tony@thearcca.org
 
The California Fetal Alcohol Spectrum Disorders Task Force
to advance the effective prevention and treatment of fetal alcohol spectrum disorders (FASD) in California.
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Who We Are

The task force is an independent, public-private partnership of parents and professionals from many disciplines committed to improving the lives of Californians affected by FASD and eliminating alcohol use during pregnancy. Through innovation, education, advocacy and research, the task force provides leadership in mobilizing broad-based support and sustainable resources statewide to lessen the lifelong physical, psychological, emotional and economic burden of this preventable public health problem on individuals, families and communities.
What We Do

The CA FASD provides leadership in mobilizing broad-based support for sustainable resources, advocacy, and education.  We meet quarterly and serve as a working group for the state strategic plan on FASD.  Our overarching goal is to increase positive birth outcomes by preventing prenatal alcohol exposure and FASD and to ensure support for people with FASD and their families.

Why We Do It
FASD affects all areas of life.  It demands an enormous financial and social commitment from our state, communities, and families.  FASD is te most known and completely preventable cause of intellectual disability and increases the risk for many other birth, behavioral, and mental disabilities.
FASD Support Networks
  • The Arc of California

Teresa Anderson

1225 8th Street, Suite 210

Sacramento, CA 95814

916-552-6619

http://www.thearcca.org/ 

 

The California FASD Task Force

CA FSD Task Force List Serv: fasd_task_force-subscribe@yahoogroups.com

 

The FASD Task Force list is made up of people with Fetal Alcohol Spectrum Disorder, family advocates, government officials, policy makers and their staff, FASD advocacy groups, and other concerned professionals. The purpose for the list is to coordinate efforts and improve communication among individuals who have a shared goal of improving the lives of people with FASD and their family members.

http://arcriversideca.org/ninezero/ 

 

NineZero literally means Nine Months, Zero Alcohol and is our trademarked word for a project that educates and creates public awareness of a serious public health issue - Fetal Alcohol Spectrum Disorders (FASD). NineZero is becoming the name and the project many organizations across the country recognize as the leader for FASD prevention. 

  • Southern California FASD Information & Support Network

https://sites.google.com/site/socalfasdnetwork 

Valerie Lipow 2641

Brighton Rd, Carlsbad, CA 92010

760.730.1972/760.845.1650

vallipow@aol.com

 

SoCal NOFAS - the Southern California affiliate of NOFAS is located in San Diego.  SoCal NOFAS formed a partnership with UCSD and Rady Children's Hopital to be part of San Diego's Institute for Fetal Alcohol Spectrum DIsorders DIscovery.   The role of SoCal NOFAS is to offer support to families as well as bring awareness and education to prevent future alcohol affected births.   SoCal NOFAS also hosts the only monthly parent/caregiver support meeting in San Diego.  We meet the 2nd Tuesday of every month on the Rady Children's Hospital campus.
 
Peggy Combs-Way
President
SoCal NOFAS
www.socalnofas.org


FASD NorCal is a group of parents and professionals aiming to foster diagnosis, services and support for everyone affected by fetal alcohol damage in Northern California.  We have monthly parent support meetings,and all are welcome to join us as we plan our actions and advocacy.  Our primary goal at this point is to raise awareness:  we consult with families and agencies; provide and host trainings, and disseminate research and practice findings regarding FASD.
 
Contact Kathy Page

707-996-7846707-996-7846

kathryn.page@sbcglobal.net

  • California Fetal Alcohol Syndrome Network

www.nofas.org/state-resources-for-california/

 

The Fetal Alcohol Support Network of California provides on-line support to the caregivers of children either diagnosed or suspected of having Fetal Alcohol Spectrum Disorders (FASD).

  • Every Woman California

Preconception Health Council of CA

www.everywomancalifornia.com 

 

Every Woman California is an initiative working with individuals, health care providers and communities to improve the physical, emotional and social well-being of women during the years in which they can become pregnant, to ensure the health of current and future generations.

  • MIND Institute

Medical Investigation of Neurodevelopmental Disorders

http://www.ucdmc.ucdavis.edu/mindinstitute/ 

 

The UC Davis MIND is a collaborative international research center, committed to the awareness, understanding, prevention, care, and cures of neurodevelopmental disorders.

Parents & Family Supports

  • Adaptive Learning Center - Concord

3227 Clayton Road

Concord CA  94519

925-827-3863

http://centerforadaptivelearning.org/ 

 

  • Family Soup

Cindy E. Chandler, Executive Director

1650 Sierra Ave., Suite 106

Yuba City, CA 94993

(530) 751-1925

http://www.familysoup.org 

 

  • Circle of Hope

Creating a Circle of Hope to Prevent Fetal Alcohol Syndrome Disorders

 

Circle of Hope (COH) mission is "to increase understanding and support, and strengthen recovery, for women who drank during pregnancy, and their families." The goals are to improve and strengthen the lives of birth families, provide them with peer support and decrease the stigma, blame and shame that birth families may experience.

 

  • Parents Helping Parents (Resources)

http://www.php.com/resources 

 

PHP increases the quality of life for our most vulnerable by providing resources and support for children with special needs, their families, and caregivers.


Screening Women, Intervention, and Prevention

 

  • Alcohol and Women: How to Screen and Intervene
     
    In this CDC Expert Commentary in partnership with Medscape, Dr. Joe Sniezek discusses steps health care providers can take to detect and intervene with women who drink alcohol at risky levels. Advice is based on guidance from the American College of Obstetricians and Gynecologists.

http://www.cdc.gov/ncbddd/fasd/multimedia.html#Video 

 

  • FASD Video

CDC's Elizabeth Dang discusses the risks of alcohol use during pregnancy and fetal alcohol spectrum disorders.

http://www.cdc.gov/ncbddd/fasd/multimedia.html 

 

  • FASD Video

CDC's Elizabeth Dang discusses fetal alcohol spectrum disorders and the importance of not drinking alcohol during pregnancy.

http://www.cdc.gov/ncbddd/fasd/multimedia.html 

 

  • The Story of Iyal

This video tells the story of one family living with FASDs. Every family has unique experiences, challenges, and successes. The intent of this video is not to endorse specific interventions, but to share one family's story and hope.

http://www.cdc.gov/ncbddd/fasd/multimedia.html 

 

  • Fetal Alcohol Syndrome Prevention Using Community-Based Narrowcasting Campaigns
  • YouTube

FASD Prevention - Mother and Son

http://www.youtube.com/watch?v=LHVfPg9tpSY 

 

  • YouTube

FASD Prevention - Family

http://www.youtube.com/watch?v=UVNO6FCNVVg 

 

  • YouTube

FASD Prevention - Family

http://www.youtube.com/watch?v=mJKnxYI3k2A 

 

  • YouTube

FASD Prevention - Happy Hour

http://www.youtube.com/watch?v=-zi1Q09jHWo&feature=channel&list=UL 

 


Next Meeting: Wednesday
December 3, 2014
AGENDA:
MINUTES: September 3, 2014

FASD Websites and Links

Fetal Alcohol Answers

  • NOFAS - National Organization on Fetal Alcohol Syndrome

http://www.nofas.org/

 

  • FASCETS - Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc.

http://www.fascets.org/

 

  • FAS Community Resources - Fetal Alcohol Syndrome Community Resources Center

www.come-over.to/FASCRC/

 

  • FASSTAR Enterprises - Fetal Alcohol Syndrome Support, Training, Advocacy, and Resources

http://www.fascets.org/

 

California County Contacts

California State Agencies

 

  • Department of Health Care Services

Office of Women's and Perinatal Services

http://www.dhcs.ca.gov/individuals/Pages/OWPS-SUD.aspx

 

  • CA Dept of Public Health

Perinatal Substance Use Prevention

http://www.cdph.ca.gov/programs/perinatalsubstanceuse/Pages/default.aspx

 

  • CA Dept of Developmental Services

Early Start

http://www.dds.ca.gov/EarlyStart/WhatsES.cfm

 

 

Federal Government FASD Websites

 

  • Center for Disease Control and Prevention

http://www.cdc.gov/ncbddd/fasd/multimedia.html#Video

 

  • Fetal Alcohol Specturm Disorder - Center for Excellence

http://fasdcenter.samhsa.gov

ASD affects all areas of life.  It demands an enormous financial and social commitment from our state, communities, and families.  FASD is te most known and completely preventable cause of intellectual disability and increases the risk for many other birth, behavioral, and mental disabilities.
Contact Us
Tony Anderson
The Arc California

Developmental Pediatricians and Therapists

Developmental Pediatrics

  • Kenneth Lyons Jones, MD

http://www.lifescript.com/doctor-directory/pediatrician/san-diego-california-ca-kenneth-lyons-jones-jr-md.aspx

Pediatric Endocrinology, Genetics

7920 Frost Street

San Diego CA  92123

(858) 966-7484

  • Rady Children's Hospital

http://www.rchsd.org/

3020 Children's Way

San Diego, CA  92123

(858) 576-1700

  • Mary O-Conner, MD

http://www.semel.ucla.edu/profile/mary-oconnor

Semel Institute for Neuroscience and Human Behavior

760 Westwood Plaza

Los Angeles, CA  90024

ACCESS Center (800) 825-9989 or (310) 825-9989

  • Gary Feldman, MD

http://www.memorialcare.org/apps/docfinder/provider_detail.cfm?phys_id=20363

Long Beach Memorial Hospital

Stramski Children's Developmental Center

2650 Elm Avenue, #301

Long Beach, CA  90806

(562) 728-5034

 

Therapists

  • Christina Emanuel, MFT, PsyD 
    Psychotherapy & Psychoanalysis
    16 S. Oakland Ave., Suite 201, Pasadena, CA 91101
    (626) 396-9798
Child Screening and Assessment Tools
  • Diagnostic Clinical Interview
  • Wechsler Intelligence Scale for Children - Fourth Edition (WISC-IV)
  • Test of Non-Verbal Intelligence - Third Edition
  • Childhood Autism Rating Scale (Examiner and Parent Administered)
  • Gilliam Autism Rating Scale (Examiner and Parent Administered)
  • Gilliam Asperger's Disorder Scale (Examiner and Parent Administered)
  • Test of Visual-Perceptual Skills (Non-Motor): Upper Level
  • Beery-Buktenica Developmental Test of Visual-Motor Integration (VMI)
  • Bender Gestalt Visual-Motor Test
  • Rey-Osterrieth Complex Figure
  • Test of Adolescent and Adult Language - Third Edition
  • Wide Range Achievement Test - Third Edition (WRAT-3)
  • Wechsler Individual Achievement Test - Second Edition (WIAT-II)
  • Gray Oral Reading Test - Fourth Edition
  • Test of Written Language- Third Edition
  • Test of Auditory Perceptual Skills- Revised
  • California Verbal Learning Test for Children (CVLT-C)
  • Wide Range Assessment of Memory and Learning
  • NEPSY: A Developmental Neuropsychological Assessment
  • Wisconsin Card Sorting Test
  • House-Tree-Person Projective Drawings (HTP)
  • Kinetic Family Drawing (KFD)
  • Rorschach Psychodiagnostic Test
  • Thematic Apperception Test
  • Reynolds Anxiety Scale
  • Reynolds Depression Scale
  • Reynolds Suicide Scale
  • Multi-Score Depression Inventory
  • Child Neuropsychological History
  • Caregiver Questionnaire
  • Conners' Rating Scales for Attention Deficit Hyperactivity Disorder
  • Attention Deficit Hyperactivity Disorder Test
  • Differential Test of Conduct and Emotional Problems
  • ACTeRS Rating Scales for Attention Deficit Hyperactivity Disorder
  • Achenbach Child Behavior Checklist

 

 



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CA Fetal Alcohol Spectrum Disorders Task Force
15th Annual FASD Awareness Day  
Tuesday September 9, 2014   
Fetal Alcohol Spectrum Disorders are 100% Preventable

Today is National FASD Awareness day where advocates will be gathering in small and large groups all over California, the nation, and the world, in recognition of the impact alcohol has had on developing fetuses.  Most importantly though we ask that you take a moment to reflect on the needs of so many families and people living their lives with FASD who struggle to deal with dramatic impairments to executive functioning with as many as 20% with intellectual disabilities.

Advocates will gather for a moment of silence, a solemn bell concordance at 9:09 am, or participating in a variety of other activities, see Ways to Recognize FASD Day.

On behalf of the members in the chapters of The Arc California and the affiliates of United Cerebral Palsy in California we join the California Task Force on Fetal Alcohol Spectrum Disorders in recognizing 9/9 2014 as FASD Awareness Day, September as FASD Awareness Month, and everyday as a day to overcome the impact of this 100% preventable disorder.

Sincerely
Tony Anderson
The Arc and UCP California CollaborationcollaborationLogo

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The Arc of The United States is implementing an exciting project to "start the conversation that could prevent a serious condition which often goes undiagnosed. FASDs are the most common condition associated with intellectual and developmental disabilities that are 100% preventable.  As a health care professional/ provider (HCP) you can change a life by starting the conversation. But, often it is a difficult one to start."

  

Check out these valuable resources created from The Arc US FASD Prevention Project:

The laminated guide is a simple list of links to information and resources. It is designed to be a quick reference that is easily accessible at a moment's notice. Several topics and areas of interest are listed, but for additional, in-depth information, please visit The Arc's FASD web pages.

The message may be simple-no amount of alcohol during pregnancy is safe-however, starting the conversation about FASD prevention isn't always simple. HCPs have expressed that there are situations where the message is hard to deliver. This guide addresses these obstacles and provides options and resources for how to discuss alcohol and pregnancy with women.

The folder provides information about Fetal Alcohol Spectrum Disorders (FASDs) culled from The Arc's fact sheet about FASDs. It also includes information about the project and The Arc.  In addition the outside flap of the folder invites health care professionals/ providers (HCPs) to become more involved in the project or pose questions to FASD experts on our web site. The folder also doubles as a table top display that you can refill with FASD information materials for women. 
Nine Months, Zero Alcohol
The Arc Riverside has been a leader in prevention and treatment of/for FASD in California for over 10 years.  Click on the image above an learn more about the advocacy of The Arc Riverside and their NineZero project...

National Institute of Health statement on International FASD Awareness Day

(George Koob, Ph.D., director, & Kenneth R. Warren, Ph.D., deputy director National Institute on Alcohol Abuse and Alcoholism)

 

International Fetal Alcohol Spectrum Disorders (FASD) Awareness Day, recognized every year on Sept. 9th, is an important reminder that prenatal alcohol exposure is the leading preventable cause of birth defects and developmental disorders in the United States. Almost 40 years have passed since we recognized that drinking during pregnancy can result in a wide range of disabilities for children, of which fetal alcohol syndrome (FAS) is the most severe. Yet, 1 in 13 pregnant women report drinking in the past 30 days. Of those, about 1 in 6 report binge drinking during that time.

 

September 9th is International Fetal Alcohol Spectrum Disorders Awareness Day, a reminder that all nine months of pregnancy should be alcohol-free for the health of your child.   

 

The disabilities associated with FASD can persist throughout life and place heavy emotional and financial burdens on individuals, their families, and society. FASD often brings to mind the distinct pattern of facial features associated with FAS, such as wide-set and narrow eyes, a smooth ridge on the upper lip, and a thin upper lip border. We now understand, however, that the neurobehavioral effects associated with FASD, such as intellectual disabilities, speech and language delays, and poor social skills, can exist without the classic defining facial characteristics. 

 

Learn more about alcohol and pregnancy 

 

######


Volleyball Professionals - Kerri Walsh
NineZero Project
The Arc Riverside
Check out this video The Arc Riverside made with US Olympic Beach Volleyball Champions Keri Walsh and Holly McPeak years ago.  It's a little dated but the message is as timely as ever, "If you're pregnant don't drink.  If you're dring don't get pregnant.  Nine months Zero Alcohol..."

This year I've brought together 22 experts to provide FASD training on the theme "Building a Bridge to Adulthood". Topics will include:

  • Interdependent vs. independent living
  • Vocation and employment
  • Diagnosis and research
  • Mental health
  • Substance use and treatment
  • Legal issues
  • Sex

Register FREE & ENTER 2 WIN

When you register, you will also get a chance to win one of the following items:

  1. 1st Prize: The Living With FASD 2014 Summit series ($147 value)
  2. 2nd Prize: Copy of Nathan Ory's eBook "Working with People with Challenging Behaviors" A Guide to Maintain POSITIVE Relationships" ($29.95 value)
  3. 3rd prize: Copy of Dr. Rod Densmore's eBook "FASD 101: What I Have Learned So Far..." ($15 value)

Register FREE & ENTER 2 WIN.  AND when you invite others you know who may benefit from this information to register (via e-mail, Facebook, Twitter) you will receive EXTRA entries into our draw!

 

Register FREE & ENTER 2 WIN.  Like last year, our 12 day online Summit will run from September 9th to September 20th and will feature two trainings per day. To accommodate all timezones, life schedules, and financial situations, we will again offer each training for FREE for 48 hours.  

 

Register FREE & ENTER 2 WIN.  During the Summit, you will have the opportunity to purchase all MP3s, transcripts and slideshow materials at a very special price.   

 

For more information about this year's topics and speakers, check out our program page:

http://LivingWithFASD.com/program-2014/

 

Yours in support,

David Gerry  



There's an App for that...

Check out this App for your mobile device developed by the Center for Disease Control & Prevention (CDC) "to access the latest information related to alcohol and pregnancy and fetal alcohol spectrum disorders (FASDs)!" 

What can you do with this App?

Research the Alcohol consumption data by state.

Access easy-to-read information on diagnosis and treatments for children with FASDs.

Check out specialized information pages for: women, families, health care providers, educators, and partners.

Get free material and training and education resources.
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Ask the Expert
  

Every month, Dan Dubovsky, M.S.W., the Center's FASD Specialist, or a special guest expert will write about an aspect of FASD. Our hope is that this new column will provide vital up-to-date information on FASD for a variety of stakeholders. We are particularly excited for the first edition since it gave us the privilege of interviewing Dr. Kenneth Lyons Jones and Dr. Ann Streissguth, two of the seminal early researchers in the FASD field. Most of the breakthroughs in FAS and FASD over the last 40 years may not have been possible without their groundbreaking work, and we appreciate them taking the time to provide their perspectives. In this edition of "Ask the Expert," Drs. Jones and Streissguth reflect on the advances made in FAS and FASD over the last 40 years and also share their thoughts on future directions for the field.

Learn more about California resources, local support groups, county contacts, state departments, and national resources at the CA FASD Task Force.  Alcoholism is a disease, if you are unable to stop drinking please use our county contact list to get help for your benefit and the benefit of your unborn child.
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Teresa Anderson
Visit the NineZero website.NineZero: 9 Months 0 AlcoholThe Arc Riverside County
Prevention Coordinator
The Arc and United Cerebral Palsy in California
(916) 759-0163(916) 759-0163


Executive Director
The Arc California
(916) 552-6619(916) 552-6619



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The Arc of California, 1225 8th Street, Suite 350, Sacramento, CA 95814.  Office (916) 552-6619, Fax (916) 441-3494