The California Fetal Alcohol Spectrum Disorders Task Force
to advance the effective prevention and treatment of fetal alcohol spectrum disorders (FASD) in California.
Who We Are
The task force is an independent, public-private
partnership of parents and professionals from many disciplines
committed to improving the lives of Californians affected by FASD and
eliminating alcohol use during pregnancy. Through innovation,
education, advocacy and research, the task force provides leadership in
mobilizing broad-based support and sustainable resources statewide to
lessen the lifelong physical, psychological, emotional and economic
burden of this preventable public health problem on individuals,
families and communities.
What We Do
The CA FASD provides leadership in
mobilizing broad-based support for sustainable resources, advocacy, and
education. We meet quarterly and serve as a working group for the state
strategic plan on FASD. Our overarching goal is to increase positive
birth outcomes by preventing prenatal alcohol exposure and FASD and to
ensure support for people with FASD and their families.
Why We Do It
FASD affects all areas of life. It demands an enormous financial
and social commitment from our state, communities, and families. FASD
is te most known and completely preventable cause of intellectual
disability and increases the risk for many other birth, behavioral, and
FASD Task Force list is made up of people with Fetal Alcohol Spectrum
Disorder, family advocates, government officials, policy makers and
their staff, FASD advocacy groups, and other concerned professionals.
The purpose for the list is to coordinate efforts and improve
communication among individuals who have a shared goal of improving the
lives of people with FASD and their family members.
literally means Nine Months, Zero Alcohol and is our trademarked word
for a project that educates and creates public awareness of a serious
public health issue - Fetal Alcohol Spectrum Disorders (FASD). NineZero
is becoming the name and the project many organizations across the
country recognize as the leader for FASD prevention.
Southern California FASD Information & Support Network
SoCal NOFAS - the Southern California affiliate of NOFAS is located in San Diego. SoCal NOFAS formed a partnership with UCSD and Rady Children's Hopital to be part of San Diego's Institute for Fetal Alcohol Spectrum DIsorders DIscovery. The role of SoCal NOFAS is to offer support to families as well as bring awareness and education to prevent future alcohol affected births. SoCal NOFAS also hosts the only monthly parent/caregiver support meeting in San Diego. We meet the 2nd Tuesday of every month on the Rady Children's Hospital campus.
Peggy Combs-Way President SoCal NOFAS www.socalnofas.org
FASD NorCal is a group of parents and professionals aiming to foster diagnosis, services and support for everyone affected by fetal alcohol damage in Northern California. We have monthly parent support meetings,and all are welcome to join us as we plan our actions and advocacy. Our primary goal at this point is to raise awareness: we consult with families and agencies; provide and host trainings, and disseminate research and practice findings regarding FASD.
Woman California is an initiative working with individuals, health care
providers and communities to improve the physical, emotional and social
well-being of women during the years in which they can become pregnant,
to ensure the health of current and future generations.
Medical Investigation of Neurodevelopmental Disorders
of Hope (COH) mission is "to increase understanding and support, and
strengthen recovery, for women who drank during pregnancy, and their
families." The goals are to improve and strengthen the lives of birth
families, provide them with peer support and decrease the stigma, blame
and shame that birth families may experience.
increases the quality of life for our most vulnerable by providing
resources and support for children with special needs, their families,
Screening Women, Intervention, and Prevention
Alcohol and Women: How to Screen and Intervene
In this CDC Expert Commentary in partnership with Medscape, Dr.
Joe Sniezek discusses steps health care providers can take to detect and
intervene with women who drink alcohol at risky levels. Advice is based
on guidance from the American College of Obstetricians and
video tells the story of one family living with FASDs. Every family has
unique experiences, challenges, and successes. The intent of this video
is not to endorse specific interventions, but to share one family's
story and hope.
ASD affects all areas of life. It demands an enormous financial and
social commitment from our state, communities, and families. FASD is te
most known and completely preventable cause of intellectual disability
and increases the risk for many other birth, behavioral, and mental
Fetal Alcohol Spectrum Disorders are 100% Preventable
Today is National FASD
Awareness day where advocates will be gathering in small and large
groups all over California, the nation, and the world, in recognition of
the impact alcohol has had on developing fetuses. Most importantly
though we ask that you take a moment to reflect on the needs of so many
families and people living their lives with FASD who struggle to deal
with dramatic impairments to executive functioning with as many as 20%
with intellectual disabilities.
Advocates will gather for a
moment of silence, a solemn bell concordance at 9:09 am, or
participating in a variety of other activities, see Ways to Recognize FASD Day.
behalf of the members in the chapters of The Arc California and the
affiliates of United Cerebral Palsy in California we join the California
Task Force on Fetal Alcohol Spectrum Disorders in recognizing 9/9 2014
as FASD Awareness Day, September as FASD Awareness Month, and everyday
as a day to overcome the impact of this 100% preventable disorder.
Sincerely Tony Anderson The Arc and UCP California Collaboration
Arc of The United States is implementing an exciting project to "start
the conversation that could prevent a serious condition which often goes
undiagnosed. FASDs are the most common condition associated with
intellectual and developmental disabilities that are 100% preventable.
As a health care professional/ provider (HCP) you can change a life by
starting the conversation. But, often it is a difficult one to start."
Check out these valuable resources created from The Arc US FASD Prevention Project:
laminated guide is a simple list of links to information and resources.
It is designed to be a quick reference that is easily accessible at a
moment's notice. Several topics and areas of interest are listed, but
for additional, in-depth information, please visit The Arc's FASD web
message may be simple-no amount of alcohol during pregnancy is
safe-however, starting the conversation about FASD prevention isn't
always simple. HCPs have expressed that there are situations where the
message is hard to deliver. This guide addresses these obstacles and
provides options and resources for how to discuss alcohol and pregnancy
folder provides information about Fetal Alcohol Spectrum Disorders
(FASDs) culled from The Arc's fact sheet about FASDs. It also includes
information about the project and The Arc. In addition the outside flap
of the folder invites health care professionals/ providers (HCPs) to
become more involved in the project or pose questions to FASD experts on
our web site. The folder also doubles as a table top display that you
can refill with FASD information materials for women.
Nine Months, Zero Alcohol
Arc Riverside has been a leader in prevention and treatment of/for FASD
in California for over 10 years. Click on the image above an learn
more about the advocacy of The Arc Riverside and their NineZero
National Institute of Health statement on International FASD Awareness Day
Koob, Ph.D., director, & Kenneth R. Warren, Ph.D., deputy director
National Institute on Alcohol Abuse and Alcoholism)
Fetal Alcohol Spectrum Disorders (FASD) Awareness Day, recognized every
year on Sept. 9th, is an important reminder that prenatal alcohol
exposure is the leading preventable cause of birth defects and
developmental disorders in the United States. Almost 40 years have
passed since we recognized that drinking during pregnancy can result in a
wide range of disabilities for children, of which fetal alcohol
syndrome (FAS) is the most severe. Yet, 1 in 13 pregnant women report
drinking in the past 30 days. Of those, about 1 in 6 report binge
drinking during that time.
9th is International Fetal Alcohol Spectrum Disorders Awareness Day, a
reminder that all nine months of pregnancy should be alcohol-free for
the health of your child.
disabilities associated with FASD can persist throughout life and place
heavy emotional and financial burdens on individuals, their families,
and society. FASD often brings to mind the distinct pattern of facial
features associated with FAS, such as wide-set and narrow eyes, a smooth
ridge on the upper lip, and a thin upper lip border. We now understand,
however, that the neurobehavioral effects associated with FASD, such as
intellectual disabilities, speech and language delays, and poor social
skills, can exist without the classic defining facial characteristics.
Check out this video The Arc Riverside made with US Olympic Beach
Volleyball Champions Keri Walsh and Holly McPeak years ago. It's a
little dated but the message is as timely as ever, "If you're pregnant
don't drink. If you're dring don't get pregnant. Nine months Zero
This year I've brought together 22 experts to provide FASD training on the theme "Building a Bridge to Adulthood". Topics will include:
When you register, you will also get a chance to win one of the following items:
1st Prize: The Living With FASD 2014 Summit series ($147 value)
2nd Prize: Copy of Nathan Ory's eBook "Working with People with Challenging Behaviors" A Guide to Maintain POSITIVE Relationships" ($29.95 value)
3rd prize: Copy of Dr. Rod Densmore's eBook "FASD 101: What I Have Learned So Far..." ($15 value)
Register FREE & ENTER 2 WIN.
AND when you invite others you know who may benefit from this
information to register (via e-mail, Facebook, Twitter) you will receive
EXTRA entries into our draw!
Register FREE & ENTER 2 WIN.
Like last year, our 12 day online Summit will run from September 9th to
September 20th and will feature two trainings per day. To accommodate
all timezones, life schedules, and financial situations, we will again
offer each training for FREE for 48 hours.
Register FREE & ENTER 2 WIN.
During the Summit, you will have the opportunity to purchase all MP3s,
transcripts and slideshow materials at a very special price.
For more information about this year's topics and speakers, check out our program page:
out this App for your mobile device developed by the Center for Disease
Control & Prevention (CDC) "to access the latest information
related to alcohol and pregnancy and fetal alcohol spectrum disorders
What can you do with this App?
Research the Alcohol consumption data by state.
Access easy-to-read information on diagnosis and treatments for children with FASDs.
Check out specialized information pages for: women, families, health care providers, educators, and partners.
Get free material and training and education resources.
month, Dan Dubovsky, M.S.W., the Center's FASD Specialist, or a special
guest expert will write about an aspect of FASD. Our hope is that this
new column will provide vital up-to-date information on FASD for a
variety of stakeholders. We are particularly excited for the first
edition since it gave us the privilege of interviewing Dr. Kenneth Lyons
Jones and Dr. Ann Streissguth, two of the seminal early researchers in
the FASD field. Most of the breakthroughs in FAS and FASD over the last
40 years may not have been possible without their groundbreaking work,
and we appreciate them taking the time to provide their perspectives. In
this edition of "Ask the Expert," Drs. Jones and Streissguth reflect on
the advances made in FAS and FASD over the last 40 years and also share
their thoughts on future directions for the field.
Learn more about California resources, local support groups, county contacts, state departments, and national resources at the CA FASD Task Force.
Alcoholism is a disease, if you are unable to stop drinking please use
our county contact list to get help for your benefit and the benefit of
your unborn child.