Please help support the Monday Morning Memo. Send your annual $25 check to 1225 8th Street, Suite 350, Sacramento, CA 95814 or signup online for "The Arc California Membership"
Note: The Arc is not an acronym; always refer to us as The Arc, not The
ARC and never ARC. The Arc should be considered as a title or a phrase.
Tony Anderson, Executive Director, The Arc California
Over the weekend we attended the California Chronic Care Coalition's
inaugural "Stars of Advocacy Fund Raising Gala" in appreciation of
people who've made significant contributions in the lives of people with
chronic conditions through outreach and education. Special
congratulations to Amy Wall, from the Department of Developmental
Services, for her important contributions, Herb Schultz (former
President Obama CMS official), Senator Darrell Steinberg, Senator
Richard Pan and many others.
Monday February 1, 2016
On the first Monday in February the President submits budget to Congress.
We'll be meeting with our development consultant from aoStrategies to follow up on proposals to increase our advocacy capacity.
Tuesday February 2, 2016 - Ground Hog Day
NorCal will be hosting an event today, "FASD: Your Most Difficult
Clients at Any Age" from 8:30 am to 4:30 pm at the San Jose Masonic
Center, 2500 Masonic Drive, San Jose, CA 95125. The event will feature
renowned expert Kathryn Page, Ph.D. co-founded the FASD Diagnostic
Clinic at Santa Clara Valley Medical Center. "Have alphabet soup of
diagnoses: ADHD, Depression, Bipolar, PTSD, RAD, SUDS, ODD, Borderline,
OCD, ASD and have a history of: Unemployment, chaotic/abusive
relationships, unstable housing, petty crime, substance use problems,
school failure? YOU MAY HAVE TRIED: CBT, DBT, Motivational Interviewing,
client-centered reflective talk therapy, trauma-informed therapy,
cultural competence ...and no one's getting any traction. Frustrated,
client drops out or gets discharged, continues downward spiral. What are
we missing? Could it be that this client prenatally exposed to alcohol?
Attend a NO-FEE all-day training focusing on our most difficult clients
and family members. Come learn about Fetal Alcohol Spectrum Disorders,
FASD, (affecting roughly 5% of the population) - learn how to recognize
and successfully support people with FASD." Please read this document with specific learning objectives earning a 6 unit CE credit available. No FEE or nominal $30 cost for psychologists. PSYCHOLOGISTS ONLY 3 SimpleStepstoYourCert.pdf ( 304KB pdf), Course Description Final.pdf ( 179KB pdf), Directions & Map .pdf ( 164KB pdf).
Wednesday February 3, 2016
We'll be meeting with Chris Littlefield, of AcknowledgementWorks, about their "Art of Acknowledgment & Engagement (TedTalk)" programs which is starting to be used is various parts of the country in developmental services.
Conference Planning committee co-chaired by Betsy Katz and Pat
Napoliello, will be meeting to review the latest developments for the
upcoming conference march 6-8, 2016 in Sacramento. "We are so excited to
announce our confirmed lineup of featured keynote speakers to
compliment the 50+ content experts. Dr. Laura Brackin is back by popular
demand returning this year to update on the CMS new rules and talk more
about the intersection with person-center planning. Emily Travis is
nationally renowned speaker from the National Organization of Fetal
Alcohol Syndrome who has a powerful message and story to tell. The Los
Angeles News Group editorial team will receive thanks and recognition
for their coverage of the community system collapse - you'll want to be
here to personally thank them. The California Health and Human Services
Agency Secretary Diana Dooley will be our our Monday lunch keynote to
provide an update on the Secretary's work on the future of developmental
centers and the community system for people with developmental
disabilities. Commissioner Aaron Bishop, Administration on Intellectual
and Developmental Disabilities (AIDD) will be joined by the California
Developmental Disabilities Act partners to talk about a variety of
administration priorities and how the partners are advancing these
Thursday February 4, 2016
be participating in an update call with our national public policy team
to discuss, ABLE Updates, WIOA, HCBS, Education, and a variety of
related Appropriations issues. Members are welcome to join the meeting,
call (916) 552-6619 to get the call-in number.
We'll be joining the Lanterman Coalition team of advocates meeting with Senator Steven Glazer and others throughout the day.
be working our new website with The Arc of the United States to improve
the user experience and advocacy outcomes for our constituents.
The National Conference of Executives of The Arc will be meeting to prep for the upcoming summer leadership institute which will be held at theRenaissance Palm Springs Hotel (888 E. Tahquitz Canyon Way, Palm Springs, CA 92262) from July 18th-July 20th, 2016.
THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION: Public Policy Reports
we promised last week, the Lanterman Coalition has created an update
report and talking points related to the 10 Campaign. In summary it says
the 10% across the board proposal is that best proposal to stop the
current system wide collapse of community developmental services. If
lawmakers compromised away from an across the board resolution the best
targeted approach would be to target funding to the workforce and all
workforce related expenses. The increase should be flexible, simple and
require accountability reporting. Since all parts of the community
system are collapsing at once, an across the board relief would be the
best first step to rebuilding the community system and remains our
In 2016, The Arc will be launching a new program initiative to
establish a National Center on Special Education Advocacy called The
Arc@School. The initiative will build the capacity of chapters to
provide individual advocacy support, with paid or volunteer non-attorney
advocates, to help students with I/DD and their families successfully
navigate the special education system.
plan to find what's working best at chapters and then spread the
success. If you think your chapter is already doing a great job in this
area and you think you can provide examples of "best" or "promising"
practices, please let us know by email to email@example.com. We look forward to hearing from you.
1048.1. (a) In scheduling a trial date at an arraignment in superior court involving any of the following offenses,reasonable efforts shall be made to avoid setting that trial,when that case is assigned to a particular prosecuting attorney, on the same day that another case is set for trial involving the same prosecuting attorney:
(1) Murder, as defined in subdivision (a) of Section 187.
(2) An alleged sexual assault offense, as described in subdivisions (a) and (b) of Section 11165.1.
(3) An alleged child abuse offense, as described in Section 11165.6.
(4) A case being handled in the Career Criminal Prosecution Program pursuant to Chapter 2.2 (commencing with Section 999b).
Tim Hornbecker, Director of Advocacy and Community Organizing
PROJECT STATUS REPORT
Community Organizing and Advocacy Report
Letter to the Governor
Dear Governor Jerry Brown,
is what your current budget for developmental disabilities provides. At
a Town Hall Meeting last week in the East Bay, over 120 parents,
siblings and their family members with disabilities shared their anger
and frustration. They were given a 2 day notice that their paratransit
company would be changed from MV to A-Paratransit. Yes, two days!! The
new company was awarded the new bid, in part on the basis that they were
the lowest bid, one of the state requirements for contracts. Well here
is what your low bid within your current budget buys!
mother has three children with disabilities. "Your transportation
system is a mess. They didn't pick up my 2 daughters and was told that
drivers had no room on the bus for them. It was 12 PM by the time the
drivers came to pick them up. I have a right to be angry. They are my
daughters! My children have been crying when they can't get picked up to
go to their program. They have been over 2 hours late getting home!"
parents literally called the police when they couldn't get through to
the transportation company. Their adult children had been on the bus
since 2:30 PM without their medication or food. They needed to get their
meds to them! The bus finally showed up 3 houses down the block at 8
PM! (5 ½ hours on the bus, can you believe it!) The parents asked the
Regional Center Representative and the bus company, "How long can you
sit on the bus and not pee?" Another bus dropped off a young woman in
her wheelchair in the middle of the road on a very busy street in front
the family's home. The parents were irate! They are now driving their
daughter themselves, even though they don't have an accessible vehicle.
They don't know how long their backs will last when transferring her in
and out of their car.
spoke for themselves. "I have a pet and I have to get home to feed him
on time." Others exclaimed that they couldn't help "wetting and pooping
in their pants." Or "I need to eat and take my diabetes medicine in the
morning, but the bus now comes at 6:30 AM instead of 8 AM; I just can't
get ready in time."
brother in law has special needs. He is special. He has a soul just
like all of us. How can you treat him like this?" If this is all the
money that the State has to spend on the transportation and support
services of our most vulnerable, we should be ashamed! Pass the 10%
budget increase NOW!
Come on California. Really? We're better than this!
are the comments from The Arc and UCP California Collaboration related
to the warning labels on alcohol related to Fetal Alcohol Spectrum
Disorders. We have been working on this issue for several years and
we're coming upon possible resolution of issues identified by experts
and families on the CA FASD Task Force. While the comment period has
passed, letters to the director could still be helpful. We have a
follow-up meeting this Wednesday.
January 25, 2016
Monet Vela Office of Environmental Health Hazard Assessment
P. O. Box 4010
Sacramento, California 95812-4010
SUBJECT: Alcohol Warning Signs
Dear Ms. Vela:
Arc and United Cerebral Palsy California Collaboration, a coalition of
people with intellectual and all developmental disabilities and their
families, friends and service providers, submits the following comments
on the proposed new Article 6 of Title 27 of the California Code of
alcohol spectrum disorder (FASD), a birth defect, is at epidemic
levels. It is one of the two leading causes of developmental
disabilities in the United States, close to or exceeding autism spectrum
disorders. At least one percent of people in the United States may have
FASD, and some evidence suggests that is could be as many as five
percent. Among women in California in 2006-07 who reported that they
were trying to get pregnant -- and who could not know whether they were
pregnant yet -- 50 percent also reporting drinking in the last month. We
defy anyone to tell us this does not constitutes a public health
your office's current regulations require each alcohol retailer to
prominently post warning signs, compliance is spotty at best. A walk
through even a few stores, bars, and restaurants reveals warning signs
that are inconspicuous, incomplete, obstructed, on moving doors, printed
in type that is hard to read even in good light, or most often, missing
entirely. Contrast this with Oregon, where compliance with their
similar law is much more widespread.
the proposed new Article 6 represents some progress toward warning
women of the grave risks of FASD, it falls far short of the
recommendations we have made repeatedly since February 9, 2012, and we
believe it does not adequately address this health emergency.
Our specific suggestions follow.
the proposed new regulations appropriately relieve alcoholic beverage
distributors of responsibility for placing or maintaining the warning
signs, putting responsibility on retailers where it belongs, they do not
meet the Health and Safety Code Section 25249.11 requirement that OEEHA
minimize the burden on retailers and they do not go far enough to
assure that retailers know and are accountable for complying with the
regulations should require distributors to annually notify retailers of
the warning requirements and to offer retailers, at no cost, signs that
the retailers can use to meet the requirements. This would be the
single most important step toward widespread voluntary compliance.
Without it, we see little good that any other regulatory changes will do
in the real world.
the alcoholic beverage warnings should not be subject to the provisions
of the proposed Section 25600.2 that allow agreements to shift
responsibility from retailers to distributers. Almost every alcohol
retailer has many distributors. Allowing them to shift responsibility to
some or all of their distributors would put an enormous burden on
concerned citizens who want to complain about noncompliance. Even in
cases where concerned citizens can somehow find out which distributors
are responsible for which violations, it's very unlikely that these
usually large, usually distant distributors would be as responsive to
complaints as the owners and managers of local retail businesses.
Methods of Transmission
current warning signs, when there are any posted at all, often are
virtually invisible -- a cynic might think deliberately so. The
regulations should require that the signs be: (a) displayed so that they
are clearly visible under all lighting conditions normally encountered
during business hours, (b) unobstructed, (c) at eye level for persons in
the range from adult women of average height standing to adult women of
average height in wheelchairs, and (d) stationery.
Finally, we continue to believe that the language of the warning signs needs to be much more noticeable and much clearer.
signs should begin with the words "ALCOHOL WARNING," not simply
"WARNING." Most people most of the time will stop reading at the
heading, and they should at least be aware that there is something about
alcohol that requires a warning. Further, to stand out a bit more from
the noise of advertising and notices of all kinds that everyone is
subject to, those words should be in bright red. The words "birth
defects" should come before "cancer risk" on the signs. By putting
"cancer risk" first, the proposed language would assure that many people
will stop reading right there because they think everything caucus
Instead, we suggest:
alcohol while pregnant can cause birth defects. This includes any
amount of alcohol, in any form, at any time during pregnancy. Alcohol
also increases cancer risks.
"For more information go to ...."
Thank for your consideration of these urgent requests to help end this epidemic.
Greg deGiere Public Policy Director
The Arc and United Cerebral Palsy California Collaboration
Eighth Street, Suite 350, Sacramento, California 95814 916-552-6619 x4
(office), 916-223-7319 (mobile), 916-441-3494 (fax) Greg@TheArcCA.org
Teresa Anderson, MPH
The Arc California
February 18 &19, 2016
It's a New Day... It's a New Life Conference:
Preparing for Dramatic Changes in the Developmental Disabilities System
Including Self-Determination Program and New Federal Mandates for
Inclusion at the DoubleTree by Hilton Hotel - Los Angeles Westside
(near LAX Airport), 6161 West Centinela Ave, Culver City, CA 90230.
"This statewide conference is designed for self-advocates, family
members, service providers, Regional Center staff, and other
professionals - across ALL developmental disabilities. The
developmental disabilities systems at the state and national levels are
experiencing a huge paradigm shift - a shift away from institutions and
segregated settings and a move towards individuals living, working, and
socializing in the general community." Speakers include: Ari Ne'eman - Founder and President, Autistic Self Advocacy Network, Washington, DC, leading self-advocate, Sally Burton-Hoyle - Professor, Eastern Michigan University and expert on person-centered planning, Jim Knight - Department of Developmental Services (DDS), Dohn Hoyle - Former Executive Director, The Arc of Michigan and expert on self-determination and supported decision making.
February 26 - 27, 2016
TASH 33rd Annual Conference and Meeting: Join us in Sacramento for the
33rd Cal TASH annual conference February 26 - 27, 2016. This two-day
conference includes breakout sessions both days, a Town Hall meeting
with CA legislators Friday morning, two keynote presentations, and the
ever-popular Cal-TASH Bash Friday evening complete with food, music, and
good conversation. More registration details: http://events.r20.constantcontact.com/register/event?oeidk=a07ebvy61onbf82ad5c&llr=zmnwonoab
March 3-4, 2016
The 15th annual interdisciplinary conference celebrates MAXIMIZING POTENTIAL FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES,
offering a unique update for primary care and subspecialty health care
professionals and others who care for children, youth, and adults with
developmental disabilities and complex health care needs. The 2016
conference continues to cover topics across the lifespan on a broad
range of developmental disabilities including autism spectrum disorders,
Down syndrome, and co-morbidities of dementia and aging with
developmental disabilities. Experts will discuss how systems of care
will be transformed for the 21st century for children and adults with
developmental disabilities. Perspectives of various California
departmental spokespersons will provide insight on planning for improved
services to help maximize the potential of people with disabilities. Of
special interest will be discussions of developmental disabilities plus
deafness, resources and treatment modalities, and the development of
communication with its implications for autism spectrum disorders and
of Children with Special Needs (FCSN) presents Special Needs Talent
Showcase, sponsored by Golden State Warriors (our NBA Champions). "Come
spread your invisible wings and reach for the stars. You can join
Special Needs Talent Showcase as an individual or as a group. All types
of performances are welcomed - musical acts, dancing, comedy, magic
acts, martial arts, acrobatics, etc. Participation medals will be
awarded to every contestant. Trophies and prizes will be awarded to all
finalists at the Final Competition. All individuals with developmental
disabilities are encouraged to try out and have the chance to enjoy an
extraordinary experience! Preliminary Auditions: Judges: Executive
Directors from 2 of the Regional Centers, Javier Zaldivar, and Jim
Burton, prominent musician and band director, David Ladd Anderson,
Disability Awareness Day entertainment coordinator and board member of
Music Therapy Association, Jody Wilfong. Final Competition: March 19,
7pm-9:30pm at Santa Clara Convention Center. Entry Forms: Download
attached flyer& entry form or www.fcsn1996.org. Contact: Kelly at SNTalentShowcase@gmail.com or 510-739-6900 ext 3318.
Ten finalists will advance from the Preliminary Auditions to compete in
the Final Competition. Honorable Mentions will be selected to perform
at the event. The top 3 finalists will win a promotional video, winner's
trophy and $500 cash, other finalists will receive $100 and trophy of
recognition. Tickets ($20 per ticket) to see the Final Competition.
April 11 - 13, 2016
The Disability Policy Seminar 2016
will be held from April 11-13, 2016 at the Renaissance Washington, DC
Downtown Hotel. Who Should Attend? Self-advocates; Parents and family
members of individuals with disabilities; Board members, staff,
trainees, and volunteers for disability organizations; State and local
public policy committee members; Public policy staff; or Constituents.
During this crucial election season we need you in
Washington, D.C. to help us build bipartisan support on Capitol Hill
for high-priority disability issues. When you attend the Disability
Policy Seminar, we'll arm you with all of the information you need to
help educate our Members of Congress and their staff on the priorities
of the I/DD community. Then, you can return to your hometowns with the
ability to spread the word, educate new advocates and reach out to the
candidates to help put the needs of people with I/DD front and center on
the campaign trail this year.
the study findings show persistent disparities in access to services
and expenditures for people with IDD. Surprisingly, only 76% of people
with IDD received any paid services from the state regional center
program in 2013, which was lower than the 79% in 2005. As shown in 2005,
logistic regressions showed that client needs predicted 6.1% of the
variance in access to services and 7.5% of the variance in 2013. The
nonallowable factors predicted more than two times as much variation in
access to services as client need predicted in both time periods,
showing disparities in service use. After needs were taken into account,
younger clients (3-21) had significantly lower odds of receiving
services than those age 62 and older and lower expenditures than people
age 62 and older in both time periods. Some children may be receiving
services through the school system while others may be cared for by
their parents and families. Nevertheless, age disparities in access to
services warrant more study to understand these differences and whether
children and the aged are being given adequate services and sufficient
funds to provide for their needs.
lower access to services by all minority groups is striking, after
controlling for need, age, and Medicaid status. Asians and Pacific
Islanders, African Americans, Hispanics, and other races had
significantly lower odds (9% to 29% lower) of receiving any services
than did white populations. This pattern was similar to the findings in
2005. For those people in minority groups who received services, their
expenditures were significantly lower than those of white populations,
controlling for need and other factors in both time periods. When a
dummy variable for residential care services (out-of-home living) was
included in the model, minorities continued to have lower expenditures.
findings on racial/ethnic disparities are consistent with the findings
from other studies of IDD, mental health, and long-term care (Alegria et
al., 2012; Bui and Takeuchi, 1992; Cauce et al., 2002; McCallion et
al., 1997; Pruchno & McMullen, 2004; Scott & Havercamp, 2014).
Disparities in access to services by minorities may reflect
institutional racism (e.g., housing, neighborhood, and educational
quality, and other resources differences) and cultural discrimination
(Williams, 2012; Williams & Mohammad, 2013). The individual or
family's familiarity and comfort with navigating the service system,
understanding rights to services, the availability of services, and
knowledge of how to access services may be factors. People from minority
groups may be less able or willing to question and challenge
professional judgments and to ask for arbitration of disagreements
regarding service allocations. Language other than English may also be
an important barrier to services. A lack of match between client and
provider race/ethnicity could be another factor.
living in some regional center areas had higher odds of receiving
services and expenditures compared to other centers, after controlling
for differences in client need and predisposing/enabling factors.
Regional center staff assessment and case management procedures or
cultural competence, along with regional center staff and provider
discrimination, could be other factors. Clearly there is a need for
comprehensive efforts to remove barriers of language, geography, and
cultural familiarity, as well as provider stereotyping and
discrimination (IOM et al., 2002). Without a strong state and regional
center effort to activate and empower clients and families to reduce
disparities, changes are not likely to occur. Some models have been
developed to address disparities, such the strategies developed by Chen,
Mullins, Novak, and Thomas (2015).
variation may be related to differences in regional center budget
allocations, administrative decision-making practices, and management
policies, as well as differences in staff expertise, commitment, and
experience. Regional center funding allocations do not take into account
client need and disparities in access (California Department of
Developmental Services, 2015b). Making adjustments to funding
allocations based on client need and to address disparities may improve
the equity in access across regional centers.
overall funding levels for reginal centers may account for some of the
lack of services to some clients and the patterns of inequity in access
shown in this study. In 2013, California ranked 42th among states in its
per capita spending on HCBS services for people with IDD services
(Braddock et al., 2013b; Ticha et al., 2013). Although there are no
formal written waiting lists for the IDD waiver in California, there
have been informal reports of waits for appropriate services and
problems with the allocation of waiver services (Ng, Harrington,
Musumeci, and Reaves, 2015). Thus, limited funds and availability of
HCBS are probably important contributors to disparities in access to
services and expenditures. Ensuring adequate IDD funding for HCBS to
eliminate disparities could have potential savings and benefits, such as
reducing hospitalization and other medical care costs (Cook, Liu,
Lessios, Loder, & McGuire, 2015) ...
with developmental disabilities, their family members, and staff from
the Arc of San Diego packed senator Marty Block's office on January
22. "Finally, a legislator opened the door to us," said Raquel Vasquez,
an outreach coordinator for the nonprofit that provides services for
people with disabilities. According to Vasquez, California's disability
community has not had a funding increase since 1999. Because last
year's budget failed to produce a promised 2.6 percent increase, the
community has taken to holding demonstrations outside lawmakers' offices
and crowd-funding to purchase billboards to raise awareness of their
plight. Steve, who receives Arc services, was extremely nervous in the
foyer while signing into the guest book. "I never spoke in front of a
senator before," he said. But once inside Block's office, Steve's
talking points were clear: "Most of the people who used to work with me,
they want to make more money, so they have to leave, and they leave all
these clients without no job coach, and we don't like it. It's, like,
'You're not going out today, you're not going out tomorrow....' We lost
five job coaches last year."
who represents District 39, told the group: "We think it's important to
increase the minimum wage for workers who are barely making it, but
we've been told by several providers [of disability services] that if we
increase minimum wage it will hurt them because they can't afford to
pay any more than they're paying. So, we're looking at some way to tie
an increase in minimum wage to an increase in funding for various
providers in the [Department of Developmental Services] community.
haven't gotten any consensus yet; that's one of the things we're
looking at. We are aware of the problem because most Democrats in
Sacramento support increasing minimum wage, but there are these
unintended consequences." Some programs that provide services to the
disabled have already shut down. Clients could lose job training,
supported-living programs, job coaches, and other services.
client named Sandy told Block that through the Chula Vista Arc she has
learned to cook and to speak up for herself. She also learned to paint
and presented Block with one of her paintings. There is money in
governor Jerry Brown's 2016-2017 budget, but many in the disabled
community believe they are being used as pawns. Brown is seeking a new
health-plan tax, and in order to ensure Democratic and Republican
support he has tied a disability increase to the passage of the tax. Joe
Tontodonato, director of Community Living Services, told Block,
"There's about 300 employees that fall under my department. When minimum
wage went up on January 1, most of them were getting paid less than ten
dollars [an hour], and these are folks providing essential care, folks
administering powerful medications to our clients.... We lose good
staff to McDonald's, to Starbucks. "We feel, to a certain extent, we've
been strung along. Now there's a surplus [in the California budget],
but our increase is bootstrapped to a health-plan tax. We really need
support. There is a sense of urgency here."
responded: " I understand the problem; the harder part is figuring out
the solution. Governor Brown talked yesterday in the state of the states
speech about putting a lot of money into a rainy-day fund; saving for a
rainy day is what my grandmother told me to do, but it's raining, and
certainly in your industry."
clients are concerned about their future. Joe, an El Cajon client,
said, "My interest for them is to fix the bill, to make it successful so
we can live independent.... I was in an institution in l953-'59, when
governor Pat Brown was in office. Afterward, Arc placed me in a regular
job for 25 years." Karen, another client, said she was worried about
losing rights the Lanterman Act provides. This act, passed in 1969, says
people with disabilities have a right to services and "to live like
people without disabilities. If you take them away from us, what I heard
just a couple years ago... People were saying we might end up back in
institutions, but we don't want to go back to institutions; we like
going into the community and going forth."
But we implore the governor and legislators to consider California's
individuals with intellectual and developmental disabilities as a high
priority as they do their "political dance" in Sacramento; as they forge
a final state budget in the months ahead. California's 290,500
individuals with intellectual and developmental disabilities rely on
state-funded programs for survival and to develop skills that may help
them live as independently as possible. The long-established state
Lanterman Developmental Services Act guarantees these people and their
families necessary services and support. California provides services to
individuals with intellectual and developmental disabilities in two
The vast majority resides with their families or in community
facilities, and receives state-funded services from "vendors," such as
the New Advances for People with Disabilities, or NAPD, and
Bakersfield's BARC. These vendors are coordinated by 21 non-profit
regional centers, including the Kern Regional Center.
A small number of individuals reside in three state-operated
developmental centers, including one in Porterville, and one
state-operated community facility. Proposals are underway to close these
facilities, transferring residents and revenues to local programs.
not about to bog this discussion down with confusing state revenue
projections, tax reform schemes and political maneuvering. Rather, a
recent report by the Association of Regional Center Agencies summarizes
the situation best: The system for helping California's people with
intellectual and developmental disabilities is "on the brink of
collapse." Funding for state programs took a big hit during the 2009
Great Recession. And going back a decade more, the state's reimbursement
rate to vendors has failed to keep pace with increasing costs and the
expanding need for services. As a result, the number of vendors
available to provide services to California's individuals with
intellectual and developmental disabilities has drastically declined. In
2010, there were more than 39,000 vendors; today there are less than
29,000. Without an infusion of state funding, there will be even fewer
vendors tomorrow. Authors of the report, "On the Brink of Collapse,"
noted that California spends the least in the nation on people with
developmental disabilities, but has some of the highest caseload ratios
in the country. Among the recent losses reported were 435 beds due to
program shutdowns and 1,300 day programs and work option cuts...
as we move forward to balance the need to prudently reserve state tax
dollars to hedge against a future rainy day with the desire to spend on
existing and new programs, we must realize that for individuals with
intellectual and developmental disabilities - people who constantly
struggle just to maintain a fraction of the quality of life most of us
take for granted -- every day is a "rainy day." Darla Benson is the
executive director of New Advances for People with Disabilities in
Bakersfield. For more information, go to www.napd-bak.org
California's budget is balanced with a $3.6 billion surplus, agencies
that provide services to individuals with developmental disabilities say
Gov. Jerry Brown's proposed spending plan for fiscal year 2016-17 puts
their agencies at risk of collapse.
state is the eighth-largest economy in the world but spends less than
any other state in the nation to support individuals with developmental
disabilities, said new Community Gatepath Chief Executive Officer Bryan
Neider. Since 2008, the state's Department of Developmental Services has
suffered more than $1 billion in cuts. "Californians should be
outraged, once again, individuals with developmental disabilities and
their families are being shortchanged by Brown's budget," Neider said.
Redwood City-based Gatepath provides direct support services to more
than 14,000 individuals with special needs and disabilities. "Our
population is one that doesn't get a lot of attention. It's not a large
constituent group. We are trying to raise awareness so people can
understand the assault on caregivers, families and the individuals we
care about. The support has withered away," Neider said.
money set aside to support the population has "slowly been bleeding
out" and it's been a two-decade long process, he said. If California
does not implement an across-the-board 10 percent restoration of funding
in 2016, an estimated 302,000 children, youth and adults with
developmental disabilities will lose many more of the crucial services
that support their needs and prepare them to actively participate in
their schools, communities, workplaces and at home, he said. Gatepath
does have a strong donor base, he said, but some services are at risk of
being cut next year. The agency is losing money, he said. "The state
has to step up. We are one agency in one county but this is a bigger
problem," Neider said. Even Republican leadership in Sacramento agrees.
State Sen. Jim Nielsen, R-Gerber, said after Brown released his budget
that "programs that provide care to the most vulnerable Californians
like Developmental Disability Services have not been adequately funded."
He has introduced Senate Bill 818 to provide permanent funding in the
state budget. It provides a 10 percent rate increase for certain
developmental service providers and regional center operating budgets.
Brown's proposed budget released Jan. 7 does earmark $80 million for one
year to fund a couple of very specific, minimally utilized programs,
it does nothing to address the needs of more than 90 percent of
Californians with developmental disabilities who receive support and
services that are not included in the governor's proposal," Neider said.
The state's system of care is set up to support individuals with
disabilities, like those with autism, cerebral palsy and Down syndrome,
throughout the span of their entire lives, according to Jenni Moran,
executive director of Desert Haven Enterprises, a nonprofit organization
that serves people with developmental disabilities in northern Los
Angeles County. "They don't need just one year of care, as the governor
suggests in his proposed budget; they require a lifetime of care," she
wrote in a statement. With the reduction from the state, donors are
being asked to give more. "There are no other levers to pull if funders
don't come through," Neider said. firstname.lastname@example.org, (650) 344-5200 ext. 102.
- Department of Health and Human Services Centers for Disease Control
and Prevention Building Capacity of the Public Health System to Improve
Population Health through National, Nonprofit Organizations financed in
part by 2016 Prevention and Public Health Fund Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=281149
Arc of California posts job announcements in the Career Ladder section
every week because we would like to contribute to steering quality
candidates to professional positions that support people with
disabilities and we are trying to communicate to Direct Support
Professionals that there is a real "career ladder" in their chosen
Executive Director serves as the public presence and chief strategy
officer for this exciting, progressive, and values-based organization.
TASH is seeking a candidate who can find solutions where others see dead
ends; believes in the capacity and human rights of people for whom TASH
advocates; and who finds this leadership opportunity in a social
justice advocacy organization personally and professional
motivating. The Executive Director works with and coordinates TASH's
priority activities with the Board of Directors, Chapters, and TASH
Committees. The Executive Director is responsible for translating the
association's mission into action through collaboration with both
internal and external constituencies, advocacy, and education. Ability
to travel is an essential part of the Executive Director's duties, as is
the ability to communicate powerfully about the organization's mission.
The Executive Director is responsible for all organizational functions,
including supervising & evaluating staff, and reports directly to
the Executive Board. This is a full-time, at-will position.
Deputy Executive Director position is responsible for assisting the
Executive Director in all aspects of the operational management and
advocacy efforts of the County Behavioral Health Directors Association
of California (CBHDA). The position reports to the CBHDA Executive
Director, and supervises assigned analysts and support staff.
Director will be responsible for managing the start-up and ongoing
operation of The Arc's new Center for Special Education Advocacy
(TheArc@School). The focus of this new Center will be to advance the
practice of lay advocacy in special education, thereby helping students
with intellectual and developmental disabilities to realize the promise
of a free, appropriate public education in the least restrictive
environment as guaranteed by Federal and State law. The goal of the
Center is to improve the educational experience for special education
students while in school, increasing rates of graduation with high
school diplomas and improving post-secondary outcomes, including
employment, college or continuing education and community living.
position will provide executive leadership, oversight, and direction
for Community Based Services, a major segment of the Department of Human
Services' Direct Treatment and Care program, to ensure quality
person-centered care, treatment and training are provided to individuals
Manager of Advocacy and Government Affairs will foster and cultivate
relationships with rare disease patients and patient organizations as
well as federal and state government officials. This role is designed to
empower and engage patient advocates to achieve legislative victories
on behalf of the rare disease community. The Manager will be responsible
for assisting with legislative activities (advocacy and lobbying),
writing and disseminating action alerts, and managing monthly
legislative calls and newsletters. This position will perform relevant
administrative tasks when needed and may need to support other projects,
depending on the Foundation's requirements.
Association of Regional Center Agencies (ARCA) has an opening for a
Fiscal Analyst. The position requires a minimum of 5 years experience
working as a senior accountant, fiscal analyst, controller, or in a
related field. Experience coordinating information technology (IT)
projects and IT support. Experience in developmental services or the
non-profit sector preferred. This position will remain open until it is
filled. Interested candidates are encouraged to send their resume and
salary history to Sally Williams at email@example.com.
The Fiscal Analyst performs general budgeting and accounting functions
for the ARCA office; coordinates training and support to the Chief
Financial Officers of the member regional centers; provides analyses of
various data and information; analyzes budget documents, regulations,
and legislation for fiscal and administrative impact to regional
centers; and prepares fiscal reports for use by the agency, ARCA Board
of Directors, and the Department of Developmental Services.
Program Manager for the Community Mental Health Agencies Provides a
variety of program management, administrative and clerical support to
the Association. Duties include researching/compiling information;
coordinating calls, meetings and committees for the Association;
maintains electronic files and data; generates and formats meeting and
committee reports, and other documents using full range of software
skills including spreadsheets, word processing, desk top publishing,
presentation software, data base management; assumes responsibilities
for special projects; attends board meetings and committees for
administrative support; researches and analyzes data to develop reports
for management decision-making. In addition, this position
American Civil Liberties Union of California (ACLU-CA) seeks an
outgoing, results-driven, and experienced advocate who is passionate
about advancing many of the most important - and sometimes controversial
- struggles for civil rights and liberties in our state.
Director of Public Policy strategically guides the California Child
Care Resource and referral Network (The Network) and its member agencies
in budget and legislative analysis and in public policy education and
advocacy efforts. This position requires the employee to be present in
Sacramento approximately 80% of the time.
The Arc California 1225 8th Street, Suite 350 Sacramento, CA 95814 916.552.6619
Advocates for people with intellectual and all other developmental disabilities and their families since 1950.