tag line
April MMM sponsored by AT&T
April 25, 2016  
Four ways to read: Online, Word, PDF, or eMail

Please help support the Monday Morning Memo. Send your annual $25 check to 1225 8th Street, Suite 350, Sacramento, CA 95814 or signup online for "The Arc California Membership" 


Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Tony Anderson, Executive Director, The Arc California
Monday April 25, 2016  
California Democrat Assembly leaders will be announcing "a major affordable housing plan" today at 11:45 am in room 317 of the capitol.
The Development Committee of the National Conference of Executives of The Arc chaired will be meeting to begin the process of selecting new leadership. Currently the NCE is working on two upcoming events, Summer Leadership Institute (in Palm Springs this July) and Pre-Convention (leadership training prior to the national convention).
We'll be joining with advocates focused on California Children Services (CCS) program. To learn more about what's happening with CCS and the "Whole Child Model" of care visit the CCS Advisory Group page.
The Assembly Budget Sub-Committee #1 on Health and Human Services chaired by Assembly member Tony Thurmond, will be meeting at 1:30 p.m. in the State Capitol, Room 127. The committee will discuss budget issues impacting the Emergency Medical Services Authority, Office of Statewide Health Planning and Development, and Department of Managed Health Care.
We'll be participating with the IHSS advocacy group to help raise awareness and support from legislators to prevent imminent harm to consumers and providers (see the state alert section for details).


Tuesday April 26, 2016 - Wednesday April 27, 2016

We'll be lobbying a variety of our bills in policy committees as well as the working to help raise awareness and support from legislators to prevent imminent harm to consumers and providers in the IHSS program (see the state alert section for details).
Thursday April 28, 2016
We'll be participating in the editorial board of the Frontline Initiative publication to advance the profession of Direct Support Professionals for people with intellectual and developmental disabilities.
The Senate Budget and Fiscal Review Subcommittee #3 on Health and Human Services chaired by Senator Holy Mitchell will be meeting at 9:30 a.m. or upon adjournment of Session in the John L. Burton Hearing Room (4203). The committee will discuss budget items impacting the Department of Aging, Department of Community Services and Development, Department of Social Services (In-Home Supportive Services, SSI/SSP, CCI, and Community Care Licensing).
The Arc of the United States public policy staff will be providing policy updates for advocates. Topics in ABLE Act updates, WIOA, HCBS, Education, and federal appropriations, and more. This is a member only resource, members are encouraged to call our state office for the call in details.
The Arc Executive Committee, chaired by President Richard Fitzmaurice, will be meeting by conference call from 5 - 6pm to receive policy updates and work through details for the upcoming meeting in Riverside, California June 17 and 18, 2016.
We'll be Chico California with our local chapter, The Arc Butte County Executive Director Michael McGinnis. The Arc Butte County will recognize Senator Kevin de Leon for his leadership and commitment to people with developmental disabilities.
Friday April 29, 2016
The California Collaboration for Long Term Services and Supports will be meeting from 9 am to 10:30 am.
The Department of Developmental Services Home and Community-Based Services Advisory Group will be meeting today from 10:00 am to 3:00 pm at the Department of Rehabilitation, 721 Capitol Mall, Sacramento, CA 95814, Conference Room 242. A call-in line and meeting materials will be made available closer to the meeting date. All visitors are required to sign in at the guard station; please indicate whether you will attend in-person or via telephone.

The following is an explanation sent to the Brown administration (and key legislators) detailing the problems associated with the state's inability to prepare the In-Home Support Services program to fully implement the new rules under the Fair Labor and Standards Act related to overtime. We will follow this explanation with coordinated action alert this week joining several other advocacy groups statewide who represent members impacted by this problem (special thank you to Deborah Doctor, DRC for coordinating this action alert effort and to CAPA, UDW, SEIU, and CWDA for their leadership in this area).
The Coalition continues to have serious concerns over the roll out of the FLSA provisions because of the now imminent harm to consumers and providers. Our top two priorities are to extend the grace period to September 1st and to address problems with the exemptions policies. 
1)  Late and Incomplete All County Letters/Instructions make it extremely difficult for counties to implement FLSA.  Without adequate instructions, counties and PAs cannot plan for adequate staffing. For example, we don't know if we'll need more clerical support, or more social workers. Also, until last week counties were left with the impression that CMIPS would auto-generate notices on violations that counties would mail. As you know, violations start May 1stand yet the final ACL with instructions on violations procedures has not been released.   
CDSS issued two draft All County Letters this month for stakeholder review:
  • The draft ACL on violations was shared on 4/5 with a one-week turn around for comments and the draft provided very little new information to counties.  The latest draft ACL on violations (issued on April 5) requires "counseling" for providers. That's a big difference between hiring a social worker or hiring clerical staff.    CWDA had its regular monthly meeting the very next day with DSS staff where we discussed our need for more specific direction on implementing the violations policy. For example, it wasn't explicit about who will mail the notices to consumers and providers, what would be programmed in CMIPS and what would be manual county staff work, or whether will be paid aid pending an appeal. The ACL also contained inconsistencies from what DSS previously discussed with counties that also had to be corrected.  Other substantial flaws with the draft ACL on violations:
  • The five day period for counties to review the violations report to determine if the violation meets the criteria for an exception and rescind the violation before issuance is too short; Rescinding requires not only a review of the case by a worker, but also a supervisory review and approval.
  • The violations policy doesn't appear to allow counties to reverse/rescind violations based on simple timesheet errors.  
NOTE:  Counties/PAs have spent time working through CMIPS reports to see what type of violations are being made by providers. We are advised the majority of violations are due to timesheets errors that cause the individual to exceed their hours. For instance: providers who do not understand how to pull hours forward from weekdays listed in previous pay periods and therefore exceed their weekly hours; providers who calculate daily hours using a calculator are still using decimals on the timesheet and then exceed their hours when the decimals are read as minutes; numbers placed in incorrect columns on the timesheet; CMIPS incorrectly reading a number on the timesheet (happens often). These timesheets errors will all result in violations. The ACL says we will have 5-days to review violations to see if the violation "met exception criteria". Clearly these errors do not meet OT exception criteria so the provider will be paid OT and receive a violation. We can anticipate many providers asking for their checks to be reissued or asking for overpayments to be collected in order to avoid violations.
  • The violation notices have not been provided for review and comment.  Because these notices could result in suspension or termination, we need to review these forms to identify and resolve any liabilities that could attach to counties or PAs.
  • The draft ACL says a dispute form would also be sent on the 2nd violation, and that seemed inconsistent with what we had previously heard.  We heard the provider cannot dispute with the State until the 3rd and 4th violation, and that is what we are training
  • The 36-page draft ACL on CMIPS procedures was issued on 4/18 with comments due by April 25th.  The short time frame doesn't provide sufficient time for CDSS to review comments and make necessary changes before issuing an ACL for policies and procedures that take effect on May 1st.This draft ACL has lengthy instructions on the CMIPS changes that we can only assume have been in process of being programmed for many months now, yet this is the first we've seen these instructions.  
Certainly, we cannot operate from draft ACLs (given the many errors and inconsistencies). But it's absolutely critical to have clear and timely instructions so that counties can plan for appropriate staffing.  While some information is shared at our respective CAPA and CWDA meetings, as you know, not all counties attend those meetings.  Some information has been provided from CDSS staff via email responses, not through formal ACLs or Program Manager Letters.  Counties are reluctant to act on verbal reports or informal emails, and need formal written instructions.
While workload continues to be a concern for counties and Public Authorities, it is clear that the greater concern is the potential for IHSS consumers and providers to be harmed.  We remain concerned at this point is how to deploy staff to do work without clear instructions from the state.  Having clear and timely instructions to counties is our most pressing need at the moment.  This underscores the need to extend the grace period to September 1st.
2)  Exemptions Policy is Late and Falls Short of Meeting Critical Client Needs:  There are a host of issues with the Exemptions, both in terms of the population eligible, and in terms of implementation.
Eligible Population Concerns:
Exemption 2:  The latest Exemption 2 policy was just recently issued (ACL 16-22 on April 1st) without stakeholder review (although we were able to preview the general framework beforehand).  The policy misses critical populations - those that are not living together but have a provider who is critical to providing that care (for example:  the daughter who is caring for her elderly parents but lives in her own home). And while we appreciate the exemption for rural living areas and language needs, the ACL contains this unfortunate statement, "Simply because a recipient is unable to hire a provider who speaks his/her same language does not necessarily mean that the recipient is unable to direct his/her own care."  These are extremely personal care needs - the policy assumes that after some "initial interpretation" a provider who doesn't speak the same language can fulfill these needs. It also assumes that "initial interpretation" is available, but doesn't say from whom.
Exemption 1:  ACL 16-22 also includes some clarification on the Exemption 1 group. Here, we are deeply disappointed in the direction that DSS has opted to take to exclude (from Exemption 1) providers who completed all enrollment requirements except that his/her CORI results were not received. These are providers who were coming into the IHSS program under the PRIOR rules and had expectations they could care for their children under the pre-FLSA rules. It is completely of out their control that the DOJ results were delayed. This is simply unfair to those providers. And not all of these parents will qualify for Exemption 2.
Implementation Concerns:
Exemption 1 Problems:  Counties discovered that not all of the potentially eligible Exemption 1 group (parents, grandparents, etc. of two or more children) were properly noticed by DSS, which CWDA discussed with DSS at the April 6th meeting. This is because CMIPS only identifies the Parent of Minor Child and/or Parent of Adult Child; there are no indicators in CMIPS II to pull Grandparent; legal Guardian; Step-Parent; Conservator. So, CWDA worked with HP to identify a broader universe of potential eligible and but it will take time for counties to notice and reach out. In the meantime, DSS gave those parents only to April 1st to apply - far too short of a timeline. DSS staff say they will continue to accept requests after April 1st but for how long? In the meantime, counties have no way of knowing who has received the exemption already - DSS isn't supplying the lists of those they've exempted until (hopefully) by the end of this week, and the indicator in CMIPS won't be ready until the end of this month. DSS also mentioned in passing the possibility of an exemption for people who didn't meet the Jan 31 (Exemption 1) criteria, but gives no further information.
Exemption 2:  The biggest concern here is that DSS refused to notice the potential population eligible for Exemption 2, which leaves this responsibility to the counties and leaves the eligible consumers and providers with no chance to get this exemption before violations start.  It will take several weeks to reach out to providers and consumers and review cases for the exemption, which also has to be reviewed and approved by the State. In the meantime, violations will start to toll. The Exemption 2 requirements are also very cumbersome on all, and permit these exemptions only "in extraordinary circumstances" in which "all possible options for finding another provider...have been explored and exhausted by both the recipients and the county." The ACL contains this statement, "As part of the ongoing assessment reassessment processes, IHSS Social Workers become very familiar with their caseloads and their assigned IHSS recipients' needs, and shall consider the complexity of each recipients needs to further assist with the hiring of additional IHSS providers."  While we would love to have social workers familiar with their entire caseload, this is simply impossible given the actual caseload size, so it will simply take time to evaluate every case based on the DSS criteria in the ACL. 
We should also note that Waiver of Personal Care Services (WPCS) clients are also eligible for the Exemptions - but this is administered by DHCS which has YET to provide specific information on how to apply for an exemption. DHCS only sent an informing notice on January 25th. Many of the WPCS clients are also in receipt of IHSS services, but some are not, and they currently do not seem to have any way to apply for an exemption from DHCS. Those providers who provide WPCS and IHSS, with hours over 283 a month, will start receiving violation notices on May 1 because they have no exemption and no way to get one.  And, who will remove those violations from the CMIPS record?  
The bottom-line is that violations are hitting providers in days, yet those providers haven't had appropriate time or opportunity to avail themselves of the exemptions. Those providers will be receiving a violation, and have to take multiple steps to try to rectify that violation with the county.  This will all certainly generate even more calls to counties and Public Authorities, and counties will be working through both violations calls and exemptions - an overwhelming workload hitting all at once.  While we believe the violations can be eventually rescinded after exemptions are approved, this will cause needless hardship on providers and consumers in the meantime.
Older Americans Act Reauthorization Enacted, Expanding Eligibility for Family Support Program
The Older Americans Act Reauthorization Act of 2016 was signed into law by President Obama on April 19. Among its many provisions, Public Law 114-144 includes a fix to the National Family Caregiver Support Program (NFCSP) The NFCSP, which received $150 million in FY 2016, provides information to caregivers about available services, assistance in accessing services, individual counseling, support groups, caregiver training, respite care, and supplemental services. The new law extends eligibility to older relative caregivers (age 55 and over) of adults with disabilities (age 19 to 59).
Family Support - New Funding Opportunity Announcements for Lifespan Respite from the Administration for Community Living for New States
The Administration for Community Living (ACL) has announced funds for new grants for Lifespan Respite systems. The grants will include a federal funding level of up to $200,000 per award for a 36 month project period and will fund up to three cooperative agreements. Grant funds are for planning, establishing, and expanding/enhancing Lifespan Respite Care systems in the states, including new and planned emergency respite services, training and recruiting respite workers and volunteers, and assisting caregivers with gaining access to needed services. While the eligible applicants are state governments, all applicants must demonstrate the support and active involvement of a range of government and non-government, private, non-profit and other organizations with a stake in serving populations eligible to receive services under the Lifespan Respite Care Act. Only one application per State will be funded. Once funded, grantees will be expected to collaborate with multiple state and local agencies representing all ages, populations and disability/ disease groups in planning and carrying out the requirements of the project. The announcement can be found here.
Also, sign up for: The Arc US Capitol Insider
Greg deGiere, Director of Public Policy The Arc and United Cerebral Palsy California Collaboration
Bill File: The Arc and United Cerebral Palsy California Collaborative
Our bill to protect people from abuse and sex crimes passed its first committee test last week. Assembly Bill 2606 passed the Assembly Public Safety Committee 4-2. Four was the bare majority it needed. The close vote shows it will face tough fights in the coming weeks as we try to put it on the Governor Brown's desk for possible signature.
The bill requires law enforcement agencies to give state licensing agencies copies of reports of sex crimes, elder and "dependent adult" abuse, and mandated reporting failing to report abuse. "Dependent adult" is the legal term for adults with disabilities and adult in-patients.
The bills goal is to have the licensing agencies investigate these reports so that, even if police and prosecutors Are unable for convict the perpetrators, the licensing agencies can protect the public by suspending or revoking their licenses. Assemblywoman Shannon Grove is introduced and is carrying the bill for us.
Monday April 25, 2016
SEN - APPROPRIATIONS - LARA, Chair 10 a.m. - John L. Burton Hearing Room (4203)
  • SB 1002    (Monning D)   End of Life Option Act: telephone number. Position:  Arc Oppose, UCP No Posaition, Subject:  Health & Medical.
  • SB 1016    (Monning D)   Sentencing. Position:  Watch, Subject:  Criminal Justice, Safety & Civil Rights.
  • SB 1174   (McGuire D)   Medi-Cal: children: prescribing patterns: psychotropic medications. Position: Watch, Subject: Health & Medical.
  • SB 1219    (Hancock D)   Small Business Procurement and Contract Act: employment social enterprises. Position:Watch, Subject: Work.
Tuesday April 26, 2016 
ASM - HEALTH WOOD, Chair 1:30 p.m. - State Capitol, Room 4202
  • AB 1568    (Bonta D)   Medi-Cal: demonstration project. Position: Watch, Subject: Health & Medical.
ASM - HUMAN SERVICES - BONILLA, Chair 1:30 p.m. - State Capitol, Room 437
  • AB 2809    (Rodriguez D)   Developmental services: regional centers. Position: Watch+, Subject:  Criminal Justice, Safety & Civil Rights, General Systemic.
ASM - JUDICIARY - STONE, Chair 9 a.m. - State Capitol, Room 447
  • AB 2667    (Thurmond D)   Civil rights: Unruh Civil Rights Act: waivers.  Position: Watch, Subject:  Criminal Justice, Safety & Civil Rights.
SEN - JUDICIARY - JACKSON, Chair 1:30 p.m. - Room 112
  • SB 1065    (Monning D)   Dismissal or denial of petitions to compel arbitration: appeals. Position: Watch, Subject:  Criminal Justice, Safety & Civil Rights.
Wednesday April 27, 2016 
ASM - APPROPRIATIONS - GONZALEZ, Chair 9 a.m. - State Capitol, Room 4202
  • AB 1553    (Irwin D)   Savings plans: qualified ABLE program. Position: Support, Subject:  misc.
  • AB 1567    (Campos D)   After school programs: enrollment: fees: homeless youth: snacks or meals. Position:  Watch+, Subject:  Special Education.
  • AB 2079    (Calderon D)   Skilled nursing facilities: staffing. Position:  Watch, Subject: Health & Medical.
  • AB 2248    (Holden D)   Teacher credentialing: out-of-state trained teachers: English learner authorizations. Position:  Support, Subject:  Special Education.
  • AB 2336 (Olsen R) Special education: substitute teachers. Position: Watch, Subject: Special Education.
  • AB 2743    (Eggman D)   Psychiatric bed registry. Position:  Watch, Subject:  Criminal Justice, Safety & Civil Rights, Mental Health.
ASM - ELECTIONS AND REDISTRICTING - WEBER, Chair 9 a.m. - State Capitol, Room 444
  • AB 2686    (Mullin D)   Elections: all-mailed ballot elections. Position:  Watch, Subject:  Voting.
ASM - HOUSING AND COMMUNITY DEVELOPMENT - CHIU, Chair 9 a.m. State Capitol, Room 126
  • AB 2031    (Bonta D)   Local government: affordable housing: financing. Position:  Watch, Subject:  Housing & Homelessness.
  • AB 2502    (Mullin D)   Land use: zoning regulations. Position:  Watch, Subject:  Housing & Homelessness.

SEN - HEALTH - HERNANDEZ, Chair 1:30 p.m. - John L. Burton Hearing Room (4203)
  • SB 815    (Hernandez D)   Medi-Cal: demonstration project. Position: Watch, Subject: Health & Medical.


Thank you for your advocacy.
Greg deGiere
Public Policy Director
The Arc & United Cerebral Palsy California Collaboration
1225 Eighth Street, Suite 350, Sacramento, CA 95814
Tim Hornbecker, Director of Advocacy and Community Organizing
Community Organizing
Advocacy and Community Organizing Report                                                                        
Let's Get Out the Vote!
I made it a point in Washington, D.C. to attend a workshop entitled "What You Need to Know About Accessing the Right to Vote." I was attending the Disability Policy Seminar with The Arc US as one of the sponsors. The presenters were Michelle Bishop, a Disability Advocacy Specialist for Voting Rights, and Nancy Ward, Co-Director, National Technical Assistance Center for Voting and Cognitive Access. They emphasized that being able to exercise the right to vote is critical to being able to change public policy for persons with disabilities. They answered questions about what to do if you encounter an inaccessible poll or if you are denied the right to vote in a federal, state or local election.
In some states, for example, you can't vote if you have a guardian. California used to be one of these states, but now you are allowed to vote even if a guardianship. Bring someone with you, you are allowed to do so.
You can vote even if you can't read or write. You can sign or put a check mark on the voter registration form. If you're registered to vote, you have a right to vote. Poll workers can't decide if you are competent. You need a driver's license, a state ID or a birth certificate with a raised seal.
Polling places must be accessible, with ramps, elevators or whatever needed for you to participate. Power cords should be taped down to avoid tripping. Many locations have touch screens for you to use, remembering that you can bring someone with you for assistance. Of course you can vote with an absentee ballot, but you do have a right to do either.
In order to encourage your voting rights in this important election year, the Arc is joining with the efforts of Ms. Wheelchair America 2016, a volunteer and self-advocate for The Arc, Dr. Alette Coble-Temple. You are invited to a GET OUT THE VOTE! Event and Fundraiser at the Ed Roberts Campus (3075 Adeline St., Berkeley), June 6th, Monday, 4pm - 8pm.
Donations will be welcomed. Come learn about the issues and how to make your vote count!
Tim Hornbecker, Director of Community Organizing and Advocacy
Tim Hornbecker, Director
Advocacy and Community Organizing

Teresa Anderson, Prevention Coordinator
Last week we shared the post from the Centers for Medicaid and Medicare Services about their findings that the Zika virus has been confirmed to be linked to microcephaly and this week we came across the following article, "Worry about Zika, but worry more about fetal alcohol disorder". Check out this opinion article it make a really good point:
Milwaukee Wisconsin Journal Sentinel April 22, 2016
By Bonnie Miller Rubin, Opinion
For the last two months, it's been all Zika, all the time. Some 358 cases of the mosquito-borne disease have been reported in the United States - all travel-related, but ratcheting up anxiety for anyone who is pregnant. Global health officials are racing to understand more about the outbreak, which has been declared a public health emergency. President Barack Obama has asked Congress for $1.8 billion to combat the virus, linked to microcephaly, in which babies are born with small heads and brain damage, while scientists are fast-tracking a vaccine.
Meanwhile, there's another far more pervasive neurological disorder that also harms the brain of the developing fetus and has devastating effects but doesn't generate the same headlines: Fetal Alcohol Spectrum Disorder. FASD affects 5% of newborns - or 40,000 births annually - more than spina bifida, Down syndrome and muscular dystrophy combined, according to the National Organization of Fetal Alcohol Syndrome. That's not to say that Zika shouldn't be addressed, but it is to say that this other global threat deserves the same kind of urgency. That is especially true in Wisconsin, where alcohol is woven into the culture. It's a well-known fact - some might say a point of pride - that Wisconsin ranks among the heaviest-drinking states in the nation. However, less well-known is that women of childbearing age here have the highest prevalence of binge drinking in the U.S. About 8% of new moms acknowledged drinking during their last trimester, according to the 2014 Wisconsin Epidemiological Profile on Alcohol and other Drug Use, which has called this issue one of the state's "top five health priorities."
But unlike with Zika, being exposed prenatally to alcohol is still open to endless debate, despite years of research documenting collateral damage. "Of all the substances of abuse (including cocaine, heroin and marijuana), alcohol produces by far the most serious neurobehavioral effects in the fetus," reported the Institute of Medicine a decade ago. Recently, those warnings only have grown louder. In October, the American Academy of Pediatrics stated unequivocally: "No amount of alcohol intake should be considered safe." In February, the CDC went even further, advising women to abstain from all drinking if having unprotected sex. Since half of all U.S. pregnancies are unintended and many women are unaware they are pregnant in the first four to six weeks - when the baby's brain and central nervous system are most vulnerable to neurotoxins - why take the risk?
Yet the positions of the AAP and CDC sparked an unprecedented backlash, with words such as "patronizing," "misogynistic" and accusations that women were being treated like "baby-making vessels" ricocheting around the web. The same population on board with avoiding sushi or changing a litter box still clings to the fiction that a glass or two of Malbec most evenings is somehow different than a pint of Thunderbird.
"We see it all the time...there are even doctors who continue to tell patients that a glass of wine is OK," said Lindsey Peterson, an FASD outreach specialist at the University of Wisconsin-Madison
Teresa Anderson, MPH
The Arc California
Prevention Coordinator

July 31-August 2, 2016
Registration Open for Reinventing Quality
. The 2016 Reinventing Quality conference, Assuring Quality Lives for Everyone: Moving from the Why to the How, will be held July 31-August 2, 2016 at the Renaissance Baltimore Harbourplace Hotel, in Baltimore, Maryland. The 2016 Reinventing Quality Conference is jointly hosted by the National Association of State Directors of Developmental Disabilities Services (NASDDDS), Research and Training Center on Community Living at the University of Minnesota, Human Services Research Institute (HSRI), University of Delaware National Leadership Consortium, American Network of Community Options and Resources (ANCOR), TASH, and American Association on Intellectual and Developmental Disabilities (AAIDD)   

June 7-8, 2016
Registration Open for AAIDD Annual Meeting. The AAIDD Annual Meeting is two full days of educational sessions, exhibits, poster presentations, and networking events.  There are also optional  half-day pre and post conference sessions.  Our Annual Meeting provides researchers, clinicians, practitioners, educators, policymakers, local, state and federal agencies, and advocates with cutting edge research, effective practices, and valuable information on important policy initiatives.
July 18-20, 2016
Summer Leadership Institute for the National Conference of Executives of The Arc annually hosts the Summer Leadership Institute (SLI), at different sites around the country. NCE strives to provide our attendees with educational materials that will help our members develop and hone their professional skills so that we can all work better and smarter towards our shared purpose - realization of The Arc's Core Values. This years' SLI will be in California at the Renaissance Palm Springs Hotel, Palm Springs.
October 21 and 22, 2016 
Consortium for the Educational Advancement of Travel Instruction will be hosting. "Takin' It to the Streets: Skills to Further Enhance Your Practice of Travel Instruction ". ACVREP Credits Available, at RTC of Southern Nevada, 600 S. Grand Central Parkway, Suite 350, Las Vegas, NV 89106 (Space is limited to 100 attendees!). A few of the ketnote sessions include: "The American with Disabilities Act - 25+ Years of Providing Freedom". Anthony A. Anderson, JD; "Boots on the Ground: 13,140 days as a career Travel Instructor and Certified Orientation and Mobility Specialist or Why my Hair Turned White at 30".Lydia Barden Peterson, MS; "Influencing Drivers and Reducing Street Crossing Risk: What Research Tell Us". Conference Registration: Early Bird (by 7/31) - $125, Advanced (8/1-10/14) - $150, On-Site (after 10/14) - $175. To register by mail or email, please use PDF form. Available here >>>. Online registration form and payment option using PayPal here >>>. Dates/deadlines and cancellation policy appear on the PDF form. HOTEL ACCOMMODATIONS: The Orleans, 4500 West Tropicana Avenue, Las Vegas NV 89103, or 800-675-3267, Group Name: CEATI Reservation ID: A6RTC10, Questions? Email
October 27-29, 2016
2016 National Convention & International Forum "Shaping the Future" will be in Orlando, FL this year and will be a joint disability event with The Arc of the United States and Inclusion International. "Join the global conversation as people from all over the world share best practices, struggles, successes, and hopes for the future. Our collective work is toward a common goal-to protect and promote the human and civil rights for individuals with intellectual and developmental disabilities in the U.S. and abroad. Attendees can expect to make enduring personal and professional connections while learning how to shape the future for the better.

By Dean Conklin, Learning Rights Law Center, Antionette Dozier, Western Center on Law & Poverty, Michael Herald, Western Center on Law & Poverty, Jim Preis, Mental Health Advocacy Services, Inc., Nancy Shea, Mental Health Advocacy Services, Inc., and Mona Tawatao, Western Center on Law & Poverty
The major conclusions of this report are:
  • Many LEAs are not complying with their legal obligations to identify children in need of school-based services, teach and provide necessary school-based mental health services and supports in integrated settings, and to provide intensive behavioral support services that meet each child's individualized, unique needs.
  • Many children in need of school-based mental health services are not getting services or getting too few services, resulting in school discipline or juvenile arrests.
  • Since the enactment of AB 114, there have been fewer students receiving mental health services in their Individual Education Program (IEP) and fewer types of mental health services available for students with emotional or behavioral problems.
  • Too many children who have severe mental health conditions are learning and receiving services in segregated settings, instead of in classrooms with their peers.
This report recommends:
  • That LEAs take immediate action to comply with the law by (1) identifying children in need of services, particularly before taking disciplinary actions or engaging law enforcement, and (2) providing robust behavioral support services, like Wraparound and Intensive Home Based Services (IHBS), to meet children's needs during general class time.
  • Expanding state funding for parent-peer-advocacy programs to support parents and families seeking services through the IEP process.
  • That each LEA develop and publish an annual "Mental Health Plan," in consultation with stakeholders, which describes in detail the full array of mental health services available in school, including specific behavioral support and evidenced-based services, commitments and plans for coordinating community-based and school-based mental health services, and training parents and school personnel to engage in individualized treatment plans, and the process and procedures for obtaining such services.
  • The legislature should require the CDE to report annually on the outcomes for students receiving mental health services, develop a mechanism for tracking and reporting expenditures related to mental health services, and monitor the provision of services.
Naples Dailey News April 24, 2016
By Liz Freeman of the Naples Daily News
Terry and Debby Kays recognize they face hurdles to develop a housing community that offers an extended family atmosphere for people with disabilities. There's the barrier of costly land in Collier County. There's making the concept appealing to enough families. There's potential objections from neighbors. The Kays, who operate the local nonprofit advocacy group, Adonis Autism, nonetheless are steadfast in their focus. They want to develop what they call "cohousing," where families live side by side in a community they run with a shared mission of caring for loved ones with autism or other disabilities. The concept is for safe, affordable and financially sustainable long-term housing. The planned name is Osprey Village, and the Kays are searching for families to join them. "What we need to do is support these families," Terry Kays said.
The couple knows firsthand the predicament of families with a child or adult child with a disability. Debby Kays has a son, Walter, 23, who has autism. He is living with them at home again in North Naples after an unsuccessful try at a local group home. He works off and on at a McDonald's restaurant. "There is the assumption that people with autism can't do things, and that's not true," she said. "We want to help them find their self motivation." The idea of Osprey Village is similar to senior communities with supportive services, Terry Kays said. "Cohousing is self-organized and a self-financed group of families that come together to develop a supportive community," he said. "It is family driven." Osprey Village doesn't have to restricted to families with a special needs family member, Debby Kays said. There could be "typical families" who are looking for a supportive environment. It also could work for multigenerational families, she said. One in 68 children in Collier County is diagnosed with autism spectrum disorder, which is a similar number compared to other communities and comes from the U.S. Centers for Disease Control and Prevention, said Tara Tallaksen, an autism navigator for Golisano Children's Hospital of Southwest Florida. She is based in Collier at Golisano's outpatient clinic in North Naples.
When she works with the children with autism, parents talk about their concerns when their children become adults. The Agency for Persons with Disabilities has group homes for people who qualify - but in many cases the adult children remain at home, she said. "It's a crisis," Tallaksen said. "It's everywhere. It's not just Collier." Adonis Autism, which organizes educational workshops and offers networking for families, began plans for the housing community in 2013. There are about 130 family-run housing communities around the country similar to the Osprey Village concept but none in Southwest Florida or the region, Terry Kays said. "One broke ground in Gainesville," he said.
The communities can be designed in many different ways but an overriding principle is that families decide the structure. "It does seem like a pie in the sky idea but it does work," Kays said. "It has been done hundreds of times." He envisions the cost for each family at roughly $200,000 to $250,000 but much of that depends on the cost of land. A minimum of seven acres is needed but 10 acres is more ideal. A key layout feature is a cluster of single family homes, town homes or a combination with a pedestrian corridor for safety. The Kays have enlisted a local architect firm run by Brandt and Michaela Henning, called Hlevel. "We are interested in cohousing alternatives," Brandt Henning said. "Cohousing truly is residents that design it." Henning put some concepts on paper for Osprey Village with town houses and a community center for families to consider the possibilities. ...
Los Angeles Daily News April 22, 2016
By Joel Strom and Kim Klein
Last month, Gov. Jerry Brown signed into law a bill that includes about $300 million in funding to provide health care services for the developmentally disabled. The state must now decide where exactly to spend this money - and officials should ensure that some of it goes to providing much-needed dental care for developmentally disabled children. The bill in question, a collection of tax incentives, was originally put together to "avoid the impending loss of $1 billion in federal funding" for a rapidly growing Medi-Cal caseload, according to Assembly Speaker Toni Atkins, D-San Diego. While this action did, indeed, help all Californians by allocating $1.3 billion dollars for health care, the state must now decide where to allocate this money. One crucial yet often overlooked area is the large number of disadvantaged children who still need to obtain access to dental services. This problem was never supposed to exist in the first place. The creation of Covered California under the Affordable Care Act has provided many of the most financially burdened Californians the opportunity to sign up for dental insurance. The majority sign up for Denti-Cal, which is Medi-Cal for dental treatment. Yet for a variety of reasons, this new coverage option doesn't always lead to patients receiving the care they need. This is especially true for kids with development disabilities such as autism or cerebral palsy, for example. Why?
The answer is simple: There aren't enough dentists participating in this program. In order to actually receive health care, there must be a professional willing to provide that health care to these patients. But fewer and fewer dentists are willing to participate in state-run programs such as Denti-Cal. Finding a participating dentist is increasingly problematic. There are a number of factors contributing to this problem, but perhaps the main reason why so many dentists do not accept these patients is that the Denti-Cal program offers only reimbursement rates that hover around 30 percent of the national average. This despite the far greater overhead, regulatory and tax costs for California's dentists when compared to most other states. It should not be surprising that dentists, who are primarily small-business owners, have a difficult time trying to develop business models that will allow them to provide care for the least fortunate and still keep the doors open. In fact, The California Healthcare Foundation's Center for Health Reporting confirm that only about 25 percent of all dentists accept Denti-Cal patients, and only a small percentage of this 25 percent are pediatric dentists. The same study concludes that 97 percent of dentists cite the main reason for declining to participate as the extremely low reimbursement rates. ...
Findings led by USC University Professor challenge assumptions that increased longevity is a sign of good health
USC News April 15, 2016
By Emily Gersema and Beth Newcomb
Americans are living longer but in poorer health, according to a new study. The USC-led report examined life expectancy trends and disability rates over a 40-year span from 1970 to 2010. The analysis of U.S. vital statistics found that the average total life span increased for men and women in those 40 years, but so did the proportion of time spent living with a disability. The study found increased longevity is not necessarily indicative of good health. Most age groups live longer with a disability or other health problem. "We could be increasing the length of poor-quality life more than good-quality life," said lead author Eileen Crimmins, USC University Professor and AARP Professor of Gerontology at the USC Davis School of Gerontology. "There are a number of indications that the baby boomer generation that is now reaching old age is not seeing improvements in health similar to the older groups that went before them." Only for people aged 65 and older was there a "compression of morbidity" - a reduction in the proportion of years spent with disability. The findings have implications for policymaking, such as proposals to raise the retirement age for Social Security and Medicare eligibility. "Clearly, there is a need to maintain health and reduce disability at younger ages to have meaningful compression of morbidity across the age range," Crimmins said. "The trends for the last 40 years do not support projections and policies that are based on assumptions of a reduced length of disabled life."
Life-span findings: The average life span for men increased by 9.2 years to 76.2 years, the researchers found. The number of years they live with a disability increased by 4.7 years while the number of years spent disability-free increased by 4.5 years. For women, the average life span increased by 6.4 years to 81 years. The number of years that women spend with a disability increased by 3.6 years, exceeding the increase in women's disability-free life (2.7 years). "The smaller increase in healthy life than in total life for women was surprising and another indication that American women have not done as well as American men in terms of improving health in recent decades," Crimmins said. ...


The California State Council on Developmental Disabilities Announces:
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Centers for Disease Control and Prevention NIOSH Exploratory/Developmental Grant Program (R21) Modification 11
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Centers for Disease Control and Prevention NIOSH Small Research Program (R03) Modification 13
HHS - Department of Health and Human Services National Institutes of Health Program for Extramural/Intramural Alcohol Research Collaborations (U01) Modification 1
HHS - Department of Health and Human Services National Institutes of Health Academic Research Enhancement Award (Parent R15) Modification 1
HHS - Department of Health and Human Services Agency for Health Care Research and Quality Pediatric Quality Measures Program (PQMP): Dissemination and Implementation of Child Health Quality Measures Cooperative Research Grants (U18) Grant
HHS - Department of Health and Human Services Administration for Children and Families Administration for Children and Families - OCS Community Services Block Grant (CSBG) Training and Technical Assistance (T/TA) Organizational Standards Center of Excellence (COE)Grant
HHS - Department of Health and Human Services Administration for Community Living2016 Lifespan Respite Care Program: Grants to New StatesGrant
HHS - Department of Health and Human Services National Institutes of Health Program for Extramural/Intramural Alcohol Research Collaborations (U01) Grant
NCD - National Council on Disability Individuals With Disabilities Act Report Series Notice of Funding Availability Modification 5
ED - Department of Education Office of Elementary and Secondary Education (OESE): Innovative Approaches to Literacy (IAL) Program CFDA Number 84.215G Modification 2
SSA - Social Security Administration Analyzing Relationships between Disability, Rehabilitation, and Work: A Small Grant ProgramGrant
HHS - Department of Health and Human Services Substance Abuse and Mental Health Services Admin Statewide Peer Networks for Recovery and Resiliency (Short Title: Statewide Peer Networks for R&R)Modification 1
HHS - Department of Health and Human Services Administration for Community Living Elder Justice Innovation GrantsGrant
HHS - Department of Health and Human Services National Institutes of Health The National Institute on Aging (NIA) Late Onset of Alzheimer's Disease (LOAD) Family-Based Study (FBS) (U24)Grant
HHS - Department of Health and Human Services Substance Abuse and Mental Health Services Admin Assisted Outpatient Treatment Grant Program for Individuals with Serious Mental Illness, (Short Title: Assisted Outpatient Treatment [AOT]) Grant

The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
Jobs Page Links: Click Here
The Assistant Executive Director for Employment and Day Services (AED) is a senior level position that reports directly to the Executive Director. The AED is responsible for planning and oversight of all operations in the Employment and Day Services division, the agency's largest division. The AED seeks to fulfill The Arc Baltimore's commitment to maximizing employment outcomes for all people supported by leading and managing The Arc Baltimore's strategic efforts to best align its supports to enable each individual's desired employment outcome. The position is also responsible for ensuring access to innovative, meaningful and integrated (i.e. community-based) activities for those who choose not to work (e.g. are retired).
The Arc of Mercer County Pennsylvania is located in western Pennsylvania 60 miles north of Pittsburgh and 70 miles east of Cleveland, Ohio. The Arc/MCAR serves Individuals with Intellectual and autism related disabilities residing in Mercer County with Day, Residential, Community Employment and Habilitation Aid programs. The Arc/MCAR Is seeking a CEO who will have overall strategic and operational responsibility for staff, programs, expansion, development and execution of its mission. An integral function of the position Is advocacy at the local, state and federal levels to improve the lives of those whom we serve.
Creative Living Options, Inc., located in West Sacramento, is seeking applicants for the position of Executive Director. This is a rewarding leadership opportunity to work with a stable organization and partner with a supportive board as the organization looks to continue their success beyond the retirement of their founding CEO. Creative Living Options, Inc.'s mission is to provide persons with developmental disabilities the opportunity to create an individual and personalized lifestyle, with the supports necessary for each person to fully participate in community life, as he or she desires. The organization has a budget of approximately $3.5M, a staff of 120 and serves customers living throughout Sacramento, Placer and Yolo counties. The Executive Director will report to the Board of Directors. Priority review of applications will begin Friday, April 29, 2016 and will continue until the position is filled. To ensure full consideration, please email a resume and cover letter to
The California Primary Care Association is looking for a Government affairs professional responsible for leading efforts related to key public policy issues impacting community health centers.
Executive Director
The Executive Director (The Arc Capital Area - Central Texas) will report to the board of directors, provide vision and leadership for the organization, and manage day-to-day operations. Ideal candidates will bring to the position a variety of attributes, knowledge, and skills, including: Proven record of success with government funding, as well as fundraising through individual and corporate sponsorships and from special events. Excellent communication skills as both an effective, articulate speaker and an artful, active listener. Respectful and collaborative approach to connect with clients and their families, donors and partners, and key stakeholders. Dynamic, team-focused leader with proven experience taking an organization to new levels of services excellence and demonstrated initiative to generate and try new ideas. Administrative operations fluency, well-versed in financial management, board relations, and resource management. Energetic self-starter ready to build on our strengths and the value of our mission. Demonstrated experience leading an organization through significant growth or transition. Commitment to the importance of the mission and services of The Arc of the Capital Area and sensitivity to the challenges facing people with disabilities.

The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814


Advocates for people with intellectual and all other developmental disabilities and their families since 1950.


Like us on Facebook   Follow us on Twitter   View our profile on LinkedIn   
mi Non-Profit Web Hosting provided by

The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494