organizing
PROJECT STATUS REPORT

     

Project Updates by Tim Hornbecker...

Advocacy and Community Organizing Report

 

Advocacy and Community Organizing Report

 

Advocacy Pays Big Dividends!

 

Your advocacy and support for community organizing not only has made a difference, but is an incredible return on your investment! The recent ruling by Judge England, Jr. of the US District Eastern District of CA regarding The Arc California and UCP of San Diego Vs. Douglas, Delgadillo, DDS will literally rescind the unfair and burdensome unpaid furlough days, half day billing requirements, and most importantly...no more cuts by the State of California without an actual cost study and approval by the Center for Medicaid Services for those rates covered under Section 30 (A) of the Medicaid Act!

 

We refer to short term and long term solutions when deciding on 'issues' to be addressed by our community organizing and advocacy efforts. Short term (usually 6 months to 1 year) wins have included increased funding for transportation for people with disabilities in Alameda County, increased and expanded bus service in Sacramento, accessibility to public transportation in Bakersfield, and the investigation into the tazer torture at the Sonoma Developmental Center with subsequent passage of new anti abuse legislation.

 

But our incredible long term (1 or more years) issue has taken over 4 years, starting with the filing of our lawsuit against the State of California in 2011! Our attorney, Chad Carlock, will share the details and impact of this ruling at our Public Policy Conference (Mar. 8-10). But this win couldn't have happened without the long term financial support of local chapters of The Arc (especially The Arc of San Diego) and affiliate organizations like UCP of San Diego and Vocation Plus Services of Fresno. Also important was the actual presence or our self advocates (especially from S.T.E.P., VPS and CROP) at court hearings, so the judges could see the faces of those who are being impacted by these government cuts. This photo in front of the Federal Court House in San Francisco includes self-advocates from The Arc of Alameda and San Francisco Counties with our attorneys.    

 

The work isn't over! We are collaborating with the Lanterman Coalition to get a 10% rate increase in order to save our crumbling State system for providing services to children and adults with intellectual and developmental disabilities. Your continued financial support critically needed. But we also need your emails, phone calls, personal visits and especially self-advocates to speak with elected officials locally and in Sacramento!

 

You are having an incredible impact in Sacramento, which is quite a return on your investment of time, energy, commitment and especially your passion for the rights of people with disabilities!

 

Thank you

Tim Hornbecker, Director of Advocacy and Community Organizing,

The Arc CA tim@thearcca.org


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Teresa Anderson, Prevention Coordinator
PREVENTION ACTIVITIES

 

Webinar presented by The Arc of the United States...

  

The Prevention of Fetal Alcohol Spectrum Disorder  

February 26, 2015, 10:30 am - 11:30 am (PST)  

Presenter: Sterling K. Clarren, MD

 

Alcohol is a ubiquitous substance consumed commonly in spite of its many hazards - one of which is permanent alterations in the fetal brain leading to lifelong brain dysfunction in at least 1% of the population. Prevention means no alcohol exposure to the embryo or fetus exposure during all of pregnancy. This simple concept has turned out to be anything but simple to apply and there is no evidence of a reduction FASD over the last 40 years. This lecture will explore the most likely approaches to prevention of this important public health problem.

 

Why is the advice "if drinking don't become pregnant, if pregnant don't drink" so challenging for professionals to give and for women to receive?

 

How effective is brief interventional counseling in warning alcohol abusers about FASD?   

 

What methods are being used to identify the highest risk women for having children with FASD and helping them?

 

Register Now


Teresa Anderson, MPH

The Arc California

Prevention Coordinator

teresa@thearcca.org

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UPCOMING EVENTS

 

March 6-7, 2015

 32nd Annual Cal-TASH Conference Hilton Hotel/Orange County Airport Come celebrate TASH's 40th Anniversary & the 25th Anniversary of the ADA Keynotes: April Regester, Ph.D - University of Missouri, St. Louis Sue Swenson, Director of the Office of Special Education Programs.

 

March 8-10, 2015

Save the Date: The 8th Annual Developmental Disabilities Public Policy Conference by The Arc and United Cerebral Palsy in California at the Holiday Inn - Sacramento Capitol Plaza, 300 J St, Sacramento, CA 95814 (NEW SITE), Phone:(916) 446-0100. Every year we host a public policy conference featuring legislators, lobbyist, advocates, policymakers, and other speakers who deal with issues impacting people with intellectual and developmental disabilities and their families. Attendees include family members, self-advocates, direct support professionals, attorneys, and executive/ professional staff from community agencies and regional centers. Topics Covered: National Public Policy, State Budget Overview, Advocacy, Healthcare, New and Proposed Legislation, IHSS, Mental Health, LTSS and Olmstead Related Issues, Work, Education, Trusts, Conservatorship, Crime and Abuse of People with Disabilities, and more. Visit our webpage to see last years' program (all documents and PowerPoints are on this site) and eventually the 2015 conference: click here.

 

13th Annual Family Voices of California Health Summit and Legislative Day March 16-17, 2015 8:30 a.m. to 5:30 p.m.  Holiday Inn Capitol Plaza, 300 J Street, Sacramento Learn more.

 

April 13-15, 2015

Save the Date: The 2015 Disability Policy Seminar will be at a new location, the Renaissance Washington DC Downtown Hotel, 999 9th Street NW, Washington, DC 20001. The annual Disability Policy Seminar brings together advocates for people with intellectual and developmental disabilities with public policy experts and the staff of a variety of hosting organizations who serve people with I/DD to go in-depth on pressing policy issues and other topics of importance to the I/DD movement during two full-day sessions in Washington, D.C. The Seminar culminates with a third day spent on Capitol Hill where attendees have the opportunity to meet with their elected officials. Each year approximately 700 people take advantage of this chance to learn, discuss, network and advocate for change. Hosted by: The Arc, United Cerebral Palsy (UCP), Association of University Centers on Disabilities (AUCD), American Association on Intellectual and Developmental Disabilities (AAIDD), National Association of Councils on Developmental Disabilities (NACDD), and Self-Advocates Becoming Empowered (SABE). Disability Policy Seminar

 

April 16-17, 2015

The California Supported Living Network's 2015 Conference will be held in the annual site, the Dana Resort on Mission Bay. After registering, use this link to book your hotel rooms now at the discounted Conference rate! By using this link, the special code for your CSLN discount is already entered for you. More Conference information will appear here as it becomes available. Until then, learn about our previous conferences in the Conference Archive. Register Now

 

June 1-4, 2015

The AAIDD Annual Meeting will be held in Louisville, KY, provides researchers, clinicians, practitioners, educators, policymakers, local, state and federal agencies, and advocates with cutting edge research, effective practices, and valuable information on important policy initiatives. Conference Hotel: The Galt House of Louisville.

 

October 3 - 5, 2015

The Arc's 2015 National Convention, Indianapolis, Indiana



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RECENTLY RELEASED REPORTS, STUDIES, ETC.

 

On the Brink of Collapse

The Consequences of Underfunding California's Developmental Services System

Association of Regional Center Agencies: February 2015

 

...The Crumbling Foundation. California's developmental services system relies on a combination of regional center service coordination and community services to provide a meaningful alternative to institutional care for individuals with developmental disabilities. ARCA consulted with a national expert to compare service provider rates between different states for similar services, looking specifically at residential facilities, day and work services, and supported employment programs. In general, California's rates for these services fall behind other large or western states. The impact of this difference is exacerbated by California's high cost of living and other costs of doing business such as its highest-in-the-nation workers' compensation premiums. In most metropolitan areas examined, California's service rates were lower, but the cost of living was significantly higher. For example, California's daily rate for traditional residential facilities (also known as "ARM Rate homes" in California) is approximately a third of the rate paid in New York State and is comparable to the rates paid in Indiana and Idaho, two states that are more rural and have lower costs of living. Additionally, most service rates do not include a geographic differential to account for the different cost of doing business in different regions of the state.

 

A similar review by the National Association of State Directors of Developmental Disabilities Services (NASDDDS) in 2005 found that of thirty-seven states with available data, California's caseload ratios (service coordinators to individuals served) were among the highest. Salaries budgeted for these positions have not kept pace with inflation and cannot compete wit

h those paid to similar professionals in the state. California can no longer assure the federal government that sufficient services and supports are available to ensure the health and safety of Californians with developmental disabilities, putting billion of dollars of federal funds at risk. The most significant cost of underfunding the community service system for individuals with developmental disabilities, however, is the inability to access necessary services...


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NEWS ARTICLES
 

Medicaid Providers Win 3-Year Battle With State

Court House News Service Tuesday February 17, 2015

By ELIZABETH WARMERDAM 

 

SACRAMENTO (CN) - A federal judge on Friday barred California from reducing payments for certain Medicaid services for developmentally disabled Californians.  Medicaid providers will not have to comply with a policy forcing them to bill for only half a day when they work for less than 65 percent of the workday.  They also will be relieved of the "uniform holiday schedule" that forces them to take off 14 unpaid days a year, U.S. District Judge Morrison ruled.   

 

The Arc California  United Cerebral Palsy Association of San Diego have spent more than three years fighting funding cuts and restrictions for services provided to developmentally disabled people under the federally funded Medicaid program.  Last year, a three-judge panel of the 9th Circuit remanded the case and ruled that England had improperly dismissed the nonprofit organizations' claims under the Medicaid Act.  "California did nothing whatever to study the likely effect of its uniform holiday schedule or half-day billing rule on the 'efficiency, economy, and quality of care' or the availability of service providers, before enacting and implementing those rules," 9th Circuit Judge Marsha Berzon wrote for the court.  In Friday's ruling, England found that two bills enacted by the Legislature violated the Medicaid Act.  One of the bills calls for 14 unpaid holidays every year for which vendors are not reimbursed for many services. The other half-day billing rule prevents regional centers from being reimbursed for a full day of service if a client should leave early for any reason, even of the providers have to maintain a full day slot for that person.  Based on the 9th Circuit's finding that a state must get approval before implementing any policies that affect the payments service providers receive under its plan, England found that California's two payment reductions cannot be enforced.  "Since it is undisputed that no such approval was obtained (a fact both noted in the 9th Circuit opinion and expressly conceded by defendants as undisputed herein), the 9th Circuit's holding makes it plain that the state's rules enacting the half-day billing rule and uniform holiday schedule are invalid," England wrote.  He permanently enjoined the state from implementing the two laws and from making any changes to payments without complying with the Medicaid Act and receiving approval from the Center for Medicaid Services. 

Legislative analyst office: Close Sonoma Developmental Center within a decade

By Derek Moore

The Press Democrat February 19, 2015

An influential California budget and policy agency is recommending that the Sonoma Developmental Center be closed within a decade and more than 400 residents moved out of the facility to save the state money and follow trends to care for the disabled in community settings.

The recommendation from the state Legislative Analyst's Office, though not entirely groundbreaking, could carry substantial weight as the office acts as a key advisory body for lawmakers. For that reason, the recommendation drew swift condemnation from the North Coast's legislative delegation and the head of the facility's parents group, who say that many of the alternatives to the Eldridge facility don't provide equal care. "You can't just make it about the money and throw people in the community and, 'Oh, job over,'" said Kathleen Miller, president of Sonoma's Parent Hospital Association. "It's just an oversimplification of a very complex issue."

 

That sentiment was echoed in a letter to the state analyst signed by the North Coast's two state senators and three Assembly members, as well as Sonoma County Supervisor Susan Gorin, who represents the Sonoma Valley. "You simply cannot put a dollar figure on the health and well-being of some of the neediest and most medically fragile people in our state," the letter stated. Sonoma Developmental Center is home to more than 400 patients, and employs about 1,200, making it Sonoma Valley's largest employer. Calls to downsize or close the center for budget reasons or because of substandard patient care date back years, if not decades. But when it comes to policymaking, few voices are as influential as the independent Legislative Analyst's Office.  

 

The office made the recommendation to close the Sonoma center and Fairview Developmental Center in Orange County as part of its review of Gov. Jerry's Brown's proposed 2015-16 budget for an array of state human services agencies. Brown is seeking $515 million from the state's general fund for the state's three development centers, representing an 8.5 percent funding decrease over the prior fiscal year.  

 

The legislative analyst's report noted that the 1,100 people who reside in the state's remaining developmental centers represent less than 1 percent of the state's total caseload. The average annual cost of treating a patient at a center is $500,000. The federal Medicaid program, which is administered in California through Medi-Cal, covers as much as half of the cost for patients who qualify.  The Sonoma facility also has been wracked by problems ranging from deficient client care to abuse...  

 

California high court sides with press in abuse cases at state-run homes

Los Angeles Times February 19, 2015

By Maura Dolan

The press won in a California Supreme Court lawsuit seeking the release of details in abuse cases at government-run facilities for the mentally ill and developmentally disabled. The court voted unanimously that the records should be made public except for patients' names for privacy reasons. The state's highest court said a law intended to protect patient privacy should not shield the state from revealing the circumstances behind citations issued against state-run, long-term care facilities. The decision was a victory for California's Center for Investigative Reporting, which wanted copies of nearly five dozen reports on physical abuse, negligent medical care and other improprieties at state institutions for the developmentally disabled.

 

The state gave the center 169 pages of documents but redacted almost every word. The center was reporting on lapses in policing abuses at facilities in Los Angeles, Orange, Sonoma, Riverside and Tulare counties, where about 1,800 patience with such disabilities as severe autism and cerebral palsy reside. Duffy Carolan, who represented the investigative reporting center, called the ruling "a complete victory under the Public Records Act."

 

"These are key documents that show what is transpiring at the facilities and now residents at the facilities and their families and the public are going to be able to hold the facilities and the Dept. of Public Health accountable," Carolan said. She said a reporter had learned that 11 patients in a Sonoma County facility had been repeatedly shot with a taser gun. But the documents the state produced were so heavily redacted that  "you couldn't even tell what had happened to those residents." Thursday's ruling said a state law requiring disclosure of abuses took precedent over an earlier law that barred release of patient information. The case required the court to reconcile a law protecting patient confidentially with a more recent law that said citations against homes for the developmentally disabled must be made public.


 


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FUNDING OPPORTUNITIES

The following grant opportunity postings were made on the Grants.gov Find Opportunities service:Updated: February 23, 2015

 

HHS - Department of Health and Human Services National Institutes of Health Unveiling the Genome: Genetic Architecture of Severe Mental Disorders Revealed (Collaborative U01) Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=236065

 

HHS - Department of Health and Human Services Substance Abuse & Mental Health Services Adminis. Capacity Building Initiative for Substance Abuse (SA) and HIV Prevention Services for At-Risk Racial/Ethnic Minority Youth and Young Adults (HIV CBI) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274701

 

HHS - Department of Health and Human Services Health Resources and Service Administration Autism Intervention Research Network on Behavioral Health (AIR-B) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274637

 

HHS - Department of Health and Human Services Health Resources and Services Administration Autism Intervention Research Network on Physical Health (AIR-P) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274671

 

HHS - Department of Health and Human Services National Institutes of Health Investigational New Drug (IND)-enabling Development of Medications to Treat Alcohol Use Disorder and Alcohol-related Disorders (U44) Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=270521

 

ED - Department of Education ED-HHS-Administration for Community Living: NIDILRR: Research Health and Function of Individuals with Disabilities CFDA Number 84.133A-3 Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274649

 

ED - Department of Education ED-HHS-Administration for Community Living: NIDILRR: Development Health and Function of Individuals with Disabilities CFDA Number 84.133A-8 Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274650

 

ED - Department of Education ED-HHS-Administration for Community Living: NIDILRR: Research Community Living and Participation of Individuals with Disabilities CFDA Number 84.133A-4 Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274651

 

ED - Department of Education ED-HHS-Administration for Community Living: NIDILRR: Development Community Living and Participation of Individuals with Disabilities CFDA Number 84.133A-9 Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274652

 

ED - Department of Education ED-HHS-Administration for Community Living: NIDILRR: Disability and Rehabilitation Research Projects and Centers Program: RERCs: Individual Mobility and Manipulation CFDA Number 84.133E-1 Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274655

 

ED - Department of Education ED-HHS-Administration for Community Living: NIDILRR: Disability and Rehabilitation Research Projects and Centers Program: RERCs: Information and Communication Technologies Access CFDA Number 84.133E-3 Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274657

 

ED - Department of Education ED-HHS-Administration for Community Living: NIDILRR: Disability and Rehabilitation Research Projects and Centers Program: RERCs: Physical Access and Transportation CFDA Number 84.133E-5 Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274659

 

HHS - Department of Health and Human Services Centers for Disease Control and Prevention Centers for Disease Control and Prevention Improving Surveillance and Prevention of Epilepsy Burden in US Communities Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=270807

 

HHS - Department of Health and Human Services Centers for Disease Control and Prevention Centers for Disease Control and Prevention Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes Modification 2 http://www.grants.gov/web/grants/view-opportunity.html?oppId=270661

 

HHS - Department of Health and Human Services National Institutes of Health Intellectual and Developmental Disabilities Research Centers 2015 (U54) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=274110

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CAREER LADDER

The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.

 

Jobs Page Links: Click Here 

 

Transition to Independent Living (TIL) Program Director

Under the direction of the Vice President of Instruction will be responsible to plan, organize and administer the Transition to Independent Living (TIL) program and train, supervise and evaluate the performance of assigned personnel. Establish both short and long term TIL program goals and objectives. Serve as liaison for the program, including coordinating with Regional Centers throughout the state to ensure continued program funding. Maintain current knowledge of a variety of applicable laws, rules, regulations, District policies and requirements, including licensing related to students with Autism and intellectual disabilities. Analyze, interpret and appropriately apply to assure compliance.

 

Executive Director

The Cerebral Palsy Center for the Bay Area is seeking a proven leader with excellent communication, fundraising, and management skills who can guide this longstanding organization to the next phase of its growth and impact... A Bachelor's degree is required. A Master's degree in public administration, special education, rehabilitation, or other human services related field is desirable. SALARY & BENEFITS: Salary will be competitive and commensurate with education and experience. Benefits include paid vacation and sick leave, health, dental and vision insurance and paid holidays. TO APPLY: E-mail resume, cover letter and salary requirements by January 16, 2015 to: cpcedsearch@icloud.com (e-mail applications are required). Resumes without cover letters will not be considered.  

 

Legislative Advocate

Housing California seeks a Legislative Advocate to lead our policy work around land use and housing finance. The position works on both legislative and administrative advocacy. priorities include developing new funding for affordable development, strengthening housing element law, working at the intersection of housing and transportation policy, and developing anti-displacement policies.

 

Chief Executive Officer (CEO)

Mental Health America of California (MHAC) CEO in partnership with the MHAC Board and the Executive Director of Policy and Advocacy, is responsible for assuring MHAC's relevance to the community, accomplishment of MHAC's mission and vision, and accountability to MHAC's diverse constituents. The Board delegates responsibility for management and day-to-day operations to the CEO, and s/he has the authority to carry out these responsibilities, in accordance with the direction and policies established by the Board. Salary commensurate with experience plus health, dental, vision, retirement and paid parking. Submission Deadline: January 5, 2015

 

Law Student Intern

The Arc of the United States is seeking law student interns to work at our Washington, DC office for Summer 2015. Applications for academic internships for the Spring 2015 semester are also welcome. The Arc is the nation's leading advocate for people with intellectual and developmental disabilities (I/DD) and their families and the premier provider of the supports and services these individuals need. The Arc has a long history of protecting the civil rights of the I/DD and broader disability community through advocacy, legislation, policy, and litigation on matters such as civil rights, community integration, housing, health care, long term supports and services, education, and employment... All qualified law student applicants are encouraged to apply, including minorities, women, veterans, and individuals with disabilities. Please submit a cover letter, resume, writing sample, and a list of three references to Shira Wakschlag, Staff Attorney and Special Assistant to the CEO, shira@thearc.org. Applications will be considered on a rolling basis. Applicants are encouraged to seek funding from their law schools for these positions.

 

State Director

Residential provider for individuals with intellectual and developmental disabilities is in search of a State Director to manage the overall operations of our mid-size company. Fantastic opportunity for a qualified individual that meets QIDP requirements, has a minimum of a Bachelors degree in Human Services, and has management experience in the field of developmental disabilities. This position requires on-call duties. Must be able to pass a criminal background check, OIG, and have a good driving record. Benefits include medical, dental, life, vision and paid time off. Submit resume and salary history for consideration via email to: HR3@diamondbackmgt.com. Pinnacle Community Services, EOE, 3355 West Cheyenne Ave., Suite #103, North Las Vegas, NV 89032.



The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.

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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494