tony@thearcca.org
 
December 5, 2016  
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Tony Anderson, Executive Director, The Arc California
Special Announcement from The Arc California Board of Director:
 
Last week The Arc California did not publish the MMM but instead made a special announcement that our executive director Tony Anderson will be moving on to a new job in the California developmental services system to become the next executive director for the Valley Mountain Regional Center (see more on this here). As I stated in our announcement, "rest assured that The Arc California, the state's oldest and largest parent and family run membership association will carry on our tradition of unyielding advocacy for all people with IDD." To that end the volunteer leadership met and we've begun our transition process that so far includes the following initial steps:
  1. Longtime advocate and leader on local, state, and national level, Tim Hornbecker (Professional Biography) will begin to transition into the role of Interim Executive Director to lead the recruitment process and ensure The Arc California continues with all its major initiatives.
  2. A formal transition plan will be created to continue with the MMM, Public Policy Conference, Lanterman Coalition, Legislative Advocacy, and many of the other major initiatives of The Arc California.
  3. Local member leaders will be relied upon even more to represent our association's positions and interests in the public policy environments we operate in regularly.
Finally, we'll meet weekly for transition plan development and recruitment. We hope to have a full job description and recruitment process announced by next week but before that we'd like to reach out to our community and learn more about how you feel about the current activities of The Arc CA: Survey Monkey. Also, if you'd like to submit your resume and a cover note to us now we will take them at: thearcca@gmail.com.
 
Sincerely
Richard Fitzmaurice
President of The Arc California
 
Monday December 5, 2016
We'll be participating in the Department of Developmental Services (DDS) Quality Assessment Project Advisory Group from 10:00 a.m. - 1:00 p.m. at DDS Headquarters, 1600 Ninth Street, Room 360, Sacramento, CA 95814. The advisory group will get the new "National Core Indicator California Adult Consumer Survey: Developmental Center Mover and Lanterman Developmental Center Mover Report for FY 13/14 (M4/L4)" and discuss the findings.   Additional information regarding the Quality Assessment Project can be found at http://www.dds.ca.gov/QA/index.cfm.
 
Throughout Sacramento several legislators will swear-in for the upcoming 2017-2018 legislative session. One of our policy champions, Senator Jim Beall will have a public Swearing-in reception 2:30pm-4:00pm at Downtown & Vine (1200 K Street #8, Sacramento, CA 95814). To RSVP please contact Connie Sanders Emerson at Connie@sandersemerson.com. Check your representative's office for scheduled swearing-in events or receptions.
 
Governor Jerry Brown and First Lady Anne Gust will be hosting the 85th Annual Capitol Christmas Tree Lighting at 5 pm on the West Steps of the Capitol. The public is asked to bring nonperishable foods for the Sacramento Food Bank. In keeping with tradition, a child with a developmental disability will assist in the ceremonial "lighting" of the Christmas tree (decorated by artists with developmental disabilities). This year twins, Alex and Alan Rosales from the South Central Los Angeles region will be the honored guests (they will be available, with their parents, for media at 10:15 am on the West Steps).
 
Tuesday December 6, 2016
There will be a public meeting "to address concerns over the result of the recent presidential election and the potential impact on our system." The meeting will be at 6 pm at the Westside Regional Center, 5901 Green Valley Circle, 3rd Floor Danneker Boardroom, Culver City, CA 90230 For more information please call (310) 258-4063. Click here for more information.
 
Tony Anderson, The Arc CA Executive Director, will be attending The Arc Ventura County's Annual Awards Luncheon at the Spanish Hills Country Club in Camarillo. During the event The Arc Ventura will install its officers and honor their participants and community partners. This year the Hazel Kay Benefactor Award, "given in recognition and appreciation of extraordinary efforts to improve the quality of life for individuals with intellectual and developmental disabilities," will go to Mr. Anderson.
 
The Sacramento Regional Advisory Committee (RAC) of SCDD will be meeting from 10:00 a.m. - 1:00 p.m. at 2033 Howe Avenue, Ste. 160, Sacramento, CA 95825, 916-263-3085 (Click here for Sacramento RAC Agenda & Packet). The meeting will cover a Special presentation by Christina Elliott, MPS, Executive Director, CalABLE Board on the CalABLE Act and a presentation by Dr. Tony Simon, PhD, and Kathy Angkustsiri, MD, of the UCD Mind Institute, on 22q11.2 Deletion Syndrome, "a disorder caused by the deletion of a small piece of chromosome 22."
 
Wednesday December 7, 2016
The California Committee on Employment of People with Disabilities (CCEPD) will be meeting from 9:00 a.m. - 4:00 p.m. at the Department of Social Services, 744 P Street, Room 1031, Sacramento, CA 95814 (Teleconference: 1-800-369-3198, Passcode: 7652286). The committee meeting will include: (1) Joint Implementation Panel to Increase Employment of People with Disabilities in State Government Panel, (2) Workforce Innovation and Opportunity Act Implementation, (3) Youth Leadership Forum Budget and more.
 
Community Living Options, a Sacramento region supported living services provider will have their annual holiday party and celebrate the amazing contributions and good work of their founder and statewide advocate and parent Joan Schmidt. The Arc California sends our appreciation for this trail blazer mom and community provider and wishes her the very best.
 
Thursday December 8, 2016
The State Executive Directors of The Arc will be meeting from 10 am to 11 am to discuss a variety of national policy issues potentially impacting people with developmental disabilities under the new administration and new congress. Later in the day our national policy staff will hold a conference call to inform the members throughout the network of the national policy issue and possible state implications.
 
The Executive Committee of The Arc California chaired by president Richard Fitzmaurice will be meeting every Thursday for the remainder of the year in preparation of a smooth leadership transition for our association.
 
The Conference Planning Committee, co-chaired by Betsy Katz and Pat Hornbecker will be meeting every week and will roll out the save the date announcements and registration information for the 10th Annual Public Policy Conference scheduled from March 26, 27, and 28, 2017. To view last year's conference visit our conference webpage: http://thearcca.org/55.html
 
Friday December 9, 2016
The Lanterman Coalition will be meeting from 1 pm to 3 pm in Sacramento to continue it's work on establishing a shared initiative to focus our advocacy across all stakeholders in the developmental services system. Prior to the meeting, the coalition will have a celebration lunch in recognition of the outgoing chair, Tony Anderson. Last week the coalition accepted Tim Hornbecker as the interim chair of the coalition.

THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION:  Public Policy Reports 
  
State
This week kicks off with the swearing-in of legislators, a few press events on policy priorities of the leadership, and the annual tree lighting. Legislators will be holding a press conference on the Cash Bail System (click here for more information on the Cash Bail System) stating it disproportionately impacts people who are poor and is costly to tax payers. Other legislators will be meeting publicly to "recommit to protecting the California immigrant population. Many legislators will swear-in in the capitol building and many others will have swearing-in receptions which may be a good chance to welcome them into the next session either by attending their events or sending them a message by phone, email, social media whatever works for you. Here are the resources again for their contacts:
 
Phone Numbers, Websites, Room Numbers etc.:
 
 
 
(Includes Websites, Facebook, and Twitter Addresses)
 
(Includes Websites, Facebook, and Twitter Addresses)
 
Greg deGiere
Public Policy Director
The Arc and United Cerebral Palsy California Collaborative
1225 Eighth Street, Suite 350, Sacramento, CA 95814
SIGN UP FOR OUR CALIFORNIA ACTION ALERTS
 
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National
Posted on November 22, 2016 by The Arc    
 
Washington, DC - The Arc's employment program, The Arc@Work, is pleased to announce it has received a $245,000, one-year grant from the Walmart Foundation. This funding will be dedicated toward developing innovative programs that place people with intellectual and developmental disabilities (I/DD) in competitive, integrated employment within their communities.
 
Current research indicates that 85% of people with I/DD are unemployed. The Arc is working with the public and private sectors to change this reality and offer an opportunity for people with I/DD to obtain meaningful career opportunities alongside people without disabilities on an unprecedented scale. New developments include a government directive to hire 100,000 employees with disabilities as well as updated regulations for federal contractors. As a result, the federal government and more than 45,000 contractors that include many Fortune 500 companies are now seeking employees with disabilities like never before. Unfortunately, this current demand cannot be matched by existing workforce systems that support the I/DD community. And without a strong, unified pipeline in place, this population will not benefit from these new guidelines as much as other disability groups.
 
"For far too long, people with intellectual and developmental disabilities have been relegated to the margins of the working world. Along with private initiatives, new government regulations promise to dramatically increase the number of people with disabilities placed alongside of people without disabilities in integrated, competitive environments. The support from the Walmart Foundation will allow The Arc to build a system that will transform the existing pool of talented candidates with disabilities into productive employees," said Peter Berns, CEO of The Arc.
 
The Arc@Work is well-positioned to tackle this challenge, as it has the expertise and resources to harness the current social, political, and philanthropic energy behind workforce development efforts for people with I/DD. For this particular project, The Arc@Work will utilize existing infrastructure, as well as tap sixteen chapters of The Arc to create an increased number of corporate hiring opportunities. Ultimately this model will connect well-qualified job seekers with I/DD to local, regional, and national employers. The chapters that will be involved include UCP Seguin (IL); The Arc of the Midlands (SC); The Arc of Spokane; The Arc of Anchorage (AK); The Arc of Montgomery County (MD); The Arc of El Paso (TX); The Arc of Monroe County (NY); St. Louis Arc (MO); The Arc of Chester County (PA); Berkshire County Arc (MA); Star, Inc. (CT); The Arc of North Carolina (NC); The Arc Davidson County and Greater Nashville (TN); VersAbility (VA); The Arc of Bristol County (MA); and ADEC (IN), each of which will receive an average sub-grant award of $10,000.
 
Many of these chapters currently offer high-quality employment services for people with I/DD, such as job development, job coaching, as well as skill-building opportunities like preparation for interviews and resume development. Under their guidance, people with I/DD will receive support to secure competitive employment in their communities. Additionally, over the project period, the chapters of The Arc will strengthen their capacity to place people with I/DD into integrated, community-based employment by developing or deepening partnerships with local, regional, and national employers during the project period. Local, regional, or national employers will be able to improve their ability to successfully employ people with I/DD as a result of their partnership with The Arc.
 
"This grant is an example of the Walmart Foundation's commitment to modeling one of our core values - Respect for the Individual, "said Carol May, Program Manager of the Walmart Foundation. "We desire to see communities empower all individuals to reach their full potential."
 
The Arc advocates for and serves people with intellectual and developmental disabilities (I/DD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of over 650 chapters across the country promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.
 
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SIGN UP FOR OUR NATIONAL ACTION ALERTS
  
Project Updates
 
Tim Hornbecker, Director of Advocacy and Community Organizing
Reaching Beyond
"Time to reach out to diverse communities," said Mary Gonzales from Chicago, national board member for The Arc of the United States. She and fellow board member, Kelley Piacenti from New Jersey, challenged local chapters to send more families to The Arc national convention representing the diversity throughout our country. A special breakfast was held and The Arc of California and local chapters sent their representatives, along with other minority advocacy organizations. They were asked about their expectations, with a follow-up attendee survey as to whether those expectations were met.
 
In responding to those expectations and interests, The Arc of California will be attending a meeting on January 12, 2017 in Los Angeles with Fiesta Educativa (Irene Martinez, CEO) and the Exceptional Family Center (Grace Huerta, CEO). Our key focus will be to develop a strategy to address the inequity in services being provided folks who speak something other than English (immigrants, refugees, etc.), with a similar organization serving the Chinese community also invited," according to Mary Gonzales.
 
Please let me know if you would be interested in attending this meeting, or hosting a similar strategy planning meeting in your area.
 
Tim Hornbecker, Director
Advocacy and Community Organizing tim@thearcca.org

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Teresa Anderson, Prevention Coordinator
PREVENTION ACTIVITIES
 
This week we are highlighting the federal government's announcement for the information campaign on the importance of healthcare coverage. As mentioned previously the incoming administration and leadership in congress has identified health coverage as an important and priority policy arena and this could be a good opportunity to express to the new leadership what you like and need in caring for the health of you and your family.
 
Last week, Secretary Burwell announced the #CoverageMatters campaign to collect stories from consumers across the country about how the Affordable Care Act has benefited them and their families. With over 20 million people with coverage under expanded options, there are many people who are thankful. Share (and encourage consumers to share) their story via the hashtag.
 
 
The #CoverageMatters campaign is for anyone to share how their health coverage is stronger under the ACA. We want to hear from the 150 million Americans with employer coverage who no longer have to worry about lifetime or annual limits. We want to hear from the millions of Americans we now benefit from coverage under Medicaid expansion.  And we want to hear from Americans who have benefited from protections prohibiting discrimination against people with pre-existing conditions and those who have taken advantage of no-cost preventive care, such as annual wellness visits and contraceptive care. Maybe coverage means you finally got that check-up you've been putting off. Maybe it means you could breathe a little easier because your daughter and grandson are now covered by Medicaid. Maybe it means your parents can save some money on prescription drugs since the Affordable Care Act began closing the Medicare Part D "donut hole." Or maybe it means you could finally take that business idea and run with it, knowing that you weren't tied to a job just to stay covered.
  • SAMPLE KICKOFF POSTS
    • There are millions of stories, but each one is unique. Tell us why #ACA #CoverageMatters.
    • Tell us why you're thankful for coverage using #CoverageMatters.
    • Are you worried about losing your Medicaid, Medicare, or HealthCare.gov coverage? Tell your story. Tweet a video using #CoverageMatters
    • Peace of mind. Freedom. Security. There are a lot of ways to describe why #CoverageMatters. What's yours?
    • Finish this thought: #ACA #CoverageMatters to me because...
  • SAMPLE COVERAGE POSTS
    • Employer coverage: After the ACA passed, my employer dropped our annual limit and I breathed a sigh of relief. #CoverageMatters
    • Consumer protections: #CoverageMatters because millions of women like me can't be charged more...for being a woman!
    • HealthCare.gov coverage: Took a risk and started my own business. Thanks to tax credits through the Marketplace, I was able to afford insurance #CoverageMatters
    • Medicaid: My state expanded Medicaid. Now more people have insurance and that's good for everyone. #CoverageMatters
Teresa Anderson, MPH
The Arc California
Prevention Coordinator
teresa@thearcca.org
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UPCOMING EVENTS
 
February 27-28, 2017
The 15th Annual Family Voices of California Health Summit & Legislative Day sponsored by Family Voices of California will be in Sacramento from February 27-28, 2017.
 
March 20 - 22, 2017 
The national Disability Policy Seminar will be at the Renaissance Hotel, Washington, DC. Every year we attend the conference to learn about current national IDD public policy and visit our members of Congress following the conference. To view last year's conference information click here.
 
March 26, 27, 28, 2017
The 10th Annual Developmental Disabilities Public Policy Conference, Hosted by The Arc and UCP California Collaboration at the Holiday Inn Capitol Plaza Hotel, 300 J Street, Sacramento, CA 95814. Every year we sponsor this IDD Public Policy conference to learn about current state policies impacting our community and advocates visit their representatives in the California Assembly and Senate. To watch last year's conference click here.
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RECENTLY RELEASED REPORTS, STUDIES, ETC.
 
National Association of States United for Aging and Disabilities
www.nasuad.org
 
. . . From a policy perspective, there are many unknowns for the new administration. President-elect Trump has not provided detailed plans for his priorities around health and human services (HHS), or long-term services and supports (LTSS) at this time. Throughout his candidacy, Trump proposed increases in certain types of spending, specifically those around infrastructure development and military expenditures, that would be offset from other areas. Proposals have included a 1% annual reduction in domestic discretionary programs, which include the Older Americans Act (OAA), the Social Services Block Grant, and other HHS programs or a reduction in spending on programs that have not been formally reauthorized and are instead kept funded through the annual appropriations process. Until earlier this year, the OAA was an unauthorized program that would meet this criteria for reduction. These proposals are not firm, but should provide an indication of some of the potential priorities and their impacts on HHS and LTSS programs.
 
However, we can extrapolate some ideas about potential actions regarding human services, health care and LTSS from prior statements. During the campaign the Trump team released its "Contract with America," which included proposals for legislation, regulatory changes, and executive actions that the Administration would undertake within the first 100 days of taking office.1 Among those proposals is legislation that would, "Fully [repeal] Obamacare and [replace] it with Health Savings Accounts, the ability to purchase health insurance across state lines and [let] states manage Medicaid funds." This proposal has similarities to the health care policy document "A Better Way" that released by Speaker of the House Paul Ryan earlier in the year.2 . . .

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NEWS ARTICLES
 
By Carolyne Zinko, Karen de Sa, and Cynthia Dizikes
San Francisco Chronicle December 2, 2016
San Francisco socialite Joy Venturini Bianchi has long been a striking presence among the city's elite, soliciting donations and earning accolades from fashion icons, philanthropists and politicians for the cause she says propels her: helping people with developmental disabilities. At a recent VIP fundraiser at Ghirardelli Square, Bianchi, 78, beamed in a silver-sequined dress and her signature oversized eyeglasses as she received a state Senate resolution honoring her "outstanding community service" and "high business ethics." Yet some donors to Bianchi's 60-year-old charity have struggled with concerns that their donations were misused, raising doubts they said were never resolved. A Chronicle examination of the public financial records of Helpers Community Inc. - known until 2015 as Helpers of the Mentally Retarded - shows the $6 million charity indeed appears to have strayed from its cause, pursuing questionable practices with scant oversight from a small board that includes its director, Bianchi, and her longtime friend. Over the last decade, filings to the Internal Revenue Service reveal the nonprofit has done little charitable work while amassing millions of dollars in assets and donations and generously compensating Bianchi, as she travels to red-carpet galas from Beverly Hills to Manhattan, appearing alongside celebrities such as Demi Moore, Gwyneth Paltrow and Katy Perry.
 
Helpers' mission statement defines its "most pressing and important goal" as supporting quality residential care for the developmentally disabled. But in the past 13 years, the charity has given nothing to residential programs. And for a six-year period from 2003 to 2008, Helpers gave nothing at all to any charitable cause, according to financial records. Bianchi, meanwhile, has been paid far above the norm for directors of charities. With base compensation of $193,828 in 2015, Bianchi earned roughly $100,000 more than the CEOs of about two dozen similar San Francisco nonprofits, according to a leading charity watchdog group. Five accounting experts and a former bookkeeper for Helpers, who reviewed 18 years of the charity's financial disclosures to the IRS at The Chronicle's request, questioned Helpers' legitimacy as a nonprofit and cautioned future donors about contributing.
 
"It's absolutely appalling; it turns my stomach, actually," said La Salle University Professor Laura Otten, who has advised the nonprofit industry for 30 years. "In the nonprofit sector, we take money from people with a promise. The farther we go away from the mission, the more eyebrows we are going to raise." Based on The Chronicle's findings, the San Francisco assessor's office is reviewing the property tax exemptions Helpers receives as a charity. Bianchi and her board members defend their organization, and dispute any notion they are mismanaging the charity. They consider it "misleading" to characterize Helpers as primarily a grant-making organization, saying their mission also includes consultation and education. Bianchi's compensation is commensurate with her duties, they said, and they believe it would take three people to replace her. Bianchi works as many as 80 hours a week, according to the board. . . .
 
But Helpers granted nothing to any charitable organization until 2009, the group's records show. Since then it has given about $405,000 - primarily to purchase wheelchairs for people with developmental disabilities and to fund Medical Missions for Children, a Massachusetts nonprofit that finances surgeries to repair congenital facial defects in countries such as Tanzania and Cambodia. Other funds have gone to a gardening program for the developmentally disabled and a music program for rural children in Washington state. Bianchi said Helpers has not given more to charities because she has struggled to find suitable recipients. At some residential centers for the developmentally disabled she has visited, she said, she saw scenes that disturbed her, including one resident spending all night sitting in a chair and others receiving too many psychotropic drugs. "I went incognito for about four years traveling throughout the U.S. trying to find facilities we could help," Bianchi said. "It was very difficult to give money away." Asked why Helpers did not give money to prominent residential programs for the developmentally disabled in the Bay Area, such as those operated by The Arc San Francisco, board members declined to comment. . . .
 
By Mark Hedin  mhedin@bayareanewsgroup.com
East Bay Times December 1, 2016
OAKLAND - A triumvirate of local nonprofits is combining forces to boost job prospects for developmentally disabled adults. In Alameda and Contra Costa counties, there are 8,000 to 10,000 adults 22 to 62 years old with conditions such as cerebral palsy, autism and Down syndrome, said Will Sanford, executive director of Futures Explored. His agency provides life skills and work-related training to adults with developmental disabilities. Statewide, the number is close to 90,000, and nationally, it is 2 to 3 percent of the population, he said. But only about 10 percent have regular employment, a number that is pretty consistent nationwide, he said.
 
HireAble, a new venture between Futures Explored, East Bay Innovations and Contra Costa ARC, seeks to improve on those numbers. The three organizations serve about 2,000 clients, with 800 of them adults with intellectual and developmental disabilities. The groups are working to boost prospects for their clients by training workers, screening potential workers to find a good fit with employers' needs and providing support once the worker is hired. Alameda County District Attorney Nancy O'Malley is enthusiastic about the contributions the half-dozen staffers sent her way from East Bay Innovations have made. "It's a very busy office, but we've had nothing but success with them," O'Malley said. She has people with disabilities working as file clerks, in the truancy unit, in the scanning division, in payroll, as assistants to branch heads and at the front counter, helping the public, answering phones, delivering mail and "a lot of ancillary responsibilities."
 
"We have a lot of different jobs, opportunities for people to make a contribution and live independently," she said. The district attorney has had interns rotating through three-month assignments and full-time hires as well. "Not every person can fit into every job," O'Malley said. Dealing with the public at courthouse windows, with the phones always ringing, "can be very hectic," she said. However, workers from East Bay Innovations are trained to support each other when they are working together. They also have a "work coach who oftentimes is with them, helping them process when stressful events happen." She told of how one of her front-desk workers, Brianna, demonstrated an ability to keep her composure when facing "a very agitated" customer who became increasingly aggressive. "That's a time when Brianna needed to step away. She was able to go into the break room and relax and compose herself," O'Malley said. "My experience with our employees is, they go through a lot to get here, do their job well and with pride," she said. They show "a commitment to be a really great employee," on time and rarely absent, she said.
 
"We're very committed to giving opportunities to people who can do the job. I'd really encourage employers to broaden their search," O'Malley said. HireAble's three partners have placed clients in print shops, UPS docks, as cashiers, dishwashers, porters, security guards and in retail. "Historically, Safeway has been great," Sanford said, estimating that intellectual and developmental disabilities workers may number as high as 10 percent of its workforce, in food services, as janitors, landscape workers and baggers. Amazon's Fremont warehouse has about 20 disabled workers. "We're really looking at opportunities to build," Sanford said. HireAble is targeting hospitals, medical services and long-term care facilities as a growing area of employment where their clients would fit in. "Hiring employees with IDD ( intellectual and developmental disabilities) at the Children's Hospital shows our families that their children with disabilities can grow up to be productive members of society," said Susana Garcia, bilingual specialist and family faculty host at the hospital. HireAble is funded by a three-year grant from the Thomas J. Long Foundation. For more information, go to www.HireAble.org. "We just encourage other businesses, don't close that door, because the contributions made by these people is tremendous," O'Malley said. Contact Mark Hedin at 510-293-2452, 408-759-2132 or mhedin@bayareanewsgroup.com.
 
You shouldn't have to be personally affected by something to care about it.
Huffinton Post November 28, 2016
This is an emergency plea to those upset about a pending Trump presidency. I'd like to especially address intersectional feminists, radicals, anarchists, socialists and others in the USA who are able-bodied and drawn towards systems-level analysis and organizing for radical change. People with disabilities and chronic illnesses will die under a Trump presidency. Full stop. We will die because of him. This is an emergency situation and we need emergency solidarity, immediately, from every single one of you. Right now, many of us feel like you do not understand the horror of this situation. Social justice activists, why is ableism so often relegated to the periphery of your analysis? Many disabled people feel right now that they desperately need you and can't find you. Maybe it's the cultural lineage of eugenics and Social Darwinism which has created an ableist norm, a veil of neutrality over what is actually a system of domination. Maybe it has to do with an association between disability awareness campaigns and a vague sense of apolitical softness or even conservatism, as if caring about disability is not the job of radicals, but the job of celebrity doctors, colored ribbon campaigns, and concerned suburban moms. Or maybe it has something to do with a sense of not being personally affected by disability.
 
You shouldn't have to be personally affected by something to care about it, but if helps, here's a reminder: Every single one of you could become disabled or chronically ill at the drop of a hat, and you're going to be living under Trump, too. [Trump's] oft-stated goal of virtually dismantling Medicaid and Obamacare is perhaps the most brazen way in which he will boot-stomp and kill disabled and sick folks. . . .


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FUNDING OPPORTUNITIES

HHS - Department of Health and Human Services Administration for Community Living2017 State Health Insurance Assistance Program (SHIP) Base Grant Synopsis 2http://www.grants.gov/web/grants/view-opportunity.html?oppId=288667
 
HHS - Department of Health and Human Services National Institutes of Health Advancing Research on Alzheimer's Disease (AD) and Alzheimer's-Disease-Related Dementias (ADRD) (R41/R42)Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=290452
 
HHS - Department of Health and Human Services National Institutes of Health BRAIN Initiative: Exploratory Targeted BRAIN Circuits Projects - eTargetedBCP (R21)Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=290458
 
HHS - Department of Health and Human Services National Institutes of Health Discovery of the Genetic Basis of Childhood Cancers and of Structural Birth Defects: Gabriella Miller Kids First Pediatric Research Program (X01) Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=290403
 
HHS - Department of Health and Human Services National Institutes of Health Silvio O. Conte Digestive Diseases Research Core Centers (P30) Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=290404
 
HHS - Department of Health and Human Services Health Resources and Services Administration Autism CARES Act National Interdisciplinary Training Resource Center Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=290411
 
HHS - Department of Health and Human Services National Institutes of Health Limited Competition: Clinical Trials in Organ Transplantation in Children (CTOT-C): Mechanistic Ancillary Studies (U01) Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=290353
 
HHS - Department of Health and Human Services National Institutes of Health Perinatal Stroke (R01)Synopsis 2http://www.grants.gov/web/grants/view-opportunity.html?oppId=289095
 
HHS - Department of Health and Human Services National Institutes of Health Pragmatic Trials for Dementia Care in Long-term Services and Support (LTSS) Settings (R21/R33) synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=290274
 
HHS - Department of Health and Human Services National Institutes of Health Alzheimer's Disease Outcomes Research Resource (U2C) Synopsis 1http://www.grants.gov/web/grants/view-opportunity.html?oppId=290275


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
Jobs Page Links: Click Here
 
The Arc California, the state's oldest and largest membership association for people with intellectual and developmental disabilities and their families and community providers is seeking a new executive director. This is our first notice of this recruitment and we are open to hear from candidates and the community we serve about your skills that you feel help our association advance full participation of our constituents. Formal recruitment will begin next week but this week we begin taking applicant letters and resumes. To submit for this position click here.
 
The Legislative Director position is based in Sacramento and is part of the team responsible for DRC's legislative activities in California. The position reports to the Advocacy Director. The Legislative Director provides overall direction to DRC's public policy activities with the goal of increasing DRC's legislative presence. The position supervises legislative advocates.
 
Under administrative direction, serves to assist the Agency Director and Chief Operations Officer in the overall leadership activities of the Agency, and to provide oversight and management to an assigned branch: Social Services, Behavioral Health, Public Health, or Administration. The Assistant Directors oversee the development and implementation of policies and procedures for branch programs in accordance with state and federal regulations. Assistant Directors delegate responsibilities, monitor assignments, ensure staff accountability and compliance, and oversee information/communication functions. Assistant Directors direct the supervision of other positions as assigned and encourage a supportive work environment with open, honest, direct and respectful communication. In the absence of the Agency Director, may assume responsibility for the budget process, and the allocation of infrastructure, information technology, and fiscal resources throughout the Agency. Acts on behalf of the Agency Director or Chief Operations Office in their absence as delegated.
 
The ideal candidate will have a strong history of leadership in complex behavioral health systems, quality assurance, budgetary and financial management, grants administration, regulatory compliance, and working in a collaborative labor-management setting. The candidate will have a demonstrated track record of successful, strengths-based management, possess excellent analytical and oral presentation skills, and the ability to successfully communicate with a broad variety of stakeholders. A demonstrated aptitude for data-driven quality management is critical to success in this executive position.
 
The Arc Maryland is seeking a new dynamic Executive Director to lead this statewide organization, which is one of the largest grassroots disability advocacy organizations in Maryland. The Arc structure consists of ten local chapters located throughout Maryland providing both direct services and advocacy and is affiliated with the national organization. The Arc Maryland has been awarded Standard of Excellence certification from the Maryland Nonprofits Association.
 
Working closely with the Director of Individual Philanthropy, the Manager is accountable for planning and implementing sustainable fundraising strategies and tactics for the individual giving program in conjunction with The Arc's overall organizational objectives. S/he will identify, cultivate, and solicit donors through a variety of philanthropic channels including direct mail, online, acquisition, major donor and federated giving. This position will require the ability to analyze data to define program success and inform future strategy. She/he oversees the implementation of a donor database for data entry and gift processing. This position will communicate regularly with key donors, including managing a portfolio of major gift prospects. S/he plays a key role in the message creation and dissemination of all fundraising materials. This position must be able to work in a collaborative team environment as well as autonomously to meet fundraising goals.
 
The Health & Human Services Agency (HHSA) of the County of San Diego is seeking online applications and resumes from highly qualified individuals for the position of Director, Aging & Independence Services (AIS) - Public Administrator/Public Guardian. Under the administrative direction of the Director, Health & Human Services Agency, this executive management position and will lead and direct the planning and operations of Aging & Independence Services and the Office of Public Administrator/Public Guardian/Public Conservator. Duties include planning, organizing, directing, and evaluating the administrative and operational activities, and formulating and administering Countywide policies. Salary: $140,000+ Depending on Qualifications
 
This position will share responsibility for reinvigorating and growing The Arc's major gift and planned giving program with the Director, Individual Philanthropy. The officer must have experience with cultivation and closing planned and major gifts. S/he is responsible for identifying, and managing relationships with planned giving and high-capacity potential donors across the country. In addition, the officer will be responsible for a portfolio of planned and major gift donors. S/he possesses exceptional interpersonal skills with the ability to interact effectively with donors and prospective donors. The officer will have excellent organizational skills with particular attention to systems, processes, and details, and possess the capacity to multi-task. S/he will play a key role in the message creation and dissemination of all planned giving materials. The officer must be able to work in a collaborative team environment as well as autonomously to meet fundraising goals. S/he will be required to travel throughout the United States to meet with donors and prospective donors. This position is based in Washington, DC and reports to the Director, Individual Philanthropy.
 
APSE, the Association for People Supporting Employment First, is seeking a dynamic manager and leader to become its next Executive Director. APSE, a 501(c)6 non-profit located in Rockville, MD, is a 3,000+ national and international membership organization whose mission is to advance employment and self-sufficiency for all people with disabilities through education and advocacy. APSE is a stable, 28-year old organization, highly visible within its field and is healthy and growing. APSE has a 5-person staff and is governed by a 16 member Board of Directors. APSE currently has an annual budget of approximately $1,400,000, generated via membership dues and two national events, along with additional revenue sources.
 
The Florida Developmental Disabilities Council is seeking qualified candidates for the Council's Executive Director position.   This is a high-level position that is responsible for the operation of a federally funded non-profit organization charged with implementing the federal Developmental Disabilities Act in Florida. Candidates must possess knowledge of intellectual and developmental disabilities, organizational management, advocacy and public policy, personnel supervision, and system planning, as well as a demonstrated capacity to manage a non-profit organization with a multi-million dollar budget.
 
The Assistant Director of Human Services position is focused on planning, organizing, and overseeing department-wide operations and services; ensuring operational compliance with state and federal laws and regulations; seeking grant and other funding opportunities by promoting departmental and county initiatives; and representing the Director in the community including managing outreach campaigns to inform the public of available services, attending community meetings, and actively recruiting community members for advisory committees.
 
The Executive Director, as the Chief Executive Officer, is responsible for the management and operation of all programs and services provided by Contra Costa ARC, for implementing all policy decisions of the governing Board, and for employing and supervising a staff whose dedication and high morale creates a healthy working environment and produces quality of service more than adequate to achieve Board objectives. S/he oversees the administrative and fiduciary functions of the agency. S/he represents the agency to the community, and builds strong relationships with key stakeholders, agency staff, and the Board. S/he partners with the Board in fundraising to support Contra Costa ARC programs. . .


The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.

The Arc California, 1225 8th Street, Suite 350, Sacramento, CA 95814
 
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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494