an incredible conference! Eventually we sold out the house by Monday
afternoon. Look for our save the date announcements and early bird
registrations by the end of the year in 2015.
page will allow you to relive the entire conference and view the
handouts and PowerPoints (many of which were not in your conference
bags). See you again next year, and don't forget, I want to see those
Lanterman Act books we gave you looking well read and wore out!
If you didn't get a chance to be at the 2015 conference now you can experience almost the whole event here on this webpage.
conference was kicked off with a presentation by Tony Anderson on the
"10 Campaign" followed by a panel of Lanterman Coalition members
(Dwight Hansen, The Alliance, Connie Lapin, Autism Society, Eileen
Richey, Assocaition of Regional Center Agencies, Kevin Rath, CA Respite
Lanterman Coalition Presentation
The next speaker was former long time legislative staffer and Assembly woman from the East Bay's 14th District, Dion Aroner, who talked about our past victories and significant moments in the California Developmental Services history.
Dion Aroner: Session 2
we had a great presentation on the status of the Early Start program in
California, a history of important milestones for early start policies,
and the latest developments and progress of the California babies.
Marie Poulsen, Ph.D. of the USC UCED, Children's Hospital Los Angeles,
has focused her work "on building resilience in infants and young
children at risk due to biological and psychosocial circumstances" and
After our guests got settled
in for lunch we honored Bob Perrotti, former President of The Arc
California, during "The Arc v DDS" lawsuit that saved the Lanterman Act
entitlement 30 years ago, for a lifetime of advocacy for people with
developmental disabilities. Barbara Maizie knew Bob for many years and
presented the award post humously and Pastor Betty Clark, President of
The Arc Alameda received the award for him.
Bob Perrotti Award
Our keynote lunch speaker was Laura Brackin, Ph.D. who presented on a very important policy change on the new Home and Community Based Services setting rules set by the Center for MediCaid and MediCare Services (CMS). Dr. Brackin is
the former state chapter Executive Director for The Arc of Louisiana,
and former Director of the Louisiana Department of Developmental
Lunch Keynote - CMS New Rules with Laura Brackin, Ph.D.
FIRST DAY - AFTERNOON PROGRAM
Sunday March 8, 2015
1:30 pm to 5:30 pm
afternoon program opened with re-known advocate, Ari Ne'eman, Director
of the Autistic Self-Advocate Network (ASAN), as he gave an update on
his organization's policy priorities. He does an amazing job and really
captures the audience's attention.
Ari Ne'eman Presentaton
Ari then joined us on a wonderful panel of
experts who addressed questions touching on conservatorship policies,
futures planning, advanced directives, supported decision making,
self-advocacy, and more.
Ron Brown, President of The Arc United
States, gave us a great run down of national initiatives from The Arc of
the United States and public policy priorities. He also gave his view
and appreciate as a father of a daughter with a developmental disability
and a message of hope for all people with intellectual and
developmental disabilities in this country.
Ron Brown, President of The Arc of the United States
FIRST DAY - CLOSING RECEPTION
Sunday March 8, 2015
Mr. Wesley Chesbro
We ended the day with drinks and hors d'oeuvres, recognizing and
honoring Wesley Chesbro, former Senator and Assembly member, for his
many important contributions to the lives of people with intellectual
and developmental disabilities and their families. Mr. Chesbro gave a
great speech remembering many important moments during his tenure and
took questions from the advocates as he always did when he was the
Wesley Chesbro "Lifetime Achievement Award"
SECOND DAY - MORNING PROGRAM
Monday March 9, 2015
of our favorite repeat presenters, Scott Graves, the Director of
Research at the California Budget and Policy Center, gave a great
overview on the current state of of the state budget.
Scott Graves, California Budget and Policy Center
Assemblymember Shirley Weber, Chair of the
Assembly Budget Committee, was recognized for her advocacy for our
community with our Leadership for Change Award". She gave a great
speech and received much appreciation and applause especially when she
told the advocates that this year the "Calvary is Coming" acknowledging
the terrible cuts and the need for for a budget increase.
Assembly member Dr. Shirley Weber
"Leadership for Change Award"
Rashi Kersarwani, from the Legislative
Analyst Office, followed Dr. Weber, and gave a little more detail on the
budget especially as it relates to the Department of Developmental
Services. (sorry there was no PowerPoint or video for this
presentation). She did reference their Budget Report and brought additional Fact Book statistics.
Senator Jim Beall, Jr. was recognized as our "Legislator
of the Year" where he gave a very moving and motivating speech as a
"Giant" in our community. Senator Beall has been a true champion again
for people with developmental disabilities and their families, holding
the informational hearing in Los Angeles of Oct 2014, authoring a
sign-on letter shortly after urging for reform in funding the system,
speaking in favor of reforming the rates in committee hearings,
personally supporting the appointment of Director Santi Rogers,
attending rallies in support of developmental services, and authoring a
sign-on letter for a 10% signed by 37 legislators and counting...
Senator Jim Beall, Jr. at the Lanterman Coalition Rally March 2015
his one year anniversary as the Director of the Department of
Developmental Services Mr. Santi Rogers provided an energetic and
passionate address. He was there when many of the major milestones were
achieved in our system and he gave the audience a thorough review of
many important touch points in our history. As always he brought the Lanterman Act
with him, as he carries it where ever he goes, but this time he also
brought one for all the advocates in attendance. Director Rogers has
over 45 years of service to people with intellectual and all
developmental disabilities and their families with early connections to
The Arc San Joaquin where he spent hisearly years. Check out this video of his keynote.
Santi Rogers, Director of Department of Developmental Services
Lunch Keynote March 9, 2015
SECOND DAY - AFTERNOON BREAKOUT
Monday March 9, 2015
The worst part about the breakouts is that you have to choose
which one you'll attend. All are very important and packed with rich
opportunities to learn from experts on topics such as the ABLE Act, Self-Determination,
and Health Services and Advocacy. If that wasn't hard enough in the
second set of breakout you have to choose from Updates on Supported
Living Service Changes, and Managed Care experiences in the nation.
ABLE Act with Stephen Dale of the dale Law Firm:
Stephen W. Dale ABLE Act
Self-Determination Program with Jim Knight, Assistant Deputy Director, Department of Developmental Services:
Coordinated Approaches to Health Service, Dr. Clarissa Kripke, Office of Developmental Primary Care, Department of Family and Community Medicine, University of California, San Francisco.
SECOND DAY - AFTERNOON PROGRAM
Monday March 9, 2015
Following the breakouts we honored Assembly
Assembly member Brian Maienschein
Brian Maienschein for his great advocacy work in Assembly especially
regarding his work in the areas of improving employment outcomes and
fighting for justice for people with intellectual and developmental
disabilities in our community.
Next on our program was Stephen
Bennett, the CEO of the National United Cerebral Palsy (UCP) office who
gave of of the most popular talks of the conference as he brought the
results of a study by UCP on what's the most effective way to talk to
people about the needs of people with developmental disabilities.
Chad Carlock, Esq., gave a great overview of the victory of The Arc,
UCP v Douglas, Delgadillo, lawsuit and impact on our community. The
video below includes both speeches.
Stephen Bennett, Executive Director United Cerebral Palsy and Chad Carlock, Esq. Legal Counsel for The Arc et al v Douglas et al.
Our final topic for the conference was
organized by Teresa Anderson featuring Leigh Ann Davis from The Arc of
the United States, National Center on Criminal Justice and Disability™ (NCCJD).
This was a great talk and as you'll see the audience had so many
questions and comments on this topic it could have gone on all night.
Leigh Ann Davis, The National Center on Criminal Justice and Disability™ (NCCJD)
SECOND DAY - CLOSING RECEPTION
Monday March 9, 2015
Senator Fran Pavley
We ended the conference with a recognition of Senator Fran
Pavley for her legislative advocacy for our community especially
regarding her work to improve employment outcomes and to address crime
against people with disabilities.