tony@thearcca.org
tag line
June 20, 2016  
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Editor's Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Tony Anderson, Executive Director, The Arc California
Monday June 20, 2016
From today through Friday the 8th International Disability Law Summer School will take place in Galway, Ireland, with the theme "Bringing Rights Home: Civil Society Impacting Change". Advocates can monitor the event through a live stream, twitter with the hashtag #DSS16 and on Facebook. The program schedule includes the "kick-off session Looking Back: A Key Moment in World History - The Drafting of the Americans with Disabilities Act (ADA) which will feature retired US Senator Tom Harkin, a co-father of the ADA, John Wodatch, the Former Director of the Disability Section of the Civil Rights Division in the US Department of Justice, and Judith E. Heumann, Special Advisor for International Disability Rights in the US Department of State... free, open-access, captioned videos of the sessions will be hosted on our YouTube site approximately 10 days after the School closes and that previous Schools are up there already."
 
We'll be meeting with Deborah Levy, Executive Director, United Cerebral Palsy Orange County, to talk about a variety of policy issues impacting their organization and the children and families they support.
 
We'll be meeting with Kelly Kulzer, Co-Chair of the California Down Syndrome Advocacy Coalition, to discuss joint efforts in advocacy on responding to the recent "Special Ed's Brewery" offensive promotion (see the news articles for more on that) and to advocate on addressing problems association with the Every Student Succeeds Act (ESSA).
 
Tuesday June 21, 2016
The Social Emotional Outcomes Collaborative will be hosting training, Paying for Parent Engagement, from 12-1pm featuring presenters: Debi Tucker, Nora Thompson, & Patrice Linehan. "We will continue our discussions from Phoenix on how states are finding funds to get families involved, what that looks like, etc. We can brainstorm with states on ideas for getting this started (if not done already), what "payment" can mean, and why this is important. This is a totally discussion-based activity. So participants should come prepared to talk-- sharing what they currently do and what they'd like to do, and preparing questions they need help with answering to move this forward in their work as we enter Phase 3! SEO CSLC WebEx Access Information: Meeting number: 596 654 819,  Conference line (877) 413-2826, Conference code: 9659126924# link: https://ncsiwested.webex.com/meet/seocslcgmail.com
 
The state and local Chapter Executive Directors of The Arc will be meeting by conference call from 12:00 pm to 1:30 pm to discuss "Candidate Education and Rules of the Game." Texas attorney Natalie Roetzel Ossenfort will be speaking on this timely topic to help us learn how to educate candidates on issues that are important to members and community during this election year.
 
We'll be participating in The Arc US Board Development meeting, chaired by Nancy Webster, past president, as we continue our work to recruit a high quality diverse board of directors for the future leadership of The Arc.
 
Wednesday June 22, 2016
Briefing to Release Social Security and Medicare Trustees Reports Announced For June 22, 2016. WASHINGTON - On Wednesday, June 22, 2016 at 10:30 a.m. EDT, Treasury Secretary and Managing Trustee Jacob J. Lew will be joined by members of the Social Security and Medicare Boards of Trustees - Health and Human Services Secretary Sylvia M. Burwell, Labor Secretary Thomas E. Perez and Acting Social Security Commissioner Carolyn W. Colvin- for a press briefing to discuss the release of the annual Trustees Reports.
 
We'll be meeting with national staff of The Arc to discuss a variety of issues important to the membership of The Arc California. Joe Meadours, self-advocate board member of The Arc California will also be participating in this feedback meeting. Information from this meeting and other similar meetings across the country should be helpful in identifying the national priorities and purpose of The Arc to people unaware of the many benefit The Arc provides all communities.
 
Thursday June 23, 2016
We'll be participating in the Quality Assessment Project Advisory Group at the Department of Developmental Services (DDS) from 10:00 a.m. to 3:00 p.m. The department is reaching out to stakeholders to ensure the quality of life and services for individuals with developmental disabilities statewide. The Quality Assessment Project can be found at http://www.dds.ca.gov/QA/.
 
The public policy staff in Washington DC will be meeting with State Executive Directors and other policy staff from chapters across the country to discuss a variety of issues such as ABLE Updates, WIOA and HCBS updates, Education, and other issues. Members may participate in the call, contact Gwen Lopez for details: (916) 552-6619.
 
Friday June 24, 2016
We'll be participating in the California Collaborative for Long Term Services and Supports (CCLTSS) in Sacramento.
 
The Interagency Coordinating Council for Early Start will be working to finish drafting the ICC's Recommendations on the Screening and Assessment of Social and Emotional Development.  The meeting will take place from 10:00 a.m. to 2:00 p.m. at WestEd in Sacramento.   
 
The NCE conference planning committee will meet to review the current status of our summer training Community for All-Our promise, Our challenge and any new developments in the program. Not too late to register for this year's NCE Summer Leadership Institute in Palm Springs July 18-20, 2016.
 
Today is the deadline for the National Conference of Executives of The Arc Distinguished Professional Awards for the year-round hard work they do, and the advances they continue to make for people with I/DD. "The Awards allow us the opportunity to spotlight programs and best practices, recognize our peers, and show off your chapter's triumphs at the NCE Awards Luncheon during our National Convention in October. What are you waiting for? Nominating someone couldn't be easier. Learn about our new categories, how to submit, and more here. If you have any questions, contact Ilyse Kramer by email or at 202.534.3707.

THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION:  Public Policy Reports 
 
State
This week the California Department of Developmental Services anticipates informing the community providers about the rate increase amount to services which begin as of July 1, 2016. The Lanterman Coalition negotiated a variety of increases for developmental services with the intent of trying to stabilize the community system and stop the trend of collapse statewide. While the provider surveys were slow to come in to DDS the department now is seeing a trend of having more enough surveys for some acceptable level of confidence in their estimations to pay out the increases negotiated. The administration and the legislature agreed to commit a significant increase of state general funds for wages and benefits for the community Direct Support Professionals and Case Mangers etc., across the board increases for in-home and out-of-home respite, supported and independent living services, and transportation.
 
Summary of State Appropriation:
SEC. 15.(a)The sum of two hundred eighty-seven million dollars ($287,000,000) is hereby appropriated from the General fund to the State Department of Developmental Services to provide all of the following, effective July 1, 2016:
(1) Twenty-nine million seven hundred thousand dollars $29,700,000) for regional centers for staff, in an allocation to be determined by the department.
(2) One million four hundred thousand dollars ($1,400,000) for regional centers for administrative costs, in an allocation to be determined by the department. This amount includes an amount to be allocated by the department or regional center clients' rights advocates contracts pursuant to subdivision (b) of Section 4433.
(3) Nine   million   nine   hundred   thousand   dollars ($9,900,000)   for administrative costs for service providers, in an allocation to be determined by the department.
(4) One hundred sixty-nine million five hundred thousand dollars ($169,500,000) for a rate increase for staff providing direct services employed by a community-based provider organization, in a manner to be determined by the department.
(5) A 5-percent rate increase or supported and independent living services.
(6) Twenty million dollars ($20,000,000) for competitive integrated employment incentive payments.
(7) A 5-percent rate increase for n-home and out-of-home respite services.
(8) A 5-percent increase for transportation services.
(9) A three-dollar-and-forty-two-cent ($3.42) per hour rate increase for supported employment providers.
(10) Eleven million dollars ($11,000,000) for bilingual staff at regional centers and implementing plans and recommendations to address disparities. (b)These funds shall be available for encumbrance until June 30, 2017, and available for expenditure until June 30, 2019.
SEC. 16. The increases in rates and payments provided for in this be effective July 1, 2016, and August 1, 2016, as expressly provided in this act, unless otherwise provided in this act. (AB 2x-1 Thurmond).
 
As a reminder "direct services" are services, supports, care, supervision, or assistance provided by staff directly to a consumer to address the consumer's needs, as identified in the individual program plan, and include staff's participation in training and other activities directly related to providing services to consumers, as well as program preparation functions as defined in Section 4302 of Title 17 of the California Code of Regulations.

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National
 
Posted on June 20, 2016 by The Arc  
 
Washington, DC - The Arc's Center for Future Planning™ is pleased to announce it has received a $200,000 two-year grant from the MetLife Foundation. This funding will be dedicated toward developing a new financial literacy training program for families that include a child with intellectual and developmental disabilities (I/DD), with a specific interest in reaching historically underserved racial and ethnic communities.
 
Research has shown that disability and poverty are intertwined, and many families that have a child with I/DD struggle financially. Often, income declines when a child with I/DD is born because parents take time off of work or leave the workforce entirely to care for the child's needs. This reduction of household income, combined with the income and asset limits in many public means-tested benefits available to these families, only complicates asset building.
 
The training will address these challenges by educating and supporting low-income families to lay the foundation for a secure financial future for their child with I/DD. More specifically, The Arc will develop a financial literacy curriculum that can be later distributed throughout The Arc's national network of over 650 chapters. Topics to be covered will include credit, debt, choosing financial products and services, investing, and asset protection, as well as disability-related topics, such as information on benefits for people with disabilities, as well as special needs trusts and ABLE Act accounts.
 
"During our 65 year history, The Arc has always recognized the importance of supporting families of people with I/DD. In these challenging economic times, it is all the more important that we work with families of children with I/DD to stabilize the family's financial situation. This support from the MetLife Foundation will allow The Arc to assist families in achieving long-term financial stability," said Peter Berns, CEO of The Arc.
 
The Arc will lead a team to create a nationally replicable, culturally competent curriculum to provide financial literacy education to low-income families. After piloting the training with three chapters, The Arc will modify the curriculum so that it can be distributed through our network of chapters around the country. This work will also be supported by the Family Support Research and Training Center through a subcontract with the University of Illinois at Chicago and made possible by grant number 90RT5032-02-01 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) at the US Department of Health and Human Services Administration for Community Living (US DHHS/ACL).
 
The mission of The Arc's Center for Future Planning is to support and encourage adults with I/DD and their families to plan for the future. The Center provides reliable information and assistance to individuals with I/DD, their family members and friends, professionals who support them and other members of the community on areas such as person-centered planning, decision-making, housing options, and financial planning.
 
The Arc advocates for and serves people with intellectual and developmental disabilities (I/DD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of over 650 chapters across the country promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.
 
sign up for: The Arc US Capitol Insider
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SIGN UP FOR OUR NATIONAL ACTION ALERTS
  
Greg deGiere, Director of Public Policy The Arc and United Cerebral Palsy California Collaboration
Bill File: The Arc and United Cerebral Palsy California Collaborative
 
More crime victims with developmental disabilities should see their abusers brought to justice under a bill sponsored by the Arc & UCP that appear to be headed for passage this week.
 
AB 1272, introduced for us by Assemblywoman Shannon Grove of Bakersfield, passed the Senate Public Safety 7-0 last week. If it passes the full Senate this week, as expected, it will go to Governor Brown for signature (or, much less likely, veto).'
 
When a court has a case in which person with a developmental disability is the victim, our bill will require the judge to make reasonable effort to schedule the trail on a date that don't conflict with another trial with the same prosecutor. This will allow district attorneys to assigned more experienced, specialized prosecutors to these often complex and difficult cases - and allow prosecutor and the victim to bond as the case move from preliminary hearings to trail.
 
Our bill enjoys the support of the Judicial Council of California, represented the courts, making Brown's signature likely. Disability Rights California and the California District Attorneys Association also back the bill.
 
 
Greg

Thank you for your advocacy.
Greg deGiere
Public Policy Director
The Arc & United Cerebral Palsy California Collaboration
1225 Eighth Street, Suite 350, Sacramento, CA 95814
Community Organizing
 
Advocacy and Community Organizing
Tim Hornbecker, Director of Advocacy and Community Organizing
Report

Advocacy 'Outside the Box' or Disability Silo!
 
The Lead Community Organizer for Genesis, Mary Lim-Lampe, received the Earl B. Cruiser Advocacy Award from The Arc of Alameda County. Genesis is the Oakland affiliate of Gamaliel, a nationwide non-profit organization providing leadership training, advocacy and community organizing. This Advocacy award was named after one of their first executive directors, Earl Cruiser, in 1969-71. He was active with parents of The Arc as they fought for the passage of the Lanterman Act, which was signed into law in 1971!
 
Mary Lim-Lampe led advocacy training classes for consumers, as well as being an advocacy coach and one-on-one mentor. The goal of the classes was to teach clients the skills necessary to tell their personal stories effectively and powerfully, in order to generate support from locally elected officials and state/federal legislators.
 
Because of that training, clients of The Arc made a persuasive presentation at the Genesis Issues Assembly, where all of Genesis member organizations voted for the top three issues to adopt. The Assembly voted for "Justice for People with Disabilities" as one of their top issues! Then in concert with other Genesis organizations, The Arc clients joined with these social justice groups that are not part of the disability network or silo, and met with their legislators in Sacramento. As a human and civil rights issue, they asked for the 10% state budget increase in support of the Lanterman Coalition's goals.
 
In accepting her award in front of 150 consumers and their families, Mary emphasized everyone's right to vote, especially in this Presidential Election Year! Mary will be working with interns from St. Mary's College, teaching our self advocates their voting rights and 'Getting Out the Vote'!
 
Congratulations to Genesis and Mary Lin-Lampe!

Tim Hornbecker, Director
Advocacy and Community Organizing tim@thearcca.org


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Teresa Anderson, Prevention Coordinator
PREVENTION ACTIVITIES
Valarie Lipow from the Southern California FASD Network announced that there are two important surveys being conducted on issues impacting people with Fetal Alcohol Spectrum Disorders (FASD). One survey is a national survey focused on Special Education and FASD and the other is an international survey focused on Health issues and FASD.
 
Special Education Survey and FASD (Fetal Alcohol Spectrum Disorders).  This survey intends to address the needs of Students on the Spectrum for Special Education Services. The Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) and several National Organization on Fetal Alcohol Syndrome (NOFAS) affiliates have designed a Web-based survey to better understand the educational experiences of students with an FASD, their parents and caregivers, and professionals involved in this field (the survey should take approximately 10 minutes to complete). The information collected from this survey is intended for policy makers, schools, service providers, community organizations, and advocacy groups to better understand and address the education needs - especially as it regards the Individualized Education Plan (IEP) process - of individuals with FASD. The groups acknowledge the lack of effective FASD diagnostic services available throughout the United States, and encourage individuals and their caregivers to complete the survey if they have a diagnosis of FASD or if they suspect that they are impacted by prenatal exposure to alcohol. If you have any questions on the survey, please reach out to sara@mofas.org.
 
"We are three adults with FASD (Myles Himmelreich, CJ Lutke, and Emily Travis) who do public speaking and act as mentors to others with FASD. We want to know about the physical health of other adults with FASD because it is important for doctors and researchers to find out if adults with diagnosed FASD might be at higher risk for some health problems. We want them to do the research to help all of us live healthy lives. We need your help. There are doctors and researchers who are very interested in doing this research, and we will be presenting this information at the next Vancouver FASD conference in April, 2016.  This survey will take about 20 minutes to complete. It is anonymous and no one will know who you are. We would like to know your age, whether you are male or female and your diagnosis, but nothing else. Please ask any other people you know who have diagnosed FASD to do this survey too. They should do their own form. Everything listed in this survey are health problems or things that affect one's ability to function well and live a healthy lifestyle. Please tell us if you have any of these. If you have something not on this list, please add it in because it is important that we get as much information as possible. If you need help completing this survey, or are unsure if the name of the disease or an item on the list is what you have, please take it to someone you trust who knows you and ask them to help. Many of the words are medical terms, but we have tried to give a simple explanation of what they mean. This survey is important! It is about us and for us and is being done by us. We are the first to ask these questions and we can get the results to the important researchers. Please help all of us with FASD by filling it out and sending it back to us."
 
Teresa Anderson, MPH
The Arc California
Prevention Coordinator
teresa@thearcca.org
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UPCOMING EVENTS
  
July 18-20, 2016
Summer Leadership Institute for the National Conference of Executives of The Arc annually hosts the Summer Leadership Institute (SLI), at different sites around the country. NCE strives to provide our attendees with educational materials that will help our members develop and hone their professional skills so that we can all work better and smarter towards our shared purpose - realization of The Arc's Core Values. This years' SLI will be in California at the Renaissance Palm Springs Hotel, Palm Springs.
 
July 31-August 2, 2016
Registration Open for Reinventing Quality. The 2016 Reinventing Quality conference, Assuring Quality Lives for Everyone: Moving from the Why to the How, will be held July 31-August 2, 2016 at the Renaissance Baltimore Harbour place Hotel, in Baltimore, Maryland. The 2016 Reinventing Quality Conference is jointly hosted by the National Association of State Directors of Developmental Disabilities Services (NASDDDS), Research and Training Center on Community Living at the University of Minnesota, Human Services Research Institute (HSRI), University of Delaware National Leadership Consortium, American Network of Community Options and Resources (ANCOR), TASH, and American Association on Intellectual and Developmental Disabilities (AAIDD)
 
October 21 and 22, 2016 
Consortium for the Educational Advancement of Travel Instruction will be hosting. "Takin' It to the Streets: Skills to Further Enhance Your Practice of Travel Instruction ". ACVREP Credits Available, at RTC of Southern Nevada, 600 S. Grand Central Parkway, Suite 350, Las Vegas, NV 89106 (Space is limited to 100 attendees!). A few of the keynote sessions include: "The American with Disabilities Act - 25+ Years of Providing Freedom". Anthony A. Anderson, JD; "Boots on the Ground: 13,140 days as a career Travel Instructor and Certified Orientation and Mobility Specialist or Why my Hair Turned White at 30".Lydia Barden Peterson, MS; "Influencing Drivers and Reducing Street Crossing Risk: What Research Tell Us". Conference Registration: Early Bird (by 7/31) - $125, Advanced (8/1-10/14) - $150, On-Site (after 10/14) - $175. To register by mail or email, please use PDF form. Available here >>>. Online registration form and payment option using PayPal here >>>. Dates/deadlines and cancellation policy appear on the PDF form. HOTEL ACCOMMODATIONS: The Orleans
4500 West Tropicana Avenue, Las Vegas NV 89103
www.orleanscasino.com/groups or 800-675-3267, Group Name: CEATI     Reservation ID: A6RTC10, Questions? Email pfurlong831@gmail.com.
 
October 27-29, 2016
2016 National Convention & International Forum "Shaping the Future" will be in Orlando, FL this year and will be a joint disability event with The Arc of the United States and Inclusion International. "Join the global conversation as people from all over the world share best practices, struggles, successes, and hopes for the future. Our collective work is toward a common goal-to protect and promote the human and civil rights for individuals with intellectual and developmental disabilities in the U.S. and abroad. Attendees can expect to make enduring personal and professional connections while learning how to shape the future for the better.
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RECENTLY RELEASED REPORTS, STUDIES, ETC.
 
Sandra Magana, Susan L. Parish, and Esther Son
 
Abstract
The aim of this study was to determine if racial and ethnic disparities in the quality of provider interaction have changed between 2006 and 2010 for children with developmental disabilities and autism spectrum disorders (ASD). Data from the 2005/2006 and 2009/2010 National Survey of Children With Special Health Care Needs were analyzed. Results show that racial and ethnic disparities in the quality of provider interactions were substantial in both 2005/2006 and 2009/2010. Black and Latino parents were significantly less likely than White parents to report that their provider spent enough time with their child and was sensitive to the family's values. Racial and ethnic disparities in health care quality were found to be unchanged over time. Research and policy implications are discussed.
 
...Conclusion
This study found new evidence that racial and ethnic disparities in the quality of health care provider interactions with parents of children with ASD/DD persist. Despite ongoing calls for interventions to reduce such disparities for the general, nondisabled population, there is no evidence that these disparities are being reduced over time. The need for policy makers, medical schools, and provider institutions to implement concrete measures to remedy this situation is imperative.
 
Article Citation:
Sandra Magana, Susan L. Parish, and Esther Son (2015) Have Racial and Ethnic Disparities in the Quality of Health Care Relationships Changed for Children With Developmental Disabilities and ASD?. American Journal on Intellectual and Developmental Disabilities: November 2015, Vol. 120, No. 6, pp. 504-513.
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NEWS ARTICLES
 
Mugshot of Luis Gomez
By Luis Gomez | 2 p.m. June 14, 2016
Special Ed's Brewery drew criticism over its beer labels mocking people with developmental disabilities. The backlash intensified so much that the brewer shut down its Facebook Page and leave its website unfinished. Special Ed's Brewery drew criticism over its beer labels mocking people with developmental disabilities. The backlash intensified so much that the brewer shut down its Facebook Page and leave its website unfinished. - Special Ed's Brewery website. Special Ed's Brewery is learning a valuable business lesson: Branding is important.
 
It's hard to believe the Ed in question, a brewer from the small city of Galt in Sacramento County, didn't see controversy coming when he teased a soon-to-launch beer brand with slogans like "Ride the Short Bus to Special Beer" and "Back of the Bus Brown Ale," references most people would associate witth developmental disabilities and the segregation-era policy that forced African Americans to sit in the back of buses. Bottles were also reportedly labeled as " 'tard tested, 'tard approved."
 
The criticism over the offending labels appears to have become so intense on Monday that the creator, identified by the Sacramento Bee as Edward Mason, shut down the brewery's Facebook Page. A web cached version of the page still shows some angry comments as well as the brewer's apology.
 
A post from Monday says: "So after talking with my wife, would more people be happy with the name Ed's Special Brewery or Ed's Special Brew? I never wanted the intent to be that I'm insensitive or some of the horrid things I've been called today but maybe these names will help... would appreciate the feed back. I just wanted to have some fun with my name.." In one sign of how personal the criticism became, the brewer addressed one critic: "I have no problems doing fundraisers for any good causes and especially Special Olympics as it is near and dear to my heart... Contact me any time to set up a time to discuss this... but please first take down my home address..."
 
Here are some sample criticisms.
Kristy Banathy wrote: "Change the name, change the art, CHANGE YOUR IGNORANCE AND ATTITUDE! Educate yourself, love more, hate less, realize that when we put others down, we do the same to ourselves. Respect differences, and love others for them. Please." Michael Lee wrote: "Hopefully they will open soon and close down just as quickly. Galt doesn't have room for people who think mocking the disabled is good business practice." The firestorm appears to be going beyond Facebook. The brewery's Yelp page got slammed with so many negative comments that a pop-up message says the page is undergoing a "cleanup process" given the "business recently made waves in the news." And as news of the brewery's marketing began to spread late Monday and into Tuesday, so did the criticism. Special Ed's Brewery branding backlash. The Arc of California, an advocacy group representing people with intellectual and developmental disabilities, also jumped on Twitter to criticize the slogans: 'Verbal offensive attack on our community'
 
A Sacramento-area radio station published on its website a public apology made by the creator, originally from the brewery's Facebook Page, in which he says the logos "were made at a family get together poking fun at several family members" and that "they were never intended to be put out in public view." As of mid-Tuesday, the fate of Special Ed's Brewery remained unclear. But it certainly seems a branding lesson has sunk in, if not sunk this company.
 
The Atlantic June 15, 2016
By Alia Wong
 
We're looking for readers based in or near Washington, D.C., to come chat with us about how to improve our site. If that's you, fill out this form and we'll be in touch. Today, more than 1 million students are trapped in an education system that wasn't built for them. That system wasn't designed to accommodate their disabilities-the kinds of intellectual, cognitive, communicative, and physical conditions that often conjure images of people reliant on wheelchairs and aides, of individuals consigned to dreary, isolated lives. Many of the public schools they attend rest on the assumption that those stereotypes are inevitable truths. But these students, even those with the most severe disabilities, have potential far beyond what they are often educated for. Although the law known as the Individuals With Disabilities Education Act, or IDEA, has long required schools to help students design "transition plans" and provide job training for their lives after graduation, a majority of adults with intellectual or developmental disabilities are unemployed or underemployed. According to a 2012 Bureau of Labor Statistics survey of disabled adults, that's largely because of a lack of training and education, which respondents listed as the most common barrier to employment aside from the disabilities themselves. "The big concern that remains [is] what happens when you're done ... and you're finished with school? Are you sitting at home on the couch?" said Margaret ("Muncie") Kardos, a Connecticut-based educational consultant who helps students with disabilities plan for the transition. The poor preparation, she said, leaves many special-needs people with few other options.
 
Their prospects at graduating are grim to begin with: Nationally, only about two-thirds of students ages 14 through 21 with disabilities graduate with a regular diploma, while most of the remaining students simply drop out. And these figures encompass all students with disabilities, including those who are relatively high-functioning. The statistics for those who are severely disabled are much more bleak. Compared to their peers from all disability groups, youth with intellectual disabilities, for example, have the lowest rates of education, work, or work preparation after high school. A 2011 Department of Education study that looked at the outcomes of young adults with disabilities up to six years after high school found fewer than half of the young adults with multiple disabilities had a paid job at the time of the survey, compared to 79 percent of young adults with specific learning disabilities such as dyslexia. If and when special-needs adults are employed, it's often in jobs when they're working exclusively alongside other people with disabilities. In 2014, a Justice Department investigation found that thousands of disabled adults in Rhode Island were fed into "sheltered workshops"-doing jobs like placing tops on bottles and stickers on boxes-for just $2.21 an hour on average. Some of the disabled employees, the report found, were even working for free: A commercial greenhouse, for example, didn't pay people for picking dead leaves off of plants because the work was deemed "therapeutic." According to the Washington Post, 30 percent of intellectually disabled adults who were employed in 2014 were working in sheltered workshops where they were segregated from non-disabled adults...
 
Tennessee Times Free Press June 19th, 2016
By Andy Sher
 
NASHVILLE - A new Tennessee program is now available to help people with qualified disabilities and their families or legal representatives save, invest and earn money tax-free to fund allowable expenses such as housing and health needs. State Treasurer David Lillard said Tennessee is among the first states to offer an Achieving A Better Life Experience program. The ABLE Tennessee program, administered through the Tennessee Department of Treasury, is designed to help people with intellectual and physical disabilities save with no impact on federal means-tested benefits so long as the 401k-style investment accounts are less than $100,000.


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FUNDING OPPORTUNITIES

 
CNCS - Corporation for National and Community Service 2016 Foster Grandparent Program (FGP) Indian Tribes, Native Hawaiians, and Pacific Islanders Competition Modification 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=283512
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Centers for Disease Control - OSTLTS PPHF 2016: Preventive Health and Health Services Block Grant - Preventive Health and Health Services Block Grant Modification 2 http://www.grants.gov/web/grants/view-opportunity.html?oppId=284536
 
USDOJ - Department of Justice Office of Justice Programs Office for Victims of Crime OVC FY 16 Using Telemedicine Technology to Enhance Access to Sexual Assault Forensic Exams Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284672
 
HHS - Department of Health and Human Services Health Resources and Services Administration Service Area Competition Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284683
 
HHS - Department of Health and Human Services National Institutes of Health Metabolic Contributions to the Neurocognitive Complications of Diabetes: Ancillary Studies (R01) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284685
 
HHS - Department of Health and Human Services National Institutes of Health Neurocognitive Effects of Glycemic Dysregulation in Type 1 Diabetes (DP3) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284686
 
HHS - Department of Health and Human Services Food and Drug Administration Evaluating predictive methods and product performance in Healthy Adults for Pediatric Patients, Case Study: Furosemide (U01) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284619
 
HHS - Department of Health and Human Services National Institutes of Health Limited Competition: NIDCR Supplements to NCATS CTSA Programs for Scholars Pursing Dental, Oral and Craniofacial Clinical and Translational Research Career Development (Admin Supp) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284637
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Centers for Disease Control and Prevention - ERA NIOSH Support for Conferences and Scientific Meetings (R13) Modification 7 http://www.grants.gov/web/grants/view-opportunity.html?oppId=257213
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Centers for Disease Control and Prevention - ERA Occupational Safety and Health Training Project Grants (T03) Modification 11 http://www.grants.gov/web/grants/view-opportunity.html?oppId=279237
 
HHS - Department of Health and Human Services National Institutes of Health Small Research Grants for Establishing Basic Science-Clinical Collaborations to Understand Structural Birth Defects (R03) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284532
 
HHS - Department of Health and Human Services Centers for Disease Control and Prevention Centers for Disease Control - OSTLTS PPHF 2016: Preventive Health and Health Services Block Grant - Preventive Health and Health Services Block Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284536
 
HHS - Department of Health and Human Services National Institutes of Health Biophysical and Biomechanical Aspects of Embryonic Development (R01) Grant http://www.grants.gov/web/grants/view-opportunity.html?oppId=284537


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
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The Arc of Illinois is the leading advocacy organization supporting individuals with intellectual and developmental disabilities throughout the State of Illinois. Terri Devine, Arc of Illinois Board Chair, has announced that Tony Paulauski will be retiring after 25+ years as Executive Director. She will be leading the board search committee to find a visionary leader who will continue the good work of the Arc of Illinois. The candidate for this position will be an experienced professional advocate for people with intellectual/developmental disabilities and their families. Additionally, S/he will have a demonstrated ability to cultivate relationships with Arc Chapters, other disability providers, associations, funders and political leaders. Candidates must have senior administrator experience in a disability related organization, hold a Bachelor's Degree (Masters preferred) in a related discipline and have proven background in governmental affairs, finance, development and personnel management. The Executive Director will represent the organization throughout the State of Illinois. The Executive Director reports to a volunteer Board of Directors.
 
Some of the responsibilities include: Ideal candidate will have experience in inpatient setting; written and oral communication skills, knowledge of utilization management & skills in case management, time management, and crisis intervention common to acute psychotic as well as to non-violent crises intervention practice. Candidate must have knowledge of acute psychological disorders; advanced principals of abnormal psychology as specifically applied to adults, geriatrics, and adolescents; familiarity with follow-up resource services; skills in conducting group therapy. Skills in maintaining information as highly confidential. Ability to clearly summarize pertinent clinical information via written correspondence and medical records documentation. Providing quality case management to psychiatric patients; to serve as a member of the interdisciplinary team supporting the organization s treatment program and philosophy and assure the deliverance of quality treatment to psychiatric patients and their families. Requirements: Education: Master s Degree from an accredited college or university in social work, counseling psychology, mental health or a related field preferred.
 
County of Ventura's Human Services Agency, is currently seeking a Chief Deputy Director. The ideal candidate will possess excellent organizational, budgeting, administrative/ management, supervisory skills and extensive leadership experience in in a large, complex, multi-disciplinary public human service delivery system. The ideal candidate will further be a highly motivated executive with excellent communication and interpersonal skills, and a passion for providing the highest quality of services to the community. The individual will also have a successful track record of establishing and maintaining successful collaborative relationships among a variety of stakeholders in a comprehensive public human service system.
 
The UC Davis Health System, MIND Institute Physician Clinic Director is responsible for patient care and administration in the Massie Clinic; an outpatient health care clinic serving individuals with neurodevelopmental disorders. The Physician Clinic Director will ensure efficient and effective patient care through joint planning and problem solving with the practice manager, CAO, and Executive Director and provide care consistent with medical best practices and the policies and procedures of the organization. This position will utilize professional skills in providing diagnosis, assessments, and treatment to individuals with neurodevelopmental disabilities. Additionally, this position will assist in the development and coordination of systems for clinical care for the Massie Family Clinic, which assures a multi-disciplinary, comprehensive, patient-oriented approach to patient care. The Physician Clinic Director is accountable for the overall quality, appropriateness, efficiency, and effectiveness of health care delivered within the clinic.
 
Under the general direction of the Deputy Director, Developmental Centers Division (Division), the incumbent provides executive-level leadership; assists the Deputy Director with statewide clinical and program administration, policy formulation and implementation, program evaluation, and quality management for the Division, consisting of 24-hour State-operated developmental centers (DC) and community facility (CF), and the headquarters (HQ) support services operation. Routine communications and work with Executive Management at each of the 24-hour/7 day facilities managed by the Department of Developmental Services.
 
The executive search firm of Saenger Associates has been exclusively retained to conduct a search for an Executive Director for our client, a pioneer in providing services to Seniors and their families for more than 40 years. Our client provides comprehensive services for more than 10,000 seniors annually, including 500 daily meals; 200 home delivered. Additionally, the organization oversees 3 contracts for affordable senior only communities. Our client plans to open a new central facility in late 2017 that is triple the size of their present facility. Position responsibilities: Reporting to the Board of Directors, provide overall leadership for the agencies' continuing evolution and significant growth, Successfully lead, manage and execute a continued transition to balance business needs and expanded programs, Continue the company's partnering with other 501 (c) (3) organizations, Act as the FACE of the organization. . . We would welcome your comments and appreciate any thoughts you have on this truly unique and outstanding growth opportunity. Interested candidates, please send your resume to jobs@saengerassociates.com.  
 
The Chief Executive Officer will lead PRRC to an increased sense of community engagement, both inside and out. This position offers an exceptional opportunity to set the agenda and lead PRRC, together with the Board of Directors, to achieve its strategic vision. The CEO directs and oversees all aspects of the agency, including strategic planning and achievement of the mission and goals. In addition, the CEO is responsible for fiscal and budgetary management, program and service development, community relations and fundraising, operations, and the development of a skilled workforce. The CEO manages the resources of a $6.5 million annual operating budget, a staff of approximately 120, $10 million in assets and the provision of services to over 420 clients in San Francisco and San Mateo Counties. Scott E. Miller, Direct: (415) 613-1354, Scott@ScottMillerExecutiveSearch.com, Scott Miller Executive Search, 1231 Francisco Street, San Francisco, CA 94123.
 
Under the direction of the Deputy Director, Developmental Centers Division (DCD), the Executive Director serves as the Chief Executive Officer of Sonoma Developmental Center (SDC) and is delegated responsibility for all clients and staff within SDC. The Executive Director is responsible for providing the leadership necessary to assist SDC in maintaining certification and the ongoing relationships with the local community; works as member of the DCD management team to achieve organizational goal sand works to support the DDS in fulfilling the Department's vision, "Building Partnerships, Supporting Choices." The Executive Director has twenty-four hour overall responsibility for the management and oversight of all DC operations and programs, including the health and safety of residents and staff.
 
The Assistant Executive Director for Employment and Day Services (AED) is a senior level position that reports directly to the Executive Director. The AED is responsible for planning and oversight of all operations in the Employment and Day Services division, the agency's largest division. The AED seeks to fulfill The Arc Baltimore's commitment to maximizing employment outcomes for all people supported by leading and managing The Arc Baltimore's strategic efforts to best align its supports to enable each individual's desired employment outcome. The position is also responsible for ensuring access to innovative, meaningful and integrated (i.e. community-based) activities for those who choose not to work (e.g. are retired).

The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.

The Arc California, 1225 8th Street, Suite 350, Sacramento, CA 95814
 
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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494